Ciencia y Servicio: Adelante Siempre Juntos Cumbre Nacional de Latinos y el Cáncer

Transcription

1 Science Meets Service: Moving Forward Together National Latino Cancer Summit Ciencia y Servicio: Adelante Siempre Juntos Cumbre Nacional de Latinos y el Cáncer San Francisco July 30 - August 1, de julio - 1 de agosto, 2008

2 Natalie, Rituxan Patient BECAUSE We are focused on truly innovative science. For more than 30 years, Genentech has been at the forefront of the biotechnology industry, using human genetic information to develop novel medicines for serious and life-threatening diseases. Today, Genentech is among the world s leading biotech companies, with multiple therapies on the market for cancer and other serious medical conditions. At Genentech, we are motivated by the desire to help patients and address unmet medical needs. We are dedicated to improving and extending the lives of patients who suffer from serious and lifethreatening diseases such as cancer, blindness, rheumatoid arthritis, cystic fibrosis, heart attack, stroke and asthma. Genentech is also committed to making sure price is not a barrier to access for patients. We support several programs for eligible patients treated for approved indications in the United States who do not have insurance, who cannot afford their out-of-pocket co-pay costs or who need assistance with insurance reimbursement. Genentech is a proud Gold Sponsor of the 2008 National Latino Cancer Summit As we work to deliver the next generation of breakthrough medicines, we remain committed to our employees and unique culture. Genentech is dedicated to fostering an environment that is inclusive and encourages diversity of thought, style, skills and perspective. For more information about Diversity Programs at Genentech, please visit In January 2008, Genentech was named to FORTUNE s list of the 100 Best Companies to Work For for the tenth consecutive year.

3 National Latino Cancer Summit July 30 - August 1, 2008 San Francisco Cumbre Nacional de Latinos y el Cáncer 30 de julio - 1 de agosto, 2008 San Francisco Table of Contents Welcome Letter... 5 Letter from San Francisco Mayor Gavin Newsom... 9 Letter from Congresswoman Hilda Solis, 32nd District, CA Letter from the California Latino Legislative Caucus Letter from the National Hispanic Medical Association Floor Plan Schedule at a Glance Plenary Sessions Poster Presentations Workshops Talleres Thank You Gracias Summit Sponsors Patrocinadores Notes... 32

4 The very best cancer care In the San Mateo County community Mills-Peninsula s Dorothy E. Schneider Cancer Center Quality and service highlights

5 Welcome from the Convening Committee Welcome, to this first of its kind National Latino Cancer Summit. You re a sight to behold! The hunger for this kind of gathering is reflected, not just in your presence here this week, but in the calls from across the country. Many wanted to participate but couldn t, often due to economic constraints. That is the story of our Latino communities around this country, eager to participate if asked, but not always able, due to lack of access. That is why we convened this Summit: to create an opportunity to talk to each other; to acknowledge, as a community, our struggle against cancer; to discover what we individually and collectively are doing about it; and to learn what more we can do to move forward together. In these 14 Panels and 5 Plenary sessions over the next two days, we will address a broad range of scientific and social issues as we try to get an understanding of the Latino cancer snapshot. Our 50 panelists and 7 keynotes are experts from a broad field of research as well as access and advocacy, survivorship, curanderismo (folk medicine), mental health, the growing community of promotoras, the cancer care continuum, and so much more. Our goal is to bring researchers, health care institutions and community-based organizations together to understand each others needs, provide opportunity for dialogue and collaboration, and to work together to better alleviate suffering, and improve the health and well-being of all Latinos affected by cancer. The call for this Summit started as we discussed the advancing science in stem cell research and biotechnology. We worried that while almost 1 in 5 Latinos dies of cancer, less than 7 percent engage in clinical trials that might lead to better treatment, targeted therapies and prolonged life. We want to raise awareness and encourage informed participation in medical research among Latinos, lest we be left even further behind in the translation of medical advances to clinical medicine, and ultimately, improved patient outcomes and survivorship. And we want community-based organizations and educators, the key link between the community and health care institutions, to be better prepared to provide important, even life-saving information. We ve set lofty goals. But we had to start somewhere. And remembering the Olympics commencing this next month- it is the excellence and determination we see here today that propels us toward the Gold. Enjoy your visit. Take every opportunity to learn and share. Go home a winner. We hope your community will be better served as a result. Summit Convener Ysabel Durón Latinas Contra Cancer Ana Nápoles Springer, PhD Redes en Acción, UCSF Marynieves Diaz-Mendez, MD Redes en Acción, UCSF Clementina Durón Community Advocate Summit Co-Chair Myrna Forestiere American Cancer Society Joanna Cuevas Ingram Women s Cancer Resource Center Aida Negrón National Cancer Institute s CIS Peggy McGuire Women s Cancer Resource Center Janaye Roy Genentech Edgar Quiroz, MPH Kaiser Permanente Carla Castro Ciau American Cancer Society

