Din păcate, Myeloma Euronet Romania şi Presedinte Viorica Cursaru. România. Prima PacienŃii. familiile reuniune. Bucureşti. 11 Septembrie 2010



Similar documents
privat / Montag, den 01. Februar 2010 um 00:00 Uhr - Aktualisiert Montag, den 05. März 2012 um 10:18 Uhr

Tuition Reimbursement Program. Handbook

Romanian entrepreneurial environment, key aspect in investment decision. Mediul intreprenorial în România, aspect cheie în decizia de investiţii

Employment Counseling for the Workforce Development The Role of the Public Employment Services (PES)

CLASSIFICATION OF EUROPEAN UNION COUNTRIES FROM DATA MINING POINT OF VIEW, USING SAS ENTERPRISE GUIDE

Etica în administrația publică

UNSING GEOGRAPHIC INFORMATION SYSTEM VISUALISATION FOR THE SEISMIC RISK ASSESMENT OF THE ROMANIAN INFRASTRUCTURE

UNIVERSITATEA DE VEST DIN TIMISOARA

The Analysis of Currency Exchange Rate Evolution using a Data Mining Technique

Road Traffic Information and Monitoring System

Quality Assurance Review for Higher Education

COMPENSATION ISSUES IN CASE OF OCCUPATIONAL DISEASES AND ACCIDENTS

Ghid pentru salvarea mail-urilor folosind un client de mail

Background. Katie Rizvi, Amalia Axinte. Abstract. Rezumat


European Research Council

Applying TwoStep Cluster Analysis for Identifying Bank Customers Profile

B A S I C S C I E N C E S

MEDICO-SOCIAL ASPECTS BY FRAMING THE DISABILITY DEGREE OF THE PEOPLE WHO HAVE LOST THEIR CAPACITY TO WORK DUE TO NEOPLASIA IN ARAD


Risk Management Aspects Related to the Current International Financial Crisis

Quality Assurance Review for Higher Education

"In vivo" and "in vitro" insecticide efficacy of Nuvan 1000 EC (Novartis Animal Health Inc., Switzerland)

Put the human back in Human Resources.

OFERTĂ MANUALE DE LIMBA ENGLEZĂ PENTRU ANUL ŞCOLAR

European Research Council

Leadership. Common mistakes of managers

Limba Engleză. clasa a X-a - frecvenţă redusă - prof. Zigoli Dragoş


Expenses, Risks and Advantages Generated by the Introduction of the Euro Currency

THE PUBLIC DEBT OF COUNTRIES FROM EURO ZONE. THE SNOWBALL EFFECT

Teaching European Studies Online: the Challenge of Quality Assurance

8 th European Quality Conference. Draft Programme. 1 st & 2 nd October 2015 Esch-Belval, Luxembourg

Project manager s pocket guide. Ghidul de buzunar al managerului de proiect

OLIMPIADA DE LIMBA ENGLEZĂ ETAPA LOCALĂ Clasa a XI-a 9 februarie 2013

Early Booking Turcia- Antalya

Chat (Chat Room) Setarea modului de vizualizare a mesajelor în camera de chat

ASSURING QUALITY IN IT SERVICE MANAGEMENT

Decline in prolonged hormone replacement therapy in women aged 45 years or more, and impact of a centralised database tool

SELECTING THE APPROPRIATE PROJECT MANAGEMENT PROCESS FOR R&D PROJECTS IN MICROELECTRONICS

Electronic Health Record (DES) Development and Implementation in Romania

2013 Preliminary Financial Results Presentation. February 11 th, 2014

RESEARCH ON DECREASING THE COST PRICE FOR THE SYNCHRONOUS HYDROGENERATOR

Queuing Theory and Patient Satisfaction: An Overview of Terminology and Application in Ante- Natal Care Unit

Egalitatea de şanse și de tratament

The Flow of Funds Into and Out of Business

Department of Community Medicine, Iuliu Haţieganu University of Medicine and Pharmacy, Cluj- Napoca, Romania 2

INTERNATIONAL PAYMENT METHODS AND TECHNIQUES FROM THE ACCOUNTING PERSPECTIVE

Taxation of tobacco products in the European Union. Frank Van Driessche DG Taxation and Customs Union May 2006

ETCS Professional Coaching Program

Europe by Satellite Ghid de instalare. Europe by Satellite. Ghid de instalare

Beth Troutman, Ph.D., ABPP Marta M. Shinn, Ph.D. Kami Guzman, MS, LMHC, LMHP Kelli Slagle Radermacher, MS, LMHC, LMHP Rebecca Whitlock, LMHC NCC, IADC

