How To Understand The Uses Of Big Data In Healthcare

Transcription

1 ECRI Institute s 20th Annual Conference on the Use of Evidence in Policy and Practice 0 ANNUAL CONFERENCE TH The National Academy of Sciences 2101 Constitution Ave NW Washington, DC Conference Overview Understanding the uses of big data in healthcare is not something decision-makers should leave to others. Big data is gaining a foothold in healthcare. Understanding what big data is useful for, how reliable it is, and how far it has spread requires separating facts from fads. This is so important that ECRI Institute and its cosponsors have assembled an extraordinary array of experts people whose expertise comes from their use of big data for practical purposes to provide this public service conference at the National Academy of Sciences. Our distinguished conference speakers will present evidence and perspectives on how their organizations are using big data now and where they are likely to use it in the near future. Why this Event? You will gain a greater understanding of how big data is being used today by public and private health systems, major employers, providers, insurers, government agencies, researchers, and consumers. You will leave the conference with an excellent understanding of the status of the use of big data in many key areas of healthcare. ECRI Institute and co-planners have three specific aims for this conference: 1. Define big data within the context of healthcare. 2. Take the status of big data to separate the hype surrounding big data from its actual potential. 3. Identify big data s applicability within healthcare, who is actually using it, and how it relates to smaller data. No single conference will sort these issues completely, BUT no other conference has taken this on. Cosponsored and planned by: * * * * * *Financial supporter of conference

2 Continuing Education Credits Instructions for obtaining credits can be found in the CEU instruction packet, included with your handouts. PHYSICIANS: CME Accreditation Statement: This live activity has been planned and implemented in accordance with the Essential Areas and Policies of the Accreditation Council for Continuing Medical Education (ACCME). ECRI Institute is accredited by the ACCME to provide continuing medical education for physicians. AMA Credit Designation Statement: ECRI Institute designates this live activity for a maximum of 10 AMA PRA Category 1 Credit(s). Physicians should claim only the credit commensurate with the extent of their participation in the activity. Note: November 13 is worth 6.25 AMA PRA Category 1 credits ; November 14 is worth 3.75 AMA PRA Category 1 credits. NURSES: This activity has been approved for a total of 12 California State Nursing contact hours by the provider, Debora Simmons, who is approved by the California Board of Registered Nursing, Provider Number CEP (7.5 for November 13 and 4.5 for November 14) ATTORNEYS: This program has been approved by the Supreme Court of Pennsylvania s Continuing Legal Education Board for up to a total of 10.5 credits: 1 ethics and 9.5 substantive Pennsylvania CLE credits. You must attend both days to qualify for the ethics credit. Additional Information Special note: Speakers will be introduced by name and title only. Participants should consult the full speaker biographies prior to each session. For speaker bios, agenda, recommended reading, and archived conference recording, visit The conference is being recorded and links will be posted to the website afterwards for on-demand viewing. If you have questions about the recording or other feedback, communications@ecri.org or call (610) , ext ECRI Institute has a strict no-solicitation policy covering our Annual Conference. About ECRI Institute ECRI Institute ( a nonprofit organization, dedicates itself to bringing the discipline of applied scientific research to healthcare to discover which medical procedures, devices, drugs, and patient safety practices are best to enable improved patient care. As pioneers in this science for 45 years, ECRI Institute marries experience and independence with the objectivity of evidence-based research. Strict conflict-of-interest guidelines ensure objectivity. ECRI Institute is designated an Evidence-based Practice Center by the U.S. Agency for Healthcare Research and Quality. ECRI Institute PSO is listed as a federally certified Patient Safety Organization by the U.S. Department of Health and Human Services. Please stop by our table in the Great Hall to learn more about ways to use big data in your hospital or health system. Follow the conversation on Twitter with #EIConf13 For speaker bios, agenda, and other resources, see our conference mobile site at or scan QR code.

