STROKE REHABILITATION RESOURCE GUIDE INTRODUCTION The intent of the Stroke Rehabilitation Resource Guide is to enable stroke care providers seeking information related to the rehabilitation of the stroke survivor to access that information, in a user-friendly format, on the Heart and Stroke Foundation of Ontario s Professional Education Web site. Users are encouraged to contribute additional available resources for inclusion in this Guide by emailing css@hsf.on.ca. AMBULATION/MOBILITY Best Practice Guidelines for Stroke Care: A Resource for Implementing Optimal Stroke Care (Assessment and Outcome Measurement Tools) Available at Heart and Stroke Foundation of Ontario (HSFO), (416) 489-7111 x 389, csor@hsf.on.ca, or Evidence Based Review of Stroke Rehabilitation (EBRSR) Module 3.3.4: Recovery of Specific Functions Module 9: Mobility and the Lower Extremity Module 21: Outcome Measures in Stroke Rehabilitation RNAO Best Practice Guideline: Prevention of Falls and Fall Injuries in the Older Adult Available at www.rnao.org/bestpractices Tips and Tools for Everyday Living: A Guide for Stroke Caregivers (Section 5 Mobility and Skin Care) Tips and Tools DVD Series: Mobility Available at www.strokestrategyseo.ca Stroke Rehab Resource Guide, 20070614 1
Transfers: Clients With Stroke Available at APHASIA AND OTHER COMMUNICATION IMPAIRMENTS Aphasia Beyond Words Helping Stroke Survivors with Aphasia Improve Communication Available at HSFO, 1-888-473-4636 (HSF-INFO) or www.heartandstroke.ca/orderform The Aphasia Institute Available at www.aphasia.ca or (416) 226-3636 Aphasia Poster Available at HSFO, (416) 489-7111 x 389, css@hsf.on.ca, or The CommuniKit Available at Trillium Health Centre (905) 848-7580 x 2389 or hsloan@thc.on.ca Evidence Based Review of Stroke Rehabilitation Module 3.5.3: Aphasia Module 6.6.2: Intensity of Aphasia Therapy Post-Stroke Module 14: Aphasia Stroke Best Practices Workshop for Nurses Available at West GTA Stroke Network, (905) 848-7580 x 5475 Tips and Tools DVD Series: Communication Available at www.strokestrategyseo.ca Tips and Tools for Everyday Living: A Guide for Stroke Caregivers (Section 3 Communication; Section 12 Aphasia) Stroke Rehab Resource Guide, 20070614 2
York-Durham Aphasia Centre Interactive Aphasia Tutor (on-line tutor) Aphasia: A New Life Skills Development for Community Partners (CD-ROM training materials) designed for volunteers. Aphasia: A New Life (a series of 8 booklets). Available in English, Italian and Chinese Aphasia: A New Life (Video) Includes content about YDAC s programs, history, personal insights from clients, caregivers and volunteers Evaluation of Effectiveness of a Community Based Program for Aphasic Adults (paper) The above resources are available at www.ydac.on.ca ASSESSMENT & OUTCOME MEASURES Unit 21 Outcome Measures in Stroke Rehabilitation Chedoke-McMaster Stroke Assessment Available at www.chedokeassessment.ca National Institutes of Health Stroke Scale, Use in Acute Stroke Rehabilitation Available at Available at HSFO, (416) 489-7111 x 389, css@hsf.on.ca, or or www.rnao.org/bestpractices Stroke Best Practices Workshop for Nurses Available at West GTA Stroke Network, (905) 848-7580 x 5475 Assess Available at www.medicine.mcgill.ca/strokengine-assess COGNITIVE, PERCEPTUAL AND BEHAVIOURAL PROBLEMS Best Practice Guidelines for Stroke Care: A Resource for Implementing Optimal Stroke Care (Rehabilitation Management and Community Re-engagement) Stroke Rehab Resource Guide, 20070614 3
