ADULT SUPPORT GROUPS/PROGRAMS

Transcription

1 ADULT S/PROGRAMS 2nd Quarter Schedule April May June 2011 For more information on adult patient/family support groups & programs or to connect with a social worker at Dana-Farber/Brigham &Women s Center call: (617) or visit **Please note: Dates below are only listed through June Additional meetings may be held in upcoming months** SUPPORT SERVICE MEMBERSHIP FACILITATION BEREAVEMENT SEMINAR: WHEN GRIEF IS NEW BEREAVEMENT : FAMILY A seminar for adults whose loved ones were patients of Dana- Farber/Brigham and Women's Center, or any of the Dana-Farber Institute-affiliated satellite clinics Support for family members who are within 1 year of loss. Sue Morris, Director of Bereavement Services John Horras, LICSW LOCATION, TIME & DATES CONTACT Call the DF/BWCC Bereavement Program (617) John Horras (617) BEREAVEMENT SUPPORT GROUP: SPOUSE/PARTNER Support for spouses and/or partners who are within 1 year of loss. Mary Lou Hackett, LICSW Mary Lou Hackett (617) BRAIN TUMOR SUPPORT GROUP Support for brain tumor patients and their caregivers Debra LaFrankie, R.N. Nancy Tharler, LICSW Please call Nancy Tharler, LICSW (617)

2 SUPPORT SERVICE MEMBERSHIP FACILITATION CARCINOID & NEUROENDOCRINE TUMOR SEMINAR/ Two-part sessions offering an informational seminar for patients and families, followed by a support group for patients and a separate concurrent support session for family. Jane Bausch, LICSW Susan Englander, LICSW LOCATION, TIME & DATES 12pm 2pm May 17 CONTACT Jane Bausch, LICSW (617) CAREGIVERS SUPPORT GROUP Support for caregivers and family members of cancer patients. Ruth Cope, Ph.D., LICSW 12:00 1:30pm April 7 May 5 June 2 Ruth Cope (617) SELF-CARE: A FORUM FOR CAREGIVERS A forum that will focus on caring for yourself while caring for a loved one. A special event sponsored by Dana-Farber and Facing Together Facing Together 430 Walnut Street Newton, MA Saturday, May 7 th,2011 8:30am-1:30pm Please call (617) to register. CIRCLE OF LIFE: SUPPORT GROUP IN SPANISH FOR WOMEN WITH CANCER Support for Spanishspeaking patients with all cancer diagnoses. Women only. Rachel Allende, LICSW 10:00am 11:30am April 12 May 10 June 14 Rachel Allende (617) FACING FORWARD AFTER BREAST CANCER TREATMENT A 6-session series for breast cancer patients who will soon complete or who have recently completed treatment. Dana-Farber clinicians will provide information through presentations and group discussion. Julie Salinger, LCSW 5:30-7:00pm April 11 April 25 May 9 May 23 June 6 June 20 required: Please call Julie Salinger (617) LIVING WITH GYNECOLOGIC CANCER Patients currently diagnosed with gynecologic cancer Irene Goss-Werner, LICSW DANA Bldg. Room :00-7:30pm April 14 May 19 June 16 Irene Goss- Werner (617) GYNECOLOGIC CAREGIVERS LUNCH AND CONVERSATION For family and friends who are caregivers of inpatients with a gynecologic cancer diagnosis. Lunch is provided. Bobbi Allison, LICSW Kristyn Morrisey, LICSW Every Thursday Bobbi Allison

