Research interests Amy McPhersn, PhD, CPsychl, AFBPsS Blrview Research Institute Hlland Blrview Kids Rehabilitatin Hspital 150 Kilgur Rad, Trnt, ON, M4G 1R8. 416.425.6220 Ext. 6378 amcphersn@hllandblrview.ca Obesity and health prmtin; Spina bifida; Participatin & inclusin f children with disabilities; Educatin and empwerment f children in healthcare; Cmmunicatin in healthcare settings; Multimedia health educatin. Educatin and Qualificatins 2000-2003 Sectin f Behaviural Sciences, University f Nttingham, Nttingham, UK. PhD in Health Psychlgy. 1993-1996 University f Westminster, Lndn, UK. BSc. (Hns) Cgnitive Science. Prfessinal Membership Chartered member f the Divisin f Health Psychlgy, British Psychlgical Sciety Member f the Canadian Obesity Netwrk Appintments Scientist, Hlland Blrview Kids Rehabilitatin Hspital, Trnt (June 2009- present). Assistant Prfessr, Dalla Lana Schl f Public Health, University f Trnt (April 2010- present). Assciate Member, Graduate Department f Rehabilitatin Sciences, University f Trnt (March 2013- present) Lecturer in Health Psychlgy, Schl f Nursing, Midwifery & Physitherapy, University f Nttingham, UK. (Sept 2004- May 2009). Lecturer in Health Psychlgy, Sectin f Behaviural Sciences & Research Fellw, Schl f Nursing University f Nttingham, UK (Sept 2003- Sept 2004). Research Assistant, Divisin f Psychiatry, University f Nttingham, UK (Jan 1999-Dec 2002). Research Assciate, University f Leicester, UK (March 1997- Jan 1999). Research grants 1. King, G, McPhersn, AC (C- PIs), Kingsnrth, S, Jnes-Galley, K, et al. Optimizing Life Success Thrugh Residential Immersin Life Skills Prgrams fr Yuth with Disabilities. Scial Sciences and Humanities Research Cuncil, May 2014- April 2018 ($412,867). 2. McPhersn, AC (PI), Church, P, Lyns, J, Chen, L, Swift, J. Develping a clinical teaching simulatin fr healthcare prfessinals cmmunicating abut weight-related tpics in spina bifida clinics. Spina Bifida and Hydrcephalus Assciatin f Canada, June 2014- May 2015 ($5,000). 3. Arbur-Nicitpuls, KP, Wright, V, Faulkner, GE, McPhersn, AC (C-I), Wd, S. Develping and Pilt-Testing an Inclusive Recreatinal Sprts Prgram fr Preadlescent Children with Physical Disabilities. Scial Sciences and Humanities Research Cuncil Insight Develpment Grant, July 2014- June 2016 ($74,133). 4. McPhersn, AC (PI), Krg, K, Maltais, D, Swift, J, Ball, G, Cairney, J. Setting the research agenda fr addressing weight-related issues in children with physical Amy McPhersn Abbreviated Curriculum Vitae 1
disabilities: a cnsensus building wrkshp. Canadian Institutes f Health Research meeting grant, February 2014- January 2015 ($21,671). 5. McPhersn, AC (PI), Hamiltn, J, Swift, JA, Ball, GDC, Kingsnrth, S, Steinberg, A, Chen, L, Philptt, J, Krg, K. Talking with children and families abut weight-related issues: A scping review f best practices. Canadian Institutes f Health Research Knwledge Synthesis Grant, September 2013- August 2014 ($47,627). 6. McPhersn, AC (PI), Church, P, Lyns, J, Chen, L, Swift, J, Grter, JW. An explratin f healthcare prfessinals, children and families experiences f discussing weightrelated issues in spina bifida cnsultatins. Spina Bifida and Hydrcephalus Assciatin f Canada, May 2013- May 2014 ($10,000). 7. McPhersn, AC (PI) & Pattn, I. Grwing Healthy Bdies: The develpment f a healthy bdy screcard fr Canadian children and yuth. MITACS September 2013- August 2014 ($45,000). 8. McPhersn, AC (PI), Lindsay, S & Curran, CJ Hw effective is Busy Bdies in gal attainment fr children with physical disabilities? Maple Leafs Sprts and Entertainment, February- Octber 2013 ($3950). 