Centre for Neuro Skills Available at www.neuroskills.com Module 12: Cognitive Disorders and Apraxia Module 13: Perceptual Disorders Module 21: Outcome Measures in Stroke Rehabilitation OT Assessment of Cognition in Acute Care Available at London Health Sciences Centre, contact KatherinePoon@lhsc.on.ca Perceptual Deficits in Activities of Daily Living A Video for Health Care Staff Available at London Health Sciences Centre, contact KatherinePoon@lhsc.on.ca PIECES Provincial strategy to enhance the ability of long-term care facility staff to meet the care requirements of residents with complex physical and cognitive/mental health needs with associated behavioural issues. Available at www.pieces.cabhru.com or Project Coordinator (519) 842-8021 or www.rnao.org/bestpractices Stroke Best Practices Workshop for Nurses Available at West GTA Stroke Network, (905) 848-7580 x 5475 Tips and Tools DVD Series: Cognitive, Perceptual & Behavioural Problems Available at www.strokestrategyseo.ca Tips and Tools for Everyday Living: A Guide for Stroke Caregivers (Section 7 Cognitive and Perceptual Problems) Stroke Rehab Resource Guide, 20070614 4
COMMUNITY RE-ENGAGEMENT Best Practice Guidelines for Stroke Care: A Resource for Implementing Optimal Stroke Care (Community Re-engagement) CCAC Service Guidelines Available at HSFO, (416) 489-7111 x 389, csor@hsf.on.ca or Case Management Best Practice for Community Stroke Care Workshop Case Management for Community Stroke Care Available at www.oaccac.on.ca/bpp Module 19: Community Re-integration Module 21: Outcome Measures in Stroke Rehabilitation Modifying the Home After Stroke Available at HSFO, Available at HSFO (416) 489-7111 x 389, csor@hsf.on.ca, or or www.rnao.org/bestpractices Tips and Tools for Everyday Living: A Guide for Stroke Caregivers CONTINENCE Canadian Continence Foundation Available at www.continence-fdn.ca or 1-800-265-9575 Stroke Rehab Resource Guide, 20070614 5
Module 17: Medical Complications Post Stroke RNAO Best Practice Guideline: Promoting Continence Using Prompted Voiding Available at www.rnao.org/bestpractices RNAO Best Practice Guideline: Prevention of Constipation in the Older Adult Available at www.rnao.org/bestpractices or www.rnao.org/bestpractices Stroke Best Practices Workshop for Nurses Available at West GTA Stroke Network, (905) 848-7580 x 5475 Tips and Tools for Everyday Living: A Guide for Stroke Caregivers (Section 10 Managing Continence) DEPRESSION AND MOOD Best Practice Guidelines for Stroke Care: A Resource for Implementing Optimal Stroke Care (Assessment and Outcome Measurement Tools) Module 18: Post Stroke Depression Module 21: Outcome Measures in Stroke Rehabilitation McMaster University Health Care Information Resources, Depression Links Available at http://hsl.mcmaster.ca/tomflem/depress.html National Institute of Mental Health, Depression and Stroke Available at www.nimh.nih.gov/publicat/depstroke.cfm Stroke Rehab Resource Guide, 20070614 6
National Institute of Mental Health, Depression and Stroke Available at www.nimh.nih.gov/publicat/nimhdepstroke.pdf Rehabilitation Education Program for Stroke (REPS) Available at http://bul.med.utoronto.ca/reps RNAO Best Practice Guideline: Screening for Delirium, Dementia and Depression in Older Adults Available at www.rnao.org/bestpractices RNAO Best Practice Guideline: Caregiving Strategies for Older Adults with Delirium, Dementia and Depression in Older Adults Available at www.rnao.org/bestpractices or www.rnao.org/bestpractices Stroke Best Practices Workshop for Nurses Available at West GTA Stroke Network, (905) 848-7580 x 5475 Tips and Tools for Everyday Living: A Guide for Stroke Caregivers (Section 2 Psychosocial Effects) DRIVING Module 19: Community Re-integration Occupational Therapy Screening/Driving Assessment Guidelines Available at London Health Sciences Centre, contact KatherinePoon@lhsc.on.ca Stroke, Driving and the Health Care Professional. Rules and Guidelines Available at Stroke Rehab Resource Guide, 20070614 7
