Child Life Council. May 21-24, 2009 CONFERENCE PROGRAM. 27th Annual Conference on Professional Issues

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1 CONFERENCE PROGRAM Child Life Council 27th Annual Conference on Professional Issues May 21-24, 2009 The Westin Boston Waterfront Boston, Massachusetts

2 Child Life Council 27th Annual Conference on Professional Issues Schedule at a Glance Thursday, May 21, 2009 Pre-Conference Events 8:00 a.m. 12:30 p.m. Child Life Professional Certification Examination 8:00 a.m. 5:00 p.m. Conference Badge & Tote Bag Pick-Up Open for Pre-Registered Attendees 8:00 a.m. 5:00 p.m. On-Site Registration Open 8:30 a.m. 11:30 a.m. Executive Board Meeting 9:00 a.m. 4:00 p.m. Pre-Conference Full-Day Intensives with Lunch (6 PDHs) 1:00 p.m. 4:30 p.m. Exhibit/Poster/Bookstore Set-Up 2:00 p.m. 4:30 p.m. Tour of Children s Hospital Boston (Limit 100) 5:00 p.m. 6:00 p.m. New Member/First-Timer Orientation Friday, May 22, :00 a.m. 4:00 p.m. Conference Badge & Tote Bag Pick-Up Open for Pre-Registered Attendees 8:00 a.m. 10:00 a.m. Exhibit/Poster/Bookstore Set-Up 9:00 a.m. 4:00 p.m. On-Site Registration Open 9:30 a.m. 11:30 a.m. Opening General Session and Emma Plank Keynote Address (2 PDHs) 11:30 a.m. 1:30 p.m. Lunch in Exhibit Hall, Posters and Bookstore Open 1:30 p.m. 3:00 p.m. Plenary Sessions (1.5 PDHs) 3:30 p.m. 5:30 p.m. Two-Hour Professional Development Seminars (2 PDHs) 6:00 p.m. 8:00 p.m. Opening Reception and Bookstore in Exhibit Hall 8:30 p.m. 9:30 p.m. Johns Hopkins Alumni Event (Not a CLC Event) 8:30 p.m. 9:30 p.m. Wheelock Alumni Event (Not a CLC Event) Saturday, May 23, :00 a.m. 4:00 p.m. Conference Information Desk Open in Registration Area 8:00 a.m. 9:30 a.m. Committee Meetings with Breakfast 8:00 a.m. 9:30 a.m. Exhibit Hall and Bookstore Open with Beverages 9:45 a.m. 11:45 a.m. Two-Hour Professional Development Seminars (2 PDHs) 11:45 a.m. 1:30 p.m. Lunch in Exhibit Hall, Posters and Bookstore Open 1:45 p.m. 3:15 p.m. Professional Development Workshops (1.5 PDHs) 1:45 p.m. 4:30 p.m. Exhibit, Bookstore and Poster Break-Down 3:45 p.m. 5:15 p.m. Professional Development Workshops (1.5 PDHs) Free Evening to Discover Boston Sunday, May 24, :00 a.m. 9:30 a.m. Professional Development Workshops (1.5 PDHs) 9:45 a.m. 11:15 a.m. Networking Roundtable Brunch for Child Life Professionals 9:45 a.m. 11:15 a.m. Student Brunch Event 11:30 a.m. 1:30 p.m. Award Presentations and Closing General Session (2 PDHs) Cover Art: Beverly A. Mitchell specializes in brightly colored fine art paintings, drawings, and prints featuring flowers, landscapes, waterscapes, interiors, buildings, still lifes and abstracts. In this piece, Boston by Day, Beverly notes, the viewer is invited to come in and journey around the beautiful historic city of Boston, and get a taste of the magical energy that can be felt here. For more information about Beverly Mitchell please check out her website at

3 Table of Contents Program Overview Conference Program Committee Members Conference Host Committee Members...3 C onference Location Information Boston, Massachusetts...4 Weather...4 Hotel Information...4 Hotel Parking...4 Airport Transportation...4 C onference Registration Information Room Monitors...5 Conference Badge & Tote Bag Pick-up Hours...5 Conference Receipt...5 On-Site Registration Hours...5 Professional Development Hours (PDHs)...5 E xhibit Hall Information Exhibit Hall Guest Passes...6 Participating Exhibitors...6 Bookstore...6 Name Badges...6 Exhibit Hall Hours and Events...6 C onference Workshop Schedule...7 S chedule of Events Thursday, May 21 Child Life Professional Certification Exam...9 Pre-Conference Full Day Intensives...9 Hospital Tour Children s Hospital Boston...10 New Member/First-Timer Orientation Meeting...10 S chedule of Events Saturday, May 23 Committee Meetings...12 Two-Hour Professional Development Seminars...12 Lunch in Exhibit Hall...13 Poster Presentations...14 Professional Development Workshops...15 Professional Development Workshops...16 S chedule of Events Sunday, May 24 Professional Development Workshops...17 Networking Roundtable Brunch for Child Life Professionals...19 Student Brunch Event...19 Award Presentations and Closing General Session...19 C hild Life Council Executive Board...20 Committee & Task Force Chairs...20 Staff...20 O ur 2009 Conference Sponsors Gold, Silver and Supporter Level...21 P rogram Insert Registration Information, Fees & Policies...1 Registration Form, Parts 1 & Save the Date: CLC 28th Annual Conference Call for Papers...4 S chedule of Events Friday, May 22 Opening General Session and Emma Plank Keynote Address...10 Lunch in Exhibit Hall...10 Plenary Sessions...10 Two-Hour Professional Development Seminars...11 Opening Reception in Exhibit Hall...12 Boston, Massachusetts May 21 24,

4 2009 Conference Program Committee 2009 Committee Chair Melissa Hicks, ms, lpc, rpt, ccls Child Life Consultant Raleigh, nc Chair-Elect Kristin Maier, ccls Child Life Clinical Coordinator All Children s Hospital St. Petersburg, fl CLC Board Liaison Barbara Blair, ccls Child Life Coordinator Providence St. Vincent Medical Center The Gerry Frank Center for Children Portland, or Suzanne Graca, MS, CCLS Child Life Specialist III / Acting Co-Director, Child Life Services Department Children s Hospital Boston Boston, MA Lisa Ciarrocca, CCLS Child Life Manager Goryeb Children s Hospital Morristown, NJ Sheila Palm, ma, ccls Child Life System Leader Children s Hospitals and Clinics of Minnesota Minneapolis, mn Patricia Boettcher, ma pc, ccls Child Life Specialist II Cincinnati Children s Hospital Medical Center Cincinnati, oh Child Life Council 27th Annual Conference on Professional Issues The Westin Boston Waterfront In 2009, the city of Boston will play host to the Child Life Council 27th Annual Conference on Professional Issues. With its fascinating Revolutionary Period history and rich academic tradition, America s Cradle of Liberty will provide the perfect setting for a conference program celebrating the Passion, Pride and Power of the Child Life Community. CLC invites you to register for the premier learning experience for child life specialists, and join the ranks of an anticipated 1,000 professionals, educators, and students united by a common passion and a shared commitment to professional excellence. In Boston, conference attendees will enjoy three days packed with educational opportunities designed to enlighten, engage, and inspire. With a host of seminars and workshops covering a wide variety of hot topics and issues, your biggest challenge may be choosing just one session for each time slot! At the opening general session, TV personality and stress management consultant Loretta LaRouche will apply her trademark humor and energy to the Emma Plank Keynote address. After the opening session, attendees have the opportunity to select from a special series of plenary sessions presented by three nationally recognized speakers: Diane Levin, PhD of Wheelock College; Jayne Singer, PhD, of The Brazelton Touchpoints Center; and Juliette Schlucter, a consultant in the field of family-centered care. The closing general session will feature the Distinguished Service Award presentation, and a dance production performed by The Adaptive Dance Program. A successful joint venture between Boston Ballet and the Department of Physical Therapy at Children s Hospital Boston, The Adaptive Dance Program is designed to foster a love of dance in children with Down s syndrome. In addition to thought-provoking educational sessions and events, the Annual Conference offers ample opportunities for attendees to tap into power of the child life community on an unrivaled scale. Connect with exhibitors, colleagues and friends while you refuel at each of the lively meal events taking place in the exhibit hall, and enjoy further opportunities to enhance your professional and personal networks with a free evening on Saturday and the networking roundtable brunch on Sunday. Looking to enhance your conference experience even further? Consider registering for one of several pre-conference intensives taking place on Thursday, including a presentation by internationally noted author, educator and grief counselor Alan Wolfelt, PhD (separate registration fees apply). We look forward to seeing you in Boston for this exciting event! 2 Child Life Council 27th Annual Conference on Professional Issues