6 YOU WANTED ACTION WE GAVE YOU DETERMINATION The National Latino Cancer Summit is the first conference of its kind to initiate dialogue and bring attention to the issue of cancer and cancer care disparities among Latinos in the U.S. General Motors stands behind the NLCS and cancer researchers, health professionals, community leaders and families who convene at this unique event to discuss this very important subject. GM is proud to sponsor the National Latino Cancer Summit. CHEVROLET BUICK PONTIAC GMC SATURN HUMMER SAAB CADILLAC Chevrolet, Buick, Pontiac, GMC, HUMMER and Cadillac are registered trademarks of General Motors Corporation. Saturn is a registered trademark of Saturn Corporation. SAAB is a registered trademark of SAAB Automobile GM Corp. All rights reserved.

7 Bienvenidos a la Cumbre Nacional de Latinos y el Cáncer Bienvenidos a la primera Cumbre Nacional de Latinos y el Cáncer. Son ustedes un panorama de admirar! El hambre por una reunión como ésta se refleja, no sólo en su presencia, sino en las llamadas que recibimos de todo el país. Muchos deseaban participar pero no pudieron debido a motivos económicos. Esta es la historia de nuestras comunidades latinas por todo el país, deseosas de participar si se les invita, pero sin poderlo hacer por falta de acceso. Por este motivo convocamos esta Cumbre: para crear la oportunidad de hablarnos unos a los otros; para reconocer, como comunidad, nuestra lucha contra el cáncer; para saber qué es lo que cada uno de nosotros y en conjunto estamos haciendo en la lucha; para aprender cuánto más podemos hacer para seguir adelante juntos. Durante los próximos dos días en los 14 paneles y 5 sesiones plenarias, discutiremos temas científicos y sociales para tratar de comprender la situación del cáncer entre los latinos. Nuestros 50 panelistas y 7 oradores son expertos en un amplio campo de investigación, acceso, defensa, sobrevivencia, curanderismo, salud mental, la creciente comunidad de promotoras, la atención continua del cáncer y mucho más. Nuestra meta fue reunir a investigadores, instituciones de salud, organizaciones comunitarias para comprender nuestras necesidades, proveer una oportunidad de diálogo y colaboración, trabajar juntos para mejor aliviar el sufrimiento, mejorar la salud y bienestar de todos los latinos afectados por el cáncer. La llamada a esta Cumbre comenzó mientras discutíamos los avances científicos de las celúlas madres y biotecnología. Nos preocupaba saber que casi 1 de 5 latinos mueren de cáncer, que menos del 7 por ciento de ellos participa en pruebas clínicas que pudieran ofrecerles mejores tratamientos, terapias y así prolongar su vida. Deseamos despertar las conciencias y animar a participar, de manera informada, en las investigaciones médicas a los latinos, para no quedarnos aun más atrás en la traducción de los avances médicos a la medicina clínica, y como resultado, mejorar la sobrevivencia de los pacientes latinos. Queremos que los educadores y organizaciones comunitarios, que son el enlace clave entre la comunidad y las instituciones de salud, estén bien preparados para proveer la información que pudiera salvar la vida de los pacientes. Nuestras metas son muy altas, pero teníamos que empezar por alguna parte. Recordando las Olimpiadas que empiezan el próximo mes - es la excelencia y determinación que vemos hoy que nos empuja hacia el Oro. Qué gocen de su visita! Aprovechen cada oporutnidad para aprender y compartir. Regresen a casa ganadores. Esperamos que cada una de sus comunidades sea mejor servida como resultado de su participación en esta Cumbre. Ysabel Durón Convocadora de la Cumbre Latinas Contra Cancer Ana Nápoles Springer, PhD Redes en Acción, UCSF Marynieves Diaz-Mendez, MD Redes en Acción, UCSF Clementina Durón Community Advocate Myrna Forestiere Co-presidente de la Cumbre Sociedad America del Cáncer Joanna Cuevas Ingram Women s Cancer Resource Center Aida Negrón Instituto Nacional del Cáncer Peggy McGuire Centro de Recursos para Mujeres Sobre el Cáncer Janaye Roy Genentech Edgar Quiroz, MPH Kaiser Permanente Carla Castro Ciau Sociedad America del Cáncer

