Publications Articles and chapters of books Nurses' experiences and perspective on medication safety practices: an explorative qualitative study

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1 Publications Articles and chapters of books Nurses' experiences and perspective on medication safety practices: an explorative qualitative study M Smeulers, AT Onderwater, MCB van Zwieten, H Vermeulen, Journal of Nursing Management, 2014; 22: *Patient's perspectives on how treatment can impede their recovery from depression RA van Grieken, EJAJ Beune, ACE Kirkenier, MWJ Koeter, MCB van Zwieten, AH Schene. Journal of Affective Disorders, 2014; 167: *Goede dokter denkt na over zijn functioneren [Good doctors are self-aware] Myra van Zwieten. De Volkskrant, 2013, 2 november 2013, p. 35 *Gedrag co Tuitjenhorn stemt optimistisch (Intern s professionalism in Tuitjenhorn) Myra van Zwieten. Medisch Contact, 7 november 2013, p *A qualitative participatory study to identify experiences of coronary heart disease patients to support the development of online self-management services Sandra Vosbergen, Jolien Janzen, Pieter Jan Stappers, Myra van Zwieten, Joyca Lacroix, Karin Ideman, Inge van den Broek, Hareld Kemps, Roderik Kraaijenhagen, Niels Peek. International Journal of Medical Informatics, 2013; 82: * The influence of medical testing on patients health: an overview from the gynecologists perspective. Jolande Y Vis, Myra CB van Zwieten, Patrick MM Bossuyt, Karel GM Moons, Marcel GW Dijkgraaf, Kirsten J McCaffery, Ben Willem J Mol and Brent Opmeer. BMC Medical Informatics and Decision Making, 2013,13:117 *Fabry patients experiences with the timing of diagnosis relevant for the discussion on newborn screening MG Bouwman, MH de Ru, GE Linthorst, CEM Hollak, FA Wijburg, MCB van Zwieten. Molecular Genetics and Metabolism 2013; 109: *Research monitoring by US medical institutions to protect human subjects: compliance or quality improvement? JP De Jong, MCB van Zwieten MCB, DL Willems. Journal of Medical Ethics, 2013; 39 (4): *Work participation and arthritis: a systematic overview of challenges, adaptations and opportunities for interventions. JL Hoving, MCB van Zwieten, M van der Meer, JK Sluiter, MHW Frings-Dresen. Rheumatology, 2013; 52: *Patients and professionals barriers and facilitators to external cephalic version for breech presentation at term, a qualitative analysis in the Netherlands. AN Rosman, F Vlemmix, MAH Fleuren, ME Rijnders, A Beuckens, BC Opmeer, BWJ Mol, MCB van Zwieten, M Kok. Midwifery, 2013, ahead of print * Two Birds with One Stone : Moral Awareness Skills Training to Improve Both Patient Care and Professional Growth. Myra CB van Zwieten. Symposium 10 at the 44th Congres of the International Society of Paediatric Oncology (SIOP), London, United Kingdom, 5-8 October. Pediatric Blood and Cancer, Dec. 2012, p. 970 *Moral Reflection: Discussing ethical issues with yourself Myra C.B. van Zwieten, Symposium 10 at the 44th Congres of the International Society of Paediatric Oncology (SIOP), London, United Kingdom, 5-8 October. Pediatric Blood and Cancer, Dec. 2012, p *Ethical review from the inside: repertoires of evaluation in Research Ethics Committee meetings. JP de Jong JP, MCB van Zwieten, DL Willems. Sociologogy of Health & Illness, 2012; 34 (7): *Experiences of parents and patients with the timing of Mucopolysaccaridosis type I (MPS I) diagnoses and its relevance to the ethical debate on newborn screening. MH de Ru, MG Bouwman, FA Wijburg, MCB van Zwieten. Molecular Genetics and Metabolism, 2012; 107 (3):

2 *Counselling on disclosure of gamete donation to donor offspring: a search for facts. M Visser, PAL Kop, M van Wely, F van der Veen, GJE Gerrits, MCB van Zwieten. Facts, Views & Vision in ObGyn, 2012, 4(3): *The influence of patient reported outcomes on the discussion of psychosocial issues in children with cancer. V Engelen, M van Zwieten, H Koopman, S Detmer, H Caron, P Brons, M Egeler, GJ Kaspers, M Grootenhuis, Pediatric Blood & Cancer, 2012; 59(1): *Disentangling cancer patients trust in their oncologist: a qualitative study. MA Hillen, AT Onderwater, MCB van Zwieten, HCJM de Haes, EMA Smets, Psycho-Oncology, 2012; 21(4): *Patients and professionals barriers and facilitators of tailored expectant management in subfertile couples with a good prognosis of a natural conception. NM van den Boogaard, B van den Boogaard, A Bokslag, MCB van Zwieten, PGA Hompes, S Bhattacharya, W Nelen, F van der Veen, BWJ Mol, Human Reproduction, 2011; 26(8): *Patients' and professionals' opinions on newborn screening for Fabry disease: a focus group study. MG Bouwman, GE Linthorst, FA Wijburg, MCB van Zwieten. Chapter 11 in PhD thesis Fabry Disease: Studies on Diagnosis, Screening and Patients' Perspectives, MG Bouwman, Amsterdam: Universtity of Amsterdam, 2011 *Communicatie over ethische kwesties in de medische praktijk. [Communicating about ethical issues in medical practice] Myra van Zwieten. In: Medische psychologie. [Medical Psychology] Kaptein, Prins, Collette, Hulsman (eds). 