Research on animals in the frontline: Transparency and public engagement

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Basel Declaration Society I Allschwilerplatz 1 I PF I CH- 4009 Basel www.basel- declaration.org I contact@basel- declaration.org 4 INTERNATIONAL CONGRESS OF THE BASEL DECLARATION SOCIETY: th Research on animals in the frontline: Transparency and public engagement Rome, 1st 2nd October 2015 Congress Information Human health is benefiting enormously from continuous medical progress. This is made possible by the interactions between basic biomedical research, translational research and the development of new drugs and therapies. The incredible advances of biomedical research during the last few decades would not have been possible without the ground- breaking research done in various animal models, ranging from simple invertebrates to non- human primates. In order to continue to contribute scientific discoveries that will benefit human health, it is absolutely critical that state- of- the- art basic as well as applied research can continue. A small, but very active and influential fraction of the general public sees this rather differently and poses a threat to modern biomedical research. They are very vocal in promoting the claim that research involving animals is useless and unnecessary or even harmful to medical progress and improvement of human health. This anti- scientific attitude misrepresents the scientific and historic evidence as well as the ethical challenge of our dual responsibility towards human patients and research animals. What can be done to increase public awareness of the benefits of basic and applied research using animals for human and animal health alike? Discussing these urgent issues will be one of the major focuses this conference. 1

Program Program September 30 th for invited & registered participants only Venue: Hotel Ponte Sisto, via dei Pettinari 64, Roma 19.00 Welcome dinner Hotel Ponte Sisto, via dei Pattinari 64, Roma Program October 1 st for invited & registered participants only Venue 1 st Day: Accademia Nazionale dei Lincei, Palazzo dell Auditorio Via della Lungara, 230, Roma, Italy and Orto botanico - SAPIENZA University of Rome Largo Cristina di Svezia, 24-00153 Roma 2

8:00 Registration, (Sala dell' Auditorio) 8:45 Welcome by the Basel Declaration Society 9:00 Welcome by the SAPIENZA University of Rome 09:10 Best Practice - how researchers deal with the activities of animal right activists in a most effective way: Research4Life 9:30 Training and education: the importance of having a handbook written in the national language by local researchers 9:50 Minimizing the influence of the animal rights narrative with increased transparency and visibility: An example from Portugal Rolf Zeller President of the BDS, Department of Biomedicine, University of Basel, Switzerland SAPIENZA University of Rome, Italy Giuliano Grignaschi Vice President of the BDS, IRCCS Istituto di Ricerche Farmacologiche Mario Negri, Milano, Italy Fabio Luzi Departement of health, animal science and food safety, University of Milan, Italy Nuno Henrice Franco Ambassador, Basel Declaration Society, University of Porto, Portugal 10:10 Coffee Break & Networking 10:40 Non- human primate research in the frontline: Ways to transparency and public engagement 11:00 Research on non- human primate models of HIV 11:20 The 2017 EU evalution: what strategy? Roberto Caminiti SAPIENZA University of Rome, Italy Guido Silvestri Emory University, Atlanta, USA Kirk Leech EARA European Animal Research Association, UK 11:40 A historical perspective Andrea Grignolio SAPIENZA University of Rome, Italy 12:00 Animal research in the news Fiona Fox Science Media Center, London, UK 12:20 Q&A, General Discussion Rolf Zeller President of the BDS, Department of Biomedicine, University of Basel, Switzerland 12.45 Lunch & Networking 3