8 California HealthCare Foundation is a proud sponsor of this event. The California HealthCare Foundation is committed to improving the way health care is delivered and financed in California. By promoting innovations in care and broader access to information, our goal is to ensure that all Californians can get the care they need, when they need it, at a price they can afford. The Foundation focuses its efforts in three areas: Innovations for the Underserved, which focuses on lowering the cost of care for those in need. Better Chronic Disease Care, which focuses on improving the quality of chronic disease care. Market & Policy Monitor, which promotes transparency and accountability among policymakers and providers. For more information, visit Hey, reporter! Need a Latino cancer expert who speaks English and/or Spanish to interview for a story? Search the national Redes En Acción Latino Cancer Experts Directory, based on location, cancer areas of expertise, or medical specialty Redes En Acción: The National Latino Cancer Research Network, a Community Networks Program of the National Cancer Institute (supported by NCI Grant No. 1 U01 CA ) based at The University of Texas Health Science Center at San Antonio, has set up a national and regional infrastructure for collaboration among researchers, health care workers, grassroots leaders, and the public to stimulate cancer control research, training, and awareness.

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10 No estamos esperando por un cambio. Estamos trabajando para que ocurra. Miles de residentes de California luchan cada día contra los costos crecientes del cuidado de la salud y por poder ahorrar para la jubilación. Es la hora de que garanticemos la seguridad de todos, tanto en la salud como en lo económico. Es por ello que AARP ha puesto en marcha la iniciativa Divididos Perdemos para otorgarles voz a los millones de estadounidenses que están cansados de permitir que las trabas originadas en Washington se interpongan entre ellos y la posibilidad de contar con servicios de cuidado de la salud asequibles y de calidad, y seguridad económica a largo plazo. 10

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12 K N O W L E D G E I S P O W E R THE LANCE ARMSTRONG FOUNDATION PROVIDES PRACTICAL INFORMATION AND SERVICES TO HELP ALL SURVIVORS FACE THE CHALLENGES AND CHANGES THAT COME WITH CANCER. At LIVESTRONG.org/espanol, you can learn what to expect and what questions to ask, receive information to help guide your cancer experience and hear stories from cancer survivors in English and Spanish. You can also connect with LIVESTRONG SurvivorCare, a free service that offers professional, one-on-one counseling services and help with financial, employment or insurance concerns, as well as information about your treatment options and new treatments in development. LIVESTRONG.ORG/ESPANOL Nuestra ayuda puede ser tu esperanza Todas las personas con cáncer merecen ayuda y tienen adónde acudir. Llama ahora al Los latinos tienen riesgo más alto para algunos tipos de cáncer. Llama a la Sociedad Americana del Cáncer para saber más accera del cáncer y cómo combatirlo, nuestros servicios son gratis. Every person with cancer deserves help and a place to turn. Call now Latinos have the highest risk for certain types of cancer. Call the American Cancer Society for more information on cancer and how to fight it. Our services are free. Our help Hope.Progress.Answers. can be your hope. Esperanza.Progreso.Respuestas

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16 Floor Plan for Mission Bay Conference Center at UCSF 1675 Owens Street San Francisco, CA (415) Level 1 Poster Presentations Thursday, July 31, :30 pm 7 pm Fisher Banquet Room Registration Fisher Atrium Expo Tables MD Anderson American Association for Cancer Research Genentech ALL PLENARIES Pub Outdoor Area Lounge Farmacia Remedios, Inc Latinas Contra Cancer Lance Armstrong Foundation Kaiser Permanente American Cancer Society Level 2 Order Audio Recordings Cobientz Executive Boardroom Expo Tables Breast Cancer Action Health Fraud Task Force CA Lifelines Breast Cancer The Leukemia and Lymphoma Society Patient Advocate Foundation (2) 1 Robertson Auditorium ALL WORKSHOPS HMR Zero Breast Cancer Padres Contra El Cancer Breast Cancer Fund 3 2 Level 2 Patio Hospice of the Valley U.S. Department of Health Office of Minority Health BREAKOUT ROOMS HMR Duplications (2) Volunteer Lounge Latinas Contra Cancer Administration Office Green Room - Speakers / VIPs 16