Early Booking Turcia- Antalya

Music therapy - an effective tool for treating depression

The paradox of redistribution revisited, or why targeting may matter less than we thought

JCUT-3030/6090/1212/1218/1325/1530

WOMEN-ENTREPRENEURS: A DYNAMIC FORCE OF SMALL BUSINESS SECTOR (Femeile-antreprenor: o forţă dinamică în sectorul micilor întreprinderi)

Curricullum Vitae. Master s Degree. PhD in Management Sciences. PhD in Economics Sciences

Natural Gas Centralized Trading Trading Mechanisms Developed and Implemented by OPCOM and Compliance With the European Practice

Money and the Key Aspects of Financial Management

FINANCIAL PERFORMANCE MEASUREMENT THROUGH PROFIT AND LOSS ACCOUNT. CONVERGENCES AND DIVERGENCES.

CORRELATIVE STUDY OF PMA SCORING IN A GROUP OF ROMANIAN PATIENTS SUBMITTED TO TOTAL HIP REPLACEMENT

Organizational behaviour and cultural issues in nowadays environment

No of EU lawyers registered under their home-country professional title (Art. 2 of Directive 98/5/EC) and their origins

1.- L a m e j o r o p c ió n e s c l o na r e l d i s co ( s e e x p li c a r á d es p u é s ).

Comparison of annuity markets (OECD National Annuity Markets: Features and Implications, Rusconi 2008) Mercer

Project management software

Liste d'adresses URL

AMBASADA R. TURCIA Biroul Consilierului Comercial. Bd.Magheru no.24 et.4/27 Tel: BUCURESTI, ROMANIA Fax: dtbuk@rdsmail.

ERMInE Database. Presentation by Nils Flatabø SINTEF Energy Research. ERMInE Workshop 2 - Northern Europe Oslo, 1. November 2006

4th ANNUAL CONFERENCE. "Italian and European Universities within. triggers of change"

DESIGN OF AN EXPERT SYSTEM FOR EFFICIENT SELECTION OF DATA MINING METHOD

On Formatting Transcriptions of Romanian Speech

Effective and Efficient Tools in Human Resources Management Control

Association Rule Mining as a Data Mining Technique

Resources: Encore Tricolore 1 (set textbook), Linguascope, Boardworks, languagesonline, differentiated resources devised by MFL staff.

OVERVIEW OF RESEARCH PROJECTS IN THE ICT DOMAIN ICT statistical report for annual monitoring (StReAM)

DESIGNING A DRIP IRRIGATION SYSTEM USING HYDROCALC IRRIGATION PLANNING PROIECTAREA UNUI SISTEM DE IRIGAŢII PRIN PICURARE UTILIZÂND PROGRAMUL HYDROCALC

Admission Guidelines - Study in English, French or Romanian, in the 1 st year, academic year

Quality Assurance Review For Higher Education

Tumorile germinale testiculare seminomatoase: Ghidul ESMO de practică clinică pentru diagnosticare, tratament şi urmărire

First Booking Turcia - Antalya

LIFE EXPECTANCY IN ROMÂNIA

Ciascuncorsoincludeunacombinazionedigitescolastiche;duegiorni. interieduemezzegiornateselezionatetraleseguentidestinazioni:

Tumorile testiculare non-seminomatoase: Recomandările ESMO pentru diagnostic, tratament şi urmărire

The importance of educating and training human resources in times of economic crisis in Romania

First Booking Turcia - Antalya

DIFFICULTIES AND STRATEGIES IN THE PROCESS OF LEGAL TEXTS TRANSLATION

Quality Assurance Review For Higher Education

Day 17: Possessive and Demonstrative Adjectives

The Annual Inflation Rate Analysis Using Data Mining Techniques

EUROPEANS SATISFACTION WITH RAIL SERVICES

A Practical Implementation of a Data Mining Technique

THE EFFECTIVENESS OF MILGAMMA N THERAPY IN PATIENTS WITH PERIPHERAL DIABETIC NEUROPATHY

Chapter 3 - Adoption of new technologies and market orientation Organizations

INFLUENCE OF MOLD PROPERTIES ON THE QUALITY OF MOLDED PARTS

An integrated quality management tool based on GIS technology

Finnish foreign trade 2014 Figures and diagrams FINNISH CUSTOMS Statistics 1

ENTERING THE EU BORDERS & VISAS THE SCHENGEN AREA OF FREE MOVEMENT. EU Schengen States. Non-Schengen EU States. Non-EU Schengen States.