14:00-16:00 16:00-16:15 16:15-16:45 PARALLEL WORKSHOPS (Breakout Rooms) Workshop 1 Workshop 2 Workshop 3 Break Panel (Sala dell Auditorio) Tentative topics How to deal with misinformation and threats: developing a logical checklist. Example ECI: Stop Vivisection Initiative WL: Sarah Rappaport, Wellcome Trust Triple check: the 3Rs and the evaluation of research protocols WL: Augusto Vitale, Istituto Superiore di Sanità Simone Pollo, SAPIENZA University of Rome Crisis management WLs: Dario Padovan, ProTest Italy Stefan Treue, Member of the Board of the BDS, German Primate Center, Göttingen, Germany (by Video) The importance of transparent communication how to explain the role and value of animal models to patients 16:45 Plenary session Results/ Q&A/Discussion 17:30 Finalisation of workshop summaries and assembly of papers for the press (2 nd day) 18:15 Guided visit of the Villa Farnesina Chaired by: Roberta Villa, Scienza in rete Giulia Volpato: ass p63 Sindrome E.E.C Internatioanl ONLUS Orietta Mariotti Pro Rett Ricerca Onlus Nicola Spinelli Casacchia UNIAMO Gregor Rainer Boardmember of the BDS, Departement of Medicine/Physiology, University of Fribourg,CH Workshop- Leaders Venue: Hotel Ponte Sisto, via dei Pettinari 64, Roma 20:00 Gala dinner Hotel Ponte Sisto via dei Pettinari 64, Roma 4

Program October 2 nd day: (at the Italian Parliament) In addition to participants of the first day, the 2 nd day will be open to politicians, science journalists and additional interest groups Venue: Italian Senate, Palazzo Giustiniani (Sala Zuccari), Via della Dogana Vecchia, 29, Roma 9:00 Welcome Rolf Zeller President of the BDS, Department of Biomedicine, University of Basel, Switzerland 09:15-10:00 Presentation of the topics and conclusions from the 1 st day 10:00 Coffee breack Workshop- Leaders 10:30-11:30 Round Table: Improving animal welfare and quality of science Chaired by Roberta Villa Milan, Italy Giulia Volpato (p63 sindrome eec international onlus) Patient Organization Lucia Monaco Telethon, Scientist Marcello Raspa AISAL, Scientist 11:30 Media Conference /Q&A 12:00 Concluding remarks by Conference Organizers 12:15-13:15 Media Training Giuliano Grignaschi Vice President of the BDS IRCCS Istituto di Ricerche Farmacologiche Mario Negri, Milano, Italy Roberta Villa Milan, Italy 5

Basel Declaration Society I Allschwilerplatz 1 I PF I CH- 4009 Basel www.basel- declaration.org I contact@basel- declaration.org Directions Italian Senate, Palazzo Giustiniani (Sala Zuccari), Via della Dogana Vecchia, 29, Roma Closest bus station: Teatro Valle Hotel Ponte Sisto, via dei Pettinari 64, Roma Closest bus station: Lungotevere Accademia Nazionale dei Lincei, Palazzo dell'auditorio, Sala dell' Auditorio, Via della Lungara, 230, Roma Closest bus station: Lungara - Orto Botanico Orto botanico - SAPIENZA University of Rome, Largo Cristina di Svezia, 24-00153 Roma Closest bus station: Orto Botanico 6

Co- Chairs: Prof Dr Rolf Zeller President of the Basel Declaration Society Department of Biomedicine, University of Basel, Switzerland Dr Giuliano Grignaschi Vice President of the Basel Declaration Society IRCCS Istituto di Ricerche Farmacologiche Mario Negri, Milano, Italy Scientific Program Committee Dr Giuliano Grignaschi (IRCCS Istituto di Ricerche Farmacologiche Mario Negri, Italy) Prof Roberto Caminiti (SAPIENZA University of Rome, Italy) Prof Alexandra Battaglia- Mayer (SAPIENZA University of Rome, Italy) Lucia Monaco (Chief scientific officer, Telethon Italy) Prof Gregor Rainer (University of Fribourg, Switzerland) Prof Stefan Treue (German Primate Center, Göttingen, Germany) Prof Rolf Zeller (University of Basel, Switzerland) Dr Aimée Zuniga (University of Basel, Switzerland) Organizers Basel Declaration Society SAPIENZA University of Rome Research4Life Telethon Italy ProTest Italy Local Organizing Committee Prof Alexandra Battaglia- Mayer (SAPIENZA University of Rome) Prof Roberto Caminiti (SAPIENZA University of Rome) Dr Giuliano Grignaschi (IRCCS Istituto di Ricerche Farmacologiche Mario Negri, Italy) Gruppo del Fago (Student organization- SAPIENZA University of Rome) 7

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