5 2009 Conference Host Committee C o - C h a i r Suzanne Graca, MS, CCLS Child Life Specialist III Acting Co-Director, Child Life Services Department Children s Hospital Boston Boston, MA C o - C h a i r Claire White, MS, CCLS Assistant Professor of Child Life Wheelock College Boston, MA B o o k s t o r e Tricia Sherman, MBA, CCLS Child Life Manager Director Pain Free Pediatrics Boston Medical Center Boston, MA Events Virginia Dinny Coleman, MS, CCLS Instructor, Child Life Coordinator, Graduate Child Life Program Wheelock College Boston, MA P u b l i c i t y Kristen Fowler, MS, CCLS Child Life Specialist II Children s Hospital Boston Boston, MA S p o n s o r s h i p Lisa Cantore, MA, CCLS, CEIM Child Life Specialist Hasbro Children s Hospital Providence, RI Ann Herzog, MS, CCLS Child Life Specialist Newton-Wellesley Hospital Newton, MA Volunteers Karen Swartz, MS, CCLS, CEIM Child Life Specialist Hasbro Children s Hospital Providence, RI Colleen Hynes, MS, CCLS Child Life Specialist Children s Hospital Boston at Waltham Boston, MA Laurie Fraga, MS, CCLS Child Life Specialist Floating Hospital for Children at Tufts Medical Center Rockland, MA registration Maureen Abramson, MS, CCLS Child Life Specialist II Children s Hospital Boston Boston, MA Robert Wing, MA, CCLS Director of Child Life Services UMass Memorial Children s Medical Center Worcester, MA 2009 Conference Program: Adjunct Reviewers Farya Phillips, MA, CCLS Program Coordinator/Child Life Specialist Wonders and Worries Austin, TX Amy Seitz, CCLS Child Life Specialist, Pediatric ICU CHRISTUS Schumpert Sutton Children s Medical Center Shreveport, LA Chantal LeBlanc, BPs, CCLS Child Life Specialist IWK Health Centre Halifax, NS Canada Patrice Brylske, MPA, CCLS Director, Child Life Department Johns Hopkins Children s Center Baltimore, MD Lori Takeuchi, CCLS Child Life Coordinator Children s Rehabilitative Services Phoenix, AZ Holly Spencer Kihm, PhD, CCLS, CFLE Assistant Professor Southeastern Louisiana University Mandeville, LA B oston, Massachusetts May 21 24,

6 Location Information As America s Cradle of Liberty, Boston is steeped in colonial pride and full of classic charms. It is one of the oldest and most influential cities in the United States of America, with a plethora of museums, famous historical sites, and world-class entertainment venues securing its place among the top ten tourist destinations in the country. Local Attractions Please check the Annual Conference section of the CLC Web site for links to popular Boston attractions. Weather The temperature varies a good deal in Boston during the spring, but typically offers mid 60 degree (15-18º C) days followed by brisk evenings. A sweater and a jacket, in addition to lighter clothes, are recommended. Springtime can be a little damp in New England. Hotel Information Located in Boston s fastest growing and most vibrant district, The Westin Boston Waterfront offers a premier waterfront location overlooking the city skyline and Boston Harbor. The hotel features a charming New England garden style lobby paired with 790 guest rooms and suites featuring Westin s signature Heavenly Bed and Heavenly Bath. Guests can venture to nearby attractions with The Westin Boston Waterfront s complimentary shuttle service, which offers transportation to/from Boston s financial district and Faneuil Hall seven days a week. Special hotel rates for CLC Conference attendees are $149 per night, plus tax (single or double occupancy each additional person is an extra $20 per night). Interested in extending your stay in Boston? This special rate is available to conference attendees from May 20 until May 27 (limited availability on conference shoulder dates). Be sure to book your room as soon as possible, as we anticipate the room block will fill up quickly. To make your room reservation online, go to the Annual Conference/Location & Hotel Information section of the CLC Web site and click on Reserve Your Hotel Room Now. Or, if you prefer to book your reservation by phone, please contact Group Reservations at Be sure to identify yourself as a Child Life Council conference attendee in order to ensure you receive the discounted group rate. All conference events will take place at the conference hotel with the exception of the tour of Children s Hospital Boston. A complete list of room assignments for each of the conference sessions will be provided on-site, at the Conference Badge & Tote Bag Pick-up area. Stay at the CLC Conference Hotel By staying at the CLC conference hotel, you enable us to reduce the overall costs associated with producing the conference. These savings allow CLC to offer reduced registration fees and increased conference savings. Hotel Parking The Westin Boston Waterfront offers both valet and selfparking. Rates for valet parking start at $20 per hour ($41 maximum per 24 hours/overnight). Rates for self-parking start at $16 per hour ($31 maximum per 24 hours/overnight). Public parking is available on Congress Street. These public lots are a minute walk from the hotel, and the daily parking rates range from $10 to $30 per day. Getting There The Westin Boston Waterfront is located less than three miles from Boston Logan International Airport. There are several options available for transportation to and from the airport. For detailed information on each of these options please visit the Annual Conference/Location Information section of the CLC Web site. Taxi or Shuttle Cab fare to or from Logan International Airport will be approximately $25 each way. A shuttle service will cost less ($12-$16 per person each way), but the trip may take longer, depending on how many stops the shuttle makes. Attendees must make reservations in advance for shuttle service. Contact the following companies for more information: Zebra Airport Shuttle, Star Shuttle Inc, Group Code: Public Transportation Public transportation via the MBTA Silver Line is available to and from Logan International Airport. The trip from the airport to The Westin Boston Waterfront takes approximately five minutes, but you should allow minutes depending on the Silver Line schedule. The trip costs $2 each way. Driving Directions Download printer-friendly driving directions from the Annual Conference/Location Information section of the CLC Web site at 4 Child Life Council 27th Annual Conference on Professional Issues