DYSPHAGIA AND NUTRITION Module 15: Dysphagia and Aspiration Post Stroke Module 16: Nutritional Interventions Following Stroke Improving Recognition and Management of Dysphagia in Acute Stroke Available at HSFO (416) 489-7111 x 389, csor@hsf.on.ca, or Management of Dysphagia in Acute Stroke. An Educational Manual for the Dysphagia Screening Professional Available at HSFO, (416) 489-7111 x 389, css@hsf.on.ca, or Nutrition Screening for Stroke Survivors. An Educational Manual for the Dysphagia Screening Professional Available at HSFO (416) 489-7111 x 389, css@hsf.on.ca, or or www.rnao.org/bestpractices Stroke Best Practices Workshop for Nurses Available at West GTA Stroke Network, (905) 848-7580 x 5475 Swallowing Lab Available at http://swallowinglab.uhnres.utoronto.ca (highlight the Order icon on the top right of the home page for details specific to the TOR-BSST ) Tips and Tools DVD Series: Meal Assistance & Hydration Available at www.strokestrategyseo.ca Tips and Tools for Everyday Living: A Guide for Stroke Caregivers (Section 8 Meal Assistance and Hydration) Stroke Rehab Resource Guide, 20070614 8
PAIN Comprehensive Advanced Palliative Care Education (CAPCE) Pain Management Guide Available at www.palliativecareswo.ca Module 11: Painful Hemiplegic Shoulder Module 17: Medical Complications Post Stroke RNAO Best Practice Guideline for Nurses: Assessment and Management of Pain Available at www.rnao.org/bestpractices or www.rnao.org/bestpractices Stroke Best Practices Workshop for Nurses Available at West GTA Stroke Network, (905) 848-7580 x 5475 PEDIATRIC STROKE Children s Hemiplegia and Stroke Association Available at www.hemikids.org Pediatric Stroke Network Available at www.pediatricstrokenetwork.com Stroke in Childhood: Clinical Guidelines for Diagnosis, Management and Rehabilitation Available at www.rcplondon.ac.uk/pubs/books/childstroke/ Stroke Rehab Resource Guide, 20070614 9
PUSHER SYNDROME Poststroke Pushing : Natural History and Relationship to Motor and Functional Recovery. Cynthia Danells, Sandra E. Black, David J. Gladstone and William E. McIlroy, Stroke, 2004;35;2873-2878. Available at http://stroke.ahajournals.org/cgi/reprint/35/12/2873?maxtoshow=&hits=10&hits=10&r ESULTFORMAT=&fulltext=Poststroke+%93Pushing%94%3A+Natural+History+and+ Relationship+to+Motor+and+Functional+R&searchid=1&FIRSTINDEX=0&resourcetyp e=hwcit RECREATION Stroke and Physical Activity Available at HSFO, REHABILITATION (GENERAL TOPICS) Best Practice Guidelines for Stroke Care: A Resource for Implementing Optimal Stroke Care (Rehabilitation Management) Champlain Regional Stroke Centre See Stroke Team for additional resources via discipline available at www.champlainstrokecentre.org Module 3: Background Concepts in Stroke Rehabilitation Module 4: Managing the Stroke Rehabilitation Process Module 5: The Efficacy of Stroke Rehabilitation Module 6: The Elements of Stoke Rehabilitation Module 7: Outpatient Stroke Rehabilitation Module 21: Outcome Measures in Stroke Rehabilitation GTA Rehab Network Available at www.gtarehabnetwork.ca Stroke Rehab Resource Guide, 20070614 10
Moving Towards a Regional Stroke Rehabilitation System Practices in Stroke Rehabilitation A 36-hour course designed with Humber College for communication disorder assistants, registered practical nurses, occupational therapist assistants and physiotherapy assistants. Available at HSFO, Rehabilitation Education Program for Stroke (REPS) Available at http://bul.med.utoronto.ca/reps Stroke and Physical Activity Available at HSFO, SEXUALITY Module 19: Community Re-integration or www.rnao.org/bestpractices Stroke Survivors Association of Ottawa Available at www.strokesurvivors.ca SURVIVOR & CAREGIVER SUPPORT AND EDUCATION Best Practice Guidelines for Stroke Care: A Resource for Implementing Optimal Stroke Care (Rehabilitation Management and Community Re-Engagement) Best Practice Guideline 14: Rehabilitation Management Best Practice Guidelines 17-18: Community Re-Engagement Available at HSFO (416) 489-7111 x 389, csor@hsf.on.ca, or Caregiver Network Inc. Available at www.caregiver.on.ca Stroke Rehab Resource Guide, 20070614 11
