Midland Family Whanau Summit Handbook

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1 Midland Regional Mental Health & Addictions Youth Summit Midland Family Whanau Summit Handbook 15 & 16 October Page 1

2 Jarrard O Brien Keynote Speakers Working Together to Improve Mental Health and Wellbeing Lynne Lane Dr Lane brings expert knowledge to the role of Mental Health Commissioner based on 18 years experience in health services strategic planning, funding and service management in both the public and private sector. As Chair Mental Health Commissioner for the Mental Health Commission before its disestablishment in June 2012, Dr Lane was instrumental in the development of the Blueprint II for Mental Health. A key driver of her career and her voluntary work has been a commitment to serving the public to improve their health and well-being. As Strategic Programme Manager, Jay manages a portfolio of work in order to meet the goals in the Mental Health Commissioner s work plan. This includes leading the development of a real-time feedback system which will amplify the voice of consumers/tangata whaiora and families/whānau in shaping services and driving continuous improvement. Jay also works jointly with Te Rau Matatini to strengthen kaupapa Māori services, particularly those supporting rangatahi, and he is undertaking doctoral research to support Māori youth suicide prevention. The Mental Health Commissioner is responsible for monitoring the progress of mental health and addiction services in implementing the goals outlined in the national Mental Health and Addictions Service Development Plan : Rising to the Challenge. In addition, the Commissioner advocates for systemic improvement to mental health and addictions services and provides independent advice to Government and the sector. The Commissioner works within the Office of the Health and Disability Commissioner, whose vision is to have consumer-centred services. This requires an understanding of consumer and family/whānau experience in order to advocate for services that better meet their needs. To achieve this understanding, the Mental Health Commissioner is developing an electronic system that will allow the public to provide feedback directly to service providers in real-time. The programme will facilitate dialogue between services and the people interacting with them, and will amplify the voice of the public in shaping local healthcare services. The real-time feedback system is essentially a programme of electronic surveys to record service user experience. Using an electronic platform allows greater mobility, meaning that people are able to provide feedback in hospitals, clinics, the community, and from home. The design includes online surveys and off-line surveys that can be completed on tablet devices, kiosks etc. All data will be automatically uploaded to a central database, removing the administrative burden of paper-based surveys. The database will include built-in analytics and a multi-layered reporting framework to ensure that providers, relevant agencies, and the public receive meaningful data in real time. The real-time feedback system is part of the Mental Health Commissioner s new monitoring framework that is being developed in consultation with sector key stakeholders. The information gathered through this system, and the Commissioner s other monitoring activities, will identify priority issues for systemic advocacy. Page 2

3 Keynote Speakers Family Connections; Assisting in untangling the tangle Roy Krawitz - NEA BPD NZ Rosemary Lean Co-Facilitator of the Family Connections Programme in Hamilton Susanne Jackson - Programme participant from Tauranga Families who have a loved one with Borderline Personality Disorder (BPD) face a challenging future with times of enjoyment and times of disharmony and emotional disregulation. Family Connections is a programme that was developed in the United States and is relatively new to New Zealand. It is targeted to parents, families, friends, spouses and children who have a loved one with BPD. Family Connections is an adaption of a decade of professionally-led family groups. These institution based family programmes have now been brought into the community are led by trained professionals and/or family members. Roy Krawitz will present on the background of the Family Connections programme and the lead up to its introduction in New Zealand. Organisational overview of Family Connections. Rosemary Lean will present about the programme content, the facilitation style and the strengths within the participating group. Suzanne will present from her perspective of being a participant in the programme, how her relationship with her family member was prior to attending the programme and how things changed for them both as a result of her attending the programme. Page 3

4 Working with addiction in the whanau context: Current thinking and practice and a vision for the future. Michael Bird I have been a Trustee of Kina for 4 years now and as of the 1 st July Kina moved under the wing of NSAD. That move aims to give Kina a more robust infrastructure to allow the Trust to better serve those for whom it advocates. After some 10 years of promoting the concept of Family Inclusive Practice to the Addictions sector and running training workshops for the addictions workforce it is now time to set an example to the sector though the delivery of services to those affected by others addictions. This is a work in progress and we will use this presentation to explore some of our findings and our vision for offering family members support for their issues. Personally I have been working in the addictions sector since 1998 and have over resent years through my governance roles become involved in the more strategic aspects of the sector. As a person in recovery from addiction and a family member I have a personal connection to this work. In 2006 I developed the resource bewildered for parents of teenagers with drinking and drug issues. The creation of this resource gave me great insight into the challenges facing family members in their daily lives and the shame and loneliness that goes along with that. In an age when whanau wellbeing is top of mind for many we as family oriented workers have a responsibility to explore the opportunities presented to us with both hands. At a time when the Ministry of Health is all about COPMI(A) (Children of Parents with Mental Health (and Addictions) there is an opportunity to be heard and to actually make a difference to whanau members and the health sector as a whole. Our interactive workshop will consider the environment in which we live and how we can best serve those for whom we work. What does the ideal look like and how can we, with the help of other agencies, work to achieving those goals? We will be coming at this topic from a mainly addictions perspective however we will be there to learn from those working in mental health and more general medicine. We will play video of people talking about there experience of being a concerned loved one and of seeking help for both themselves and those they love. We look forward to hearing the opinions and experiences of others. Page 4