3 SUPPORT SERVICE MEMBERSHIP FACILITATION LOCATION, TIME & DATES CONTACT LUNG CANCER Open support group for patients being treated for lung cancer and their caregivers. Allison DiBiaso, LICSW DANA Building Room DL201 2:00-3:30pm April 11 May 9 June 13 Allison DiBiaso (617) MELANOMA Support group for New England area patients dealing with melanoma Mary Lou Hackett, LICSW Room :30 7:00pm April 28 May 26 June 30 Mary Lou Hackett (617) METASTATIC BREAST Patients currently diagnosed with metastatic breast cancer Pat Kartiganer, LICSW SHIELDS WARREN BLDG., Room :00-11:30am April 5 April 20 May 10 May 25 June 7 June 22 Pat Kartiganer (617) METASTATIC CANCER: PARENTING WITH METASTATIC CANCER TELEPHONE SUPPORT A six-week telephone support group for patients with metastatic cancer Pat Kartiganer, LICSW For dates and times please call Pat Kartiganer (617) To register or for more information, please call Pat Kartiganer (617) GROUP MULTIPLE MYELOMA A monthly meeting that includes a presentation by a member of Dana- Farber s Multiple Myeloma team, followed by a discussion group for patients and caregivers. Larisa Patacchiola, LICSW & Alexis Fields, LICSW 5:30-7:00pm April 13 May 11 June 8 Larisa Patacchiola (617) or Alexis Fields (617) MULTIPLE MYELOMA CAREGIVERS LUNCH AND CONVERSATION A weekly meeting for caregivers of multiple myeloma patients who are currently hospitalized for a stem cell transplant. Lunch is provided. Alexis Fields, LICSW Tower 4A Conf. Rm Brigham & Women s Hospital Every Monday 1:00-2:00pm Questions: Contact Alexis Fields (617)

4 SUPPORT SERVICE MEMBERSHIP FACILITATION LOCATION, TIME & DATES CONTACT POST-TRANSPLANT Support group for patients 1-3 years post allogeneic stem cell transplant Tammy Weitzman, LICSW Toni Dubeau, R.N. 6:00-7:30pm April 5 April 19 May 3 May 17 June 7 June 21 Tammy Weitzman (617) PROSTATE CANCER The Prostate Health Education Network focuses on the needs of Black men diagnosed with prostate cancer Thomas Farrington Jacques Carter, MD Room 304 5:30-7:30pm April 13 May 11 June 8 For more information, please call: Athene Wilson- Glover (617) SARCOMA SUPPORT GROUP Support for patients and family members. Krista Grew, LICSW Amy Potter, NP DANA Building Room DL201 12:30-1:30pm April 4 May 2 June 6 Krista Grew (617) WALDENSTRÖM S MACROGLOBULINEMIA Open to all WM patients and families in New England regardless of where treatment is received Patricia Sheehy, ANP-BC, OCN Christopher Patterson Christopher Patterson (617) YOUNG ADULT Patients ages currently in treatment or recently completing treatment. Bruce MacDonald, LICSW Room :30 7:00pm April 20 May 18 June 15 Bruce MacDonald (617) YOUNG WOMEN WITH BREAST CANCER PHONE GROUP Telephone support group offered through the Program for Young Women with Breast. For patients 43 years and younger Patricia Sheehan, LICSW For dates and times, please contact Jamie Kennedy at (617) To register or for more information, please call: Jamie Kennedy (617)