Hamilton-Wentworth Stroke Recovery Associations www.strokerecovery.org Heart and Stroke Foundation Available at www.heartandstroke.ca/stroke (look for the stroke section) Let s Talk About Stroke: An Information Guide for Survivors and Their Families Available at HSFO, 1-888-473-4636 (HSF-INFO) or www.heartandstroke.ca (look for the stroke section) Living with Stroke Available at HSFO, 1-888-473-4636 (HSF-INFO) or www.heartandstroke.ca (look for the stroke section) MOST: Moving on after Stroke Available at www.baycrest.org Ontario March of Dimes Stroke Recovery Program. Available at www.marchofdimes.ca/dimes/people_with_disabilities_caregivers/programs_and_service s/support_groups/stroke_recovery_canada.htm Stroke Survivors Association of Ottawa Available at www.strokesurvivors.ca Starting a Self-Help Group for People Who Have Had a Stroke and for Caregivers Available at HSFO (416) 489-7111 x 389, csor@hsf.on.ca, or StrokeNet Available at http://strokesurvivor.net Stroke Rehab Resource Guide, 20070614 12
TRANSITION MANAGEMENT Best Practice Guidelines for Stroke Care: A Resource for Implementing Optimal Stroke Care (Transition Management) Available at HSFO (416) 489-7111 x 389, csor@hsf.on.ca, or UPPER EXTREMITY Best Practice Guidelines for the Management of the Hemiplegic Arm: A Positioning and Handling Protocol Available at Shoulder Electrical Stimulation Available at www.champlainstrokecentre.org/index.php?option=com_content&task=blogcategory&id =30&Itemid=61 Module 3.3.4: Recovery of Specific Functions Module 10: Upper Extremity Interventions Module 11: Painful Hemiplegic Shoulder Module 21: Outcome Measures in Stroke Rehabilitation Management of the Post Stroke Arm and Hand: Treatment Recommendations of the 2001 Consensus Panel Available at HSFO (416) 489-7111 x 389, csor@hsf.on.ca, or American Academy of Neurology www.aan.com WEB RESOURCES Stroke Rehab Resource Guide, 20070614 13
American Association of Neuroscience Nurses www.aann.org American Stroke Association www.strokeassociation.org/ The Brain Attack Coalition www.stroke-site.org The Brain Matters www.thebrainmatters.org Canadian Association of Neuroscience Nurses www.cann.ca Canadian Hypertension Society www.hypertension.ca Canadian Stroke Consortium www.strokeconsortium.ca Canadian Stroke Network www.canadianstrokenetwork.ca Centre for Neuro Skills www.neuroskills.com The Cochrane Collaboration www.cochrane.org/ The Canadian Cochrane Network and Centre www.cochrane.uottawa.ca European Stroke Initiative www.eusi.org Generation S: Young Stroke Survivors www.orgsites.com/pa/generation-s Heart and Stroke Foundation of Canada www.heartandstroke.ca Heart and Stroke Foundation of Ontario Professional Education Stroke Rehab Resource Guide, 20070614 14
Inspire Stroke CME Initiatives www.inspirecme.org The Internet Stroke Center www.strokecenter.org/prof National Clinical Guidelines for Stroke (Royal College of Physicians) www.rcplondon.ac.uk/standards.asp National Institutes of Neurological Disorders and Stroke (NINDS) www.ninds.nih.gov National Stroke Association www.stroke.org New Zealand Guideline Group: Life after Stroke: New Zealand Guideline for Management of Stroke www.nzgg.org.nz/index.cfm Neurosciences on the Internet www.neuroguide.com Scottish Intercollegiate Guidelines Network www.sign.ac.uk/guidelines/published/index.html Stroke-TIA.org www.stroke-tia.com Virtual Hospital Stroke and Brain Attack www.stroke-site.org/guidelines/guidelines.html Stroke Rehab Resource Guide, 20070614 15