welcome Transplant Center Advanced Transplant Care. Personalized Patient Treatment.

Transcription

1 welcome Transplant Center Advanced Transplant Care. Personalized Patient Treatment.

2 b The University of Chicago Medical Center

3 To Our Patients Thank you for considering donating the gift of life at the University of Chicago Medical Center. We want to provide you with the best patient experience possible. This means offering you high quality, state-of-the-art medical care, with attention to your physical comfort and individual needs. It also means we will work to ensure that you are well informed about your medical care, your donation options and your recovery. We know the best care includes attention to your emotional and spiritual needs. This is important to our mission of providing superior health care in a compassionate manner, mindful of each patient s dignity and individuality, and is reflected in everything we do. From our physicians, nurses and other caregivers to our food service and housekeeping staffs, we want to be aware of anything we can do to help you feel at ease. This booklet is provided to answer some of the questions you may have while being evaluated for living organ donation at our facility. Our services are highlighted, including maps and directions to our campus, information about the hospital and resources available to you. This booklet will help you and your family feel as prepared as possible throughout your donation experience. If you have any questions, please let any members of our staff know. We encourage you to discuss any aspect of your care with the living donor advocate team. It is my sincere hope that you and your family will feel like a part of our family. We appreciate your trust. Best regards, J. Michael Millis, MD Professor of Surgery Chief, Section of Transplantation Medical Director, Transplant Center 1

4 Two of our youngest living-donor organ recipients visit the clinic with their father, who was one of the donors. Mayed and Abdulla are both happy, healthy kids after receiving kidney transplants in The University of Chicago Medical Center

5 Living Donor Advocacy The idea of a living donor advocate, a person who is dedicated to protecting the rights of an organ donor, began at the University of Chicago Medical Center in the 1980s. This idea has now become a model that is used throughout the country at transplant centers that perform organ transplants from living donors. At our facility, you will have a living donor advocate team (LDAT) that will arrange your evaluation and help you navigate the donation process. This is your team, and they will not be involved with the care of the recipient at any time. The living donor advocate team is made up of three experienced professionals: n A medical physician n A clinical social worker n A nurse coordinator Each LDAT member has a different role on the team, but their single goal is to protect your rights and wishes throughout the donation process. The physician will perform a physical exam and review your medical and social history with you to make sure that donating an organ (or a part of an organ) is not too great of a risk to you. The social worker will meet with you to discuss your emotional support system and your reasons for wanting to donate, and to review some of the feelings that go along with being a living donor. The nurse coordinator will help you set up your appointments, provide education about the process and be your main point of contact. The living donor advocate team is separate from the transplant team that cares for the recipient. This is important for two reasons. First, what you say to the LDAT is confidential and is not shared with the potential transplant recipient. This means if you have any doubts about donation, you can talk to any member of the LDAT without fear that your doubts will be told to the recipient. Secondly, your testing results stay with the LDAT as well. If something is found during your testing, such as an infection that would prevent you from being a donor, the information is not given to the recipient. In this case, the LDAT would then tell the transplant team that you are simply not a candidate for donation. The LDAT was created to provide care only to living donors, so the team members will not have information about the potential recipient other than his or her name and need for a transplant. You can be sure that the LDAT will take good care of you as you go through this process. Thank you for considering living organ donation at the University of Chicago Medical Center. Transplant Center 3

6 Transplant hepatologist Smruti Mohanty, MD, counsels a patient. Potential living donors are carefully evaluated by a team of doctors to ensure that they can recover from the removal of a part of their liver or intestine, or one of their kidneys. 4 The University of Chicago Medical Center