7 Registration Information Register for the conference online by the early registration deadline of March 16, 2009 for the best rates. The deadline for pre-registration is April 17, 2009, after which time, participants may only register on-site. Although we will do our best to accommodate everyone, those participants who register on-site may find there is only limited access to certain conference events. To avoid disappointment, we highly recommend that you pre-register well in advance of the conference. Complete registration information is available on the gray insert in this program. Room Monitors Room monitors are conference attendees who volunteer to assist with a series of important tasks at the beginning of a conference session. They assist speakers by distributing hand-outs (if applicable), checking on audio/visual set-up, and if necessary, checking off registrants as they arrive. If you are interested, please indicate the session you would like to monitor on your registration form. Conference Badge & Tote Bag Pick-Up Upon arrival, all pre-registered attendees should check in at the Conference Badge & Tote Bag Pick-Up area to collect their conference materials. This area will be open: Thursday, May 21, :00 a.m. 5:00 p.m. Friday, May 22, :00 a.m. 4:00 p.m. IMPORTANT! Conference Registration and Receipt Participants who register online will receive an automatic registration confirmation and receipt via . Please bring this receipt with you to the conference. On-site registrants may request a receipt at the time of registration. Conference General Sessions Friday, May 22, 9:30 a.m. 11:30 a.m. Opening General Session & Emma Plank Keynote Address Sponsored by Texas Children s Hospital Loretta LaRouche Founder and President, The Humor Potential Inc. Plymouth, MA sunday, May 24, 11:30 a.m. 1:30 p.m. Award Presentations and Closing General Session The Adaptive Dance Program A joint-venture of Children s Hospital Boston, Department of Physical Therapy and Boston Ballet, Boston, MA On-Site Registration If you miss the pre-registration deadline and find it necessary to register on-site for the conference, CLC staff will be available to assist you at a separate On-Site Registration Desk. Hours of operation are: Thursday, May 21, :00 a.m. 5:00 p.m. Friday, May 22, :00 a.m. 4:00 p.m. Professional Development Hours Conference attendees receive Professional Development Hours (PDHs) necessary for recertification for the Certified Child Life Specialist (CCLS) designation. Basic registration for the 27th Annual Conference includes opportunities for up to 14 PDHs. Up to 6 additional PDHs are available to those attending pre-conference intensives. B oston, Massachusetts May 21 24,

8 Exhibit Hall Information The Exhibit Hall is consistently rated as one of the most popular features of the conference, and each year attendees look forward to viewing the latest innovative products and services available to support their efforts in helping children and families. The following group meal events will be held in the Exhibit Hall, and are included as part of your basic registration fee: Lunch, Friday, May 22 Reception, Friday Evening, May 23 Lunch Saturday, May 23 Exhibit Hall Guest Passes For conference attendees interested in bringing a guest to visit the Exhibit Hall, guest passes are available for $80 for Friday (includes lunch and reception) and $40 for Saturday (includes morning beverages and lunch). All attendees entering the Exhibit Hall will be required to wear their conference or guest badge in order to be permitted entry at the door no exceptions, please. Participating Exhibitors The following is a list of exhibitors scheduled to participate in the Exhibit Hall as of November For more information on exhibiting, please contact the CLC office at or conference@childlife.org. Aging With Dignity Alicia Rose Victorious Foundation Association of Hole in the Wall Camps Camp Mak-A-Dream CaringBridge Diversionary Therapy Technologies Education, Inc. Emspiration LLC FLAGHOUSE FLAVORx, Inc. The Gathering Place The Hole in the Wall Gang Camp Hospital Outreach Program Hugworks Kids Health Pals Kidzpace Interactive Legacy Products LiteBooks.net Make-A-Wish Foundation Medical Memories Patient Puppets Inc. Phoenix Children s Hospital Playworks Songs of Love Foundation St. Baldrick s Foundation Swank Healthcare Bookstore Conveniently located in the Exhibit Hall, the Bookstore is the place to visit for the latest Child Life Council products and publications. Save money by taking advantage of conference discounts and eliminating shipping and handling fees! IMPORTANT! Name Badges Name badges are required for admission to all conference sessions and events. Exhibit Hall & Bookstore Hours exhibit Hall Events Friday, May 22 11:30 a.m. 1:30 p.m. Exhibit Hall Open with Lunch 6:00 p.m. 8:00 p.m. Reception Saturday, May 23 8:00 a.m. 9:30 a.m. Exhibit Hall with Beverages 11:45 a.m. 1:30 p.m. Exhibit Hall Open with Lunch 6 Child Life Council 27th Annual Conference on Professional Issues

9 Conference Workshop Schedule FRIDAY, MAY 22 1:30 p.m. 3:00 p.m. 3:30 p.m. 5:30 p.m. SATURDAY, MAY 23 9:45 a.m. 11:45 a.m. 1:45 p.m. 3:15 p.m. Plenary Sessions A. Play: An Endangered Species? Diane Levin, PhD, Professor of Education, Wheelock College, Boston, MA Two-Hour Seminars 1. Sibling Voices: What Siblings Want You to Know! 4. String Stories, Chalk Talks, and Other Transformation Narratives 7. From Books to Bedside to Boardroom: Integrating EBP into Child Life Practice Two-Hour Seminars 9. Build It and They Will Come: Creating and Using Gaming- Based Tools for Recreation and Therapeutic Interventions 12. Therapeutic Entertainment in Healthcare Settings 15. Effective Facilitation: A Key Component in Clinical Supervision Professional Development Workshops 17. Journaling Techniques to Help Children and Families Coping with Medical Events: Find the Friend at the End of Your Pen Part Breaking Down the Barriers of Pill Swallowing through Behavior Modification 23. Listen Carefully: What Patients with Developmental Disabilities and Their Families Can Teach Us B. Child Life Champions of Patient- and Family-Centered Care: A Family Perspective Juliette Schlucter, President, Bridgekeeper, Malvern, PA 2. Building Bridges Between Assistive Technology and Child Life 5. Documentation Innovations: The Changing Face of Documentation in Child Life Practice 8. Legacy of Leadership in Child Life: An Evidence- Based Practice Approach 10. Boundary Waters: The Ebb and Flow of Interpersonal Relationships with Patients, Families and Staff 13. Lessons From Youth: A Peer Support Model 16. Beyond the Basics: Working with the Children of Adult Patients 18. A New Tool for Your Toolbox: The Distraction Coaching Index 21. Sleep Studies: A to ZZZ s 24. Acknowledging Adult Context: Understanding Parents of Ill & Hospitalized Children Via a Life-Course Perspective C. Developmental Opportunities for Partnering with Families, Jayne Singer, PhD, The Brazelton Touchpoints Center, Boston, MA 3. Temperament and Personality: Child Life Assessments, Interventions, and Research 6. Making the Complicated Simple: Helping Students Integrate Knowledge, Skills and Self 11. Qualitative Methods and Child Life Research: Making Connections to Support Evidence-Based Practice 14. CHYPS (Children and Young People s Support) and Chocolate A Children s Survival Kit for Bereavement 19. Our Journey: Starting a Non-Profit Organization Dedicated to Providing Child Life Services Beyond the Hospital Walls 22. Transplant: Not Just Another Surgery B oston, Massachusetts May 21 24,