2 nd revised edition. Houten: Bohn Stafleu Van Loghum, 2010, p *Coaching in end-stage COPD: Improving palliative care provision by using the metaphor of athletics. JM Habraken, MCB van Zwieten, EJM Weersink, DL Willems. Chapter 6 in PhD thesis Palliative care needs of patients with advanced COPD. An exploration of ilness experiences. J Habraken, University of Amsterdam, 2009 *Patients views on screening for depression in general practice. KA Wittkampf, M van Zwieten, F Th Smits, AH Schene, J Huyser, HC van Weert. Family Practice, 2008, 25(6) Constructing results in prenatal diagnosis: beyond technological testing and moral decision-making. Myra van Zwieten. In: Genetics from Laboratory to Society. Societal Learning as an Alternative to Regulation. Gerard de Vries and Klasien Horstman (eds.) Hampshire: Palgrave MacMillan. 2008, p *Het belang van een weloverwogen keuze maar wat behelst de keuze. De complexe besluitvorming bij prenataal onderzoek [The importance of a well-considered choice - but what is the choice? Complex decision-making in prenatal screening]. Myra van Zwieten. De Psycholoog [Psychologist], 2008, p *Comparing genetic counseling with non-genetic health care interactions: two of a kind? Ellen Smets, Myra van Zwieten, Susan Michie. Patient Education and Counseling 2007, (68) *Randomized, controlled trials in the emergency setting: A matter of physician-patient relationships, responsibility, and trust. Albert B. Bos and Myra C.B. van Zwieten. Critical Care Medicine. 2007, 35, 3, *De toekomst van de snelle prenatale diagnostiek: globaal of gericht testen? [The future of rapid prenatal diagnosis: should testing be general or targeted?] Myra van Zwieten. Huisarts en Wetenschap. 2007, 50 (13), Waardering van kwalitatief onderzoek. [Valuing qualitative research] Myra van Zwieten en Dick Willems. In: Kwalitatief onderzoek. Praktische methoden voor de medische praktijk]. [Qualitative research: Practical methods for medical practice] Lucassen & olde Harteman, Houten: Bohn Stafleu van Loghum, 2007, p *Kwalitatief onderzoek [Qualitative research] Thomas Plochg en Myra van Zwieten In: Nederlands Handboek Gezondheidszorgonderzoek [Netherlands Handbook of Health Care Research. Plochg, Juttmann, Klazinga, Mackenbach (red.) Houten: Bohn Stafleu Van Loghum, 2007, p

3 *Snelle prenatale diagnostiek van chromosomale afwijkingen; beperkingen en mogelijkheden [Rapid prenatal diagnosis of chromosomal abnormalities: limitations and opportunities] (letter to the editor). MCB van Zwieten, NJ Leschot, DL Willems. Nederlands Tijdschrift voor Geneeskunde. 2006, 4 november; 150 (44) 2454 *Communication with patients during the prenatal testing procedure. An explorative qualitative study. Myra CB van Zwieten, Dick L. Willems, Lia K. Knegt Lia, Nico J. Leschot. Patient Education and Counseling 2006 vol. 63 (1-2) *How unexpected are unexpected findings in prenatal diagnosis? A literature review. M. van Zwieten, D. Willems, L. Litjens, H. Schuring-Blom, N. Leschot European Journal of Obstetrics & Gynecology and Reproductive Biology 120 (2005) Een uitslag maken in de prenatale diagnostiek: professionele anticipatie op een ouderlijk besluit. [Constructing results in prenatal diagnosis: beyond technological testing and moral decision-making]. Myra van Zwieten. In Genetica van laboratorium naar samenleving. De ongekende praktijk van voorspellende genetische testen. [Genetics from Laboratory to Society. Societal Learning as an Alternative to Regulation] Gerard de Vries en Klasien Horstman (eds.). Amsterdam: Uitgeverij Aksant *Waardering van kwalitatief onderzoek [Valuing qualitative research]. Myra van Zwieten and Dick Willems. Huisarts en Wetenschap, [GP and Science] 2004, 47, No. 13, pp Uit de praktijk. Directief counselen: en dan? Psychologisch commentaar [From