7 A Partner You Can Trust When you come to the University of Chicago Medical Center, you can be confident that you will receive the highest level of care. Our experienced, multidisciplinary team of physicians, nurses and other health care professionals is dedicated to your well-being. The University of Chicago Medical Center The University of Chicago Medical Center, based on the campus of the University of Chicago, is one of the nation s top health care providers. Established in 1927, we have been at the forefront of medicine since caring for our very first patients. As part of a university, we are one of the first medical centers to both care for patients and conduct medical research. Our physicians, faculty and researchers have been responsible for such medical discoveries and innovations as the structure of DNA, work leading to the first blood bank, and proof that cancer is a genetic disease. More than just a hospital, the Medical Center includes: n Bernard A. Mitchell Hospital, the adult inpatient care facility n Comer Children s Hospital at the University of Chicago, devoted to the complex care and medical needs of children and their families n duchossois Center for Advanced Medicine, a stateof-the-art outpatient care facility providing the full spectrum of care for preventive, diagnostic and treatment services Our mission is to provide superior health care in a compassionate manner, ever mindful of each patient s dignity and individuality. To accomplish our mission, we call upon the skills and expertise of all who work together to advance medical innovation, serve the health needs of the community and further the knowledge of those dedicated to caring. The Transplant Center Organ transplantation began at the University of Chicago. In 1904, Alexis Carrel, MD, performed the world s first animal organ transplant on our campus, which later earned him the Nobel Prize. At the Medical Center we have accomplished many firsts, including: n The technique for joining severed ends of blood vessels together to make organ transplant possible. n The nation s first segmental liver transplant, performed here in 1985, which ultimately paved the way for transplant from a living donor. n The world s first successful living-donor liver transplant, performed in n The first liver transplant from an unrelated living donor, performed in n The first pancreas transplant at an Illinois hospital. n The first successful combined heart-liver-kidney transplant, performed in The University of Chicago Medical Center has helped thousands of patients receive transplants with successful outcomes and survival rates. With more than 250 years of combined experience, our Transplant Center team is one of the most experienced in this area. Improving our patients overall health is our top priority. Transplant Center 5

8 Every potential donor and recipient receives important one-on-one education and written materials about the donation and transplant process. Here Katrina Harmon, RN, BSN, CCTC, describes kidney transplant surgery for a transplant class group. 6 The University of Chicago Medical Center

9 Supporting You Throughout the Process We want to make your donation process as easy as possible. The living donor advocate team will inform you about scheduled tests, procedures and other aspects of your care. We encourage you to discuss your schedule with your caregivers and to ask questions throughout the process. While no two living organ donations are exactly the same, the following is a summary of the process. What to Expect During the Living Donation Evaluation There are a few main steps in the donation process, whether you are seeking to donate a kidney, a part of your liver or a part of your intestine: n The nurse coordinator will obtain some basic information from you over the phone. He or she will then schedule all of the evaluation testing needed. Please see the enclosed document that describes what is needed for the type of organ you are seeking to donate. n A review of your insurance coverage will be done to find out what insurance coverage you may have and what would be covered by the recipient s insurance. n After you have completed the evaluation testing and appointments, your case is reviewed at a weekly meeting where the living donor advocate team decides if you can proceed with living donation. Sometimes this discussion will result in the request for further testing. The nurse coordinator will contact you to let you know the results of the meeting. What to Expect After Your Donation n The length of your recovery depends on which organ you are donating. In most cases, within one to three months after surgery, you should be able to resume your daily activities such as driving, household chores, work and sports activities. n We will advise you about diet, medications and emotional issues that can come up after donation. n Your team will be available for post-operative clinic visits, check-ups and advice on a variety of life issues. You will have at least one visit in our clinic in the weeks after your donation. n We will contact you yearly after the donation to get an update and obtain follow-up information that is required by UNOS (the United Network for Organ Sharing). Insurance and Financial Information Our transplant financial specialist will review your benefits and the recipient s benefits. The nurse coordinator working with you also is available to answer questions about insurance coverage and living organ donation. Advance Directives Advance directives are documents that explain your wishes and preferences about the type of medical care you receive. If you would like to learn more about advance directives, you may speak with a social worker, a hospital chaplain or call Patient Relations at or @uchospitals.edu. If you have completed advance directives documents, please ask your caregiver to make sure they are included in your medical records. n You will receive advice on wound care, showering, driving, lifting and other physical activity, as well as what to expect when you are able to return to your usual routine. Transplant Center 7

10 An important part of supporting our patients is welcoming their families. The University of Chicago Medical Center offers many services and facilities to visiting families, including several dining options, wireless Internet access, language interpreters, chaplains, a pharmacy and a bookstore. 8 The University of Chicago Medical Center

