Improving Seizure Outcomes Through Online Seizure Diaries Dravet Syndrome Foundation Family and Professional Conference June 28, 2014 Robert Moss Co-Founder of SeizureTracker.com Father to Evan who lives with TSC 1
Evan s Early Years Normal Pregnancy Healthy Baby Loving Family Picture Perfect! During Evan s first month of life, his seizures began.
Diagnosis Seizures Tuberous Sclerosis Complex Brain Tumors Kidney Tumors
Battling Epilepsy 9 meds Trileptal Keppra Lamictal Dilantin Sabril Depakote Zonegran Topamax Klonopin More Tests More Meds More Seizures Evan s personality began to dull.
Brain Surgery 300-400 Seizures Per month We knew we made the right choice.
Seizure-Free Walk Stand Crawl Climb Stairs Run Ride a Bike Initially physical therapy was three days a week.
10 Months after Brain Surgery!
2013 SeizureTracker.om
Mission: Dedicated to providing patients and doctors with free comprehensive tools to help understand the relationship between seizure activity and anti-epileptic treatments. Empowering patients to take a more active role in their own health care. 2013 SeizureTracker.com
Mission: Dedicated to providing patients and doctors with free comprehensive tools to help understand the relationship between seizure activity and anti-epileptic treatments. Empowering patients to take a more active role in their own health care. 2013 SeizureTracker.com
Free Online 17,000+ Global Users 250+ New Monthly 670,000+ Events Logged 750-1000 Events Daily 35,000+ Medication Entries 2013 SeizureTracker.com
Patient Empowerment Portable Patient Data Multiple Access Points Highlights Treatment Options Terminology 2013 SeizureTracker.com 12
Control Panel Calendar Navigation Click on Dates to Log Events Red = Seizure Events Yellow = Appointments Profile Information Update Medications Other Treatments (VNS, Diet) Contact Manager 2013 SeizureTracker.com
Daily Logging Page Active Medications Event Time, Length and Type Add YouTube Link to Event Calendar Navigation Appointment Tracker Medication Blood Levels Menstrual Cycle Glucose Levels Ketone Levels Daily Notes VNS Magnet Swipe Rescue Medications Daily Variables 2013 SeizureTracker.com
2013 SeizureTracker.com
2013 SeizureTracker.com
Event Data Standardization Seizure Event Triggers Description Post Event Limited Customization Note Sections for Text Remembers Last Event Values 2013 SeizureTracker.com
2013 SeizureTracker.com
2013 SeizureTracker.com
2013 SeizureTracker.com
2013 SeizureTracker.com
2013 SeizureTracker.com
Daily Event List Shows Daily Seizure Events Edit /Delete Events List By Time Video Indicator/Link 2013 SeizureTracker.com
YouTube Video Integration Pop-up Window View Seizure Event Videos Link to Video on Event List Includes Date and Length Aids More Effective Diagnosis 2013 SeizureTracker.com
Printable Logs Mobile Options Paper Logs Mirror Website Mobile Optimized Increased Access Team Logging 2013 SeizureTracker.com 25
8.5in. x 11in. Binder Seizure Log School IEP Daycare Home This form allows for several seizures to be logged on one page and is formatted to fit in a 3-ring binder. SeizureTracker.com 2013 26
iphone / itouch / ipad APP 2013 SeizureTracker.com Features Real Time Seizure Event Logging Video Capture Graphs Log Offline Sync At Your Convenience
2013 SeizureTracker.com
2013 SeizureTracker.com
Improves Communication More Accurate Data Easily Share Concise Reports Provides Discussion Points Valet System Access 2013 SeizureTracker.com
Report Options Length Anonymized Graphs Entire Medication List VNS Schedule Up To 8 Sections 2013 SeizureTracker.com
Seizure Tracker Reports Profile Information Seizure Counts By Month/Week Email or Print Reports Multiple Graph Types Customizable Include All Textual Data Video Icon Links to Video Player Medication / Treatment History Flagged Seizure Activity 2013 SeizureTracker.com
Valet Management System Manage Multiple User Accounts Access Level Choices Email Invites 2012 SeizureTracker.com
Valet Management System Access Level Selections Access level setting include: - Log Seizure Events - Medication Schedule - Rescue Medication Schedule - Diet History (Glucose and Ketones) - Vagus Nerve Stimulator History - Log Menstrual Cycle Information - Log Medication Blood Levels - Log Daily Variables - Log Daily Notes - Log Daily Appointments - Contact Information - Account Settings - Edit Password/Email - Valet System - Update Weight - Create Reports - Email Reports User/Patient Initiated 2013 SeizureTracker.com
Valet Management System Navigation Valet Key User List Management Bar 2012 SeizureTracker.com
Improving Outcomes Seizure Severity vs. Count Compares Treatments Illustrates Trends Longitudinal Reference Highlights Treatment Options 2012 SeizureTracker.com
Report Graphing Options Compare: Seizure Count/Type Medication Dosages Surrounding Treatments Possible Triggers Seizure Events By Time of Day Blood Levels Menstrual Cycle 2013 SeizureTracker.com
Report Graphing Options (Continued) Compare: Diet Changes Daily Variables 2013 SeizureTracker.com
Privacy and HIPAA Confidentiality - Security Focus - User Initiated Data Sharing - Private Servers/Database Data Integrity - Continual System Evaluation - Daily Data Backup - Real time user data review Data Accessibility - Data Import/Export Initiative - Web and Mobile Interface - Online Management System 2013 SeizureTracker.com
Empowerment Patient Care Providers Clinicians - Improves Communication - More Accurate Data - Standardization - Portability/Access - Longitudinal Evaluation Tools - Improves Outcomes
Thank You! In The Pipeline Medication History Modifications -Generic Tracking: Manufacturer and Lot Numbers -Dosing Time Logging Multi-Language Support -Across all tools -Web-based validated volunteer translation system Contact: Robert Moss Rob@SeizureTracker.com Ph. 703-339-8448