Health Services - A Review of the Ontario Medical Referral System

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Centre for Studies in Family Medicine Patterns of Specialty Medical Referral Analysis of a Primary Health Care Electronic Medical Record Database Joshua Shadd, MD CCFP Bridget Ryan PhD Moira Stewart PhD Amardeep Thind MD PhD Primary Health Care Research Rounds May 19, 2011

Acknowledgements Ontario Ministry of Health and Long-Term Care Primary Health Care System Program. DELPHI project: Canada Foundation for Innovation and Primary Health Care Transition Fund. E-WAITS Project: Canadian Institutes of Health Research. Dr. Stewart: Dr. Brian W. Gilbert Canada Research Chair. Dr. Ryan: Post-Doctoral Fellowship through the Dr. Brian W. Gilbert Canada Research Chair. Dr. Thind: Canada Research Chair in Health Services Research. Ms. Heather Maddocks, Ms. Louisa Bestard Denomme, Ms. Sherry Benko The views expressed in this presentation are those of the authors and do necessarily reflect those of the Ministry of Health.

Outline Background Research Questions Methods & Results Implications

Referrals Matter A referral is a major health care event! Request for help Marker of not-yet-met health need Initiates period of uncertainty for patients Inflection point in care cost trajectory

Referral Wait Times Matter patients with specialist needs being managed by the primary care system Thind Schulich A, School Healthcare of Medicine Policy. & Dentistry 2007 Feb;2(3):3157-70.

Why a PHC EMR Database? Contains patient-level clinical data not available elsewhere Wait 2 documented routinely for all referrals

The DELPHI Database Deliver Primary Healthcare Information Electronic Medical Records 10 Practice Sites 25 Family Physicians 30,000 + patients Inception October 2005

DELPHI and the General Population

Research Questions What are the rates of referral by patient? What were the actual wait times experienced by patients? How do patterns of referrals and waittimes in southwestern Ontario compare to the published literature?

Implications 1. Growth in referrals will vary by specialty, due in part to changing demographics. 2. Time from referral to specialist visit is an underexplored contributor to wait times. 3. Patient-level factors matter. PHC EMR databases are critical tools in this research.

Referrals In the DELPHI database, what are the rates of referrals from family physicians to other specialist physicians? Do referral rates vary by patient or practice characteristics?

Referrals: Methods Timeline April 2007 March 2008 Patient Visit 12 months Unit of analysis: individual patient

Referrals: Methods All DELPHI Database Patients 24,856 Visited April 1, 2007-March 31, 2008 17,085 No Referrals 7,771 (31.3%) One or more referrals

Overall Referral Rate

Referral Rates BY RATE / 1000 PATIENTS Sex* Male 435.5 Female 470.7 Age* 0-19 yrs 220.9 20-44 yrs 438.8 25-64 yrs 523.5 65+ yrs 569.9 Location* Rural 475.7 Urban 424.4 *significant at p-values = 0.0001

Referral Rate by Consultant Specialty Top Five: Overall General Surgery Males ENT Orthopedic Surgery Urology Internal Medicine 0.00 10.00 20.00 30.00 40.00 50.00 60.00 70.00 80.00 90.00 100.00 Obs/Gyn Females Orthopedic Surgery Dermatology General Surgery ENT 0.00 10.00 20.00 30.00 40.00 50.00 60.00 70.00 80.00 90.00 100.00 Rate / 1000 pts

Referral Rate by Consultant Specialty Top Five: Age 2O-44 General Surgery Males Urology Orthopedic Surgery Psychiatry Other Specialist NOS 0.00 10.00 20.00 30.00 40.00 50.00 60.00 70.00 80.00 90.00 100.00 Females General Surgery Dermatology Psychiatry Neurology *Obs/Gyn 155.94 0.00 10.00 20.00 30.00 40.00 50.00 60.00 70.00 80.00 90.00 100.00 Rate / 1000 pts

What does the literature say? Referrals per encounter vs. referrals per patient Most comparable study: Chan & Austin 2003 OHIP claims data 1997/1998 560 referrals / 1000 patients / year Patient characteristics important In other studies, factors associated with referrals: Patient age, sex, SES, health status Physician sex, training, tolerance of uncertainty Practice location, size, remuneration Health system private vs. public, prevalence of diagnoses, patient pressure perception

Implications Population growth leads to more referrals. Growth in referrals will vary by specialty, due in part to the changing demographics of the Ontario population.