3 Schedule at a Glance Wednesday, November 13, :30 AM to 5:25 PM 7:30 AM Registration opens Continental breakfast 8:30 AM Welcome, Acknowledgements, and Introduction to the Format and Major Themes of the Conference 9:00 10:00 AM Session 1 Creating Infrastructures for Big Data in the Public and Private Sectors 10:00 10:20 AM Q&A 10:20 10:40 AM Break 10:40 11:40 AM Session 2 Investing in Big Data: The View from the Health System C-Suite 11:40 AM 12:00 PM Q&A 12:00 1:00 PM Lunch in Great Hall 1:00 2:00 PM Session 3 The Most Advanced EHRs 2:00 2:20 PM Q&A 2:20 2:40 PM Break 2:40 3:40 PM Session 4 Can Big Data Make a Health System Bigger and Better? 3:40 4:00 PM Q&A 4:00 5:00 PM Session 5 Analyzing Patient Safety Signals: EHRs, Registries, and Beyond 5:00 5:20 PM Q&A 5:20 5:25 PM Wrap-up of Day 1 Thursday, November 14, :30 AM to 1:10 PM 7:30 AM Registration opens Continental breakfast 8:30 8:45 AM Introduction 8:45 9:45 AM Session 6 Seeking the Learning Healthcare System Through New Partnerships 9:45 10:05 AM Q&A 10:05 11:05 AM Session 7 Big Data s Influence on Cost and Quality 11:05 11:25 AM Q&A 11:25 11:45 AM Break 11:45 AM 12:45 PM Session 8 Population Health, the Crowd, and Privacy 12:45 1:05 PM Q&A 1:05 1:10 PM Closing Remarks Funding for this conference was made possible in part by Grant R13 HS from the Agency for Healthcare Research and Quality (AHRQ). The views expressed in written conference materials or publications and by speakers and moderators do not necessarily reflect the official policies of the Department of Health and Human Services; nor does mention of trade names, commercial practices, or organizations imply endorsement by the U.S. Government.

4 Conference Agenda Wednesday, November 13 8:30 AM to 5:25 PM 7:30 AM Registration opens Continental breakfast 8:30 9:00 AM Welcome, Acknowledgements, and Introduction to the Format and Major Themes of the Conference u Jeffrey C. Lerner, PhD, President and Chief Executive Officer, ECRI Institute u Murray Ross, PhD, Vice President, Kaiser Foundation Health Plan; Director, Kaiser Permanente Institute for Health Policy 9:00 10:00 AM Session 1 Creating Infrastructure for Big Data in the Public and Private Sectors 10:00 10:20 AM Q&A 10:20 10:40 AM Break The infrastructure for big data is comprised of far more than the information technology necessary to gather and analyze it. Innovative projects and programs are underway. This includes new capabilities to develop the medical research infrastructure that is changing approaches to individualized diagnostic and treatment options for physicians and patients in areas such as breast and other cancers. In addition, the information systems and changes in operations of businesses, like retail pharmacies, can and do inform healthcare more broadly. This session is designed to help us define and understand important aspects of the current big data information infrastructure warts and all. u George Bo-Linn, MD, Chief Program Officer, Patient Care Program, Gordon and Betty Moore Foundation u Troyen A. Brennan, MD, MPH, JD, Executive Vice President and Chief Medical Officer, CVS Caremark Corporation u Larry Norton, MD, Deputy Physician-in-Chief for Breast Cancer Programs; Medical Director, Evelyn H. Lauder Breast Center; Norna S. Sarofim Chair in Clinical Oncology, Memorial Sloan-Kettering Cancer Center u Moderator: Jeffrey C. Lerner, PhD, President and Chief Executive Officer, ECRI Institute 10:40 11:40 AM Session 2 Investing in Big Data: The View from the Health System C-Suite 11:40 AM 12:00 PM Q&A 12:00 1:00 PM Lunch in Great Hall In determining whether big data are affecting health systems, it is essential to understand what data the c-suite leadership are using. This session features chief executive officers of major health systems who will discuss what data they use to inform their decision-making processes. u Gary L. Gottlieb, MD, MBA, President and Chief Executive Officer, Partners HealthCare u Glenn D. Steele Jr., MD, PhD, President and Chief Executive Officer, Geisinger Health System u Speaker/Moderator: Ralph W. Muller, Chief Executive Officer, University of Pennsylvania Health System