10 Conference Workshop Schedule (continued) 3:45 p.m. 5:15 p.m. Sunday, May 24 8:00 a.m. 9:30 a.m. Professional Development Workshops 25. Journaling Techniques to Help Children and Families Coping with Medical Events: Find the Friend at the End of Your Pen Part Expanding the Horizon: Integrating Alternative Therapies into a Child Life Program 31. Supervising Millennial Students: Understanding Generational Differences Professional Development Workshops 34. Achieving Optimal Care: A Research Project with Patients Who Have Sustained Burn Injuries 37. A Collaborative Approach to Care Using Child Life, Music Therapy, and Art Therapy 40. Ten Ways to Support Children with Autism Spectrum Disorders While They Receive Care in Your Hospital 43. Beyond Sesame Street: The Therapeutic Use of Puppets in Healthcare 26. Professional Involvement: Connections That Keep Us Learning and Growing 29. The Right Choice: Making Ethical Decisions in Child Life Practice 32. Chronic Pain in Children: Addressing the Stigma 35. Reconfiguring Hope When Faced With Unthinkable Situations: Reflection, Research and Application 38. The Magic of Camp: Promoting Resilience Through Fun 41. It s All About Team Work: Working with Acquired Brain Injured Patients 44. Poetic Justice: Mastering Hospitalization Through Words and Imagery 27. Adapting Preparation & Support For Patients With Developmental Disabilities 30. Eating Disorders: Feeding Self-Esteem 33. Advocating with Evidence: Turning Evidence-Based Statements into Concise Family-Centered Hospital Policies 36. Flexing Your Professional Development Muscles: A Strengths-Based Approach 39. Snuggle-Up! Providing Developmentally Supportive Positioning for Infants in the Intensive Care Setting 42. Appetite for Life Special Note Regarding Sessions Please plan to arrive at each designated meeting room at least 10 minutes prior to the time that the session is scheduled to begin. Sessions will start promptly at the appointed time, and once a session has begun, the doors will be closed. Out of consideration for other attendees and presenters, please avoid any room disruptions, and attend only those sessions that you have registered for, as room size and set-up are based on registration numbers. Presentation Levels Discontinued Those who have attended past CLC conferences may recall that sessions were once categorized by the level of professional knowledge or experience (beginning, intermediate or advanced) recommended in order for a child life specialist to participate. This year, in response to attendee feedback, the Conference Planning Committee elected to discontinue assigning practice levels to conference presentations. Instead, conference registrants are encouraged to review each session description carefully to determine if the content is appropriate for their professional development needs. 8 Child Life Council 27th Annual Conference on Professional Issues

11 Schedule of Events Thursday, May 21, :00 a.m. 12:30 p.m. Child Life Professional Certification Examination The Child Life Professional Certification Examination will be administered Thursday, May 21, from 8:00 a.m. 12:30 p.m. A separate application process is required to sit for this examination. The application deadline for the exam is March 31, 2009 for those educated in the U.S. and Canada. For complete information on certification and the application process, please visit the CLC Web site at Examination participants are encouraged to register for the conference to take advantage of valuable educational and networking opportunities. Those who successfully complete this exam may apply PDHs (Professional Development Hours) accrued during the 2009 Annual Conference toward recertification. Pre-Conference Full-Day Intensives (Lunch Included) 9:00 a.m. 3:30 p.m. I. Helping Children and Teens Cope with Grief: A Companioning Philosophy of Caregiving $150 All Attendees Limited Space (100) Alan Wolfelt, PhD, Director, Center for Loss and Life Transition, Fort Collins, CO This inspiring workshop will enhance participants understanding of the adult helping role with children and teens in grief. A variety of important sub-topics will explore how to artfully companion children and teens impacted by death loss. The main theme explored: If children do not have safe places and people with whom they can mourn authentically, they are at risk for living in the shadow of the ghosts of grief. 9:00 a.m. 4:00 p.m. II. A Live Clinical Supervision Group for Child Life Professionals $125 All Attendees Limited Space (40) Gloria Mattera, MEd, CCLS, Director Department of Child Life & Developmental Services, Bellevue Hospital Center, New York, NY Diane Rode, MPS, ATR, CCLS, Director, Child Life and Creative Arts Therapy Department, Kravis Children s Hospital at Mount Sinai, New York, NY This unique, live-supervision opportunity provides an in-depth exploration of the importance and value of clinical supervision in child life practice. Participants will gain skills to begin developing their own supervision groups through the information and experience gathered from this session. Case material from participants will be used in the groups. 9:00 a.m. 4:00 p.m. III. The Leadership Journey: Chart Your Course $150 Professionals Only Limited Space (45) Jerriann Wilson, MEd, CCLS, Retired Director of Child Life, Johns Hopkins Children s Center, Baltimore, MD Sharon McLeod, MS, CCLS, CTRS, Senior Clinical Director, Cincinnati Children s Hospital Medical Center, Cincinnati, OH Sheila Palm, MA, CCLS, Child Life System Leader, Children s Hospitals and Clinics of Minnesota, Minneapolis, MN Linda Skinner, CCLS, Professional Practice Chief, IWK Health Centre, Halifax, NS Traci Woods, CCLS, Child Life Clinical Coordinator, Florida Children s Hospital, Orlando, FL This full-day intensive will focus on leadership development for child life specialists in a variety of settings who are at different stages in their careers. Leadership is everyone s business. Although it will be useful for current managers or directors who are new in the field, it is also designed for those individuals who wish to grow and develop within their program, whether they are a one-person program or part of a larger group. The presentation will use a variety of methods such as didactic, experiential, assessment, and ice-breakers; there will be a heavy emphasis in each section on communication and adapting to or dealing with change. Vignettes of real-life examples will be used to clarify different versions of leadership. Some examples are committee leadership, effective team building, setting strategic goals both personal and professional, and presentation skills. Attendees will learn what changes they can control and what they can only influence. They will be asked to think about the kinds of skills and leadership position they want and to come to this session with a plan including where they are now and where they want to be. Participants will practice identifying and understanding the value system in their own organization and will be more effective at mobilizing others in their achievements to get things done. Thursday, May 21 B oston, Massachusetts May 21 24,

12 Friday, May 22 Thursday, May 21, 2009 (continued) 2:00 p.m. 4:30 p.m. Tour of Children s Hospital Boston $25 All Attendees Limited Space (100) Children s Hospital Boston is a 397-bed comprehensive center for pediatric healthcare. As one of the largest pediatric medical centers in the United States, Children s offers a complete range of healthcare services for children from birth through 21 years of age. Children s is the primary pediatric teaching hospital of Harvard Medical School, where most of our physicians hold faculty appointments. Children s is also home to the world s largest research enterprise based at a pediatric medical center, where its discoveries have benefited both children and adults since Current initiatives have attracted a record $176 million in funding; including more federal funding than is awarded to any other pediatric facility. Since U.S. News & World Report began ranking hospitals 19 years ago, Children s Hospital Boston has consistently been Schedule of Events Friday, May 22, :30 a.m. 11:30 a.m. Opening General Session & Emma Plank Keynote Address (2 PDHs) Sponsored by Loretta LaRouche, The Humor Potential The Emma Plank Keynote address will be given by Loretta LaRouche, an international stress management and humor consultant. Loretta is founder and president of The Humor Potential, Inc, a company offering programs and products for lifestyle management. Her special brand of optimistic psychology has an incontestable positive effect on the health of all that are exposed to her. She is also a wellrecognized TV personality on PBS and bestselling author. Loretta is on the Mass General advisory council for anxiety and depression and was recently awarded the National Humor Treasure Award. rated as one of the top two pediatric hospitals in the country. This year, Children s is ranked second nationally and remains the number one pediatric hospital in New England. 5:00 p.m. 6:00 p.m. New Member/First Timer Orientation Sponsored by The New Member/First-Timer Orientation is a great opportunity to join veteran CLC members and staff for an informative overview of CLC and the Annual Conference on Professional Issues. Whether you are a new member, a first-time conference attendee or potential member, this is a great opportunity to learn how to make the most out of networking opportunities and professional development through the Child Life Council. This event will set the stage for a successful conference experience and has a history of launching lasting friendships. Refreshments will be served, and participants are sure to leave with their questions answered! 1:30 p.m. 3:00 p.m. Plenary Sessions A. Play: An Endangered Species? (1.5 PDHs) Diane Levin, PhD, Professor of Education, Wheelock College, Boston, MA Play is vital to optimal social, emotional, physical and cognitive development in the early years. Yet there are many factors at work today that are robbing children of the full benefits of play such as the time children spend in front of a screen instead of playing, the many electronic and highly structured toys linked to the media that take control of play away from children, and the pressure in schools from the youngest ages to focus on early teaching of basic skills and test scores rather than on establishing a healthy foundation for learning through play. This session explores the many forces at work in today s society that are endangering play, how endangering children s play can undermine their optimal learning and development, and what we can do to promote healthy play in these times. 11:30 a.m. 1:30 p.m. Lunch and Bookstore in Exhibit Hall Enjoy a casual meal and great conversation with fellow conference attendees and exhibitors. Don t forget to take time to visit each exhibit booth, and learn more about the latest programs, products and services available to child life specialists. B. Child life Champions of Patient- and Family- Centered Care: A Family Perspective Juliette Schlucter, President, Bridgekeeper, Malvern, PA Sponsored by Child Life professionals value a model of patient- and family-centered collaboration. This presentation shares 10 Child Life Council 27th Annual Conference on Professional Issues

