Almuth Fricke, Institut für Bildung und Kultur e.v. On the wings of music: Concerts for people with dementia and their carers

Transcription

1 Almuth Fricke, Institut für Bildung und Kultur e.v. On the wings of music: Concerts for people with dementia and their carers Fachtagung Demenz und Musik. Forschung und Praxis Universität Vechta

2 Project On the wings of music developed, implemented and evaluated bespoke concert programmes for people with dementia and their carers. 1-year pilot scheme (May 2012-April 2013) Funding + Government Commissioner for Culture and the Media + Kuratorium Deutsche Altershilfe, Köln + Ministry of culture of the State of North Rhine- Westphalia

3 1. Aims 2. Network Building 3. Programme development 4. Outcomes 5. Evaluation 6. Impact 7. Sustainability

4 Aims Encourage cultural participation of people with dementia (PWD) and their carers as a means to reconnect with their communities Raise awareness about the needs and abilities of PWD in cultural sector Support cultural sector to create stimulating provisions for PWD Enhance cooperation between cultural and dementia sector Evaluate impact on individual wellbeing of PWD

5 Network Building Partners from the cultural sector Duisburger Philharmoniker WDR-Sinfonieorchester Köln Hochschule für Musik und Tanz Köln Jazzschmiede Düsseldorf Historische Stadthalle Wuppertal Deutsche Kammerakademie Neuss Stiftung Museum Kunstpalast, Robert-Schumann-Saal Staatliche Hochschule für Musik und Darstellende Kunst Stuttgart Pädagogische Hochschule Ludwigsburg

6 Network Building Partners from the dementia sector Kuratorium Deutsche Altershilfe Demenz-Servicezentren NRW dementia+art, Köln / Jochen Schmauck-Langer Diakonie Düsseldorf Projekt TANDEm, Diakonie Köln und Region Alzheimer Societies Staff and volunteers in dementia care settings

7 Programme development Selection of 4 facilitators experienced in educational work with concert halls and orchestras: Elisabeth von Leliwa, musicologist, formerly Tonhalle Düsseldorf Anja Renczikowski, musicologist, Duisburger Philharmoniker Bernhard König, composer, music educator Kamelia Neumüller, music educator, pianist 2 trainings with dementia experts on the disease and impact on abilities and communication needs of PWD Consultation on shaping of different bespoke programmes

8 Outcomes 11 concerts or concert visits at different venues Outreach to about 700 visitors (PWD, caregivers, volunteers and stakeholders) 3 different programme types - bespoke concerts -concert visits with educational activity run by skilled and trained facilitators -concert visits without activity in collaboration with dementia+art

9 Programme development 1. Bespoke concerts Tonhalle Düsseldorf, Hentrich Saal, 3 external musicians (2 singers, piano), 300 visitors WDR-Funkhaus, Kleiner Sendesaal, chamber concert of the WDR Symphonic Orchestra, 150 visitors Jazz-Schmiede Düsseldorf, 4 freelance jazz musicians, 85 visitors

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13 Outcomes 2. Concert visits with bespoke educational activity Schumann Saal Düsseldorf, 5 participants Theater Duisburg, members of the Duisburg Philharmonic Orchestras, 20 participants (incl. preparatory meeting) Zeughaus Neuss, dress rehearsal, Deutsche Kammerakademie Neuss, 26 participants Stadthalle Wuppertal, Mendelssohn Saal, Prisma Quartett, 8 participants Landesmuseum im Fruchtkasten Schillerplatz, Stuttgart, students of music academy Stuttgart, 16 partipants

14 Outcomes 3. Concert visits without educational activity organised by Dementia & Art, Cologne Hochschule für Musik und Tanz Köln, dress rehearsal for a Early Music concert, students of the academy, 18 participants 2 Happy Hour Concerts, Philharmonie Köln, WDR-Sinfonieorchester, 2 x 20 participants

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17 Evaluation I Observation of all concerts Debriefing and reflection with involved facilitators and involved partners from the cultural and dementia sectors Individual feedback by caregivers Focus group of dementia experts (workgroup Arts & Dementia of Demenz-Servicezentren North Rhine- Westphalia

18 Evaluation I Bespoke Concerts Pros Consider the needs and ability of PWD in every aspect, Provide a protected room, Reach out to big group of PWD. Cons Require more logistic effort for organisers, Imply higher costs, Specific requirements might hinder concert halls / orchestras to co-operate.

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20 Evaluation I Concert visits with or without educational activity Pros Make it easier for concert halls / orchestras to co-operate, Need less preparatory time (compared to bespoke concerts), Require less spending, Facilitate individual contact, Are inclusive. Cons Imply a higher risk that participants feel overstrained Can apply pressure to PWD to adapt to the group Require more preparation from facilitators, Allow only a small group of participants.

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22 Evaluation II Dementia Care Mapping (DCM) DCM, developed by Bradford Dementia Group in the UK, is a method for improving care practice for PWD Observation tool to describe the behaviour and wellbeing of PWD. The data inform about the level of wellbeing, satisfaction, activity and involvement of observed person Modification of DCM Tool in cooperation with Kuratorium Deutsche Altershilfe and Gerlinde Strunk-Richter as experienced mapper

23 Evaluation II Dementia Care Mapping (DCM) Observation of 20 persons in 3 different concert situations DCM normally foresees: 6-8 hours observation 23 behaviour categories 6 levels of well-being Modification to concert situation 1 hour Observation of a group of 6-8 persons Elaboration of list of 26 activities (clapping, humming, moving, waving to musicians, etc.)

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25 Evaluation II Dementia Care Mapping (DCM) Level of well-being of observed PWD WIB Wert WIB 389 Anzahl TF 145 Anzahl in % Punktzahl 2,7 Table 1: Scale of well-being of the total group high average well-being profile (+ 2.7 on a scale of -5 to +5) only 1 negative observation 2/3 of participants enjoyed and were really excited by the concert visit the sing-alongs at the end of each concert had the most positive reactions

26 Evaluation II Dementia Care Mapping (DCM) Conclusions: Above-average level of well-being of observed PWDs A concert visit seems to be a pleasant and valuable activity for PWD and contributes to their well-being A good, secure and well-prepared setting has a positive impact on PWD

27 Impact PWD and carers enriched their daily lives and routines, preserved and restored enjoyable active life and interest in the community, reconnected with cultural activities they used to follow before the diagnosis.

28 Impact Arts organisations (and their staffs): gained a better understanding of the needs and abilities of PWD, learned how to welcome PWD as integral part of their audiences, developed and implemented an innovative educational activity or programme as part of the regular programme, built new networks, enhanced reputation as inclusive arts organisations.

29 Impact Facilitators enhanced their skills in dealing with new old audiences, gained basic knowledge about dementia and the communication with PWD, lost fears and gain practical experience, advanced their CVs.

30 Impact For wider society the project contributed to disseminate a better understanding of the continuing abilities and social needs of PWD, transform arts venues into spaces of encounter between PWD, their families, carers and the community, overcome the stigma of dementia and enhance inclusion of PWD and their carers.

31 Sustainablity Follow-up concerts and activities at different venues, also involving new partners (Gürzenich Orchestra Cologne, Philharmonie Essen) 3 two-days trainings for music facilitators in Berlin, Northern and Southern Germany in November 2013 in co-operation with the German Federation of Orchestras

32 Sustainability All results on German) documentation (including recommendations and advice for planning and implementing a concert programme for PWD) reports of involved facilitators DCM-report press-review

33 Contact Thank you for your attention! Institut für Bildung und Kultur e.v. Küppelstein 34, Remscheid