5 Wednesday, November 13 Continued 1:00 2:00 PM Session 3 The Most Advanced EHRs 2:00 2:20 PM Q&A 2:20 2:40 PM Break Electronic Health Records (EHRs) were designed primarily to address reimbursement and care coordination issues. But efforts are under way to help improve and guide care delivery, carry out research, and inform quality assessment. How are providers using EHRs to manage their networks and determine how to deliver the best care to patients? This session examines the progress towards making EHRs the linchpin of big data in provider and payer settings. u Steve G. Peters, MD, Vice Chief Medical Information Officer, Mayo Clinic u Theresa Cullen, MD, MS, Director, Health Informatics, Veterans Health Administration u Terhilda Garrido, MPH, Vice President, Health Information Technology Transformation & Analytics, Kaiser Permanente u Jan Lee, MD, Executive Director, Delaware Health Information Network u Moderator: Lee A. Fleisher, MD, Chair, Department of Anesthesiology and Critical Care, University of Pennsylvania Health System 2:40 3:40 PM Session 4 Can Big Data Make a Health System Bigger and Better? 3:40 4:00 PM Q&A This session raises important questions about the expanding usefulness of bigger and smaller data in health systems. It looks at the financial and productivity cost of collecting data in EHRs and whether it can be reduced. It examines strategies enabled by approaches to data collection that bring community care hospitals into the research enterprise. It discusses whether clinicians, at any stage of their career, are being educated to use data more effectively in practice. It also considers whether data can help forge a more secure tie between care delivered in institutions and ambulatory care. u Brent James, MD, M.Stat, Chief Quality Officer and Executive Director, Institute for Health Care Delivery Research, Intermountain Healthcare u Robert L. Jesse, MD, PhD, Principal Deputy Under Secretary for Health, Department of Veterans Affairs u Marc Triola, MD, FACP, Associate Dean for Educational Informatics, Associate Professor of Medicine, NYU School of Medicine u Moderator: John Iglehart, Founding Editor, Health Affairs

6 Conference Agenda Wednesday, November 13 Continued 4:00 5:00 PM Session 5 Analyzing Patient Safety Signals: EHRs, Registries, and Beyond 5:00 5:20 PM Q&A 5:20 5:25 PM Wrap-up of Day 1 How are the data collected by regulators and health systems being harnessed to improve patient safety and outcomes? This session explores key examples of how data are being used and describes the rapidly evolving regulatory environment. u Jonathan B. Perlin, MD, MBA, President, Clinical Services and Chief Medical Officer, HCA, Inc. u Janet Woodcock, MD, Director, Center for Drug Evaluation and Research, Food & Drug Administration u William B. Munier, MD, MBA, Director, Center for Quality Improvement and Patient Safety, Agency for Healthcare Research and Quality u Moderator: Ronni P. Solomon, JD, Executive Vice President and General Counsel, ECRI Institute u Jeffrey C. Lerner, PhD, President and Chief Executive Officer, ECRI Institute Thursday, November 14 8:30 AM to 1:10 PM 7:30 AM Registration opens Continental breakfast 8:30 8:45 AM Introduction u Jeffrey C. Lerner, PhD, President and Chief Executive Officer, ECRI Institute 8:45 9:45 AM Session 6 Seeking the Learning Healthcare System Through New Partnerships In order to harness the potential of big data, novel business, research, and learning relationships are emerging between the healthcare delivery and information technology sectors. An example is Optum Labs, a collaboration between the Mayo Clinic and Optum, which aims to improve patient care by mining data from 110 million claims records. Another is WellPoint s partnership with IBM to create the first commercial applications for the IBM Watson technology. This session will consider the drivers and attractors for these collaborations plus how the efforts are structured, bounded, and governed. Specific attention will be given to how these complex alliances are aimed at expanding the capacity for and pace of innovation, citing examples from cancer and cardiovascular research. 9:45 10:05 AM Q&A u Samuel R. Nussbaum, MD, Executive Vice President, Clinical Health Policy; Chief Medical Officer, WellPoint u Paul Wallace, MD, Chief Medical Officer and Senior Vice President for Clinical Translation, Optum Labs u Amy P. Abernethy, MD, PhD, Director, Duke Center for Learning Health Care u Moderator: Lynn Etheredge, Consultant, Rapid Learning Project, The George Washington University

