Patients as Partners. Kidney Care in a Holistic Perspective

Transcription

1 Patients as Partners Kidney Care in a Holistic Perspective

2 All of me All the time All the way

3 Holistic approach Prevention Detection Slowing of progression Replacement Rehabilitation

4 Chronic Kidney Disease Life

5 Think outside the box

6 End Stage Dental Disease

7 End Stage Dental Disease DRT

8 The Drill

9 Holistic approach Prevention Detection Slowing of CKD Replacement Rehabilitation

10 ISN Vision... the elimination of Chronic Kidney Disease worldwide

11 My kidney function

12 My kidney function

13

14 The least utilized and most ignored resource within health care is the patient him- or herself Dr Åsa

15 What can I do myself?

16 Self-Management

17 Self-Management of OUR LIVES

18 Self-Management Role management

19 Self-Management Role management Emotional management

20 Self-Management Role management Emotional management Life-style

21 Self-Management Role management Emotional management Life-style Medical management

22 Health care - - a pit stop

23 Self-Management Role management Emotional management Life-style Self-Care

24 Holistic approach Prevention Detection Slowing of CKD Replacement Rehabilitation

25 Treatment plan Three, equally important, interacting areas 1. Medication

26 Treatment plan Three, equally important, interacting areas 1. Medication 2. A special diet

27 CKD slowing diet Less protein More energy Balances

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30 1 25

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32 CKD slowing diet Own involvement and motivation Family involvement

33 CKD slowing diet Symptoms Appetite Work load Balances Progression

34 Treatment plan Three, equally important, interacting areas 1. Medication 2. A special diet 3. Healthy life

35 Daily to-do-list Medication Blood pressure Blood sugar Physical exercise Weight control No smoking Special diet Mental health Patient Yes Yes Yes Yes Yes Yes Yes Yes

36 Daily to-do-list Patient Doctor Medication Yes Yes Blood pressure Yes Blood sugar Yes Physical exercise Yes Weight control Yes No smoking Yes Special diet Yes Mental health Yes

37 The only one who can provide me with the daily treatment is ME

38 Slow down 8760 Hours/year - 5 Professional Care 8755 Self Care

39 Health Care Team Patient

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41 The Health Care Teams Patient Away Home

42 Partners?

43 Professionals Patient

44 Professionals Patient

45 Ownership Your treatment plan

46 Ownership Treatment plan The life of the patient

47 Em-power-ment

48 Em-power-ment The Doctor Expertise Integrity Decisions

49 Em-power-ment The Doctor Expertise Integrity Decisions The Patient Expertise Integrity Decisions

50 Em-power-ment The Doctor Expertise Integrity Decisions The Patient Expertise Integrity Decisions Mutual respect Mutual empowerment Real partnership

51 Partnership Agreed Action Plan

52 Patient information

53

54 Health Care Providers need proper education

55 Self Care Providers need proper education

56 Holistic approach Prevention Detection Slowing of CKD Replacement Rehabilitation

57 Holistic approach Prevention Detection Slowing of CKD Replacement Rehabilitation

58 Transplantation o Operation

59 Transplantation Preparations o Maintenance Operation

60 Transplantation Preparations Diagnosis o Maintenance Operation

61 Our bodies Blood pressure Physical activities Less salt, no extra Weight loss No smoking Drink less Less alcohol Stress reduction Sleep well Medication

62 Our bodies Blood pressure Cardio-Vascular health Healthy life. Healthy diet. Medication.

63 Our bodies Blood pressure CV health Diabetes Extra careful and accurate blood glucose control. Food & drink. Physical activities

64 Our bodies Blood pressure CV health Diabetes Medication Perfect adherence prior to surgery for best possible condition

65 Our bodies Blood pressure CV health Diabetes Medication Weight BMI < 30

66 Our bodies Blood pressure CV health Diabetes Medication Weight Tobacco Stop now. Never start again.

67 Our bodies Blood pressure CV health Diabetes Medication Weight Tobacco Sunburn Minimize time in the sun. Sun protection.

68 Our bodies Blood pressure CV health Diabetes Medication Weight Tobacco Sunburn Other risks Poor urine flow. Teeth & gums. Other infections. Other diseases.

69 Our bodies Blood pressure CV health Diabetes Medication Weight Tobacco Sunburn Other risks Timing Pre-emptive tx. No dialysis or as little dialysis as possible. As short transfer time as possible.

70 Donors LD DD

71 Ready

72 Transplantation Preparations o Maintenance Operation

73 Maintenance Infections Rejections Medication Blood pressure Weight Diet Alcohol Regular physical activities Skin cancer Diabetes Trauma Tobacco Sex life Children Travel Vaccinations Psychology

74 My kidney function

75 My medication

76 My CKD diet Protein down Energy up Balanced+balancing

77 My healthy life-style

78 My kidney function 100 During > 5 years No dialysis Tolerable symptoms 10 50

79 My kidney function 100 Transplant No dialysis Tolerable symptoms 10 50

80 Partners P+P

81 Thank you