Web-based interventions for patient empowerment and physical activity in chronic diseases Relevance for cancer survivors. Wilma Kuijpers, MSc.

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1 Web-based interventions for patient empowerment and physical activity in chronic diseases Relevance for cancer survivors Wilma Kuijpers, MSc.

2 Increasing number of cancer survivors Cancer survivors chronic condition Patient empowerment¹ - Knowledge - Skills - Motivation Physical activity² 1 Aujoulat et al. Patient Educ Couns Fong et al. BMJ 2012

3 Internet a promising medium Easily accessible, personal information 1,2 Interactivity 1,3 Mainly for chronic diseases other than cancer 1. Strecher. Annu Rev Clin Psychol Griffiths et al. J Med Internet Res Neuhauser & Kreps. Social Semiotics 2010

4 Aim of this study To inform the development of an interactive, web-based intervention for cancer survivors

5 Systematic literature review Search: Pubmed, Embase and Scopus Eligibility criteria - cardiovascular disease, COPD, diabetes, heart failure - interactive, web-based interventions Data extraction - characteristics - outcomes Relevance for cancer survivors

6 Relevance for cancer survivors Based on recommendations for cancer survivorship care (Institute of Medicine ¹ ) - Long-term follow-up/surveillance - Management of (late) effects - Rehabilitation - Psychosocial support - Health promotion 1. Hewitt et al. From cancer patient to cancer survivor: Lost in transition 2006

7 17 papers included (16 unique RCTs) Intervention characteristics - Duration M=23 weeks (4 52) - Frequency Often unspecified Intervention outcomes - patient empowerment 11 studies - physical activity 13 studies

8 Percentage of interventions Background Methods Results Discussion Conclusion Common intervention elements

9 Relevance for cancer survivors Component of web-based intervention Essential components of survivorship care Education Feedback/Tailored information Selfmonitoring Selfmanagement training Personal exercise program Communication with health care provider Communication with fellow survivors Long-term follow-up / surveillance Management of (late) effects Rehabilitation Psychosocial support Health promotion

10 Health promotion physical activity Education Self-monitoring Feedback/tailored information Self-management training Personal exercise program Communication with health care provider Communication with fellow patients Information about the importance of and ways to obtain a physically active lifestyle Upload of exercise behavior Advice based on uploaded data Training aimed at obtaining and sustaining a physically active lifestyle Individual exercise advice, taking into account a survivor's specific needs, preferences and possibilities Possibility to ask questions about exercise advice Share experiences and tips about being physically active, provide support

11 Points of attention Role of intervention elements unclear Duration and frequency Studies with cancer survivors needed

12 Conclusion Interactive, web-based interventions are beneficial for individuals with chronic conditions It seems reasonable to translate these interventions to cancer survivors, in order to promote patient empowerment and physical activity

13 Acknowledgements Wim Groen, PhD Neil Aaronson, PhD Wim van Harten, MD, PhD

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