End-of-Life Nursing Education Consortium Pediatric Palliative Care Course (ELNEC-PPC)

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1 End-of-Life Nursing Education Consortium Pediatric Palliative Care Course (ELNEC-PPC) June 10 11, 2013 Embassy Suites Chicago O Hare/Rosemont

2 Course Directors Deborah Echtenkamp, MSN RN CPON Pediatric Hematology/Oncology Clinical Nurse Specialist Medical City Children s Hospital Dallas, TX Purpose As pediatric hematology/oncology nurses, we work with many patients who, despite the ever-improving cure rates, will lose their battles with their life-threatening conditions. The Association of Pediatric Hematology/Oncology Nurses (APHON) is presenting a 2-day course discussing end-of-life care issues for children and their families. Who Should Attend Undergraduate and graduate pediatric nursing faculty Continuing education providers and staff development educators working in pediatric settings Hospice nurses Home-care nurses Advanced practice registered nurses/staff nurses working in pediatric acute-care settings (e.g., oncology, medical/surgical, palliative care, neonatal intensive care unit, pediatric intensive care unit, clinics, etc.) Other members of the pediatric interdisciplinary team, with the understanding that the curriculum is written by nurses for nurses Although geared toward nursing, the course can benefit healthcare providers from all disciplines who work with children and adolescents with cancer and blood disorders and their families. RNs who complete this course will be provided a certificate designating them as ELNEC- PPC Trainers. Non-RNs will receive a certificate designating them as ELNEC-PPC Trained. The End-of-Life Nursing Education Consortium (ELNEC) Project is a national end-of-life educational program administered by City of Hope National Medical Center (COH) and the American Association of Colleges of Nursing (AACN) and is designed to enhance palliative care in nursing. The ELNEC Project was originally funded by a grant from the Robert Wood Johnson Foundation with additional funding support from the National Cancer Institute, Aetna Foundation, Archstone Foundation, California HealthCare Foundation, and the Department of Veterans Affairs. Materials are copyrighted by COH and AACN and are used with permission. Further information about the ELNEC Project can be found at

3 Amy Corey Haskamp, MSN RN CNS CPON Pediatric Clinical Nurse Specialist Riley Hospital for Children at Indiana University Health North Carmel, IN Content Highlights Introduction to pediatric palliative care nursing Perinatal and neonatal palliative care Communication Ethical and legal issues Cultural considerations Pain management Symptom management Care at the time of death Loss, grief, and bereavement Models of excellence in pediatric palliative care Learning Objectives Describe the philosophy and principles of hospice and palliative care that can be integrated across settings to affect quality pediatric care. Identify the need for collaboration with interdisciplinary team members. Identify the development issues involved in pediatric palliative care. Describe the role of the nurse in providing quality palliative care for children and families. Identify changes in society, healthcare economics, and service delivery that necessitate improved professional preparation for palliative care. Discuss unique aspects of suffering for children and families facing a life-threatening illness or event. Continuing Education Credit Attendees can earn 13 continuing education credits by attending the 2-day course and completing and submitting a course evaluation. Contact hour certificates will be available to print online at the conclusion of the course. Make sure you are aware of the continuing education requirements of your state board of nursing, especially for those states in which continuing education is mandatory. The Association of Pediatric Hematology/Oncology Nurses (APHON) is accredited as a provider of continuing nursing education by the American Nurses Credentialing Center s Commission on Accreditation.

4 Deborah A. Lafond, DNP PNP-BC CHPPN CPON Nurse Practitioner, Pediatrics Advanced Needs Assessment and Care Team Children s National Medical Center Washington, DC Location and Hotel Information Embassy Suites Chicago O Hare/Rosemont 5500 North River Road Rosemont, IL Main Number: Reservations: Reservation Code: APHON Course Room Rate: $175 single/double, plus applicable taxes Cutoff Date: Monday, May 13, 2013 Rate includes complimentary 24-hour shuttle service to and from O Hare International Airport, a cooked-to-order breakfast each morning, and an evening reception. The group rate will be offered for 2 days before through 2 days after the meeting, based on availability. Information on air and ground transportation, parking, and local attractions is available at With Support From Division of Hematology/Oncology/Transplantation Disclosures All speakers and planners are required to disclose to course participants any relevant relationships, including financial interests or affiliations with a commercial company. Full disclosures will be made available to course participants by verbal or written statements prior to the course activity. The material presented in the course activity represents the opinion of the presenter and not necessarily the views of APHON.

5 End-of-Life Nursing Education Consortium Pediatric Palliative Care Course June 10 11, 2013 Embassy Suites Chicago O Hare/Rosemont Please print. Use a separate form for each registrant. Duplicate as necessary. For Office use only Cust# Date Mtg Ord #1- Complete Name First Name for Badge Job Title Facility Mailing Address n Home n Office City State/Province ZIP/Postal Code Country Home Phone Fax Office Phone (required) n Home n Office Emergency Contact Name Daytime Phone Evening Phone To register, make your selections in boxes A C. Course Registration On or before After 5/10/13 5/10/13 Member $400 $450 Nonmember* $500 $550 *Not already a member? See below. Register and Join or Renew On or before After 5/10/13 5/10/13 U.S. Residents Active Member $510 $560 Associate Member $500 $550 Full-Time Graduate Nursing Student* $490 $540 NSNA Student Member* $425 $475 Non-U.S. Residents Active Member $530 $580 Associate Member $520 $570 Full-Time Graduate Nursing Student* $510 $560 NSNA Student Member* $425 $475 *Student Discount: Professional nursing students may register at a special rate, which is available to full-time graduate students and APHON NSNA Nursing Members. Total $ A Special Requests I have other needs. (OTH) I require special assistance. Please contact me. (SA) I will need vegetarian meals. (SDV) I do not wish to have my name and contact information included in the onsite attendee list. (DIS) The following time slot offers three session choices. Please select the session you would like to attend. June 10, 3:30 4:30 pm Concurrent Sessions Module 2: Perinatal and Neonatal Palliative Care (101) Video: Lion in the House/Discussion (103) Non-Pharmacological Palliative Care (102) B C 4 easy ways to register Mail APHON PO Box 3781 Oak Brook, IL Phone* (U.S. residents only) Fax* Online* *credit card payment only Payment Visa Mastercard Discover American Express Check (enclosed) Make checks payable to APHON in U.S. funds. A charge of $50 will apply to checks returned for insufficient funds. If rebilling of a credit card charge is necessary, a $75 processing fee will be charged. I authorize APHON to charge the credit card listed below amounts reasonably deemed by APHON to be accurate and appropriate. Account Number Cardholder s Name (print) Exp. Date Signature Cancellation Policy: All cancellations must be made in writing. A $75 processing fee will be charged for all cancellations postmarked by May 27, No refunds will be made under any circumstances on cancellations postmarked after May 27, APHON reserves the right to substitute faculty or to cancel or reschedule sessions because of low enrollment or other unforeseen circumstances. If APHON must cancel the entire workshop, registrants will receive a full credit or refund of their paid registration fee. No refunds can be made for lodging, airfare, or any other expenses related to attending the workshop.

6 4700 W. Lake Avenue Glenview, IL End-of-Life Nursing Education Consortium Pediatric Palliative Care Course (ELNEC-PPC) June 10 11, 2013 REGISTRATION NOW OPEN! [ELNEC-PPC] was insightful and powerful. Emotionally captivating and a wonderful validation of how I feel doing my job. Past Attendee NON PROFIT U.S. Postage PAID Glenview, IL Permit No. 62

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