Transition from Pediatric to Adult-based Care

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1 15 th Annual Chronic Illness and Disability conference Transition from Pediatric to Adult-based Care Thursday, October 2 Friday, October 3, 2014 MD Anderson Cancer Center Mitchell Basic Sciences Research 6767 Bertner Avenue n Onstead Auditorium, 3rd Floor Houston, TX CME Co-provided by and Texas Children s Hospital Broadcast supported by the AUCD through HRSA grant #UA5MC The broadcast is also supported by the Texas DSHS Title V CYSHCN Program. Returning for the fourth year! Activity Director: 6th Annual Albert Health C. Care Hergenroeder, Transition MD Research Consortium Research Symposium Wednesday, October 1, 2014 n 7:30 am - 6:00 pm

2 planning committee Activity Director Rosemary Alexander n Barbara J. Anderson, PhD n Caitlyn Barrow Cecily L. Betz, PhD, RN n Steffanie R. Campbell, MD n Rebecca Carman, MSW Scott Garner, MBA n Elaine Hime, BS n Rachel Jew n Aaron Loeb, MBA, MS, RN Diane Murrell, LCSW n Rebecca J. Schultz, PhD, RN n Shelley Townsend, MSW Sherry Vinson, MD n Chava White, LMSW-AP, CCM activity faculty Houston, Texas unless otherwise noted Rosemary Alexander Transition Coordinator Pathways to Adulthood Program Texas Parent to Parent Austin, Texas Barbara J. Anderson, PhD Professor of Pediatrics Associate Head, Section of Psychology Sue S. Bornstein, MD Executive Director Texas Medical Home Initiative Dallas, Texas Isabel Stenzel Byrnes Social Worker, Patient Advocate, Author Mission Hospice Redwood City, California Rachel N. Caskey, MD Assistant Professor of Internal Medicine and Pediatrics University of Illinois at Chicago Chicago, Illinois Eyal Cohen, MD, MSc Associate Professor Department of Pediatrics and Health Policy Management and Evaluation Medical Director, Complex Care Program The Hospital for Sick Children University of Toronto Toronto, Ontario, Canada Peter F. Gerhardt, EdD President, Peter Gerhardt Associates, LLC Montclair, New Jersey Olga L. Guerra Family Partner, Families CAN University of Houston Professor of Pediatrics Chief, Section of Adolescent Medicine and Sports Medicine Section Elaine Hime, BS Program Director Project Delivery of Chronic Care Delivery of Chronic Care Houston Field Relations Coordinator Texas Children s Health Plan Margaret A. McManus President, The National Alliance to Advance Adolescent Health Organization Washington, DC John D. Mucha, MPAS, PA-C, CDE Assistant Professor of Medicine Kathy Sanabria, MBA, PMP Associate Executive Director of Programs Illinois Chapter, American Academy of Pediatrics Chicago, Illinois Assistant Professor of Pediatrics Boston Children s Hospital Boston, Massachusetts Beth Sufian, JD Partner, Sufian and Passamano, LLP Brad Thompson, MA, LPC Director, The HALI Project Canyon, Texas Patience H. White, MD, MA Professor Emeritus of Medicine and Pediatrics Co-Director, Got Transition The Center for Health Care Transition Improvement George Washington University School of Medicine and Health Sciences Washington, DC disclosure policy In order to meet the requirements of the Accreditation Council for Continuing Medical Education it is the policy of that all individuals who are in a position to control the content of a CME activity (activity director, planning committee members, and faculty) disclose relevant financial relationships with commercial interests. All identified conflicts of interest are managed to help ensure that the educational material is scientifically based, accurate, and objectively presented. Specific disclosure will be made to the participants prior to the educational activity.

3 conference overview Skill preparation and planning for health care transition for children and youth with special health care needs (CYSHCN) is inadequate. Less than 50% of families nationwide indicate that their CYSHCH have received the services necessary to make appropriate transitions to adult health care, work, and independence. One of the major problems to receiving this care is the lack of a physician workforce trained in providing the services necessary to make the health care transition. There is a strong need on the part of physicians to have the knowledge and skills to provide services to facilitate successful transition from pediatric to adult-based care and services. Due to increased awareness in transitioning to adult-based care, clinicians are required to be updated on changing strategies for integrating emerging adult-based care into practice. For all conference participants, there will be an update of the legal issues involved in health care transition, as well as time to meet and talk with faculty, to exchange ideas among participants, and share knowledge and information about how best to plan for a successful transition to adulthood. TARGET AUDIENCE Physicians in internal medicine, family practice, pediatrics psychiatry, and physiatry; other health care providers including, psychologists, social workers, nurses, dietitians, case managers, counselors, and primary care providers; youth and young adults with chronic illness and their parents/guardians. OBJECTIVES At the conclusion of the conference, participants should be able to: Identify the current state of health care transition in the U. S., including legal and financial issues. Develop a practice-based framework for implementing health care transition services. Evaluate youth and young adults with special health care needs presenting with complex medical conditions and identify appropriate transition services. Identify barriers and successful strategies when placing youth and young adults with special health care needs with behavioral health and intellectual disabilities into employment, housing, and available medical transition services. Identify the core elements and measures of a quality improvement assessment. EDUCATIONAL METHODS Lecture n Meet the Faculty Sessions n Breakout Sessions Question and Answer Sessions EVALUATION Evaluation by questionnaire will address program content, presentation, and possible bias.