9. Kingsnrth, S., King, G., McPhersn, AC (C-I)., Jnes-Galley, K. & Savage, D. A prspective real-time study f The Independence Prgram (TIP). Hlland Blrview Fundatin Centre fr Leadership in Participatin and Inclusin, April 2013-March 2014 ($45,000). 10. McPhersn, AC (PI), Church, P, Lyns, J, Chen, L, Swift, J. An envirnmental scan f weight assessment and management practices in paediatric spina bifida clinics acrss Canada. Spina Bifida and Hydrcephalus Assciatin f Canada, May 2012-January 2013 ($8014). 11. McPhersn, AC (PI), Upshall, K, Stinsn, J. Cnnected fr health: Explring users experiences f a scial netwrking website fr children and yuth with chrnic cnditins. Kids Health Links Fundatin, Nvember 2012- May 2013 ($8000). 12. McPhersn, A., King, G., (C-PIs), Kingsnrth, S., & Jnes-Galley, K. Measuring Quality f Teen Independence Immersin Envirnments: Service Prvider Perceptins. Hlland Blrview Fundatin Centre fr Leadership in Participatin and Inclusin, 2012-2013 ($21,075). 13. Kingsnrth, S., King, G., (C-PIs), McPhersn, A. & Jnes-Galley, K. A retrspective study f past graduates f The Independence Prgram: A cmparisn f ther mdels. Hlland Blrview Fundatin Centre fr Leadership in Participatin and Inclusin, 2012-2013 ($20,949). 14. Biddiss, E, Chau, T, Fehlings, D, McKeever, P, McPhersn, A, Rigby, P. The Art f Waiting: An evaluatin f an interactive media experience in a children s hspital waiting space. CIHR, 2012-2014 ($187,072). 15. Lindsay, S, McPhersn, A, Wright, V, McKeever, P & Aslam, H. Kids and teachers assessments f 2 anti-bullying interventins. SSHRC, 2010-2011 ($35,545). 16. Lindsay, S, McPhersn, A. Breaking the silence abut bullying: Experiences f inclusin and exclusin amng children with cerebral palsy. Ontari Federatin fr Cerebral Palsy, 2010-2011, ($5,000). 17. McPhersn, A. Develpment & evaluatin f a website fr yung peple with diabetes. Sheffield Children s Hspital Trust (UK) & Diabetes UK (as part f bigger grant), 2007-2011 (apprx $104,000). 18. Avis, M, McPhersn, A, et al. Lcal evaluatins f SureStart prgrammes in Nttinghamshire and Derbyshire. Lcal Health Authrities, UK. 2004-2008 (ttal 195,600/apprx $313,000). Selected jurnal publicatins (#= clinician; underline= trainee) 1. McPhersn, AC, Le, J, Lyns, J#, Church, P#, Chen, L#, Swift, JA. (in press) An envirnmental scan f weight assessment and management practices in paediatric spina bifida clinics acrss Canada. Jurnal f Pediatric Rehabilitatin Medicine. Amy McPhersn Abbreviated Curriculum Vitae 2
2. King, G, McPhersn, AC, Kingsnrth, S, Stewart, D, Glencrss-Eimantas, T#, Grter, JW, Jnes-Galley, K#, Mrrisn, A#, Isihi, AM# (in press) Residential immersive life skills prgrams fr yuth with disabilities: Service prviders perceptins f experiential benefits and key prgram features. Disability and Rehabilitatin. 3. Biddiss, E, Knibbe, TJ, McPhersn, AC (2014) The effectiveness f interventins aimed at reducing anxiety in healthcare waiting spaces: a systematic review f randmized and nn-randmized trials. Anesthesia & Analgesia 119 (2):433-448. 4. McPhersn, AC, Gfine, M, Stinsn, J. (2014) Seeing is believing? A mixed methds study explring the quality and perceived trustwrthiness f nline infrmatin abut chrnic cnditins aimed at children and yung peple. Health Cmmunicatin 29 (5) 473-482. di: 10.1080/10410236.2013.768325 [Epub 2013 Oct 7] 5. McPhersn, AC, Keith, R, Swift, JA. (2013) Obesity preventin fr children with physical disabilities: a scping review f physical activity and nutritin interventins. Disability and Rehabilitatin. Early nline: 1-15. DOI: 10.3109/09638288.2013.863391. 