DEAN CLINIC HEMATOLOGY AND ONCOLOGY PATIENT RESOURCES. Table of Contents

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1 DEAN CLINIC HEMATOLOGY AND ONCOLOGY PATIENT RESOURCES Table of Contents Support Groups and Services... 1 Meal Services... 5 Transportation Services... 6 Financial Services... 6 Prosthetic Resources... 7 Fertility Preservation... 7 Medication Disposal... 8 Hospice Organizations... 8 County Aging and Disability Resource Centers... 9 Websites SUPPORT GROUPS AND SERVICES American Cancer Society Resources and information Contact: Website: ABCD-After Breast Cancer Diagnosis A mentor service that matches patients with volunteers who have been affected by breast cancer and provide one on one support Contact: Website: Cancer Care Online and telephone support groups Contact: Website: 1

2 Cancer.Net Resource for up to date cancer information, approved by American Society of Clinical Oncology (ASCO) Website: National Cancer Information Information or brochures Contact: 800-4CANCER Website: Gilda s Club Free of charge and non-profit, offers networking groups, seminars, workshops and social events in a nonresidential and home-like setting. Provides meeting places where men, women and children living with cancer, along with their families and friends can join with others for social and emotional support. Contact: Website: info@gildasclubmadison.org First Call for Help Comprehensive referral resource for human services and government programs Contact: Look Good...Feel Better - American Cancer Society A free program; volunteer cosmetologists help patients enhance their appearance by teaching how to cope with skin changes and hair loss and demonstrate the use of makeup, wigs and other accessories to restore self-image, confidence and sense of control. Contact: Website: United Way of Dane County Free confidential service offering information on non-profit health and human services. Contact: Dane County Mental Health Center Contact: Emergency Crisis Line: (available 24 hours) Breast Cancer Recovery Foundation A four day wellness retreat for women with breast cancer, combining a mixture of healing through activities designed to restore confidence in one s body, creative arts to encourage self-expression and sensitive discussions. Contact: or Website: 2

3 A View Beyond Support group for women with gynecologic cancers. Contact: Libby Cares Instant Sisters Support group for women with advanced or metastatic breast cancer. Meetings are the 1 st Tuesday of each month from 11:30am-1:30pm - American Cancer Society Contact: Lauren Cunningham, PhD, Facilitator Madison Lymphoma & Leukemia Family Support Group Monthly support group providing education and support for patients and their families Contact: Barbara Nehls-Lowe The Cancer Journey Oncology Nurse Society (ONS) sponsored website for people with cancer and their care providers. Extensive supportive and side effect information Bosom Buddies Support group for breast cancer patients and survivors to share their experiences and information, for locations and contact information - see website Reach to Recovery - American Cancer Society One to one contact with a survivor for breast cancer patients for help in making informed decisions Contact: American Cancer Society Hope Chest Women sharing their breast cancer journey with hope. Meetings are the 3 rd Monday of every month Stoughton Hospital (Board Room) 4:00-6:00 pm Contact: Judy or Jeanie Wisconsin Multiple Myeloma Support Group Multiple myeloma patient and caregiver support, comfort, friendship and information exchange. Meetings are the 3 rd Tuesday of every month from 3:30-5:30 pm at 635 Science Drive, Madison WI Contact: Jayne Schwartz Y-ME Men s Hotline Support for men who have a significant other that has gone through breast cancer treatment, available Monday -Friday, 9:00-5:00 pm EST Contact: Oral and Head and Neck Cancer Support Support via internet or mail, for more information call or visit website Contact: Website: 3

4 LiveStrong Foundation Provides free cancer support services to help patients cope with financial, emotional or practical problems. LIVESTRONG at the YMCA is a twelve-week, small group program designed for adult cancer survivors. To find a YMCA that offers the LIVESTRONG at the YMCA location near you, view the LIVESTRONG at the YMCA Map. Website: Laryngectomy Group Free group meetings to provide support and education Contact: Don Helt or Jim Van Epps Man to Man Prostate cancer support group - meets monthly. Diagnosis, treatment options and coping for men with prostate cancer Contact: Randy Sproule Wisconsin Smoking Cessation Assistance (Quit Line) STOP (7867) Colorectal Cancer Coalition Free answer line to help patients and caregivers learn more about colorectal cancer research, screening, diagnoses, treatment options and supportive care information Contact: Website: The Center for Patient Partnerships Support for patients and families with life threatening or serious chronic illnesses. Patient advocates work with patients to help them make informed medical decisions, access care and find support. Contact: Website: Madison Area Brain Tumor Support Group Brain tumor survivors and their family or support person share their experiences to provide support and education. Meetings are held at UW Hospital Contact: Dean Clinic Neurological Brain Tumor Support Group Free monthly support group for patients, family and friends. Meetings are monthly, on the second Thursday from 6:30-7:30 pm in the St. Mary s Hospital Conference Center Bay 4 Contact: to RSVP Young Women s Cancer Support Group Support group for young women dealing with the emotional and physical challenges that are faced with a cancer diagnosis at a young age. Contact: mick@spwl.net 4