4 ACCREDITATION/credit DESIGNATION Physicians is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians. designates this live activity for a maximum of AMA PRA Category 1 Credits. Physicians should claim only the credit commensurate with the extent of their participation in the activity. The presentation, Legal Issues in Transition, has been designated by Baylor College of Medicine for.75 credit of education in medical ethics and/or professional responsibility. Nursing Earn up to 12.9 contact hours by attendance at this activity. Texas Children s Hospital is an approved provider of continuing nursing education by the Texas Nurses Association, an accredited approver by the American Nurses Credentialing Center s Commission on Accreditation. Social Work Texas Children s Hospital is an approved continuing education provider for Social Workers through the Texas State Board of Social Worker Examiners. Social work continuing education units provided, 11 hours of continuing education including 1 hour of ethics. Occupational Therapy and Physical Therapy contact hours or 13.5 CCUs have been applied for this course through TPTA and TOTA. Texas Children s hospital is an Approved Provider for the Texas Occupational Therapy Association. The assignment of TOTA CE hours does not imply endorsement of specific course, content, products, or clinical procedures by TOTA. Fee, Registration, and Confirmation Information Refer to the registration form for the fee schedule. Your registration will be confirmed, but not processed until payment is received. If you have not received confirmation at least five business days before the activity start date, contact the Office of Continuing Medical Education (OCME) immediately. A limited number of scholarships are available for CYSHCN and their parents/ guardians. Please contact Blanca Sanchez-Fournier at for complete details. If you plan to register on-site, contact the OCME at least 24 hours in advance to confirm activity status and space availability. The OCME reserves the right to limit the number of participants in an activity and will not be responsible for any expenses incurred by an individual whose registration is not confirmed and for whom space is not available. To register/pay for the conference only, visit the website at BaylorCME.org/CME/1490 and follow the instructions. Cancellation/Refund Policy Requests for registration refunds must be in writing and received by the OCME at least 10 business days before the activity begins. The date the request is received by the OCME will be considered the cancellation date. Requests received after the refund deadline will not be processed. Cancellations are subject to a $50 administrative fee deducted from the registration fee paid to cover guarantees and other expenses. Requests should be mailed to the OCME or faxed to The OCME reserves the right to cancel activities, not less than 10 business days before the scheduled date, if extenuating circumstances make it necessary. Registrants will be notified at the contact number indicated on the registration form, followed by written notification. If an activity is cancelled, OCME s liability is limited to the registration fee paid. Note: If payment is made by check, a social security number is required to process the refund.

5 6th Annual Health Care Transition Research Consortium Research Symposium Wednesday, October 1, 2014 n 7:30 am - 6:00 pm MD Anderson Cancer Center Mitchell Basic Sciences Research 6767 Bertner Avenue, Onstead Auditorium, 3rd Floor Houston, TX overview The 6th Annual Health Care Transition Research Consortium Research Symposium features research presentations in the emerging field of health care transition (HCT). A variety of research topics of interest to researchers, clinicians, policy makers, parents, youth and emerging adults are presented. Topics include testing of HCT models of care and programs, HCT readiness, and provider issues. Two poster sessions on HCT research will enable direct dialogue with researchers. Two breakout sessions will address interdisciplinary perspectives pertaining to HCT education and curriculum development and the creation, maintenance, and evaluation of HCT programs. registration Registration is required for all participants. Registration fee $50 (all participants). Online registration (Research Symposium only): BaylorCME.org/CME/1490R AGENDA 7:30 am Registration and Coffee 8:15 Opening Remarks Research Symposium Co-Chairs: Megumi J. Okumura, MD, MAS Assistant Professor of Pediatrics and Internal Medicine UCSF School of Medicine San Francisco, California Cecily L. Betz, PhD, RN Professor of Clinical Pediatrics University of Southern California Keck School of Medicine Los Angeles, California Professor of Pediatrics Texas Children s Hospital 8:30 Plenary Session International Health Care Transition Research Perspectives: Canada and Mexico 9:15 Platform Session 1: Health Care Transition Programs Four research presentations on testing health care transition models/interventions Question and Answer Session 10:15 Break 10:30 Poster Session 1 n Posters on display in Onstead Auditorium lobby 12:00 noon Lunch (on your own) 1:30 Platform Session 2: Health Care Transition Readiness Four research presentations examining issues pertaining to health care transition readiness Question and Answer Session 2:30 Breakout Sessions Session 1 Transition of Care Programs: One Size Does Not Fit All! Creation, Maintenance and Evaluation of Programs Session 2 Health Care Transition Professional Education and Curriculum Development: Interdisciplinary Perspectives 3:45 Poster Session 2 n Posters on display in Onstead Auditorium lobby 5:00 Health Care Transition Research Consortium business meeting 6:00 Adjourn

