First Nordic Symposium on Narcolepsy. 7-8th February in Helsinki Finnish Red Cross, Nevanlinna lecture hall Kivihaantie 7.

Transcription

1 First Nordic Symposium on Narcolepsy 7-8th February in Helsinki Finnish Red Cross, Nevanlinna lecture hall Kivihaantie 7.

2 First Nordic Symposium on Narcolepsy 7-8th February, Helsinki Organisers: The NarpaNord Consortium, Helsinki Sleep Clinic, University of Helsinki Local Organisation Committee: Anne Huutoniemi, Taina Jaatinen, Markku Partinen Nordic Scientific Committee: Mona Heier, Tomas Hökfelt, Poul Jennum, Ilkka Julkunen, Seppo Meri, Tomas Olsson, Markku Partinen, Outi Saarenpää-Heikkilä, Antti Vaheri, Olli Vapalahti Exhibitors: photos: Markku Partinen, Marko Tuokko graphic design: Anne Huutoniemi, Marko Tuokko

3 Thursday 7th February 12:15 Registration, Coffee, Exhibition 12:45 Introduction, Markku Partinen 12:50 Opening, Ministerial Counsellor Timo Keistinen, Ministry of Social Affairs and Health Part 1. Clinical aspects of narcolepsy Chairperson Tomas Olsson, Stockholm 13:00 Are the estimated prevalences of narcolepsy in different ethnic groups too low or too high? Christer Hublin, Helsinki 13:15 Clinical picture, diagnosis and evolution of childhood narcolepsy, Giuseppe Plazzi, Bologna 14:00 Can knowledge about the hypocretin neuronal system help explain the post vaccination deficiency? Kaare Gautvik, Oslo 14:15 Role of CSF-hypocretin in differential diagnosis of narcolepsy, Stine Knudsen, Copenhagen 14:30 Management and treatment of childhood narcolepsy - Swedish experience, Lars Palm, Lund/ Malmö 14:50 Problems in diagnosis. Brighton criteria and developments of the new International diagnostic criteria of narcolepsy. Markku Partinen, Helsinki 15:05 General discussion 15:20 COFFEE BREAK, EXHIBITION

4 Part 2. Psycho-social aspects of narcolepsy Chairperson Mona Heier, Oslo 15:45 Social- and school problems in childhood narcolepsy, Outi Saarenpää- Heikkilä, Tampere 16:05 Severe psychiatric problems in childhood narcolepsy, Reija Alén, Jyväskylä 16:20 Burden of narcolepsy. Social consequences and costs, Poul Jennum, Copenhagen 16:40 Compensations of pharmaceutical related injuries in Nordic countries, Reima Palonen, Helsinki 17:00 General discussion 17:30 End of the First day 18:30 Dinner in Porvoo, Restaurant Sinne, Porvoo Old Town in the summer Dinner in Porvoo: Bus transportation leaves at from Hotel Haaga. The bus will be back at hotel around hours. Estimated travelling time is 45 minutes.

5 Friday 8th February Part 3. H1N1 epidemics, pandemic H1N1 vaccinations and narcolepsy Chairperson Terhi Kilpi, Helsinki 8:30 H1N1-vaccinations and narcolepsy in Sweden, Nils Feltelius, Uppsala 8:50 H1N1-vaccinations and narcolepsy in Norway, Mona Heier, Oslo 9:10 H1N1-vaccinations and narcolepsy in Finland, Hanna Nohynek, Helsinki 9:30 Discussion 9:45 COFFEE BREAK Part 4. Neurobiology and pathogenetics of narcolepsy Chairperson Antti Vaheri, Helsinki 10:05 Immunogenetics of organ-spesific inflammatory disease, experience from Multiple Sclerosis, Tomas Olsson, Stockholm 10:25 Genetic support for the autoimmune hypothesis of narcolepsy, Birgitte Kornum, Copenhagen 10:50 (Gen)Omical possibilities and challenges for studies in narcolepsy, Markus Perola, Helsinki 11:05 Viral infections and narcolepsy, Ilkka Julkunen, Helsinki 11:20 Antibodies against pandemic H1N1-vaccines, Outi Vaarala, Helsinki 11:40 Immunohistochemical studies on sera from patients with narcolepsy, Peter Bergman, Czaba Adori and Tomas Hökfelt, Stockholm 12:00 Experimental challenges of HLA-DQ6 transgenic mice, Tobias Freitag, Helsinki 12:20 Discussion 12:35 LUNCH

