The 54 million people with disabilities currently living in the
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1 June 2014 Directory of Community-Bsed Orgniztions Serving People with Disbilities The 54 million people with disbilities currently living in the United Sttes experience numerous helth disprities, yet receive fewer preventtive services nd hve poorer helth sttus thn people without disbilities. 1,2 Therefore, locl helth deprtments (LHDs) must include people with disbilities s popultion when considering public helth intervention strtegies. The Ntionl Assocition of County nd City Helth Officils (NACCHO) promotes inclusion nd enggement of people with disbilities in plnning, implementing, nd evluting public helth progrms, products, nd services. With support from the Ntionl Center on Birth Defects nd Developmentl Disbilities t the Centers for Disese Control nd Prevention, NACCHO developed the following directory of communitybsed disbility orgniztions to support nd encourge LHDs to collborte with disbility orgniztions in their respective communities. This directory provides n overview of these orgniztions, the popultions they serve nd support, wys the orgniztions cn complement LHD efforts, nd links to websites tht provide informtion bout locl ffilites/chpters in vrious jurisdictions. NACCHO selected the orgniztions listed within becuse they were ntionlly recognized disbility orgniztions, hd locl chpters ntionwide, nd provided services to persons with vrious types of disbilities. While this directory is not exhustive, it illustrtes how LHDs cn collborte with community-bsed disbility orgniztions. People with disbilities nd community-bsed orgniztions cn support nd offer expertise to LHDs in numerous wys, including the following: Improving ccessibility to buildings nd other spce for people with disbilities; Developing methods to screen for chronic diseses mong people with disbilities; Incresing helth litercy nd ccessibility of helth informtion for people with disbilities; Including people with disbilities in the development of emergency prepredness plns nd exercises; Significnt helth disprities exist for persons with disbilities, including the following: Adults with disbilities re 58 percent more likely to be obese; 3 Children nd dolescents with disbilities re 38 percent more likely to be obese; 4 Cigrette smoking is significntly higher mong dults with disbility (25.4%) compred to dults without disbility (17.3%); 5 Fewer women with disbilities hve mmmogrms s recommended thn women without disbilities; 6 nd People with disbilities re not included in pre-disster emergency plnning. 7 Developing generl nd worksite helth promotion progrms for orgniztions tht support people with disbilities; Conducting environmentl helth scns nd developing strtegies to reduce environmentl toxins; Trining helthcre professionls bout the prticulr needs of people with disbilities; nd Creting progrms for preventing diseses such s brin injuries or birth defects. In ddition to the community-bsed orgniztions listed in the following tble, numerous disbility orgniztions nd service providers exist in locl jurisdictions, including the following: Residentil Hbilittion Homes (e.g., group homes, supported housing); Dy Trining nd Hbilittion Centers (e.g., voctionl trining centers, job coching); Advoccy Groups; Support Groups; nd Activity Clubs.