11 Amenities and Services for You and Your Family Food and Beverages n Au Bon Pain: Located in the Mitchell Hospital lobby and the Comer Children s Hospital lobby n Bernard A. Mitchell Cafeteria: Located in the basement of Bernard A. Mitchell Hospital, near the D elevators n Comer Children s Hospital Family Kitchen: Families may use the kitchen on the sixth floor of Comer Children s Hospital to store and prepare their own food n Duchossois Center for Advanced Medicine Food Court: Located on the second floor of the Duchossois Center for Advanced Medicine Automatic Teller Machines (ATMs) ATM machines are located in the Bernard A. Mitchell Hospital lobby, the Goldblatt Pavilion lobby, the Duchossois Center for Advanced Medicine lobby and the Comer Children s Hospital lobby. Internet The Mitchell Hospital Waiting Room P-211 has two complimentary Internet accessible computers for your use. Complimentary wireless Internet access is available in some areas of the Mitchell Hospital and throughout the Duchossois Center for Advanced Medicine (including both surgery waiting rooms), should your family choose to bring a laptop while they wait. Privacy Staff at the Medical Center cannot release any information about you to your family and friends without your permission. When you are being admitted, a staff member will write down your access code on a blue, business-sized card. Give this access code to the people you want to have access to information about you. Friends and family members can use that access code to obtain information about your condition from staff members. Chaplains Chaplains offer spiritual, emotional and religious support 24 hours a day, seven days a week for patients and family members. Our clinically trained chaplains from a variety of perspectives are available to support both inpatients and outpatients. Devotional materials are available upon request. A chapel for patients and visitors is located on the second floor of Bernard A. Mitchell Hospital. Call for more information. Transplant Center 9

12 The University of Chicago Medical Center is conveniently located on the University of Chicago campus in the vibrant Hyde Park neighborhood of Chicago s South Side. Just seven miles from Chicago s business district, the Medical Center is an easy trip from downtown Chicago or either of the city s two international airports. 10 The University of Chicago Medical Center

13 Directions From the North Take the Kennedy Expressway I-90 East or Edens Expressway I-94 East, southbound to the Dan Ryan Expressway I-90/I-94 East. From the South Take I-57 or the Bishop Ford Freeway, northbound to the Dan Ryan Expressway I-90/I-94 West. > Continue north in the local From the West Take the Eisenhower Expressway I-290 East to the Dan Ryan Expressway I-90/I-94 East. > Continue south on the From Lake Shore Drive Take Lake Shore Drive north or south to 57th Street and exit by the Museum of Science and Industry. > Follow 57th Street south > Continue south in the local lane on the Dan Ryan. > Exit at 55th Street/ Garfield Boulevard. Travel east on Garfield Boulevard about 1/2 mile to Washington Park. > Continue through Washington Park following the blue hospital signs to Cottage Grove Avenue. lane on the Dan Ryan. > Exit at 55th Street/ Garfield Boulevard. Travel east on Garfield Boulevard about 1/2 mile to Washington Park. > Continue through Washington Park following the blue hospital signs to Cottage Grove Avenue. Dan Ryan. > Exit at 55th Street/ Garfield Boulevard. Travel east on Garfield Boulevard about 1/2 mile to Washington Park. > Continue through Washington Park following the blue hospital signs to Cottage Grove Avenue. as it curves around the museum and turn right at the fork onto Midway Plaisance. > Take Midway Plaisance West and follow the blue hospital signs to Cottage Grove Avenue. 55th Street 55th Street Morgan Drive Cottage Grove Avenue 57th Street Drexel Avenue ELLIS AVENUE 56th Street UNIVERSITY AVENUE WOODLAWN AVENUE KIMBARK AVENUE KENWOOD AVENUE DORCHESTER AVENUE BLACKSTONE AVENUE Payne Drive DCAM P Maryland Avenue Comer Children s Mitchell Valet Parking * 58th Street Emergency Room Medical center campus University of Chicago CAMPUS 57th Street 58th Street 59th Street 59th Street <<<west to i-90/i-94 ONE WAY < midway plaisance east TO LAKE SHORE DRIVE>>> ONE WAY < 60th Street 60th Street Directions and parking information may change due to road closures, construction or other conditions. For 24-hour automated phone directions, call For more information and maps showing where construction is taking place, please visit our website at uchospitals.edu. Click on Patient and Visitor Information at the left side of the page and then choose Getting To and Around the Medical Center. Transplant Center 11