6 Part 5. Current and future topics. Free communications Chairperson Markku Partinen, Helsinki 13:15 Virological and microbiological studies, Olli Vapalahti, Helsinki 13:22 Autosomal dominant cerebellar ataxia, deafness and narcolepsy, Atle Melberg, Uppsala 13:29 Identification of potential mimotopes, Kaia Palm, Tallinn 13:36 Neural antibodies, Seppo Meri, Helsinki 13:43 CSF-hypocretin, and other CSF-measurements in Finnish narcolepsy patients, Pekka Kaipainen, Espoo 14:00 Other MHV genes than DQB1 - could they have a role in Narcolepsy?, Maisa Lokki, Helsinki 14:07 HLA and narcolepsy-, Taina Jaatinen and Päivi Saavalainen, Helsinki. 14:14 Discussion 14:40 COFFEE BREAK 15:00 Clinical and epidemiological studies in Sweden, Attila Szakàs, Halmstad 15:07 Organisation of studies and treatment of narcolepsy in Norway, Michaela Gjerstad, Stavanger 15:14 Differences between Finnish and Italian children with narcolepsy, Fabio Pizza, Bologna and Tomi Sarkanen and Hanna Peltola, Helsinki 15:21 Adults with narcolepsy after Pandemrix in Sweden, Lena Leissner, Örebro 15:28 Swedish Narcolepsy Register, Anne-Marie Landtblom, Linköping 15:35 Discussion 16:00 End Rinnekoti Research Center CSF Orexin measurements 180 / pcs. More information: Pekka Kaipainen, Clinical chemist pekka.kaipainen@rinnekoti.fi tel Kumputie 1, ESPOO, FINLAND

7 People responsible of practical meeting arrangements. Back row: Marko Tuokko, Hannele Laakso, Markku Partinen Front row: Anne Huutoniemi, Gabriele Sved, Minna Kuurne-Koivisto, Helsinki Sleep Clinic; missing from picture Taina Jaatinen, Finnish Red Cross. NARPANord Consortium The original partners of the NARPANord Consortium are: In Finland: Helsinki Sleep Clinic, Vitalmed Research Centre, Haartman Institute and Biomedicum, University of Helsinki; National Institute for Health and Welfare, Helsinki (THL); and in Sweden: Karolinska Institutet. Danish and Norwegian are also in the core of the future developments in this field. PI: Markku Partinen, Helsinki Sleep Clinic; Funding: Academy of Finland, Finland, and Vetenskapsrådet, Sweden. The NARPANord Project include clinical, epidemiological and pathogenetic studies. The aim is to understand pathogenesis of narcolepsy and other sleep disorders and to develop the treatments. The researchers work in collaboration with many International researchers all over the world. Collaboration with clinicians is crucially important and we wish to thank all clinicians who have collaborated by consulting about their patients and sending samples to us.

8 Useful Information Telephone numbers Taxi Helsinki Hotel Haaga Helsinki Sleep Clinic Anne Huutoniemi Finnish Red Cross Most of the grocery stores close at but some of them are open till and almost all shops and restaurants accept common bank and credit cards. If you need more info about Helsinki, check this out: Hope you ll have an inspiring meeting. Welcome! The Congress place (Kivihaantie 7) is easy to access by walking, about 10 minutes walk from Hotel Haaga (Nuijamiestentie 10). There s a pedestrial bridge over the motor way on the half way that is recommended to use.