17 Schedule at a Glance Wednesday, July 30 Miércoles, 30 de julio 5:00 pm - 7:00 pm Opening Reception ~ Marriot Courtyard Sponsored by AMGEN Thursday, July 31 Jueves, 31 de julio 7:00 am - 7:00 pm 10:00 am - 7:00 pm 7:30 am - 8:00 am 8:00 am - 9:30 am 10:00 am - 11:45 am 12:00 pm - 1:30 pm 1:45 pm - 5:30 pm 5:30 pm - 7:00 pm 7:00 pm - 9:00 pm Registration Inscripción ~ Mission Bay Conference Center at UCSF 1675 Owens Street Vendor and Agency Expo Exposición de agencias y vendedores Continental Breakfast Desayuno Continental Sponsored in part by the American Cancer Society, CA Division - Greater Bay Area/Redwood Empire Fisher Auditorium, 1st Floor Opening Plenary Sesión Plenaria de Apertura Keynote Address Discurso de Apertura Instant Polling Votacion Imediato Fisher Auditorium, 1st Floor Workshops / Talleres Robertson, 2nd Floor Roundtable Lunch Almuerzo Meet the Experts Conversaciones con Expertos Keynote Speech Orador Especial Fisher Auditorium, 1st Floor Workshops Talleres Robertson, 2nd Floor Poster Presentation Reception Recepción para la Presentación de Fiches Music Música 1st Floor Lobby Dinner Cena Keynote Speech Orador Especial Fisher Auditorium, 1st Floor Friday, August 1 Viernes, 1 de agosto 7:00 am - 12:00 pm 11:00 am - 5:00 pm 7:30 am - 8:00 am 8:00 am - 9:30 am 10:00 am - 11:45 am 12:00 pm - 1:30 pm 2:00 pm - 4:00 pm Registration Inscripción ~ Mission Bay Conference Center at UCSF 1675 Owens Street Vendor and Agency Expo Exposición de agencias y vendedores Continental Breakfast Desayuno Continental Fisher Auditorium, 1st Floor Plenary / Plenaria Keynote Speech Orador Especial Fisher Auditorium, 1st Floor Workshops Talleres Robertson, 2nd Floor Lunch Almuerzo Keynote Speech Orador Especial Fisher Auditorium, 1st Floor Workshops Talleres Robertson, 2nd Floor 17

18 8:00 am - 9:30 am Thursday, July 31 jueves 31 de julio Welcome Ysabel Duron Instant Polling Myrna Forestiere Remarks Bruce Seeley, Senior Director, Herceptin Marketing Plenary Sponsor Representative American Cancer Society Keynote Speech Orador Principal 12:00 pm - 1:30 pm Elmer Huerta, MD Chair of the Board, American Cancer Society Latino Cancer Snapshot Dr. Elmer E. Huerta is the Principal Investigator (PI) of the Latin American Cancer Research Coalition (LACRC) and a member of the LACRC Steering Committee. He is currently the Founder and Director of the Cancer Preventorium at the Washington Cancer Institute in the Washington Hospital Center, the only cancer prevention/screening service for Latinos in the Washington, DC, metropolitan area. The goal of the clinic is to encourage preventive screenings; therefore, the clinic is open to patients who do not have any disease symptoms. Born in Peru, Dr. Huerta obtained his medical degree at the University of San Marcos in Trained in Internal Medicine and Medical Oncology in Peru, he completed a fellowship in oncology research at the Johns Hopkins Oncology Center in 1988, a residence in internal medicine at St. Agnes Hospital in Community Voice Carmen Ortiz, Ph.D. Voz de la Comunidad Executive Director, Circulo de Vida Cancer Support & Research Center Lunch Almuerzo Welcome Ysabel Duron Remarks Keynote Speech Orador Principal Opening Plenary Sessions Plenaria de Apertura All Plenary Events in Fisher Auditorium Latinos: The Economic Impact of a Cancer Diagnosis A breast cancer survivor, Carmen Ortiz is the founder and Executive Director of the Círculo de Vida Cancer Support and Resource Center, the first successful Spanish-language support program in the greater San Francisco Bay Area Círculo de Vida provides an invaluable and unparalleled service to Latinos living with cancer most of them immigrants, poor, and without health insurance as they navigate a frightening illness. Dr. Ortiz also developed a hospitalbased program at San Francisco General Hospital s Breast Clinic for newly diagnosed Latinas, and an in-home support program for Latinas in the terminal phase of their illness. Dr. Ortiz s support group model has been the impetus for the development of other Spanishlanguage support groups in Northern California. Sheila Littrell, Director, Dorothy E. Schneider Cancer, Program & Advance Practice Nurses, Mills Peninsula Health Services, Sutter Health Gold Sponsor Sandra Hernandez, MD CEO, The San Francisco Foundation Latinos and Health Disparities Sandra Hernandez, MD, is chief executive office of the San Francisco Foundation. Dr. Hernandez is a graduate of Yale University, Tufts School of Medicine, and the John F. Kennedy School of Government at Harvard University. Prior to becoming CEO of the Foundation, she served as the director of public health for the City and County of San Francisco. She is an assistant clinical professor at UCSF School of Medicine and maintains an active clinical practice at San Francisco General Hospital in the Aids clinic. In March 2008, Dr. Hernandez was named Hispanic Business Magazine s, Business Woman of the Year, a Public Health Trailblazer. Roundtable Discussions Discusión Mesa Redonda 18