5 We have the degree about us Tairawhiti RAP Project Hine Moeke Murray - Manager Te Kupenga Net Trust, Gisborne Bachelor Matauranga Maori, Post graduate Diploma Maori Studies, Post Graduate Diploma Maori and Management, Diploma Suicide Intervention and Prevention, Educator Maori Suicide and Intervention, Education Clinical Processes of Death and Dying. I am first and foremost wahine Maori, a wife, mum and grandmother. However in my other life I am the manager of Te Kupenga Net trust, and a cultural assessor for the Cultural Assessment Team Community Mental Health and Addictions Tairawhiti District Health Board. Previously I worked for Hauora Maori in General Medicine as the Kaiatawhai Advocate for Maori inpatients at TDH. I have also worked with the Bereavement Care Team (Mortality Management Specialists) Counties Manukau District Health Board. I was asked by Chloe to lead the development of the whanau section of the RAP document post the evaluation. I believe it adds value to the document as a whole and would like the opportunity to share this at the upcoming summit. Chloe Fergusson Bachelor of Arts majoring in Psychology and English. Currently completing a Master of Arts majoring in Psychology. I have two children and a wonderful partner. I also have a job working as the consumer leader across mental health and addiction services in Tairawhiti. My strengths are in recovery focused service developments, policy development, and advocacy for the people experiencing mental illness both in frontline services and at a leadership level. I have spent a lot of time coordinating the RAP project over the last months, and am truly satisfied with the outcome here in Tairawhiti. There was some hard mahi involved. Working together is always the goal - achieving it though, is something that takes time and effort. The way Tairawhiti uses RAP is unique, collaborative, and helpful, and I believe we have some good stuff to share. I m ecstatic about the whanau section of the document and know it adds absolute value to the document. It would be a pleasure to come and share RAP with you, with the focus being on the whanau section. The RAP project started in early 2012 and was co-ordinated by a consumer led organization called Te Kupenga Net Trust. In collaboration with Recovery Solutions, Turanga Health, Ngati Porou Hauora, Supporting Families, Tairawhiti District Health board NGOs, and the local Consumer Advisory Group the RAP document came to fruition. The RAP document is special because it had been created with large input from service users, which took place in the form of workshops and meetings to discuss what would be best to include in the plan. In the evaluation phase of the document it was recommended by service users that a component of the RAP document include a section for whanau members. This section was created with input from whanau and now offers equal space for whanau to be involved. This is the section we want to focus on at the whanau summit, as we believe it adds real value to whanau participation and involvement. The benefits of the RAP document are endless. Planning is something that has traditionally been done by clinical experts. The RAP plan allows the service user and their whanau to be the experts in their own care plan. The RAP document can be taken to any primary or secondary service (in Tairawhiti) where they receive mental health help and it will be responded to by the clinician/support worker so that the person is being cared for in a way that he/she has set out. The RAP has an advanced directive in it so that people can plan for crisis, it has a list of key people that should be involved/not involved in their care, and, it covers early warning signs, triggers, goals etc. The special thing about our RAP plan here in Tairawhiti is that it has been acknowledged as a document that will inform care by key stakeholders (listed above). More so the document is owned and developed by the service user and their whanau. There is a real shift here from traditional methods of working with people. Service users and their whanau now hold more power in their own care. Page 5

6 Calming the Waters Rolling with Resistance Maureen Rapana (Te Arawa/Ngai Tuhoe) Whanau Ora Kaihautu Te Utuhina Manaakitanga Trust I have a social work back ground and qualification and have been employed with Te Utuhina Manaakitanga Trust since 2010 as a Whanau Ora Kaihautu. Prior to this I worked as an Iwi Social Worker for several years. With two adult children and five mokopuna we are passionate about our Turangawaewae that sustains our whanau. Engaging with often traumatized addicted whanau has provided me with an opportunity to not only reflect on my practice, but to ensure that I continue to honor the whanau journey. I would like to honor one of our own much loved kuia, who during times of turbulence sacked me, hated me and loved me. Calming the waters and rolling with resistance can best describe much of the complex mahi undertaken by the whanau and the various stake holders in our community. The opportunity to share this experience may encourage us all to reflect and stay present. Te Kupenga Mō Kawerau Over the past 3 years, members of the Kawerau community have come together in response to the high suicides in particular from Te Kupenga Mō Kawerau is a collaboration between local Kawerau providers, community members, bereaved whanau to suicide, clinical representation and Kia Piki Te Ora (a national Māori suicide prevention initiative). In 2010 the Kawerau Working Group (KWG) was established to develop the Kawerau Suicide Prevention Action Plan (KSPAP) with the support and guidance of the Ministry of Health. This was seen as a community response to a community issue. In 2011 the KSPAP (Kawerau Suicide Prevention Action Plan) was launched by the honourable Minister Tariana Tūria. It has been two and a half years since the roll out of the initial Kawerau Suicide Prevention Action Plan and we have since seen a significant change in the death by suicide rates in our community, from 13 1 over the past 2 and a half years. Key Themes that Te Kupenga Mō Kawerau have rolled out are: * Silence isn t the solution to suicide: share your story * Mā Kawerau mō Kawerau: by Kawerau for Kawerau * Whānau 4 Lyfe: the solutions lie with whānau The members of Te Kupenga Mō Kawerau are: * TimiPeri (Bereaved kaumatua of suicide) * Mārama Elliott (Bereaved mum of suicide) * Michele Elliott (Bereaved mum of suicide) * Jodi Hawe (whanau of the Kawerau community) * Emma Kutia (EBOP Kia Piki Te Ora Coordinator, Te Ao Hou Trust, Opotiki) * Vicki Paul and Matt Howell (whānau of the Kawerau community) *Peta Rūhā (Clinical Manager Tūwharetoa Hauora) What has made the difference? * Who you have sitting at the table is key! So having an integration of bereaved, community and clinical. * Flipping what we do on its head training that was driven and designed by whānau for whānau. * Committed to working and supporting each other 24/7 * Getting over ourselves! Page 6