6. Keenan, S#, King, G, Curran, CJ, McPhersn, AC. (2013) Effectiveness f an Experiential Life Skills Interventin fr Yuth with a Disability. Physical and Occupatinal Therapy in Pediatrics. Early Online:1 13. di:10.3109/01942638.2013.842200 [Epub Oct 30 2013]. 7. McPhersn, AC, Keith, R, Swift, J (2013) Obesity-related health prmtin interventins fr children and yung peple with physical disabilities: state f the evidence. Develpmental Medicine and Child Neurlgy 55 (Supp 3), 68. 8. McPhersn, AC, Swift, J, Lyns, J, Church, P, Chen, L. (2013) Why shuld we be cncerned abut besity in children with disabilities? Canadian Jurnal f Diabetes; 37 (Supp 2), 239-240. 9. Pattn, I & McPhersn, AC (2013) Anthrpmetric measurements in Canadian children: A scping review. Canadian Jurnal f Public Health. 104(5):e369-e374. 10. Wells, F, Ritchie, D, McPhersn, AC. (2013) "It is life threatening but I dn t mind. A qualitative study using Pht Elicitatin Interviews t explre yung peple s experiences f renal replacement therapies. Child: Care, Health & Develpment 39 (4), 602 612. 11. McPhersn, AC, Swift, JA, Yung, E, Lyns, J#, Church, P#. (2013) The assessment f weight status in children and yung peple attending a spina bifida utpatient clinic: a retrspective medical recrd review. Disability and Rehabilitatin. Vl. 35 (25), 2123-2131. 12. Biddiss, E, McPhersn, A, Shea, G, McKeever, P. (2013) The design and testing f interactive hspital spaces t meet the needs f waiting children. Health Envirnments Research & Design Jurnal 6(3), 49-68. 13. Price KJ, Wales J, Eiser C, Knwles, J, Heller, S, Freeman, J Brennan, A, McPhersn, A, Wellingtn, J (2013) Des an intensive self-management structured educatin curse imprve utcmes fr children and yung peple with type 1 diabetes? The Kids In Cntrl OF Fd (KICk-OFF) cluster randmised cntrlled trial prtcl. BMJ Open;3: e002429. di:10.1136/bmjpen-2012-002429. 14. King, G, Curran, CJ, McPhersn, AC. (2013) A Fur-Part Eclgical Mdel f Cmmunity-fcused Therapeutic Recreatin and Life Skills Services t Supprt the Participatin f Children with Disabilities. Child: Care, Health & Develpment 39 (3), 325-336. DOI: 10.1111/j.1365-2214.2012.01390.x 15. McPhersn, AC & Lindsay, S. (2012) Hw d children with disabilities view healthy living? A pilt study. Disability & Health Jurnal 5 (3) 201-209. 16. Lindsay S, McPhersn AC, Aslam H, McKeever P, Wright V (2012) Explring children s perceptins f tw schl-based scial inclusin prgrams: A pilt. Child and Yuth Frum. DOI: 10.1007/s10566-012-9183-9. Amy McPhersn Abbreviated Curriculum Vitae 3
17. Lindsay, SL & McPhersn, AC. (2011) Experiences f scial exclusin and bullying at schl amng children and yuth with cerebral palsy. Disability & Rehabilitatin. DOI: 10.3109/09638288.2011.587086 18. Lindsay, S & McPhersn, AC (2011) Strategies fr imprving disability awareness and scial inclusin: Listening t the vices f children with cerebral palsy Child: Care, Health & Develpment 38 (6) 809-816. DOI: 10.1111/j.1365-2214.2011.01308.x 19. McPhersn, AC & Redsell, SA (2009) Factrs affecting children's invlvement in asthma cnsultatins: a questinnaire survey f general practitiners and primary care asthma nurses. Primary Care Respiratry Jurnal 18(1), 15-20. 20. Glazebrk, C, McPhersn, AC, Macdnald, IA, Swift, JA, Ramsay, C, Newbuld, R. & Smyth, A (2006) Asthma as a barrier t children's physical activity: implicatins fr bdy mass index and mental health. Pediatrics 118(6), 2443-2449. 