practice. Directive counselling: what next? A psychological perspective]. Myra van Zwieten. Tijdschrift voor Gezondheidszorg en Ethiek; [Journal of Health Care and Ethics] 2003, 13:1, *Guidelines for quality assurance in health and health care research: Qualitative Research. T.Plochg & M.van Zwieten. Amsterdam, ISBN *Keuzeproblematiek in modern erfelijkheidsonderzoek: welke begeleiding is gewenst? [The problem of choice in modern genetic testing: what counselling should be given?] Tijdschrift voor Geneeskunde en Ethiek, [Journal of Medicine and Ethics] 2000, 10; 4, *Kwalitatief onderzoek en genetica: de gangbare kaders voorbij [Qualitative research and genetics: going beyond the standard frameworks]. Myra van Zwieten. Kwalon: Tijdschrift voor Kwalitatief Onderzoek in Nederland [Journal of Qualitative Research in the Netherlands], 2000, 5; 3, pp *Geneticalisering: een nieuw concept [Geneticization: a new concept]. M. van Zwieten en H. ten Have Medisch Contact, 1998, 53, 12, pp Books Opleiden tot flexibele zorgprofessionals. Visiedocument curriculumontwikkelingen ASHP [ Educating flexible health professionals: guide for curriculum development] Wouter Hogervorst and Myra van Zwieten. Amsterdam School of Health Professions (internal publication) *Professioneel Gedrag in Curius [Professional Conduct in the AMC Curriculum] Myra van Zwieten and Coby Baane. Amsterdam: Onderwijsinstituut Geneeskunde AMC, 2009 *The Target of Testing. Dealing with unexpected findings in prenatal diagnosis. Myra van Zwieten. Amsterdam: University of Amsterdam (thesis) Ons gescreende lichaam - kansen en risico s van de genetica. [Our Screened Body opportunities and pitfalls of the new genetics] Myra van Zwieten and André Kalden. Amsterdam: Uitgeverij Balans Stoppen of Doorgaan - omgaan met ongewenste kinderloosheid. [To Stop or to Continue Coping with unwanted childlessness] Emmelie van Asten and Myra van Zwieten. Groningen: Uitgeverij Van Brug

4 Stil Verdriet Een ego-document over ongewenste kinderloosheid. [Silent Grief a personal account of unwanted childlessness] Marianne Disseldorp, edited by Myra van Zwieten. Groningen: Uitgeverij Van Brug Conference presentations *European Association for Communication in Health (EACH) Amsterdam, 28 September - 1 October, 2014 Workshop "Moral mindfulness in shared decision making: integrated reflection and communication skills training for health professionals" *Conference on Communication, Medicine and Ethics (COMET) Lugano, juni 2014 Panel "Articulated values and skilled communication: the foundation of humanistic care" Oral presentation "Moral mindfulness for health professionals: Knowing when and how to address your own values Fetal heart abnormalities; prenatal and postnatal. Symposium of the Organization for Prenatal Screening Southwest Holland Rotterdam, the Netherlands. Presentations (in Dutch): Post test counseling: skillful tour guides required! 2nd Symposium on Healthcare Communication: Fostering International Research Collaboration for Safer and More Compassionate Healthcare Communication Hong Kong, June 2013, International Research Center for Communication in Healthcare (ICCH) Invited speaker and participant in Roundtable Discussion Presentation: Moral Mindfulness: the next call in Healthcare Communication Roundtable on Social Work and Care: Client power, self-management and professionalism: an inconvenient relation?] Amsterdam, the Netherlands, 29 May 2013 Presentation (in Dutch): Client power, self-management and professionalism: a most convenient relation! *44th Congres of the International Society of Paediatric Oncology (SIOP) London, United Kingdom, 5-8 October 2012 Invited speaker: chair and organiser Symposium 10 on Bioethics: Two Birds with One Stone : Moral Awareness Skills Training to Improve Both Patient Care and Professional Growth Own presentation: Moral Reflection: Discussing ethical issues with yourself Ambitious and Passionate Innovation in Teaching Competence-based Education in the Postdoctoral Psychology Curriculae] Amsterdam, the Netherlands, 15 June 2012 Presentation (in Dutch): Moralmap.com: An interactive educational tool for Teaching in Professionalism *11th World Congress on Bioethics Rotterdam, the Netherlands, June 2012, International Association of Bioethics (IAB) Meet the Dutch experts: Moralmap.com: website for moral reflection *International Conference on Communication in Health Care Chicago, USA, October 2011, American Association of Communication in Health Care (AACH) Workshop Moralmap.com, website for Moral Reflection. An interactive Educational Tool for Use in Medical Training. Seventh International Conference on Clinical Ethics and Consultation Amsterdam, the Netherlands,18-21 May 2011 Workshop Moralmap.com: Interactive Educational Tool for Use in Medical Training *Conference of Communication, Medicine and Ethics (COMET) Cardiff, United Kingdom, June 2009 Workshop MIMES A communication model for moral counseling in the clinical setting 4