5 Milford, MA s Spring 2011 Program Schedule 20 Prospect Street, Milford, MA All programs are held in the 2 nd floor conf. room (except for the Enteral Feeding Discussion Group, which meets in the 1 st floor conference room) PROGRAM DATE & TIME DESCRIPTION Coping with Breast Look Good Feel Better Care 101 Enteral Feeding Discussion Group Caring for the Caregiver 2nd and 4th Wednesday April 13 and 27 May 11 and 25 June 8 and 22 2:00-3:30 pm First Wednesday April 6 May 4 June 1 4:30-5:30 pm Second Wednesday April 13 6:00-8:00 pm May 11 6:00-8:00 pm June 8 2:00-4:00 pm Second Friday April 8 May 13 June 10 3:00-4:00 pm 1 st and 3 rd Thursday April 7 and 21 May 5 and 19 June 2 and 16 1:30-2:30pm First Wednesday beginning April 6 May 4 June 1 6:00-7:30 pm A support group for people living with cancer, including families and caregivers. Come talk with others who are faced with the same challenges. Ann Sullivan, LICSW and Adonica Racicot RN Call Ann Sullivan for more information A support group for women who would like to meet with others to explore ways to cope with their diagnosis, its effect on their lives, and to support each other. Ann Sullivan LICSW and Mary Beth Proulx RN Call Ann Sullivan for more information An American Society (ACS) program for women. Come have fun while you learn beauty tips to help you look and feel better while undergoing cancer treatment. Provided by ACS volunteer beauticians Call Christine Mort to register An overview of the DF/BW Center at Milford Presented by the Patient Support Staff to familiarize you with the cancer center and the services and resources available. Call Ann Sullivan for more information A discussion group for any patient who has a feeding tube as part of their plan of care. Participants can be anticipating this need, using it currently, or transitioning to an oral diet. Variety of topics are discussed and education and support are shared. Caregivers welcome. Lisa Taylor, RD, LDN and Ann Sullivan, LICSW Call Lisa or Ann for more information This is an educational and supportive session is for those who are helping a loved one or friend get through cancer treatment. The program will provide practical information to enable you to perform well in your role as a caregiver as well as offer an opportunity to meet and gain support from others coping with similar issues. Call Ann Sullivan LICSW to register

6 Writing About Bereavement Annual Survivorship Workshops, Celebration and More Thursdays April 7 April 21 April 28 May 5 4:00 6:00 pm Second Monday April 11 May 9 June 13 7:00-8:30 pm Workshops Tuesday May 31 st through Friday June 17 th 5:30 7:30 pm Celebration Thursday June 9 th 5:30-7:30pm This writing workshop is for cancer patients and survivors. Whether you are newly diagnosed or have been in remission for years, writing about the different aspects of your cancer journey can be therapeutic. Call Deb Ragosta at (508) or Ann Sullivan at (508) to register. A support group for those who have experienced the loss of a loved-one to cancer to join with others to explore ways to cope with loss and grief and to support one another. Call Marjorie Gonzalez LICSW for more information , extension 3119 Celebrate Survivorship with us under the tent on June 9 th. Art exhibit on display throughout the clinic. Information tables available. Workshops on a variety of topics, including nutrition, finances, reflexology, yoga, sexuality, caregiving and more. Watch for more information. Programs are held in the 2 nd floor conference room (except for the Enteral Feeding Discussion Group, which meets in the 1 st floor conference room) DFCI/BW Center 20 Prospect Street Milford, MA Refreshments are provided All Programs are FREE 6