STW Open Technology Programme. H2020 Future & Emerging Technology. and. GRANTS WEEK 2015 October 9 th

Transcription:

PacienŃ famille Din păcate, eu nu vorbesc limba română Dar inima mea este aici Vă mulńumesc umesc pentru invitańie ie Myeloma Euronet Romania Presedinte Viorica Cursaru Board member of Myeloma Euronet 2005-1

Mă bucur să fiu aici Suntem o mare familie PacienŃ famille 2

Ansamblu geografic - Membrie total: 54 38 Pacientului organizańle le / 8 Persoane fizice 8 Sprijinirea companlor farmaceutice PacienŃ famille Romania 3

Prof. Drach Prof. Ludwig Austria Membrie total: 79 36 Pacientului organizańle le 8 Persoane fizice 8 Sprijinirea companlor farmaceutice 27 Consiliul Medical Consultativ PacienŃ famille Dr. Taverna, ElveŃia Prof. Palumbo, Italia Serbia Prof. Boskovic Prof. Bila Prof. Vladareanu România Dr. Bumbea România Dr. Popov România Prof. Coriu România Dr.Garderet Prof. Michallet Franta Prof. Einsele Germania Prof. Goldschmidt Germania Prof. Kröger Germania Prof. Sezer Germania Dr. Straka Germania Prof.Child Marea Britanie Prof. San-Miguel Spania Prof. Dmoszyńska Polonia Prof. Prof. Warzocha Prof. Hájek Jędrzejczak Prof. Jurczyszyn Prof. Skotnicki Polonia Republica Cehă Polonia Polonia Polonia Prof. Tothova Slovacia Dr. Ballova Slovacia 4

PacienŃ famille Această zi va apartine -pacient membr familiei acestea întreb, ce-ai cere vreodată! Nu exista intrebari stupide! Toate difuzoarele - medici si oaspet doar pentru tine întrebările dumneavoastră ca 5

Şoc de diagnostic România PacienŃ famille Fiecare diagnostic de cancer produce temeri pentru pacienńi rude frica de moarte frica de durere frica de a fi cu handicap frica de a pierde viańa socială frica de a pierde locul de muncă frica de a pierde autonomia Brian Fies. Mom's cancer 6

Lipsa de cunoştin tinńe / neînńelegere elegere România PacienŃ famille Produce incertitudine îngândurare Cartoon Aerzte-Zeitung 7

Aceste broşuri le-as fi adus cu mine azi,, dar ele nu au venit gata,, la timp. Îmi pare rău România PacienŃ famille 8

PacienŃ famille 9

PacienŃ famille 10

PacienŃ famille

PacienŃ famille Country Germany Romania Estimated all new cancer cases New cases New cases in 2009 in 2020 456,667 504,304 60,876 64,207 Cost of new cases % Total increase In 2009 ($) 10.4 20,252,234,954 5.5 184,280,094 12

Am I the only one?!? It feels good to be with friends You think you are the only one in the whole wide world who has lymphoma - and nobody can help you? In a group you will find information, understanding and learn to enjoy your life again

PacienŃ famille Suntem, lucram împreună pentru a ne asigura că tratamentul necesar în România va fi disponibil pentru tońi pacienń Doar împreună suntem puternici se pot schimba situań existente 14

Pledam pentru educarea unui tratament mai bun, ingrijire, sprijin

Pledam Myeloma Euronet pentru esteducarea membru unui tratament mai ECPC (Cancer Europene pacientului CoaliŃiei) bun, ingrijire, sprijin http://www.ecpc-online.org EURORDIS (organizańie Europene Boli Rare) http://www.eurordis.org/ Limfomul CoaliŃiei internańionale http://www.lymphomacoalition.org/ Myeloma Euronet este reprezentat ca un consiliu consultativ pacientului de către Preşedintele EBMT (Societatea Europeană de planteur măduvei osoase / comitetele de organizare a pacientului si familiei zile) http://www.congrex.ch/ebmt20/ ECCO (OrganizaŃia Europeană de Cancer) http://www.ecco-org.eu/ EHA (Hematologi Societatea Europeană / Quality of Life) http://www.ehaweb.org/ ESMO (SocietăŃ Europene de Oncologie Medicală) http://www.esmo.org/home.html EMA (Myeloma Euronet este de lucru cu AgenŃia Europeană pentru Medicamente) http://www.ema.europa.eu/ registru este registrată de reprezentanń grupurilor Interesele Comisiei Europene.

PacienŃ famille 17