19 7:00 pm - 9:00 pm Special Presentation Presentación Especial Remarks Keynote Speech Orador Principal Opening Plenary Sessions Plenaria de Apertura All Plenary Events in Fisher Auditorium Thursday, July 31 jueves 31 de julio Dinner Gala Cena Gala Short Film Premiere Bee Positive Beatriz Aviles, Survivor Natalie Aviles, Filmmaker Ken Grullon, MD, OB/GYN. KPLA Physician Ambassador Board Member, The Permanente Medical Group Gold Sponsor Elena Rios, MD, CEO National Hispanic Medical Association Jacqueline Casillas, MD UCLA Mattel Children s Hospital Barriers to Care: Reports from Latino Childhood Cancer Survivors Casillas, J., Morales, S., Doose, M., Tung, S., and Zeltzer L.K. Survivors report being stigmatized which impacts on their health behavior practices as young adults. They do not want to identify themselves as a cancer survivor and consequently have a low perceived risk for future health problems as a result of their previous cancer treatment. Jacqueline Casillas, MD is a Health Services researcher whose area of interest is access to care, quality of life and quality of care for long-term survivors of childhood cancer. She is Assistant Professor of Pediatrics, David Geffen School Of Medicine, UCLA and practices at Mattel Children s Hospital. Dr. Casillas graduated from the University of California / Los Angeles. 8:00 am - 9:30 am Friday, August 1 viernes 1 de agosto Welcome Ysabel Duron Remarks Keynote Speech Orador Principal Community Voice Voz de la Comunidad Monica Poindexter Associate Director, Corporate Diversity Genentech Gold Sponsor Alfonso Alanis, MD Chairman, CEO, ANACLIM Increasing Minority Participation in Clinical Trials Minorities are underrepresented in clinical research accounting on average for 18% of all patients in clinical trials even in those therapeutic areas where the prevalence of disease is higher. Prior to founding Anaclim, LLC, Indianapolis, IND, a minority focused research firm, Dr. Alfonso Alanis worked for Eli Lilly and Company in research and development. Dr. Alanis was born in Mexico City, obtained a medical degree in Mexico and trained at the Cleveland Clinic in Infectious Disease and Clinical Microbiology. An American citizen, Dr. Alanis has been a recipient of numerous awards and honors. Silvia Molina Colorectal Cancer Patient Silvia Molina always looked after her health. She got regular checkups. So Silvia was shocked when in September of 2005, shortly after her 49th birthday, she was diagnosed with colon cancer. An operation revealed a huge tumor and the doctors gave her little hope for a cure. What they gave her was an aggressive round of chemo to reduce the tumor, but no actual hope that they could save her life. Silvia Molina, wife and mother of 3, continued to work two jobs until this year. She did it she says, to not give herself time to be depressed. Even more importantly, it also provided her with the insurance that helps pay for her treatments at Kaiser in Hayward, CA, in the San Francisco Bay Area. When the doctors told Silvia they could do no more, she starting looking into clinical trials. 19