13 the barriers and boundless opportunities for healing partnerships through the eyes of a family and offers programmatic infrastructure for child life to lead and advance patient- and family-centered care in their organizations. C. Developmental Opportunities for Partnering with Families Jayne Singer, PhD, The Brazelton Touchpoints Center, Boston, MA Dr. Singer will review the process by which the Touchpoints Approach to understanding children s development enhances children s social and emotional competence and functions as a strong support for parents. Dr. Brazelton s Touchpoints Approach offers opportunities to help parents and children through predictable phases of development that can bring disorganization before developmental growth spurts. These become opportunities for understanding the child, and confirmation for parents. As children approach a spurt, they often experience periods of frustration and regression. This is likely to be an anxiety-laden time for parents, as well as other caregivers, and can place strain on relationships between parents and their children s additional caregivers. If parents understand the underlying reason for their child s regressive behavior, they can better support and comfort their child. This can be especially powerful for parents and children as they experience the process of shared caregiving with child life professionals. 3:30 p.m. 5:30 p.m. Two-Hour Professional Development Seminars (2 PDHs) 1. Sibling Voices: What Siblings Want You to Know! Sandra Ring, MS, CCLS, National Outreach Director, SuperSibs!, Buffalo Grove, IL This panel presentation will allow siblings to voice their thoughts and feelings about what helped them the most during their journey with a sibling battling cancer. They will also give insight to what interventions were not helpful as well as what additional support they wish had been offered. 2. Building Bridges Between Assistive Technology and Child Life Eileen Mapes, CCLS, Information and Outreach Coordinator, Delaware Assistive Technology Initiative, Wilmington, DE This presentation bridges the gap between child life clinical practice and assistive technology equipment that assists people with disabilities to maintain and/or increase their independence. Information will be provided regarding identifying and obtaining appropriate equipment for patients and families. 3. Temperament and Personality: Child Life Assessments, Interventions, and Research Eugene Johnson, CCLS, MA, Child Life Specialist, Children s Medical Center Dallas, Dallas, TX Child life specialists intuitively include a patient s personality as part of their overall assessment. From this assessment the CLS will tailor an intervention appropriate to the patient. This dynamic workshop will explore the role of temperament and personality in a CLS s assessment and interventions. 4. String Stories, Chalk Talks, and Other Transformation Narratives Jon Luongo, MS, CCLS, Child Life Specialist, Malmonides Infants and Children s Hospital of Brooklyn, Brooklyn, NY When a child arrives to the hospital, a family story unfolds. This interactive presentation will teach playful storytelling techniques for use in preparation, coping support, and more. In addition we will explore the field of narrative medicine as well as developmental and cultural rationale for storytelling as a hospital learning tool. 5. Documentation Innovations: The Changing Face of Documentation in Child Life Practice Stacey Chambers, CCLS, Child Life Specialist, Monroe Carell Jr. Children s Hospital at Vanderbilt, Child Life Services, Nashville, TN Ashleigh Lester, CCLS, CIMI, CPST, Child Life Specialist, Monroe Carell Jr. Children s Hospital at Vanderbilt, Nashville, TN Documentation is a task that demands commitment from the child life specialist. Professionals recognize its value but struggle to maintain successful and consistent charting practices. This presentation will focus on strategies for implementing effective documentation and quality assurance of the technologically advancing medical record. 6. Making the Complicated Simple: Helping Students Integrate Knowledge, Skills and Self Belinda Bindy Sweett, CCLS, Child Life Specialist, British Columbia s Children s Hospital Child Life Department, Vancouver, BC This presentation will enhance participants student supervision skills and their enjoyment of the supervisory process through exploration of supervisory models and discussion. A student supervisor who can embrace personal and professional imperfections, collaborate with students in supervision and continue to learn will be successful and effective in many ways. Friday, May 22 B oston, Massachusetts May 21 24,

14 Saturday, May 23 Friday, May 22, 2009 (continued) 7. From Books to Bedside to Boardroom: Integrating EBP into Child Life Practice Amy Curry, CCLS, Child Life Specialist II, Texas Children s Hospital, Houston, TX Rose Resler, CCLS, CFCS, Director of Child Life Specialist Program, The University of Akron, Akron, OH Learn how to utilize evidence-based practice in common child life situations using case studies and scenarios. EBP combines the best available evidence with clinical expertise and patient preference to improve outcomes. Explore how EBP can be used when working with patients and families, working with students, or advocating policy changes. 8. Legacy of Leadership in Child Life: An Evidence- Based Practice Approach Senta Greene MA, CCLS, CEO & Chief Consultant, Full Circle: A Professional Consulting Agency, Stevenson Ranch, CA Stephanie Hopkinson, MA, CCLS, Child Life Specialist, Kaiser Permanente, Los Angeles, Lead Consultant and Curriculum Design Specialist: Full Circle: A Professional Consulting Agency, Senior Adjunct Faculty, Pacific Oaks College, Los Angeles, CA This highly engaging seminar will explore the concepts of effective leadership and provide participants the opportunity to critically reflect on their own leadership styles, preferences, and abilities using models and tools of evidence-based practices as a core framework. 6:00 p.m. 8:00 p.m. Opening Reception in the Exhibit Hall Come and join your child life colleagues for food and fun. Take a stroll through the Exhibit Hall, enjoy tasty treats, renew old acquaintances and make new ones! Schedule of Events Saturday, May 23, :00 a.m. 9:30 a.m. Committee Meetings with Breakfast For Current Committee Members 8:00 a.m. 9:30 a.m. Exhibit Hall and Bookstore Open with Beverages 9:45 a.m. 11:45 a.m. Two-Hour Professional Development Seminars (2 PDHs) 9. Build It and They Will Come: Creating and Using Gaming-Based Tools for Recreation and Therapeutic Interventions Patrice Brylske, MPA, CCLS, Director, Child Life Department, Johns Hopkins Children s Center, Baltimore, MD Arun Mathews, Director, HOPEConnectsKIDS Research Initiative, Hobbs, NM Cy Khormaee, Academic Evangelist, Microsoft Corporation, Academic Evangelism, Washington DC For patients suffering from life limiting or chronic conditions, access to technology provides exciting ways to play and communicate when disease or fatigue prohibits their participation with their peers. Participants will increase their knowledge of current research, gaming program implementation, and the power of video games for self expression. 10. Boundary Waters: The Ebb and Flow of Interpersonal Relationships with Patients, Families and Staff Jeanine Clapsaddle, LAMFT, CCLS, Child Life Specialist, Children s Hospitals and Clinics Child Life, Minneapolis, MN Cindy Walsh, RN, CPON, Nurse Manager, Children s Hospitals and Clinics of Minnesota, Minneapolis, MN Child life specialists and nurses work as a collaborative team to help patients and families reach goals for overall health and wellness. This seminar focuses on the need for, and implementation of, a professional boundary education program. The benefits of a collaborative approach, and tangible tools for practical application will be shared. 12 Child Life Council 27th Annual Conference on Professional Issues

