Development of a Knowledge Translation Tool: The Rehabilitation Measures Database

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Development of a Knowledge Translation Tool: The Rehabilitation Measures Database Jennifer Moore PT, DHS, NCS Jason Raad, PhD October 31, 2013 800-266-1832 www.ktddr.org Copyright 2013 by SEDL. All rights reserved. Funded by NIDRR, US Department of Education, PR# H133A120012. No part of this presentation may be reproduced or transmitted in any form or by any means, electronic or mechanical, including photocopy, recording, or any information storage and retrieval system, without permission in writing from SEDL (4700 Mueller Blvd., Austin, TX 78723), or by submitting an online copyright request form at www.sedl.org/about/copyright_request.html. Users may need to secure additional permissions from copyright holders whose work SEDL included after obtaining permission as noted to reproduce or adapt for this presentation.

Overview of Presentation Description Development Utilization Sustainability 2

Objectives 1) Enhance translation of research to clinical practice: Increase the availability of free measurement resources Free, web-based, searchable, and specifically designed for rehabilitation providers Concise summaries with psychometrics, clinical utility, link to instruments 2) Provide education on measurement of outcomes in individuals undergoing rehabilitation : Free online webinars Entry-level student & practicing clinician curriculum on measurement Low cost CEU course in 2014 Information provided on the education page at www.rehabmeasures.org 3

Description Over 200 instrument summaries indexed: Two peer reviewers Updated every three years Summaries include: Reliability and validity data Normative values Indices of change Sensitivity, ceiling and floor effects Clinical utility Link to the data collection form and administration instructions when available 4

Overview of Presentation Description Development Utilization Sustainability 5

RMD Development Timeline Task Months RMD Development: Conduct focus groups 1 2 Analyze focus group data 3 4 Website design 5 13 Development of initial instrument summaries 6 13 Beta-Test website 13 17 Revise website 18 22 Launch website 22 25 RMD Sustainability Monitor utilization Secure financial resources Develop collaborations 22 45 (ongoing) 22 45 (ongoing) 25 45 (ongoing) 6

7 7

Database Content Stroke Spinal cord injury Brain injury Geriatric Rehabilitation (RRF Grant) Multiple Sclerosis (APTA collaboration) Parkinson's Disease (APTA collaboration) Vestibular Impairment (APTA collaboration) Spinal Stenosis AND MANY MORE!!! 8

Overview of Presentation Description Development Utilization Sustainability 9

Google Analytics: Total Visits to Date 1,926,577 page views, 890,639 visits 57.3% of all visits were by first time users 510,078 unique visitors 85% from the U.S. Visitors from 182 countries and territories have accessed the RMD 3160 visitors (Oct 1 st 2013) 10

More info from Google Hits per summary/page Bounce rates (users who leave after accessing a page of interest) Time spent on each webpage Referral source Operating systems (mobile, PC, Mac, etc.) Region / Location User s primary language Usage patterns and behaviors Archival and real-time data analyses 11

Total Visits by Country and Region 12

New Visits indicate International Growth 13

Professional Outreach: Education Free webinar and low cost CEU 2012: Fundamentals of Measurement 2013: Demystifying Rash Analyses 2013: Summer Institute on Measurement Archives of Physical Medicine and Rehabilitation To date, 24 authors have contributed to the creation of tear sheets. 14

Overview of Presentation Description Development Utilization Sustainability 15

Sustainability: Collaborations Professional Associations American Physical Therapy Association Neurology Section / PT NOW American Occupational Therapy Association Archives of Physical Medicine and Rehabilitation Academic Collaborators: University of Illinois at Chicago University of Indianapolis Duke University University of North Carolina DePaul University Illinois Institute of Technology University of Station Island 16

Sustainability: Funding Seeking funding for maintenance and enhanced platform Community of Experts to contribute to and review database User profiles Mobile applications Dynamic generation of search results 17

Lessons learned Successes: Utilization of focus group to guide development Establishment of key collaborations Continuous measurement and monitoring Areas for improvement: Technological expertise Global / International perspective Development of a marketing plan at launch 18

Acknowledgments Rehabilitation Research and Training Center on Improving Measurement of Medical Rehabilitation Outcomes (H133B090024) Rehabmeasures.org team Allen Heinemann, PhD, Principle Investigator Linda S. Ehrlich-Jones, PhD, RN, CS, Training Director Jennifer Moore, PT, DHS, NCS, Project Director Jason Raad, PhD, Project Manager Jill Smiley, MPH, Research Assistant II 19