TISS.EU PROJECT EUROPEAN WORKSHOP: PROCUREMENT, STORAGE AND TRANSFER OF TISSUES AND CELLS FOR NON CLINICAL PURPOSES IN A LEGAL AND ETHICAL PERSPECTIVE

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1 TISS.EU PROJECT EUROPEAN WORKSHOP: PROCUREMENT, STORAGE AND TRANSFER OF TISSUES AND CELLS FOR NON CLINICAL PURPOSES IN A LEGAL AND ETHICAL PERSPECTIVE Fondazione Lanza, Padova (Italy) PROGRAMME Thursday 24 September 2009: , Padova THE STATE OF THE ART Chair: Prof. Renzo Pegoraro, Director Fondazione Lanza, Padua (Italy) Prof. Bert Gordijn, Dublin City University (Ireland) Introduction to the Workshop The scientific point of view Prof. Angelo Rosolen University of Padua (Italy) European Networks Dr. Marco Agostini University of Padua (Italy) Coffee Break The legal point of view Dr. Alexander Schuster - University of Trento (Italy) The ethical point of view Prof. Eugenijus Gefenas, Prof. Vilius Dreanseika, University of Vilnius (Lithuania) Discussion Friday 25 September 2009: COUNTRIES REPORTS Chair: Prof. Fabrizio Turoldo, Fondazione Lanza, Padua (Italy) Prof. Eugenijus Gefenas, University of Vilnius, (Lithuania) Greece Dr Ariadne L. Hager-Theodorides Hellenic National Bioethics Commission Cyprus Prof. Marios Cariolou Cyprus National Bioethics Committee Malta Dr. Pierre Mallia Ethical Advisor, Medical Council of Malta (invited) Discussion Coffee break Slovenia Dr. Anton Mlinar - University of Primorska (Koper) Italia Dr. Luciana Caenazzo - University of Padua Discussion Buffet Wokshop Dinner

2 Friday 25 September 2009: WORKING SESSION Chair: Dr. Alessandra Bernardi, IOV, Padua (Italy) Dr. Marco Agostini, University of Padua (Italy) Ethical issues - Legal issues Presentations of: Dr. Pamela Tozzo Dr. Petra Bard - Prof. Renzo Pegoraro Prof. Carlo Tamburrini Dr. Nils Hoppe Workshop Dinner Saturday 26 September 2009: PUBLIC SESSION Chair: Prof. Renzo Pegoraro, Director Fondazione Lanza, Padua (Italy) Prof. Christian Lenk, University of Göttingen (Germany) Opening and presentation of TISS.EU Project Prof. Christian Lenk University of Göttingen (Germany) Genetic Biobanks: new perspective for research Dott.ssa Mirella Filocamo Gaslini Institute Genova (Italy) Biobanks for non clinical purposes: an ethical overview Dott.ssa Corinna Porteri CEIOC Brescia (Italy) Ethical issues in genetic research: transfer of tissues and data protection Dr. Carlo Petrini Unità di Bioetica - Istituto Superiore di Sanità, Roma (Italy) Public perceptions of the involvement in biobanks research Prof. Federico Neresini University of Padova, Padua (Italy) Discussion and Conclusion

3 TRAVEL INFORMATION How to reach Padova By Plane: VENICE Airport Marco Polo ( Venezia Aereoporto Tessera ): take the bus SITA that leaves every 30 minutes from 6.35 a.m. to a.m. from the airport to Padova Bus Station ( Padova autostazione ). It's the best way to arrive. It takes about 1 hour. For bus SITA timetable, please consult the web link: TREVISO Airport Canova, where all Ryanair and Transavia flights arrive. As soon as you are outside the airport there is the route to Padova with the bus stop. The bus ( Lamarca ) to Padova is every 20 or 30 minutes, from 5.25 a.m. to 8.15 p.m. See the website: VERONA Airport Valerio Catullo (Villafranca Veronese, 90 km). The AEROBUS leaves every 20 minutes from 6.35 a.m. to pm to "Verona Porta Nuova" railway station (you can buy the ticket on board). From here, you can take the train to Padova (direction Venezia or Trieste). By Train: Padova train station, with good international connections. Venue of the Workshop: Fondazione Lanza, via Dante, Padova Tel/Fax: info@fondazionelanza.it Web: (15 minutes walk from bus station or train station) If you need other information, do not hesitate to contact us.

4 CONFERENCE REGISTRATION FORM (to be returned by fax to the n ) First Name: Surname: Title: Organisation: Institution within organisation: Your position: Address: Days of participation: 24 th 25 th 26 th Please use this space to outline any special requirements you may have:

5 GENERAL INFORMATION AND ACCOMODATION The Conference is open to the public and interested scientific academics. No conference fee is asked. Registration form must be returned via or fax by the 18th of September 2009 at least to the address below. The Workshop will run from Thursday afternoon to Saturday morning. Participants are urged to find their own accommodation. We provide you a list of hotels that are within 20 minutes walking distance to the Workshop venues: Hotel Plaza Corso Milano, Padova - Italy Tel Fax plaza@plazapadova.it Hotel Europa Largo Europa, Padova - Italy Tel Fax Hotel Verdi Via Dondi Dall'Orologio, Padova (PD) Tel Fax Hotel Sant Antonio Via San Fermo, PADOVA Tel.: Fax.: info@hotelsantantonio.it