Annual Report BRAIN INJURY ALLIANCE OF COLORADO

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1 2013 Annual Report BRAIN INJURY ALLIANCE OF COLORADO

2 Who We Are The Brain Injury Alliance of Colorado is dedicated to serving individuals affected by all forms of injuries to the brain such as stroke, TBI, tumor, anoxia, and infection. Board of Directors Dannis Schanel Penrose/St. Francis Health Services Board President Mark Belfance Ernst & Young Board Treasurer Cheryl Catsoulis A Wildflower Assisted Living Board Secretary Vision Mission That all persons with a brain injury thrive in their community. Through guidance, resources, support and education, we seek to facilitate lifelong growth of Coloradans affected by an injury to the brain. Table of Contents Services & Programs...3 Financial Information...7 Supporters... 8 Melissa Winthers Fleishman & Shapiro President-Elect Bill Levis Family Member Past President Dan Sloane Hillyard, Wahlberg, Kudla, Sloane & Woodruff, LLP Legal Counsel Ashley B. Wingfield Brownstein Hyatt Farber Schreck, LLP Robyn A. Truby Encana Services Company Ltd. Ken Rich Executive Coach and Recovering TBI Consumer Brenda Heimbach Brain Care Jennifer Biggs Arnold Craig Hospital 2 After a severe brain injury, which left Anne legally blind, she was told she would only walk short distances with a walker and never live alone. Today, Anne walks with her beloved dog, Calvin, works part-time, and attends BIAC Challenge by Choice camps. Anne Inkret Brain injury survivor and her dog Calvin Julia Cowan Spalding HealthOne Rehabilitation Hospital Dayna Sloane Cherry Creek High School Craig Eliot Morgan Stanley Wealth Management Norine Hemphill Children s Hospital Colorado

3 Services & Programs Adventure Camps/ Therapeutic Recreation Programs Participants from 8 different states went dog sledding, snow tubing, ice fishing, river rafting, did crafts, journaling, ropes course, hand cycling and dancing. I enjoyed my week but it went too fast. Tracy, Denver At camp I push myself hard and feel like a normal person. Roger, Arvada My life is hard at the camp I feel happy. K.K., Missouri Multi-Day Programs Family Programs Participants Volunteers Registered Nurses 316 Adults approved for services Colorado Brain Injury Program Adult Services The Brain Injury Alliance of Colorado supports TBI survivors in their application process for the Colorado Brain Injury Program. By serving as a single point of entry to services, BIAC works to make the process of applying as smooth and easy as possible for survivors, family members and other professionals. Once approved, applicants have access to the following services: Case management tailored to individual needs Connecting individuals to resources Assistance in finding affordable health care Promotion of independence and integration through self-advocacy Opportunities to meet face to face with a Brain Injury Support Specialist in your community Staff who are Certified Brain Injury Specialists and continue to receive ongoing education to best support clients, family and the community Access to support groups/group psychotherapy: for family and survivors Training and accessing assistive technology Classes & workshops for budgeting and money management, navigating employment support and social skills 3

4 76 Youth approved for services Colorado Youth Brain Injury Connections Colorado Youth Brain Injury Connections works to provide coordinated care across community, health, and educational settings to meet the individual needs of children and youth (0-21 years old) with a brain injury. The Brain Injury Alliance of Colorado receives all referrals for the Youth Brain Injury Connections Program and seamlessly connects families with program services. Once referred to the program, each child/family will work with a care coordinator from the Health Care Program for Children with Special Needs (HCP). HCP Care Coordinators are public health professionals located across the state of Colorado. In addition each child/family will be connected with a Brain Injury Education Liaison at the Colorado Department of Education Support services & professionals listed Online Resource Directory Resource Directory Dispatch Lunch and Learn Webinar Series The BIAC online resource directory is the most comprehensive list of providers and services for the Colorado BI community. The easy search function and constant updating has made it the goto source of information. A new addition is the Resource Directory Dispatch newsletter that is sent out to the entire resource directory, and other professionals throughout the state. Each issue features a calendar of professional opportunities around the state and a legislative update. The Lunch and Learn series is a new platform for sponsoring Partners to present information about their business or organization to a professional audience in a 30 minute webinar format hosted by BIAC. These events will break down geographic barriers and allow professionals to interact outside of their own communities on a more frequent basis. 4