6 Agenda thursday n october 2, :00 am Registration and Continental Breakfast 8:00 Welcome and Announcements Video Presentation - Coach Vance 8:15 The Current State of Health Care Transition from Pediatric to Adult-based Care 9:15 The Culture of Disability in the U.S. Peter F. Gerhardt, EdD 10:00 Question and Answer Session 10:15 Break 10:30 The Cost of Childhood-onset Chronic Illness: Implications for the Delivery of Care in the Adult-Sector Eyal Cohen, MD, MSc 11:15 Legal Issues in Transition Beth Sufian, JD 12:00 pm Question and Answer Session 12:15 Meet the Faculty Lunch Breakout Sessions (select one): Parent Advocacy Brad Thompson, MA, LPC Parents as Case Managers Olga L. Guerra Cost of Care Issues Peter F. Gerhardt, EdD Legal Issues Beth Sufian, JD Subspecialty Transition Care in a Children s Hospital SPECIAL TRACK FOR ADULT PRIMARY CARE PROVIDERS (1:00-2:45 pm) 1:00-1:45 How to Be an Adult Medical Home Sue S. Bornstein, MD 2:00-2:45 Maintenance of Certification and Transition Kathy Sanabria, MBA, PMP and Rachel N. Caskey, MD breakout session one Preparing for and Delivering Transition Services (Please choose one; sessions will repeat at 2:00 pm) 1:15 Developing a Transition Planning Program in a Large Children s Hospital The Center for Health Care Transition Improvement Got Transition 2 Margaret A. McManus and Patience H. White, MD, MA Project Delivery of Chronic Care Parents Teaching Doctors: Impact of a Parent-Directed Teaching Program in Family Centered Care in Residency Education Elaine Hime, BS a Network of Community Support Rosemary Alexander Care Coordination (To be Announced) breakout session two 2:00 (Repeat of Session One outlined above; please choose one) The D70 Grants (offered one time only) 2:45 Break 3:00 Behavioral Health, Mental Health, and Intellectual Disabilities and Health Care Transition Peter F. Gerhardt, EdD 3:40 Question and Answer Session 3:50 Evaluation and Closing Comments 4:00 Adjourn

7 Agenda friday n october 3, :30 am Continental Breakfast and Registration 8:00 Announcements 8:15 The Interview and Isabel Stenzel Byrnes 9:15 Question and Answer Session 9:25 Young Adult Perspective Isabel Stenzel Byrnes 10:05 Question and Answer Session 10:15 Break 10:30 Family Members Perspectives on Transition Brad Thompson, MA, LPC 11:10 Question and Answer Session 11:25 Behavioral Strategies Barbara J. Anderson, PhD 12:10 pm Question and Answer Session 12:15 Lunch 1:00 Providing Care to Young Adults with Type 1 Diabetes Mellitus: An Adult Provider s Perspective John D. Mucha, MPAS, PA-C, CDE 1:45 HRSA-funded: An Innovative Model for Facilitating Adult Services Through Transition (AIM-FAST) 2:00 Break 2:15 Quality Improvement in Transition Care Eyal Cohen, MD, MSc 3:00 Advancing the Field of Health Care Transition 3:40 Question and Answer Session 3:50 Evaluation 4:00 Adjourn Faculty, topics, program schedule, and credit are subject to change. Audio or videotaping is prohibited without written permission from the Activity Director and the OCME,, Houston, Texas.