21. McPhersn, AC, Glazebrk, C, Frster, D, James, C & Smyth, A. (2006) A Randmised, Cntrlled Trial t evaluate an interactive educatinal cmputer package fr children with Asthma. Pediatrics 117,1046-1054. Bk chapters 1. McPhersn, AC (2010) Invlving children: Why it matters. Ch 2 in SA Redsell & A Hastings Listening t Children and Yung Peple in Healthcare Cnsultatins. Radcliffe: Oxfrd. Invited talks 1. McPhersn (2013) Obesity in children with physical disabilities: a clinical and research dilemma, Department f Rehabilitatin, Laval University, Quebec City, Nvember 19. 2. McPhersn, AC (2013) Childhd besity and lng-term cnditins: an emerging challenge. Schl f Health Sciences, University f Nttingham, UK. August 1. 3. McPhersn, AC, Dean, H & McKeever, P (2011) Duble Expsure: The Depictin f Disability in Film and Research. Participatin & Inclusin Research Team meeting, Blrview Research Institute, Trnt, 13 th December. 4. McPhersn, AC (2010) Prmting self-management in yung peple with chrnic health cnditins. Part f invited sympsium Mental Health in yung peple with chrnic cnditins: Prmting self management in Zambian adlescents. Internatinal Sciety fr the Study f Behaviural Develpment, University f Zambia, Lusaka, Zambia, July 18th-22. 5. McPhersn, AC (2009) Getting it right: crafting research instruments fr kids with kids. Ding Research With Kids: Designs, Dilemmas & Directins (internatinal methds wrkshp), Blrview Kids Rehab, Octber 22 23. 6. McPhersn, AC (2008) Duble click fr health: develping multimedia interventins fr children with chrnic health cnditins. Blrview Research Institute Seminar Series, December 9. 7. McPhersn, AC (2008) Multimedia interventins fr children and yung peple. Synergy Wrkshp: Internet-based Health Psychlgy Interventins: Maximising their Ptential. Eurpean Health Psychlgy Sciety cnference, Bath, UK, September 6-8. 8. McPhersn, AC (2007) Invited discussant at the 'Chrnic illness in children' sympsium at the Divisin f Health Psychlgy annual cnference, Nttingham, UK, September 12 14. Media 1. Spring/Summer 2014: An accident waiting t happen: the stigma f incntinence. Current: The magazine f the Spina Bifida and Hydrcephalus Assciatin f Ontari. 2. Jan 21 2014 Medical websites fr kids lacking http://issuu.cm/hllandblrview/dcs/blm_winter_2014_- _web/1?e=1952047/6413530 Amy McPhersn Abbreviated Curriculum Vitae 4
3. Dec 12, 2013: The Challenge f Obesity In Children With Physical Disabilities http://www.drsharma.ca/the-challenge-f-besity-in-children-with-physicaldisabilities.html?utm_surce=feedburner&utm_medium=email&utm_campaign=feed% 3A+AryaSharma+%28Arya+M.+Sharma%2C+MD%29 4. July 2013: The Blrview Research Institute is starting the cnversatin: Obesity in children with disabilities http://issuu.cm/hspitalnews/dcs/hspital_news_july_2013_digital_19f50815883b4c?e=8107642%2f3948055 5. June 2013: Clinicians need t step-up educatin t cmbat besity http://issuu.cm/hllandblrview/dcs/blmsummer2013-june25 6. May 2013: The assessment f weight status in children and yung peple attending a spina bifida utpatient clinic: a retrspective medical recrd review http://www.mdlinx.cm/pediatrics/news-article.cfm/4953009/ 7. Oct 25 2012 (and Winter print cpy f Blm ): Findings frm: A qualitative explratin f the experiences f children with spina bifida and their parents arund incntinence and scial participatin http://blm-parentingkidswithdisabilities.blgspt.ca/2012/10/a-tileting-tab-kidsand-incntinence.html Amy McPhersn Abbreviated Curriculum Vitae 5