20 12:00 pm - 1:30 pm Lunch Almuerzo & Open Mic Micrófono Abierto Welcome Ysabel Duron Keynote Speech Orador Principal Community Voice Voz de la Comunidad Opening Plenary Sessions Plenaria de Apertura All Plenary Events in Fisher Auditorium What We Know, What We Have Learned and Where Do We Go From Here Amelie Ramirez, Dr.P.H., M.P.H. University of Texas, San Antonio Amelie G. Ramirez, Dr.P.H., is a Professor in the Department of Epidemiology and Biostatics, and Director of the Institute for Health Promotion Research at the University of Texas Health Science Center at San Antonio (UTHSCSA). Over the past 25 years, Dr. Ramirez has directed numerous state-, Federal-, and privately funded research programs focusing on human and organizational communication to reduce chronic disease and cancer health disparities affecting Hispanics/Latinos and other populations. She has authored more than 60 peer-reviewed articles and is the recipient of state and national awards. Ysabel Duron, B.A. Summit Convener, Founder Latinas Contra Cancer Ysabel Duron is a 38-year veteran of Broadcast Televison News. One of the first Latinas in mainstream television, Duron has reported on politics, education, and natural disasters that have taken her from San Francisco to Chicago to Mexico City. An award winning journalist, currently the Senior Anchor of the Weekend Morning News for KRON TV-4, San Francisco, Duron turned the spotlight on cancer with her award winning news series, Life With Cancer. It was her own battle with Hodgkins Lymphoma ( 98) that propelled Duron into the world of cancer and compelled her to start the non-profit, Latinas Contra Cancer, in Duron s combination of journalism, marketing, messaging and image making has moved Latinas Contra Cancer into the national arena in its mission to reach out and educate the underserved, Spanish speaking Latino community. 20

21 Poster Presentations Reception Thursday, July 31 5:30-7:00 pm Fisher Atrium Predictors of Life Style Changes in Latina Breast Cancer Surivivors Patricia Gonzalez, Postdoctoral Fellow, City of Hope, Duarte, CA The purpose of this study was to examine the role of culture and language in relation to lifestyle changes among underserved Latina breast cancer survivors. Developing Locally Controlled Dynamic Promotora Programs - El Poder es Nuestro Ada Torres, P. Chavez, V. Santos, C. Apodaca, B. Jaramillo, L. Harbison, O. Martinez, Latin American Health Network, CO The purpose of this outreach was to demonstrate the need to avoid cookie cutter methods of developing Latino outreach by recognizing community tailored programs and diverse infrastructure can provide the most effective means of increasing screening rates among Latinos. Validation of Self Reported PSA Testing in Latinos Lisa Clarke, Doctoral Candidate, Kaiser Permanente, Oakland, CA The purpose of this study was to assess the accuracy of self-reported prostate specific antigen (PSA) testing in Latinos across different acculturation levels and origins. Addressing Disparities Among Latino Medicare Beneficiaries Ana Natalie-Pereira, Asst. Professor of Medicine, UMDNJ-New Jersey Medical School, Newark, NJ Natale-Pereira, A., MD, MPH, McCathern, R., MPA, Morales, G., BS; Robles, A., CMA, Martinez, L., BS, Vargas, C., B.S., Morel, J., B.S., Céspedes, L., B.S., Laguna, K., PhD, Kothari, N. MD, McLaughlin, C., MPH, Salas-Lopez, D., MD, MPH The purpose of this study is to institute an innovative cancer care facilitation program to reduce cancer care disparities in the Latino community by helping seniors navigate the health care system, navigate screen, diagnosis and treatment of breast, cervical, colorectal and prostate cancer. Barriers to Recent Screening Mammography Among Latinas in California Katelyn P. Mack, VA Palo Alto Care System, Menlo Park, CA, J. Pavao, F. Tabnak, K. Knutson, R. Kimerling Findings suggest that cost and lack of cancer/ screening knowledge are major barriers not only to past-year screening, but also to received guideline concordant care La Importancia de Nuestros Cuentos: Designing a Narrative Intervention for Underserved Latina Women with Breast Cancer at the End of Life Shelly Adler, Ph.D., University of California, San Francisco, CA, B. Burns, A. Napoles-Springer, L. Castro-Smyth, S. Ackerman, K. Stone, C. Ferreira In collaboration with the Charlotte Maxwell Complementary Clinic the objective of this exploratory study was to describe and examine the ways in which end of life decisions and issues are approached and understood by underserved Latinas with metastatic breast cancer and the diverse individuals who provide their care. Translating Sicence to Promotoras de Salud: Community Cancer & Obesity Prevention via the Food for Thought Summit Paula Amezola de Herrera, Partnership Program Coordinator, NCI s Cancer Information Service, Los Angeles, CA L. Gonzalez, J. Garza, P.DeSilva, F. James, A. Flores, D. Johnson, L. Baezconde-Garbanati To reduce cancer disparities by accelerating translation of critical scientific information to promotoras de salud in Los Angeles, CA, the specific goal was to encourage promotoras to incorporate evidence on the relationship between obesity and cancer in their community prevention efforts. 21