7 Thursday, November 14 Continued 10:05 11:05 AM Session 7 Big Data s Influence on Cost and Quality Cost and quality issues are a long-standing and pressing concern for public payers, health systems, and public health. In this session we examine how incorporating new big data, including predictive modeling, facilitates our understanding and the ability to address the issues more efficiently. u Patrick Conway, MD, MSc, Chief Medical Officer, Centers for Medicare & Medicaid Services; Director, Center for Medicare & Medicaid Innovation; Director, Center for Clinical Standards and Quality, Centers for Medicare & Medicaid Services u Stephan D. Fihn, MD, MPH, Director, Office of Analytics and Business Intelligence, VA Puget Sound Health Care System u John Supra, MS, Deputy Director, Information Management, Chief Information Officer, South Carolina Department of Health and Human Services u Nirav R. Shah, MD, New York State Commissioner of Health u Moderator: Robert Crane, Board of Trustees Member, ECRI Institute; Former Senior Vice President, Kaiser Foundation Health Plan, Inc. and Kaiser Foundation Hospitals; Founding Director, Kaiser Permanente Institute for Health Policy 11:05 11:25 AM Q&A 11:25 11:45 AM Break 11:45 AM 12:45 PM Session 8 Population Health, the Crowd, and Privacy The boundaries between individual and population health may be becoming more porous as big data takes hold in healthcare. But how is this happening? Much of the data for big data comes from consumers and patients the target of patient-centered care initiatives and their experience with the Internet and social media. Big data analytics can also rapidly generate data sets to support in-silico trials on large numbers of patients sharing attributes of interest and drawn from multiple sources, such as EHRs and bio-banks. As more information becomes available and is used in various communication and research initiatives, perceptions of privacy may also alter the balance of benefits and harms and affect the future uses of big data. These topics will be brought together to better understand new possibilities for enhancing the health of populations. u William Stead, MD, Associate Vice Chancellor, Health Affairs, Vanderbilt University u Joel Kupersmith, MD, Former Chief Research and Development Officer, Veterans Health Administration u Jane Hyatt Thorpe, JD, Associate Professor, School of Public Health and Health Services, and Director, Healthcare Corporate Compliance Program, College of Professional Studies, The George Washington University u Ben Heywood, Founder, PatientsLikeMe u Moderator: Joe V. Selby, MD, Executive Director, Patient-Centered Outcomes Research Institute 12:45 1:05 PM Q&A 1:05 1:10 PM Closing Remarks u Jeffrey C. Lerner, PhD, President and Chief Executive Officer, ECRI Institute

8 Map Key National Academy of Sciences MS Auditorium 4 Speaker Registration 7 Speakers Lounge 10 ECRI Members Lounge 2 Great Hall 5 ECRI Institute Information 8 Coat Room 11 ECRI Experience Breakfast Meeting 3 Attendee Registration 6 West Court Additional Seating 9 Elevators to NAS Cafeteria 12 Entrance Taxi Stand C Street Entrance C Street NW nd Street NW st Street NW Main Entrance Handicap Access ECRI Institute Members Lounge Hours: Wed., 11/13-1:00-5:00 p.m. Thurs., 11/14-9:00 a.m. - Noon Constitution Avenue, NW