2 COMMUNITY-BASED ORGANIZATIONS SERVING PEOPLE WITH DISABILITIES Orgniztion Nme of orgniztion (listed lphbeticlly); description of services provided, popultion served, nd number of sttes with locl chpters; nd links to min website nd locl ffilites/chpters Helth Screening Progrm Ares Helth Litercy Emergency Prepredness Helth Promotion Environmentl Helth Trining Disese Prevention Americn Council of the Blind (ACB) ACB trcks nd dvoctes on ntionl, stte, nd locl issues relted to individuls tht re blind or hve visul impirments. ACB hs over 70 stte chpters or specil interest ffilites cross the country. Website: Locl Affilites/Chpters: The Arc* Although every chpter of The Arc my differ, most chpters provide n rry of support services for persons with developmentl nd intellectul disbilities in res relted to legisltive dvoccy, employment, trnsporttion, housing, helth promotion, inclusion in the community, nd ccess to medicl cre. The ARC hs nerly 700 chpters throughout ll 50 sttes nd Wshington, DC. Website: Locl Affilites/Chpters: Autism Society Autism Society provides informtion, referrls, nd dvoccy for individuls nd fmilies ffected by utism. One inititive focuses on improving environmentl helth nd reducing toxic substnces in the environment. Numerous Autism Societies exist throughout the country. Website: Locl Affilites/Chpters: utism-society/bout-the-utism-society/ffilites/ Brin Injury Assocition of Americ* The Brin Injury Assocition rises wreness of brin injuries nd provides resources, eduction, nd dvoccy to dvnce brin injury prevention, reserch, nd tretment. Chpters exist in numerous sttes throughout the country. Website: Locl Affilites/Chpters: * Indictes orgniztions tht hve people with disbilities in ledership positions. [ 2] Directory of Community-Bsed Orgniztions Serving People with Disbilities
3 Orgniztion Progrm Ares Nme of orgniztion (listed lphbeticlly); description of services provided, popultion served, nd number of sttes with locl chpters; nd links to min website nd locl ffilites/chpters Helth Screening Helth Litercy Emergency Prepredness Helth Promotion Environmentl Helth Trining Disese Prevention Centers on Independent Living (CIL)* CIL chpters re run primrily by people with disbilities nd offer services tht encourge independence, provide peer-led support, nd offer legl id services to people with disbilities. Ech CIL chpter my provide wide rry of services to ddress issues of discrimintion, housing ccessibility, nd community wreness bout disbility issues. CIL chpters exist in nerly every stte. Website: Locl Affilites/Chpters: Ester Sels Ester Sels offers vriety of services tht re vilble to children nd dults with disbilities. Depending on the locl chpter, these services my include child development centers, dult job trining centers, medicl rehbilittion centers, in-home support to older dults, nd recretion services. Ester Sels hs numerous chpters in nerly every stte. Website: Locl Affilites/Chpters: Fmily Voices (Fmily-to-Fmily Helth Informtion Centers) Fmily-to-Fmily Helth Informtion Centers re orgniztions in the community tht provide support, informtion, resources, nd trining to prents nd cregivers to help them ccess pproprite helthcre for their children with disbilities. Fmily-to-Fmily ffilites re in every stte. Website: Locl Affilites/Chpters: Goodwill, Inc. Goodwill is n interntionl orgniztion tht provides job trining nd employment ssistnce to persons with disbilities. Goodwill hs numerous stores in nerly every stte. Website: Locl Affilites/Chpters: Directory of Community-Bsed Orgniztions Serving People with Disbilities [3 ]
4 Orgniztion Progrm Ares Nme of orgniztion (listed lphbeticlly); description of services provided, popultion served, nd number of sttes with locl chpters; nd links to min website nd locl ffilites/chpters Helth Screening Helth Litercy Emergency Prepredness Helth Promotion Environmentl Helth Trining Disese Prevention Mrch of Dimes Mrch of Dimes supports pregnnt women nd mothers of smll children. Mrch of Dimes develops nd implements eduction nd helth cmpigns relted to the prevention of premture birth defects nd other infnt helth problems. Mrch of Dimes hs chpters in ll 50 sttes nd Puerto Rico. Website: Locl Affilites/Chpters: Mels On Wheels Mels On Wheels provides nutrition progrms to seniors living in senior center or t home. Mels on Wheels hs t lest one chpter in ll 50 sttes nd Wshington, DC. Website: Locl Affilites/Chpters: Ntionl Allince on Mentl Illness (NAMI) NAMI is mentl helth orgniztion tht supports persons ffected by mentl illness including friends or fmily members of person with mentl illness. NAMI dvoctes for improving the mentl helth system, rises wreness bout mentl illnesses, nd offers support groups. More thn 1,000 NAMI ffilites exist in ll 50 sttes. Website: Locl Affilites/Chpters: Ntionl Assocition of the Def (NAD) NAD increses wreness of the rights to equl opportunities for individuls tht re def or hrd of hering through informtion resources nd legisltive dvoccy. NAD hs one ffilite orgniztion in ll 50 sttes. Additionlly, numerous other orgniztions re ffilited with NAD. Website: Locl Affilites/Chpters: [ 4] Directory of Community-Bsed Orgniztions Serving People with Disbilities