22 Workshops Talleres Workshop #1 Latinos and Genetics Wendy Lorizio, MD, MPH, UCSF, San Francisco, CA Breast Density and Genetic Ancestry in U.S. and Mexican Latinas Wendy Lorizio, MD, received her Medical Degree and trained as a General Practitioner in Maracaibo, Venezuela. After moving to the U.S., Dr. Lorizio trained as an Epidemiologist and obtained a Master s Degree in Public Health at the University of California Berkeley. Jeffrey Weitzel, MD, Director, Dept. of Clinical Cancer Genetics, City of Hope, Duarte, CA Impact of Genetic Risk Assessment on Cancer Screening and Prevention Behaviours in an Underserved Predominantly Latina Population Jeffrey N. Weitzel, MD, is the director of the Department of Clinical Cancer Genetics and the Cancer Screening & Prevention Program at the City of Hope Comprehensive Cancer Center in Duarte, California. Dr. Weitzel s multidisciplinary clinical, research, and training programs emphasize translational research in genetic cancer risk assessment, chemoprevention, clinical and psychosocial outcomes, and genetic epidemiology health services research in underserved minorities. Amie M. Blanco, MS., Genetic Counselor III, UCSF Helen Diller Family Comprehensive Cancer Center, San Francisco, CA All in the Family, Inherited Cancer Risk Amie Blanco received her genetic counseling degree from the University of Texas Health Science Center at Houston and The University of Texas MD Anderson Cancer Center. As a member of the National Society of Genetic Counselors and International Society for Gastrointestinal Hereditary Tumors, Amie Blanco is recognized as an expert in the diagnosis and management of hereditary cancer syndromes. Currently she is the lead genetic counselor for the Gastrointestinal Cancer Prevention Program, a subspecialty of the UCSF Cancer Risk Program. Facilitator: Prof. Edward Trapido, ScD, Professor, Department of Epidemiology and Public Health, Sylvester Cancer Center, Miami, FL Workshop #2 Medical / Research Pipeline, Integral Component to Bridge Disparities Elena Rios, MD, CEO, National Hispanic Medical Association, Washington, D.C. Federal Research Opportunities and Leadership Careers for Latinos Dr. Rios serves as President & CEO of the National Hispanic Medical Association, (NHMA), representing Hispanic physicians in the United States. Among other appointments, Dr. Rios served as the Advisor for Regional and Minority Women s Health for the U.S. Department of Health and Human Services Office on Women s Health from November 1994 to October Dr. Rios earned her BA in Human Biology/Public Administration at Stanford University in 1977, MSPH at the University of California School of Public Health in 1980, her MD at the UCLA School of Medicine in Rena Pasick, Dr.PH., Associate Director, Education & Outreach, UCSF Helen Diller Family Comprehensive Cancer Center, San Francisco, CA The Minority Training Program in Cancer Control Research: Tenth Anniversary Update Rena Pasick is Adjunct Professor of Medicine at UCSF, Associate Director for Community Education and Outreach and Co-Leader of Society, Diversity & Disparities Research at the UCSF Helen Diller Family Comprehensive Cancer Center. Trained in Public Health, her research career has been devoted to the development of educational interventions to enhance cancer screening in diverse and underserved communities, and to better understand the role of culture in cancer communication in clinic and community settings. She established the Minority Training Program in Cancer Control Research in 1998 to diversify the leaders in community-based research. Daniel Oshiro, Vice President, Administrative Affairs, The J. David Gladstone Institutes Gladstone Institute Student Outreach Program Daniel M. Oshiro joined The.J David Gladstone Institutes in April 2002 as Vice President for Administrative Affairs. He has has over 30 years of leadership and senior managerial experience in an academic, independent nonprofit research environment. He is co-chair of the Gladstone Student Outreach Committee. Mr. Oshiro started his career at the Research and Education Institute (REI) at Harbor-UCLA Medical Center, where he spent 20 years in various capacities, ultimately being promoted to the position of vice president for grants and contracts. 22