5 Working conference of the AMC-UWV-VUmc Insurance Medicine Centre of Expertise Leiden, the Netherlands, 3 February 2009 Presentation (in Dutch): Focus Groups for Dummies *Innovations and dilemmas surrounding screening for sickle-cell anaemia Amsterdam, the Netherlands,18 December 2008 Chair of workshop (in Dutch) Gaps in the care for carriers *Mixed methods, A State of the Art. Amsterdam, 28 November 2008 Day chair *International Conference on Communication in Health Care Oslo, Norway, 2-5 September 2008 Workshop Website moral reflection: an innovative tool for medical professionals to improve moral counselling skills *Fifth National Working conference on Moral Deliberation Leusden, the Netherlands,18 June 2008 Workshop (in Dutch): A different counselling technique: zooming into positive experiences instead of problems *Qualitative research: an update. Contemporary methods for use in health care research Amsterdam, the Netherlands, 2 November 2007 Day chair *NVMO (Netherlands Association for Medical Education) conference Noordwijk, the Netherlands,14-16 November, 2007 Presentation (in Dutch): A website for moral reflection in the General Practice programme: development and possible uses *XXIst European Conference on Philosophy of Medicine and Health Care ESPMH Cardiff, UK, August 2007, Presentation The target of testing. Reflections on the morality of prenatal testing First National Conference on Prenatal and Neonatal Screening RIVM (National Institute for Public Health and the Environment) De Bilt, the Netherlands, 22 May 2007 Participated in plenary panel discussion (in Dutch) *European WONCA Conference Florence, Italy, August 2006 Presentation Targeted testing in prenatal diagnosis: who decides about the target? *European Human Genetics Conference/ European Meeting on Psychosocial Aspects of Genetics Amsterdam, the Netherlands, 6-9 May 2006 Presentation Targeted testing in prenatal diagnosis: the best way to deal with problematic finding? Publishing Qualitative Research Amsterdam, the Netherlands, 10 May 2005 AMC seminar on the occasion of the visit of Janice Morse, founding editor of Qualitative Health Research Organizer and chair Eleventh Qualitative Health Research Conference Utrecht, the Netherlands, May 2005 Symposium Moral Evidence. Doing qualitative research in the field of medical ethics. *XVIIIth European Conference on Philosophy of Medicine and Health Care Reykjavik, Iceland, August 2004 Presentation Professional responsibility towards the application of new methods for prenatal testing. Knowledge, is that all? Genetics for all in the 21st century. District conference, Rotary District 1590, Heerenveen, the Netherlands, 6 April 2002 Day chair (in Dutch) 5

6 About my work Steun, toeverlaat én raadgever [Support, Coach ánd Counselor] Nrc.next, 123 January 2011 National newspaper s article on the occasion of the launch of Waardenweb.nl (Moralmap.com) *Nieuwe website stimuleert morele reflectie [New website enables moral reflection] Short report in local AMC magazine on the official launch of Waardenweb.nl (Moralmap.com), December 2010 *Kwalitatief onderzoek scoort [Qualitative research awarded] Interview in local AMC magazine on the occasion of the Most Outstanding Course Award, November 2009 * Morele kwesties agenderen zonder te moraliseren. [ Raising moral questions without moralizing ] Interview Tijdschrift voor Verloskundigen [Journal of Midwifery], December 2008 * Morele reflectie is voor artsen een 'must'. [ Moral reflection a must for doctors ] Interview in local AMC magazine, September 2008 * Kwalitatief onderzoek is niet gereserveerd voor antropologen. [ Qualitative research is not solely the province of anthropologists. ] Interview in local AMC Magazine, January 2008 * Wat willen we met prenataal onderzoek? [ What do we want from prenatal screening? ] Interview in local AMC magazine, September