14 Navigating Our Campus Parking Information Valet Parking Valet parking is highly recommended for your convenience. The cost of valet parking is similar to the cost of self-parking. Parking is available daily in front of these buildings: Bernard A. Mitchell Adult Hospital 5815 South Maryland Avenue n To reach the adult hospital valet parking, proceed to 59th Street and turn left on Maryland Avenue. Valet parking is located at the front entrance of the hospital on the right side of the street. n An attendant is on duty to receive cars from 5:30 a.m. to 9 p.m. Duchossois Center for Advanced Medicine (DCAM) 5758 South Maryland Avenue n To reach the DCAM valet parking, proceed to 57th Street. Turn right on Drexel Avenue. Turn right on 58th Street and continue one block to Maryland Avenue. Turn right on Maryland Avenue and then left into the circle drive. n an attendant is on duty to receive cars from 6 a.m. to 6 p.m. Comer Children s Hospital at the University of Chicago 5721 South Maryland Avenue n To access Comer Children s Hospital valet parking, proceed east on 57th Street. Turn right on Drexel Avenue. Turn right on 58th Street and continue one block to Maryland Avenue. Turn right on Maryland Avenue and proceed north to the main entrance of Comer Children s Hospital. n An attendant is on duty to receive cars from 6 a.m. to 6 p.m. Please do not tip parking attendants as it is against the University of Chicago Medical Center s policy for attendants to accept tips. Self-Park Self-parking at the University of Chicago Medical Center may take slightly longer than valet parking. If you choose to self-park, please arrive at least 20 minutes earlier than your scheduled appointment to allow time to find a space. If you are unable to find a parking space, we recommend that you bring your car back to the valet parking stand. Please bring your ticket for validation at the clinics or hospital areas. The main hospital parking garage is located at 58th Street and Maryland Avenue. To self-park at the main hospital parking garage, continue to 59th Street and turn left on Maryland Avenue. The garage entrance is located on the left side of the street. Parking Discount Validation Be sure to ask a staff member at either Bernard A. Mitchell Hospital or the Duchossois Center for Advanced Medicine for parking validation, which will reduce your parking costs. Validation is available throughout the clinics, in the surgery family waiting rooms and at the front desk in the lobby of the Duchossois Center for Advanced Medicine. Parking Coupon Books Books of five or ten parking coupons are available at the Parking Office in the main parking garage at 5840 South Maryland Avenue or at the valet cashier s window in the lobby in the Duchossois Center for Advanced Medicine. These will reduce parking costs if you or your family members return for multiple visits. They can be purchased for $25 (a book of five coupons) or $50 (a book of 10 coupons). If you have additional questions about parking, please call the Parking Office at from 7 a.m. to 4:30 p.m., Monday through Friday. If you would like more detailed information about parking and rates, please visit uchospitals.edu/visitor/directions. 12 The University of Chicago Medical Center

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16 The University of Chicago Medical Center Transplant Center 5841 South Maryland Avenue Chicago, Illinois Comer Children s Hospital at the University of Chicago 5721 South Maryland Avenue Chicago, Illinois Duchossois Center for Advanced Medicine 5758 South Maryland Avenue Chicago, Illinois Bernard A. Mitchell Hospital 5815 South Maryland Avenue Chicago, Illinois East Huron 150 East Huron Street, Suite 900 Chicago, Illinois University of Chicago Transplant Evaluation Program at NorthShore University HealthSystem Graham Medical Building 1000 Central Street, Suite 800 Evanston, Illinois To learn more about transplant care at the University of Chicago Medical Center, please visit uchospitals.edu/specialties/transplant. September University of 14 Chicago Medical Center, Division of Communications and Marketing For more information about the University of Chicago Medical Center, visit uchospitals.edu The University of Chicago Medical Center