5 Services & Programs Community Outreach & Education BIAC staff provide outreach through presentations for groups or exhibits at events. In-depth trainings are offered to community providers to increase public awareness of brain injury, services BIAC can offer, and brain injury resources available in Colorado. Brain Injury Professional Networks Grand Junction Colorado Springs Boulder Northern Colorado Support Groups Summit County Denver Traumatic Brain Injury Networking Team (TNT) Outreach, education, conferences and trainings were given in person statewide Major medical centers across the state were reached Trainings offered to community organizations Brain Injury Professional Network groups State-wide support groups Outside Metro- Denver Support Groups 63% Metro- Denver Support Groups 37% Outreach Activities Conferences Fairs Hospitals Community Organizations 45% 17% 19% 19% 5

6 84 Survivors received financial assistance $ 20,000 granted Assistance with Utility Bills This program is intended to help Colorado s neediest families and seniors afford home energy. This has been distributed across the state for energy assistance to limited income households and for energy efficiency upgrades for affordable housing and nonprofit facilities. 250 Conference attendees Colorado Brain Injury Collaborative/ Public Policy The Colorado Brain Injury Collaborative is dedicated to improving the lives of the approximate 200,000 individuals living with brain injury in Colorado through public policy and education. Established as the lead group in Colorado public policy matters, there has been significant progress in a number of key areas. There is however, much more work to be done in the future. Highlights of our successes in 2013 include: Remained active and engaged at the state level specific to implementation of the ACA and Health Benefit Exchange. Likewise with the Medicaid Expansion. Continued to apply pressure on state agencies to remove barriers to access to the BI Waiver. Developed new legislative champions for the BI cause. Worked to remove the barriers to services for individuals with BI and behavioral health issues. Workshops For the first time we held workshops in Grand Junction, Pueblo, Frisco and Durango. These workshops were intended for survivors and their support system of family, care givers and therapists. Guest speakers presented on a wide variety of topics such as Legal Issues for BI Survivors, Vision Problems after TBI, Improving Organizational Skills and Building Social Capital. Resource Facilitation Phone, in-person and based support. Information about providers that work with brain injury, state benefits such as Medicaid HCBS Waiver services, and other resource related needs. 6

7 Services & Programs 29th Annual Pikes Peak Challenge For the first time we introduced a 3 mile family friendly walk in Manitou Springs. Over 50 survivors took part along with family members, friends and children. Pikes Peak Challenge A Special Event of the Brain Injury Alliance of Colorado $ 165,000 raised Summit Hikers Manitou Walk participants Volunteers Financial Information BIAC Finances 2013 Revenue $ 615,988 Expenses Programs & Fundraising $ 547,052 Administrative $ 92,581 Total Expenses $ 639,633 Change in Net Assets ( $ 23,645) Net Assets (Beginning of the Year) Net Assets (End of the Year) $ 154,247 $ 130,602 7

8 Supporters Conference Sponsors A Wildflower Assisted Living Burg Simpson Care Meridan Colorado TBI Trust Fund Craig Hospital Fleishman & Shapiro PC Greeley Center for Independence HealthSouth Hillyard, Wahlberg, Kudla, Sloane & Woodruff, LLP Jaray & Webster LLC Learning Services Metier Law Firm OT Plus Rocky Mountain Health Care Services Rocky Mountain Human Services Spalding Hospital Pikes Peak Challenge Sponsors The Fan Radio Brownstein Hyatt Farber Schreck Christy Sports Classic Homes Craig Hospital Fleishman & Shapiro PC HealthSouth Colorado Springs Jaray & Webster LLC Learning Services Osprey Packs Parkview Medical Center Penrad Imaging Penrose St. Francis Health Services Rocky Mountain Health Care Services Rocky Mountain Human Services Vectra Bank Foundation Supporters Cathleen s Cause Foundation Community First Foundation Community Health Charities Energy Outreach Colorado JK Mullen Foundation K2 Foundation Parkhouse Foundation Safeway Foundation SM Energy Major Donors Judy Vann Nicole Schiavone Peter Bruno and family Brain Injury Alliance of Colorado 1385 S. Colorado Blvd. Suite A606 Denver, CO Phone: Toll-Free: Fax: BIAColorado.org 8