8 Conference Location MD Anderson Cancer Center n Mitchell Basic Sciences Research 6767 Bertner Avenue Onstead Auditorium, 3rd Floor Houston, TX Parking is available in the McGovern Commons parking garage. Unfortunately we are unable to validate parking. Parking is $12/day. Onstead Auditorium may be accessed from the McGovern Commons through the first floor breezeway. If you are staying at the Houston Hilton Plaza, a complimentary shuttle is available. Please notify the hotel valet at least 15 minutes in advance for transportation to Onstead Auditorium. You may wish to bring a sweater 7 or light jacket as the temperature in the auditorium Houston can vary. Accommodations Cancer Hilton Houston Plaza/Medical Prevention Center 6633 Travis Street Houston, TX Accommodations should be arranged directly with the Hilton Houston Plaza/Medical Center by calling Pressler Please identify yourself with the Garage Transition Conference when making reservations in order to benefit from the special group rate ($189 King, plus tax). A limited number of rooms will be available and have been reserved at the special rate on a space available basis. The deadline to receive the special rate is September 9, 2014, unless the room block has already been filled. Fannin St. Fannin St. For Further Information Contact Phone: Office of CME Fax: One Baylor Plaza, MS: BCM155 Eaton St. Houston, TX S. Braeswood Blvd. onnade Dr. Southgate Blvd. North Campus Mid Campus Fannin Holcombe FHB Garage BRAYS BAYOU N. Braeswood Blvd. d. Visit our website, BaylorCME.org for information regarding upcoming Baylor College of Medicine CME activities. Phoenix Dr. Main St. Main Fannin St. Fannin St. Pressler St. Pressler St. Bates St. JV Johnson Ave Lyndon St. Fannin Office Bldg. PetNet Lehall St. St. Agnes St. Swanson St. Earle St. Dreyfus St. Mays Clinic Cecil St. Cecil St. Garage 2 Wilkins St. Holcombe Blvd. Holcombe Blvd. Selma St. Mitchell Research Clinical Research BRAYS BAYOU Braeswood Blvd. Braeswood Blvd. McGovern Commons The University of Texas M. D. Anderson Cancer Center 51 Main William C. Harvin Blvd. William C. Harvin Blvd. Bates St. Faculty Center Pickens Tower Pressler St. Pressler St. Moursund St. Moursund St. Braeswood Blvd. T) Old Spanish Trail M. D. Anderson Blvd. Rotary House Garage 17 Staffordshire St. Garage 5 Garage 10 Spanish Trail (OST) Old Spanish Trail (O Braeswood Blvd. Braeswood Garage Staffordshire St Car

9 Registration (Please print clearly) 15 th annual Chronic Illness and Disability conference Transition from Pediatric to Adult-based Care Thursday, October 2 Friday, October 3, 2014 Name: First MI Last Degree: Resident Fellow Med Student Affiliation: Address: City: State: Zip: Phone: Fax: Specialty: Prof. License: No./State Emergency Contact: Phone: National Provider Identifier (NPI): please note that you must register for each conference separately at the corresponding website below. research symposium n October 1 st Register online: BaylorCME.org/CME/1490R Registration $50 (all participants) Yes, I will attend. No, I will not attend. CONFERENCE n October 2 nd & 3 rd Register online: BaylorCME.org/CME/1490 Registration Fees Physician $300 Nurse $200 Social Worker $200 Other Healthcare Professional $200 BCM Faculty Member $150 Fellow, Resident, Medical Student* $25 Youth, Family Member $100 *Fax verification status within 24 hrs. of registration. october 2 nd Meet the Faculty Lunch (please select one from below) Parent Advocacy Legal Issues Parents as Case Managers Subspecialty Transition Care in a Children s Hospital Cost of Care Issues october 2 nd breakout Sessions These sessions repeat at 2:00 pm. Please select ONE session below for 1:15 pm and ONE session for 2:00 pm. 1:15 pm 2:00 pm Session 1A Session 2A Developing a Transition Planning Program in a Large Children s Hospital Session 1B Session 2B The Center for Health Care Transition Improvement Got Transition 2 Session 1C Session 2C Project Delivery of Chronic Care Parents Teaching Doctors Session 1D Session 2D a Network of Community Support Session 1E Session 2E Care Coordination Session 2F The D70 Grants (2:00 pm session only) SPECIAL TRACK FOR ADULT PRIMARY CARE PROVIDERS n October 2nd, 1:00 2:45 pm (Runs concurrently with Breakout Sessions One and Two) Yes, I will attend. No, I will not attend. Method of Payment (Your registration must be PREPAID) Check or money order (in U.S. funds) made payable to: Visa MasterCard Discover Amex $ Total Amount Enclosed Card No. Name on the Card: Authorized Signature: Exp. Date: With credit card payment, you may fax completed registration form to For registration via U.S. mail, please return completed form and payment to: Office of CME (1490), P.O. Box 4708 Houston, TX Special Requests: Contact OCME if you have any dietary needs (specify below) or any ADA accommodation needs. FOR OFFICIAL USE ONLY CK CC LB Cash Date: Amount:

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