7 Thriving, Not Surviving Wayne Rogers (Ngati Whare/NgaiTuhoe) Whanau Ora Kaihautu, Te Utuhina Manaakitanga Trust, AOD Counseling Service I have worked in the role of a Whanau Ora Kaihautu in Te Whare Oranga Ngakau since 2010 for Te Utuhina Manaakitanga Trust. Prior to this role I was a Healthy Lifestyle Coach working with whanau with chronic illnesses. While I bring many skills to the role I have also learnt many skills from whanau and stakeholders across the Midland region. Ko te whanau ko au, ko au ko te whanau this whakatauaki describes my commitment to my own whanau and my commitment to Thriving, not just Surviving. The Governments push for providers to engage with whanau in a meaningful way has provided myself and the Trust the opportunity to create a pathway for whanau to lead the way in their own transformation. Working across the Midland region has both challenges and rewards of which I would like to showcase. Seeing our similarities not our differences has helped encouraged me to reflect on my practice and be the best that I can be. What about the Kids? An update on COPMIA development in New Zealand Debbi Tohill Debbi joined the Werry Centre in 2005 after six years experience with the Mental Health Foundation. Her background is in HR and Management and she holds a Graduate Diploma in Not-for-Profit Management. Debbi s role involves providing management support to the Senior Advisors and Project Leaders of the Werry workforce development programme contracts. She is the manager of the youth and family/whanau work at the Werry Centre and is a passionate advocate for active participation and partnership between young people, their families and services. Debbi is also Chair of Rape Prevention Education. Children of Parents with a Mental Illness or Addiction (COPMIA) has been identified as a priority area by the Ministry of Health (MOH). The Werry Centre is working with the other workforce centres (Te Pou, Matua Raki and Te Rau Matatini) aiming to increase the capability of health professionals to identify and attend to the needs of COPMIA in all aspects of service delivery. The project builds on previous scoping activities by MOH. There is an acknowledgement that significant systems change is required to meet the needs of these children. The presentation will consider the breadth of activity required for these systemic changes to occur. Most children of parents with mental illness and/or addictions will not develop mental health and/or addictions concerns. However there are a range of factors associated with families where a parent experiences a mental illness and/or addiction that can have a negative impact on a child s development and wellbeing. Successful outcomes in this project will hopefully foster better mental health outcomes for children of parents with a mental illness, reduce stigma associated with parental mental illness and help friends, family and workers in a range of settings identify and respond to the needs of the children and their families. Page 7

8 Draft Midland Family Whanau Competency Framework Workshop Sue Lewer For the past 7 years I have been running my own consultancy business focusing on Health Management work within the health sector. I have worked extensively for both Lakes DHB and Tairawhiti DHB as well as the Midland Regional Mental Health Network predominately within the Mental Health and Addictions fields over this time. Prior to this I worked for Richmond NZ (previously known as Richmond Fellowship) as a Service Manager and then as the General Manager Operations for NZ for my last 2 years. I came into this role after having had a history of 4 years of hospital Social Work for Western Bay Health followed by 9 years as a senior manager within the Tauranga Hospital area covering Community Health, Women and Child Health and Mental Health and Addictions. I am married with 2 adult children and nana to a 16 month old little girl. Eseta Nonu-Reid has a background in mental health nursing with postgraduate studies in Psycho-gerontology and Forensic psychiatry. Eseta brings extensive experience in the mental health and addiction field providing leadership and management in DHB mental health and addiction, Pacific Peoples mental health, NGO and Iwi service development, partnership and models of care. Eseta is based in Rotorua. Eseta is of Samoan descent and lives with her mother, husband Paul and their four children in Auckland. Eseta brings to the role a strong commitment to the Treaty of Waitangi, the principals of Recovery and creative and innovative service delivery that improves health outcomes for people. Page 8

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