15 11. Qualitative Methods and Child Life Research: Making Connections to Support Evidence-Based Practice Toni Crowell, MS, CCLS, Academic and Clinical Specialist, The Hospital for Sick Children, Toronto, ON This seminar will provide an overview of qualitative methods of research including phenomenology, ethnography, and grounded theory. How child life specific inquiries can be formatted into these methods will be integrated into this seminar. Through examples and hands-on activities, participants will also have opportunities to engage in analyzing and interpreting qualitative data. 12. Therapeutic Entertainment in Healthcare Settings Chris Brown, CCLS, Director of Child Life and Family Centered Care, Dell Children s Medical Center, Austin, TX Jim Newton, President & Founder, Hugworks, Hurst, TX Paul Hill, Executive Producer, Hugworks, Hurst, TX Audience members will be involved in the exploration of therapeutic interventions, the qualities of entertainment, and the provision of therapeutic entertainment via the interactive sharing of songs and small group storytelling. Guidelines will be articulated to evaluate and encourage the therapeutic potential of various entertainment presentations in the healthcare setting. 13. Lessons From Youth: A Peer Support Model Lisa Herman, CCLS, Child Life Specialist, British Columbia Children s Hospital, Vancouver, BC Kristina Jackson, RN, CCLS, Child Life Specialist, British Columbia Children s Hospital, Vancouver, BC Pamela Wong, MSW, RSW, Social Worker, British Columbia Children s Hospital, Vancouver, BC A life-threatening diagnosis can significantly impact an adolescent s development. This workshop will discuss the rationale for developing a model of peer support, and follow one hospital s journey to develop a youth support group. Participants will gain insight on working with youth from a documentary style video made by youth. 14. CHYPS (Children and Young People s Support) and Chocolate A Children s Survival Kit for Bereavement Carol Page, HPS, ADCE, hospital play specialist, Wycombe General Hospital Paediatrics, Bucks, UK Jackie Youens, HPS, NNEB, hospital play specialist, Wycombe General Hospital Paediatrics, Bucks, UK This presentation will share the pioneering role of two hospital play specialists working with a UK bereavement charity to establish support groups and design resource material for bereaved children and their families. Included are practical skills for bereavement work, criteria for setting up groups, and creating age-appropriate literature. 15. Effective Facilitation: A Key Component in Clinical Supervision Catherine Leopard, MA, CCLS, Child Life Specialist, Cincinnati Children s Hospital Medical Center, Cincinnati, OH Lynne Palazzolo, RN, Clinical Project Administrator, Cincinnati Children s Hospital Medical Center, Cincinnati, OH Effective facilitation is the key component in establishing clinical supervision environments that truly support the growth and development of child life professionals. Participants will learn facilitation skills involved in managing group dynamics and the stages of group development in order to establish high quality and responsive clinical supervision programs. 16. Beyond the Basics: Working with the Children of Adult Patients Kathleen McCue, MA, CCLS, LSW, Director, Children s Program, The Gathering Place, Beachwood, OH This presentation will review the services child life specialists may provide to children of seriously ill adults. Individual versus group interventions, psychoeducational versus emotional-supportive interventions, specialized services to high risk populations such as the children of single parents will be covered. Liability issues and court involvement will be addressed. Saturday, May 23 11:45 a.m. 1:30 p.m. Lunch, Posters, and Bookstore Open in Exhibit Hall B oston, Massachusetts May 21 24,

16 Saturday, May 23, 2009 (continued) Saturday, May 23 11:45 a.m. 1:30 p.m. Staffed Poster Presentations Rapid Process Improvement: Change is Good... You Go First! Carrie McCabe, CCLS, Child Life Specialist II, Lucile Packard Children s Hospital, Palo Alto, CA Kit Leong, RHIT, CPHQ, Quality Manager, Lucile Packard Children s Hospital, Palo Alto, CA From the perspectives of a child life specialist and a quality manager, participants will learn practical ways to effect change within their organization by using child life expertise as an integral part of a multidisciplinary team in a Rapid Process Improvement (RPI) project. Supporting Families with Spatial Frame Devices Stacey Chambers, CCLS, Child Life Specialist, Monroe Carell Jr. Children s Hospital at Vanderbilt, Nashville, TN This poster shares the unique ways in which the child life specialist and the multidisciplinary team provide psychosocial support for patients requiring an orthopedic spatial frame device. Services are provided for patients and families during clinic visits, hospital admissions, and school re-entry in order to promote optimum coping. Using the Scientific Method to Examine Why We Do the Things We Do: The Case of Coming and Going Joan Turner, PhD, CCLS, Assistant Professor, Mount Saint Vincent University, Halifax, NS The purpose of this poster is to illustrate the process of examining a component of child life practice using the scientific method. A review of theory and research findings will be presented that directly speak to the practice of coming and going as a means for facilitating the development of rapport. Meet the Parents: Implementing a Parent/ Caregiver Support Group Lizann McLaughlin, CCLS, Child Life Specialist, Inova Fairfax Hospital for Children, Falls Church, VA Cynthia Clarke, CCLS, CEIM, Child Life Specialist, Inova Fairfax Hospital for Children, Falls Church, VA Cami Frickman, CCLS, Child Life Specialist, Inova Fairfax Hospital for Children, Falls Church, VA A parent/caregiver support group can broaden and enhance a child life program s quality of care. Important considerations include logistical planning, garnering staff support, and implementing creative and therapeutic activities so that a group provides the best opportunity for parent/caregiver support, expression, and empowerment. Helping Tweens and Their Parents Through Their First VCUG Marci Lewis, MPH, CCLS, Child Life Specialist, Maria Fareri Children s Hospital at Westchester Medical Center, Valhalla, NY The purpose of this poster session is to share information on how child life, pediatric urology and pediatric radiology departments collaborated to meet the needs of tweens undergoing a VCUG and their parents. Who s on Your Team? What s Your Model?: Collaboration in the Emergency Department Christine Shadd, CCLS, Child Life Specialist, The Hospital for Sick Children, Toronto, ON Sandy Bever, Child Life Specialist, The Hospital for Sick Children, Toronto, ON Melissa Bates, Child Life Specialist, The Hospital for Sick Children, Toronto, ON Participants will gain valuable tools to create an outstanding interdisciplinary model of child life, volunteers and nursing in the emergency department. The history and development of child life and volunteer programs will be examined along with the creation of our collaborative approach. The uniqueness of our Shared Governance Model will be explored. On the Road to Recovery: Steering You and Your Team Away from Compassion Fatigue Catherine Leung, CCLS, Child Life Specialist, Children s Hospital, London Health Sciences Centre Pediatric Day Surgery, London, ON Nancy Morphet, CCLS, Child Life Specialist, Children s Hospital, London Health Sciences Centre, London, ON Whether working within hospital or alternative settings, as a new graduate or seasoned CLS, compassion fatigue is an occupational hazard. This presentation will examine the stages of compassion fatigue and burnout, and identify the professional roadblocks and detours inherent in each of these stages pertaining to the child life profession. 14 Child Life Council 27th Annual Conference on Professional Issues