Referral Volume Extrapolations Two extrapolations Apply DELPHI rates to Ontario population 2009 Apply DELPHI rates to Ontario population 2036 Rates adjusted for population age and sex composition Assumptions DELPHI referral rates apply to Ontario as a whole Age/sex category referral rates stable over time For illustrative purposes only

Ontario Age Pyramid: 2009 and 2036 Total population growth: 37% Ontario Schulich Population School of Medicine Projections & Dentistry Update, 2009-2036, Ontario The University Ministry of Western Finance Ontario

Referral Volume Extrapolations Total Number of Referrals 8,000,000 7,000,000 6,000,000 5,000,000 4,000,000 3,000,000 2,000,000 1,000,000 0 5.56 million 7.60 million 7.87 million 37% 42% 2009 2036-A 2036-B

Change in Referral Volume 2009-2036 60 50 Overall change in referral volume Projected Percentage Increase 40 30 20 10 0 Gen Surg Urology Obs/Gyn Paeds

Implications 1. Growth in referrals will vary by specialty, due in part to changing demographics. 2. Time from referral to specialist visit is an underexplored contributor to wait times. 3. Patient-level factors matter. PHC EMR databases are critical tools in this research.

Referral Wait Times What were the actual wait times experienced by patients referred to specialty medical care? How did the wait times vary by consultant specialty?

Referral Wait Times: Methods Unit of analysis: individual referral Included referrals: Oct 2005 - March 2008 Excluded referrals: Missing information Duplicates Specialties with <100 total referrals

Days Waiting 16,115 referrals Mean wait: 74 days Median wait: 47 days, range 0-858 days By Mean (median) 95% CI Sex Male 73 (49) 64 82 Female 76 (44) 68 84 Age 0-19 yrs 56 (38) 52 63 20-44 yrs 77 (49) 67 87 25-64 yrs 80 (49) 69 91 65+ yrs 72 (43) 61 82 95% confidence intervals for the means, adjusted for clustering by practice

Mean Referral Wait Time by Specialty Mean wait (days) 140 120 100 80 60 Gastroenterology 129 days Overall Mean 74 days Pediatrics 39 days 40 20 0 Vertical high-low bars represent 95% CI adjusted for clustering by practices.

What does the literature say? Most reports about wait 2 focus on particular specialty or clinical problem. Fraser Institute Waiting List Report 2009 survey of specialists in 12 disciplines median overall wait time in Ontario was 6.7 weeks (~47 days) Statistics Canada 2010 Analysis of 2007 Canadian Community Health Survey 45% <1 month, 41% 1-3 months, 15% > 3 months

The Primary Care Perspective Referral = request for help Wait time = duration of burden of unmet health need Wait 2 = patients with specialist needs being managed by the primary care system

Referral Waits in Context Wait 2* Wait 3 62 FP General Surgeon Hernia repair 110 67 FP Ob/Gyn Hysterectomy 152 125 185 FP Ortho. Surgeon Hip replacement * Mean number of days. Data from current study. 90 Schulich th percentile of days Q1 2011. Data from Ontario Ministry of Health and Long Term Care, School of Medicine & Dentistry www.waittimes.net

Implications 1. Growth in referrals will vary by specialty, due in part to changing demographics. 2. Time from referral to specialist visit is an underexplored contributor to wait times. 3. Patient-level factors matter. PHC EMR databases are critical tools in this research.

Referrals Matter A referral is a major health care event! Request for help Marker of not-yet-met health need Initiates period of uncertainty for patients Inflection point in care cost trajectory Because the total referral volume is so large, small changes in referral rate may have big implications. But what causes referral rate variation?

Sources of Referral Rate Variation Health system Geography Practice Physician Patient

How Much Patient Level Variance? What proportion of variation in referral rates is attributable to the patient level vs. the practice level? Patient: 92% Practice: 8% Multi-level Poisson regression

Potential of EMR Research Need to understand the specific patient factors that influence referrals EMRs provide a rich source of data about the patient EMR data will only grow and improve over time Provide information that can be used to influence policy at the patient level

To summarize 1. Growth in referrals will vary by specialty, due in part to changing demographics. 2. Time from referral to specialist visit is an underexplored contributor to wait times. 3. Patient-level factors matter. PHC EMR databases are critical tools in this research.

Using patients records to improve patients experiences. jshadd2@uwo.ca bryan@uwo.ca