7 PROGRAM DATE & TIME DESCRIPTION Living with Telephone for Blood s and Related Diseases Tues. April 5, 6-7 pm Wed. April 20, 1-2 pm Tues. May 3, 6-7 pm Wed. May 11, 1-2 pm Tues. June 7, 6-7 pm Wed. June 22, 1-2 pm Starting Wed. March 23* 6-7 pm Londonderry, NH Spring 2011 Support Programs 40 Buttrick Road, Londonderry, NH Please call to register as space may be limited. A support group for people living with cancer, including families and caregivers. Come talk with others who are faced with the same challenges. Please feel free to attend any or all of these sessions. Joyce Austin, MSW, LICSW & Kristie Weeks, RN, OCN. A 6-week telephone support group for people with a diagnosis of leukemia, Hodgkin lymphoma, non-hodgkin lymphoma, MDS or myeloma. *Please note MARCH start date. Facilitated by Joyce Austin, MSW, LICSW. To register call the Leukemia & Lymphoma Society: Fighting with Your Fork Luncheon Time for Spouses, Families and Caregivers Look Good Feel Better Thursday, April 14 12:00-1:30 pm Thursday, April 28 6:00-7:15 pm Tuesday, May pm Separating Fact from Fiction: Learn about the role of nutrition and a healthy lifestyle in cancer prevention and survivorship. Michelle Horan, RD, LD, Dietitian. Light lunch will be served. Family members and caregivers often face their own challenges in caring for patients with cancer. Come connect with others, learn coping strategies & obtain resources. Joyce Austin, MSW, LICSW & Kristie Weeks, RN, OCN. An American Society program for women. Come have fun while you learn beauty tips to help you look and feel better while undergoing cancer treatment. Tending to Your Spirit 2011 National Survivorship Celebration The Weight- Connection Making Your Wishes Known Thursday, May pm Tuesday through Thursday, June 7-9 Wednesday, June pm 1 st Thursday of Every Month, am A time for respite and sharing. Come feed your soul and find healing with others who are living with cancer. Theresa Bianchi, M.Div. Chaplain. Celebrate survivorship! Refreshments and information tables available. Watch for more details! What s weight got to do with it? Learn how body weight impacts cancer & recurrence risk and how you can achieve a healthy weight. Michelle Horan, RD, LD, Dietitian. Who would you want to make your medical decisions if you couldn t make them yourself? This session offers information and assistance on completing Advanced Medical Directives. Joyce Austin, MSW, LICSW All programs are FREE, include light refreshments, and are intended for those 18 years and older. For updates or cancellations due to weather, please call the registration line at (603)

8 Weymouth, MA Spring 2011 s 101 Columbian St., South Weymouth, MA PROGRAM DATE & TIME DESCRIPTION Facing Forward 4 th Wednesday of the month April 27 May 25 June 22 6:00 7:30pm A support group for women who have recently completed or will soon complete treatment for breast cancer. Allison Feeley, LICSW Call Allison Feeley, LICSW for more information: All programs are free. Free parking available in adjacent garage. 101 Columbian Street, South Weymouth, MA

9 ADDITIONAL ADULT PATIENT/FAMILY SUPPORT PROGRAMS Department of Care Coordination Family Connections Program: For Parents with Provides supportive resources to adult patients who are parents, addressing their needs as parents and those of their young, school age, and/or teenaged children. Age-appropriate information is available through various materials, including: Parent information binder for adult patients/adults in the family (available in English and Spanish) Age-based packs for children/teens of patients Grief packets Additional information, resources and special events For more information, please contact an Oncology Social Worker at (617) or Program Coordinators at (617) or (617) Visit: One-to-One: Connecting with Someone Who s Been There One-to-One is a volunteer support network supporting patients and families at the Dana- Farber/Brigham and Woman's Center. One-to-One brings together, via telephone, those who have experienced the complex issues surrounding high-risk cancer, diagnosis and treatment with current patients, partners, and family members. For more information, contact an Oncology Social Worker or Program Coordinator: Katie Goodfellow (617) Visit: Light One Little Candle: Connecting through Reading New children s books (for children ages 13 and under) are available to adult patients who would like to share these books with their children. The books are donated through a partnership with the Light One Little Candle Foundation and the Family Connections program. These children s books are free and currently available in the Blum Resource Center at the Dana-Farber Institute and, are also available to adult cancer patients at the Brigham and Women s Hospital in the Kessler Library in the main lobby of the 75 Francis Street entrance, and with the DFCI social workers at Faulkner Hospital, Dana-Farber/New Hampshire Oncology-Hematology, Milford Regional Hospital, and in the Resource Room at DFBWCC in clinical affiliation with South Shore Hospital. For more information, please contact an Oncology Social Worker ( ) or the Program Coordinator: (617) Visit: General Information All support groups/programs are free of charge and parking is provided. Light snacks are available for group sessions. Unless otherwise noted, offerings are primarily focused on adult patients/families at the Dana-Farber/Brigham and Women s Center and satellites. For additional information, including referrals for an oncology social worker please call the Department of Care Coordination (social work): (617)