17 A New Synergy: Integration of a Child Life Specialist with Asthma Educator Certification Fused with the Modern Technology Nicole Almeida, MS, CCLS, Director, Child Life Program, The Children s Medical Center at Winthrop University Hospital, Mineola, NY Kevin Kuriakose, MD, Post Doctoral Fellow in Pediatric Pulmonary Medicine, Winthrop University Hospital Pediatrics, Mineola, NY This session will examine how a child life specialist with asthma educator certification can utilize a computer-based intervention that could have potentially long lasting effects. The goal is to empower children and families with the tools to cope with the rigors of asthma and everyday life. Tracing the Paths of the Pioneers Lois Pearson, M Ed, CCLS, Child Life Specialist, Children s Hospital of Wisconsin, Milwaukee, WI Civita A. Brown, MS Ed, CCLS, Coordinator of Internships, Psychology-Child Life, Utica College, Utica, NY This poster session will profile the lifetime contributions of four pioneers in the field of child life as a way to highlight our unique history and to increase awareness of the importance of the archives as a resource for ongoing professional development. Going in the Write Direction Amy Curry, CCLS, Child Life Specialist II, Texas Children s Hospital, Houston, TX Lindsay Herring, CCLS, CTRS, Manager of Child Life Services, Children s Hospital of Michigan, Detroit, MI Jennifer Fieten, CCLS, Program Services Manager, Starlight Children s Foundation Midwest, Chicago, IL Searching literature for clinical or research purposes can often lead to the wrong articles or too few. Starting with a PICO question (patient characteristics, intervention, comparison intervention, and outcome) steers literature searches in the right direction. This powerful, easy-to-use EBP tool can save time, effort, and leads to better results. 1:45 p.m. 3:15 p.m. Professional Development Workshops (1.5 PDHs) 17. Journaling Techniques to Help Children and Families Coping with Medical Events: Find the Friend at the End of Your Pen Part 1 Susan Boon Murray, CCLS, Ed.D, CTRS, Professor, University of Wisconsin La Crosse, La Crosse, WI In this two-part workshop, attendees will learn and apply four classic journaling techniques (springboards, lists, poem-making, art-making) to empower patients and families to explore various aspects of self with a certified instructor through the Center for Journal Therapy. You will be able to format and customize paper or electronic journals for your setting. (Part 2 Professional Development Workshop #25) 18. A New Tool for Your Toolbox: The Distraction Coaching Index Brenda Gordley, CCLS, Child Life Specialist, University of Iowa Children s Hospital, Iowa City, IA This presentation reviews a multi-site study examining parent-provided distraction. The resulting development and validation of the Distraction Coaching Index will be reviewed. Pivotal involvement and implications for child life practice will be shared. 19. Our Journey: Starting a Non-Profit Organization Dedicated to Providing Child Life Services Beyond the Hospital Walls Kristjana Smith, CCLS, Child Life Specialist, St. Jude Children s Research Hospital Child Life Department, Memphis, TN Elizabeth Cook, MS, CCLS, CCLS/Program Coordinator, The Center for Hope and Healing, Norfolk, VA Enhancement of child life services is an objective shared by all child life professionals. This presentation will outline the steps to creating a non-profit organization that the child life specialist can apply to enrich unit or department programming and broaden the scope of services provided to children and families. 20. Breaking Down the Barriers of Pill Swallowing Through Behavior Modification Allison Pummell, TRS, Child Life Specialist, The Hospital for Sick Children, Toronto, ON Research has shown that over 26% of pediatric patients have difficulties with pill swallowing. Anxiety and stress regarding pill swallowing can lead to noncompliance with overall medical treatment. Behavior modification-based programs allow patients to learn pill swallowing techniques through positive reinforcement, shaping and modeling. Saturday, May 23 B oston, Massachusetts May 21 24,

18 Saturday, May 23 Saturday, May 23, 2009 (continued) 21. Sleep Studies: A to ZZZ s Kandra Dorsey, CCLS, Child Life Specialist, Children s Mercy Hospital, Overland Park, KS Peter Moyer, CCLS, Child Life Specialist I, Children s Mercy Hospital, Overland Park, KS What are common pediatric sleep disorders? How do physicians diagnose these disorders? What is involved in a sleep study? How can we as child life professionals help children and families cope with these traumatizing studies? These questions and more will be answered in Sleep Studies: A to ZZZ s. 22. Transplant: Not Just Another Surgery Melanie Sweat, CCLS, Child Life Specialist, Children s Medical Center Dallas, Dallas, TX This session will explore the various roles of the child life specialist on a solid organ transplant team including the pre-transplant evaluation, developmental assessment, and long-term support provided during the patient s adjustment to a new chronic illness. 23. Listen Carefully: What Patients with Developmental Disabilities and Their Families Can Teach Us Stefi Rubin, Licensed Psychologist and Family Therapist, MA, Associate Professor Child & Family Studies, Wheelock College, Boston, MA Evelyn Hausslein, MMHS, Project Manager, Support Brokers/ ARC of MA, Waltham, MA Using parent-authored memoirs and other media, the issues faced by youth and young adults with developmental disabilities as they transition to the adult systems of healthcare and social services will be highlighted. Discussion includes potential conflict between the philosophies of family-centered care and selfdetermination. 24. Acknowledging Adult Context: Understanding Parents of Ill & Hospitalized Children Via a Life-Course Perspective Jennifer Chabot, PhD, CCLS, Associate Professor, Ohio University, Athens, OH Stephanie A. Rogerwick, MS, CCLS-IV, Supervisor/Child Life Specialist, Student Program Coordinator, Children s Hospital of Philadelphia, Philadelphia, PA This workshop will look at key psychosocial issues and themes reported by parents in early, mid- and later adulthood who are facing the long term hospitalization of their children. We will share qualitative research data from parents trying to balance their lives while navigating their children s healthcare experiences. A staff in-service training model pertaining to adult life stages will also be shared. 3:45 p.m. 5:15 p.m. Professional Development Workshops (1.5 PDHs) 25. Journaling Techniques to Help Children and Families Coping with Medical Events: Find the Friend at the End of Your Pen Part 2 Susan Boon Murray, CCLS, Ed.D, CTRS, Professor, University of Wisconsin La Crosse, La Crosse, WI This workshop will be a continuation of Professional Development Workshop #17. Only those who have registered for Workshop #17 are permitted to register for this session. 26. Professional Involvement: Connections That Keep Us Learning and Growing Sharon McLeod, CCLS, CTRS, Senior Clinical Director, Cincinnati Children s Hospital Center Division of Child Life, Cincinnati, OH Erin Munn, CCLS, Child Life Training Coordinator, Johns Hopkins Children s Center, Baltimore, MD Getting involved professionally beyond your daily clinical responsibilities whether locally, nationally or internationally provides opportunities to learn new skills, develop leadership abilities and contribute to the growth of the profession. Participants will learn about benefits of professional involvement, strategies for networking and create a professional involvement goal and action plan. 27. Adapting Preparation & Support For Patients With Developmental Disabilities Heather Denton, Child Life Specialist, British Columbia Children s Hospital Child Life, Vancouver, BC Amanda Lascelle, MS, CCLS, Child Life Specialist, British Columbia Children s Hospital, Vancouver, BC Children and youth with developmental disabilities process information differently, and therefore, may require an adapted approach to preparation and support. This session will help the child life specialist explore assessment techniques and interventions that support the unique needs of children and youth with developmental disabilities while working collaboratively with families. 28. Expanding the Horizon: Integrating Alternative Therapies into a Child Life Program Genevieve Lowry, M.Ed., CCLS, Reiki Master, Child Life Specialist, Private Practice, River Edge, NJ Elizabeth Olsen, MS, CCLS, CEIM, Reiki Practitioner Level II, NICU Child Life Specialist, Children s Hospital of New York, New York, NY Integrating alternative therapies into programming can be as challenging as it is rewarding. This presentation will highlight healing arts modalities; Reiki, guided 16 Child Life Council 27th Annual Conference on Professional Issues