5 Orgniztion Progrm Ares Nme of orgniztion (listed lphbeticlly); description of services provided, popultion served, nd number of sttes with locl chpters; nd links to min website nd locl ffilites/chpters Helth Screening Helth Litercy Emergency Prepredness Helth Promotion Environmentl Helth Trining Disese Prevention Ntionl Disbility Rights Network Ntionl Disbility Rights Network orgniztions provide leglly bsed dvoccy services to people with disbilities. These services re for vriety of legl issues including ccess to pproprite helthcre, ccess to mentl helth services, nd dequte receipt of food, clothing, nd helthcre. Website: Locl Affilites/Chpters: Ntionl Federtion of the Blind (NFB) NFB provides dvoccy, eduction, nd technology trining progrms to individuls tht re blind or re losing their vision. NFB hs over 700 chpters in ll 50 sttes including Wshington, DC, nd Puerto Rico. Website: Locl Affilites/Chpters: Ntionl Multiple Sclerosis (MS) Society The Ntionl MS Society provides informtion nd dvoccy resources to individuls with MS. The Ntionl MS Society provides specific informtion bout holistic helth for individuls with MS. MS Society chpters exist in numerous sttes throughout the country. Website: Locl Affilites/Chpters: Specil Olympics Specil Olympics provides dults nd children with intellectul nd developmentl disbilities (IDD) the opportunities to prticipte regulrly in sporting ctivities. The orgniztion lso leds n inititive to reduce helth disprities for persons with IDD. Specil Olympic chpters in nerly every stte re prtnering with locl helth professionl orgniztions nd prctitioners to increse ccessibility of both helthcre nd helth informtion for persons with IDD. Website: Locl Affilites/Chpters: Directory of Community-Bsed Orgniztions Serving People with Disbilities [5 ]
6 Orgniztion Progrm Ares Nme of orgniztion (listed lphbeticlly); description of services provided, popultion served, nd number of sttes with locl chpters; nd links to min website nd locl ffilites/chpters Helth Screening Helth Litercy Emergency Prepredness Helth Promotion Environmentl Helth Trining Disese Prevention United Cerebrl Plsy (UCP) UCP supports individuls with cerebrl plsy through dvoccy nd public eduction. UCP lso hs unique progrm tht funds innovtive technology projects tht improve ccessibility nd support the well-being of persons with disbilities. Website: Locl Affilites/Chpters: United Sttes Brin Injury Allince The United Sttes Brin Injury Allince provides eduction nd dvoccy on issues relted to the prevention of brin injuries nd support of individuls tht hve cquired brin injury. Brin Injury Allinces exist in pproximtely 20 sttes. Website: Locl Affilites/Chpters: References Reichrd, A., Stolzle, H., & Fox, M. (April 2011). Helth disprities mong dults with physicl disbilities or cognitive limittions compred to individuls with no disbilities in the United Sttes. Disbility nd Helth Journl, (4)2:59 67, DOI: /j. dhjo Acknowledgments This report ws supported by Coopertive Agreement #1U38OT from the Ntionl Center on Birth Defects nd Developmentl Disbilities t the Centers for Disese Control nd Prevention. NACCHO is grteful for this support. The contents do not necessrily represent the officil views of the sponsor. NACCHO lso thnks Jmes Mhoehney, MPH Cndidte t the University of Minnesot nd 2014 NACCHO Helth nd Disbility Fellow, for his extrordinry work on this document. FOR MORE INFORMATION, PLEASE CONTACT: Jennifer Li, MHS Director, Environmentl Helth nd Helth nd Disbility jli@nccho.org Srh C. Ytes, JD Progrm Anlyst, Helth nd Disbility nd Public Helth Lw sytes@nccho.org The mission of the Ntionl Assocition of County nd City Helth Officils (NACCHO) is to be leder, prtner, ctlyst, nd voice for locl helth deprtments th St, NW, 7th Floor Wshington, DC P F Ntionl Assocition of County nd City Helth Officils
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