HEALTH DATA LEADERSHIP SUMMIT

HEALTH DATA LEADERSHIP SUMMIT Health Data Consortium The Offices of Butler Snow, Nashville, Tennessee January 27, 2015

Health Data Leadership Summit 2015 Members of the health care data community, including government, insurers, providers, universities, consultants, vendors, and non-profits met in Nashville for a one-day workshop to create a shared action plan to improve health data accessibility. Summit participants included: Michael Barbouche, Forward Health Group Chris Boone, Health Data Consortium James Bradley, Wellpartner Niall Brennan, Centers for Medicare and Medicaid Services Sarah Corley, NextGen Damon Davis, U.S. Department of Health and Human Services Karen DeSalvo, Office of the National Coordinator for Health Information Technology Greg Downing, U.S. Department of Health and Human Services Lauren Ellis, Health Data Consortium Ana English, Center for Improving Value in Health Care Mary Grealy, Healthcare Leadership Council Margaret Guerin-Calvert, FTI Consulting Edmund Jackson, HCA Charles Jaffe, Health Level 7 International Kevin Johnson, Vanderbilt University David Kendrick, University of Oklahoma - School of Community Medicine Andy Krackov, California HealthCare Foundation Jamie Lee, Nashville Health Care Council Tommy Lewis, Emdeon John Loser, Oscar Insurance Company Thom Mason, Oak Ridge National Laboratory Deven McGraw, Manatt, Phelps & Phillips, LLP Blackford Middleton, Vanderbilt University David Newman, Health Care Cost Institute Aaron Seib, National Association for Trusted Exchange Nirav Shah, Kaiser Permanente Southern California Bryan Sivak, U.S. Department of Health and Human Services Paul Tarini, Robert Wood Johnson Foundation Julie Watson Lampley, Butler Snow Caroline Young, Nashville Health Care Council Gary Zegiestowsky, Informatics Corporation of America (ICA) Sara Zellner, Health Data Consortium 2

Welcome Chris Boone, Executive Director of the Health Data Consortium (HDC) welcomed participants, oriented the group to the mission and activities of HDC and emphasized the importance of health data governance, and particularly data accessibility, as a priority both for the HDC and for the industry as a whole. 3

Meeting Start Up The facilitator, Robert Mittman, oriented participants to the agenda. 4

Opening Roundtable Participants introduced themselves in an opening roundtable where each person proposed a single action technological, regulatory, economic, organizational that could be taken to most improve health data accessibility. 5

It Can Be Done - Success Stories From the Field To share definitions of what health data means and to surface lessons learned, the group heard a rapid-fire panel discussion of success stories of health data accessibility. Panelists included: Chris Boone, Executive Director of HDC Karen DeSalvo, National Coordinator for Health Information Technology, Kevin Johnson, CIO, Vanderbilt University Medical Center Niall Brennan, Chief Data Officer, Centers for Medicare and Medicaid Services Bryan Sivak, CTO, U.S. Department of Health and Human Services A brief group discussion followed to also hear participants' perspectives on key issues and trends the industry faces (see page 7). 6

Success Stories From the Field 7

The Current Situation in Health Data Accessibility Next, the group worked together to map the current situation and trends in health data accessibility. 8

Creating a Shared Vision of Success With a shared understanding of the current situation, the group shifted their attention to the future. On index cards, they brainstormed responses to the question, If we were completely successful in improving health data accessibility in the next 24 to 36 months, what would that look like? Ideas were then clustered and synthesized into a shared future vision (see page 10). 9

Our Shared Vision of Success 10

Identifying and Prioritizing Barriers to Achieving Our Vision The group brainstormed obstacles that stand in the way of achieving the shared vision of health data accessibility. Using dots, they prioritized those barriers identifying 6 of them, which if mitigated, would have the biggest impact on achieving the vision and which would be easiest to address through shared action (see page 12). 11

Barriers to Achieving Our Vision 12

Action Planing to Overcome Barriers For the remainder of the afternoon, table groups co-created strategies/action plans to overcome the top 6 priority barriers. Action plans considered what success would look like, metrics, critical factors that must be in place, and who must be involved to carry the work forward. 13

Action Plans 14

Action Plans 15

Action Plans 16

Action Plan Report Back Table groups presented back to the group, making a compelling case about the significance of addressing their barrier and the single most important thing the group can do to overcome it. Presenters also urged participants towards joint followup action. 17

Closing To close the day, both Robert and Chris thanked participants for the progress made during the day. Chris described next steps from the meeting and underscored HDC s commitment to carry these actions forward. Participants were also given the opportunity to sign up for continued engagement on the strategies. 18