19 imagery, infant massage, and Saori weaving. Participants will learn guidelines for working with children and families in various settings and groups. 29. The Right Choice: Making Ethical Decisions in Child Life Practice Deanna Warren, CCLS, Child Life Specialist, Children s Medical Center Dallas, Dallas, TX Beth Warrick, CCLS, Child Life Specialist, Children s Medical Center Dallas, Dallas, TX Participants will learn to value the importance of making sound ethical decisions in maintaining professional boundaries as a child life professional. Attendees will be provided with common pitfalls in making ethical judgments and learn theory-based techniques to promote psychological growth in moral reasoning and problem-solving. 30. Eating Disorders: Feeding Self-Esteem Kristen Berksza, CCLS, Child Life Specialist, Newton-Wellesley Hospital, Newton, MA Sacha Field, MS, CCLS, Child Life Specialist, MassGeneral Hospital for Children, Boston, MA This session will deepen the child life specialist s understanding of his/her role in the treatment of patients with eating disorders. Topics include research-based eating disorder education, cultural implications, staff collaboration, and interventional tools. The goal is to help the child life specialist think critically about the therapeutic and supportive nature of their role while working on a multidisciplinary team. 31. Supervising Millennial Students: Understanding Generational Differences Anita Pumphrey, MS, CCLS, Instructor, Louisiana Tech University, Ruston, LA This session will explore generational differences in the workplace with emphasis on understanding millennial students. Participants will explore ideas for adapting to the younger generation while guiding them to meet the expectations of the traditional and baby boomer generation who supervise them as interns and hire them as employees. 32. Chronic Pain in Children: Addressing the Stigma Katherine Upshall, CCLS, Child Life Specialist, Bloorview Kids Rehab Hospital Child Life Department, Toronto, ON Children suffering from chronic pain disorders that are often stigmatized require child life services that recognize and support their illness experience. We will discuss specific child life interventions that help these patients and families. Empirical research and data will be used to promote evidence-based child life practice. 33. Advocating with Evidence: Turning Evidence-Based Statements into Concise Family-Centered Hospital Policies Kathryn Shamszad, CCLS, Child Life Specialist, Texas Children s Hospital, Houston, TX Katherine MacDougall, CCLS, Child Life Specialist II, Texas Children s Hospital, Houston, TX Theresa Edmunds, MS, CCLS, Child Life Specialist II, Texas Children s Hospital, Houston, TX Evidence-based practice statements are an essential tool for incorporating family-centered care into hospital policies. Learn how to utilize child life and family-centered EBP statements to create and revise policies. Explore the step-by-step process through a case study of using an EBP summary to update visitation policies in the ICUs. Saturday, May 24 Schedule of Events Sunday, May 24, :00 a.m. 9:30 a.m. Professional Development Workshops (1.5 PDHs) 34. Achieving Optimal Care: A Research Project with Patients Who Have Sustained Burn Injuries Robyn Maria, CCLS, Hospital Play Specialist, Kidz First Children s Hospital, Auckland, New Zealand Invasive procedures undertaken repeatedly can be traumatic experiences for the patient, parent and staff, especially when involving burn injuries. An overview of a research project will be presented that was initiated to assess the effectiveness of support currently provided during burns dressing changes and suggestions for improvement. 35. Reconfiguring Hope When Faced With Unthinkable Situations: Reflection, Research and Application Jeané Liburd, CCLS, Child Life Specialist, Program Coordinator, The Center for Hope and Healing, Inc., Norfolk, VA Michele Tryon, CCLS, Executive Director, The Center for Hope and Healing, Inc., Norfolk, VA B oston, Massachusetts May 21 24,

20 Sunday, May 24, 2009 (continued) Sunday, May 24 Transpersonal research methods can be used to inquire into our own exceptional experiences, clarify complex concepts like hope, and provide guidance in meaningmaking with children and families. This presentation will allow for reflection and ask participants to explore the reconfiguring of hope when faced with unthinkable circumstances. 36. Flexing Your Professional Development Muscles: A Strengths-Based Approach Shawna Grissom, MS, CCLS, CEIM, Director, St. Jude Children s Research Hospital Child Life, Memphis, TN Cara Sisk, CCLS, Child Life Specialist, St. Jude Children s Research Hospital, Memphis, TN Discover how to capitalize on your strengths each day to find satisfaction in your work, enhance professional relationships, and increase your productivity in providing child life services in any setting. This presentation will outline the implementation of a strengths-based approach for professional development of child life specialists. 37. A Collaborative Approach to Care Using Child Life, Music Therapy, and Art Therapy Jeff Dettorre, CCLS, Child Life Specialist, Rainbow Babies & Children s Hospital, Cleveland, OH Emily Darsie, MT-BC, Music Therapist, Board Certified, Rainbow Babies & Children s Hospital, Cleveland, OH Shari Racut, ATR-BC, PC, Registered Art Therapist, Board Certified, Rainbow Babies & Children s Hospital Family and Child Life Services, Cleveland, OH Panel members will discuss interdisciplinary collaboration with a commitment to providing the most comprehensive care to patients and families. Discussion will include the benefits of teamwork, overcoming role ambiguity, and connecting and communicating with the larger medical team. Case examples and video segments will be used to enhance this discussion. 38. The Magic of Camp: Promoting Resilience Through Fun April Uyehara, MA, CCLS, Association of Hole in the Wall Camps, Los Angeles, CA Cheering, laughing, singing, dancing, and playing our favorite parts of camping! Medical specialty camps for children and families are increasing. Intentional camp programming fosters self-confidence, promotes understanding of medical conditions, and enhances coping and resilience for children and their families. Join us! Learn and experience the magic of camp! 39. Snuggle-Up! Providing Developmentally Supportive Positioning for Infants in the Intensive Care Setting Julie Grassfield, CCLS, Child Life Specialist, Dell Children s Medical Center of Central Texas, Austin, TX Anne Claire Hickman, CCLS, Child Life Specialist, Dell Children s Medical Center of Central Texas, Austin, TX Child life specialists in the neonatal and pediatric intensive care settings often focus on sibling and family support. This hands-on workshop will empower specialists to provide much-needed developmental support for infants, specifically looking at appropriate, developmentally supportive positioning techniques. 40. Ten Ways to Support Children with Autism Spectrum Disorders While They Receive Care in Your Hospital Jill Hudson, CCLS, MS, Ohio Center for Autism and Low Incidence, Columbus, OH This session will identify ten characteristics of autism spectrum disorders and pair each with practical, easy-to-implement strategies that can be used to best support these individuals to create a successful experience in a medical setting. 41. It s All About Team Work: Working with Acquired Brain Injured Patients Gretchen Pace, CCLS, Child Life Specialist, Children s Health Center at St. Joseph s Hospital & Medical Center, Chandler, AZ Holly Wilson, PT, MPT, Physical Therapist, St. Joseph s Hospital and Medical Center, Phoenix, AZ This session will address the collaborative approach between a child life specialist and a physical therapist. It will provide participants with the opportunity to learn how team members work together to set and reach goals throughout the continuum of hospital care for children with acquired brain injuries. 42. Appetite for Life Maureen Jones, CCLS, Child Life Specialist, Children s Hospital of Eastern Ontario, Ottawa, ON Heather Crawford, CCLS, Child Life Specialist, Children s Hospital of Eastern Ontario, Ottawa, ON Brenda Robinson, CCLS, Child Life Specialist, Children s Hospital of Eastern Ontario, Ottawa, ON A child life cooking program can extend across the diagnostic, developmental and cultural spectrum. The essential benefits for target populations of oncology, hematology, nephrology and rehabilitation will be identified. Case studies illustrating the application of this program will be presented and infection control policies will be considered. 18 Child Life Council 27th Annual Conference on Professional Issues

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