5 University of Wisconsin Lung Cancer Support Group Twice monthly support group for people with lung cancer, their families and friends. Meeting the second and fourth Wednesdays of the month: 10:00 am-12:00 noon at UW Hospital K4/618. Contact: The Pregnant with Cancer Network A national organization created to offer hope and support to women who are diagnosed with cancer while pregnant. The group can match a new patient with a woman once given a similar diagnosis to lend support, share her experience, and offer hope. Website: Pancreatic Cancer Action Network PALS pals@pancan.org TEAM Survivor Local TEAM Survivor organizations provide exercise and health education programs to women affected by cancer Website: info@teamsurvivor.org Senior Resources Comprehensive online information for services available to older adults in the State of Wisconsin Contact: Website: Meal Services: Mobile Meals Meals on Wheels Meals on Wheels (Evening) Grocery Delivery Capitol Center Food Knoche Food Center Metcalfe s On the Go Kalscheur s Fine Food Burbach s Market Free Meal Sites Rescue Mission Salvation Army Will-Mar Neighborhood Center

6 Transportation Services Church and Community groups may also provide these services VanGOTaxi Wheelchair accessible vehicles serving areas of Dane, Sauk, Columbia and Jefferson County Contact: Road to Recovery American Cancer Society program-volunteers provide transportation to appointments Contact: RSVP Volunteers provide transportation to medical appointments for patients over 60 Contact: Metro-Plus Madison Metro provides transportation to those unable to utilize public transportation. Written application required Contact: Private Transportation Services The following companies provide door-to-door non-emergency medical transportation Wheelchair transportation is available Meister s Transport Care Van Service LAIDlaw Transit Services Transit Solutions We Care Transportation Financial Services: Community Care Program Dean Clinic program providing assistance for those unable to pay for physician-related health care services Contact: Dane County Human Services Provides medical assistance, food stamps, aid to families with dependent children, and home care funding Contact: East Madison, Monona, Middleton Stoughton Sun Prairie, DeForest, Windsor, Cottage Grove, Marshall & Bristol

7 Badger Care Plus-Core Plan Health care for adults with no dependent children Contact: Social Security Administration Information on financial assistance and Medicare Contact: or Veterans Service Officer Information available to assist veterans Contact: Golden Care Free personal and confidential assistance concerning health insurance and Medicare Contact: Prosthetics Resources Specialty Catalog: Jodee; post mastectomy fashions Contact: to obtain a free catalog Home Health United Post mastectomy prosthesis Contact: or for an appointment Professional Garment Center 2710 Marshall Court, Madison Hours: Monday through Friday, 9-4 pm, evenings and Saturdays by appointment. Contact: for an appointment Fertility Preservation Wisconsin Fertility Institute Contact: Website: Live: On Sperm banking by mail for cancer patients. Website: Website: 7

8 Medication Disposal Med Drop Safe disposal of unwanted and unused prescription and nonprescription medication, many locations throughout Wisconsin Contact: Hospice Organizations Agrace Hospice Care Inc. Madison: Janesville: Provides home and inpatient care Dane, Rock, and parts of Green and Walworth counties Beloit Regional Hospice or Rock, Green and Walworth counties in WI, Winnebago and Boone counties in IL Heartland Hospice Madison, Milwaukee, Fond du Lac and Green Bay Hillside Homecare & Hospice (Beaver Dam Hospital) Beaver Dam, Columbus, Watertown, Waupun, Rio, Markesan and Reeseville Home Health United Office locations: Baraboo, Janesville, Madison, Platteville, Portage, Prairie du Sac, Reedsburg Mercy Hospice (Mercy Health System) or Rock, Walworth, Green, Southern Dane and Jefferson counties Rainbow Hospice Providing home and inpatient services Eastern Dane, northeast Rock, southeast Columbus, southern Dodge, western Waukesha counties Southern Care Dane, Dodge, Iowa, Columbia, Jefferson, Sauk and Rock counties 8

9 South West Health Center Grant, Iowa, Lafayette and Richland counties St. Jude Hospice Dane, Dodge, Fond du Lac, Grant, Green, Iowa and Lafayette counties St Clare Hospice House Inpatient CBRF in Baraboo serves hospice patients thru Home Health United Upland Hills Home Care and Hospice Grant, Iowa, Lafayette, Richland, Sauk County Aging and Disability Resource Centers Many counties have centers that provide advocacy, information and access to services for: adaptive equipment assisted living nursing homes financial aid housing options nutrition programs respite care transportation Staff can also provide assistance with applications for: Social Security Medicaid SSI Telephone numbers and websites for county resource centers: Adams, Green Lake, Marquette and Waushara Counties County Columbia County s/columbiacounty/adrc& Crawford County Dane County Dodge County

10 Fond Du Lac County Grant County Green County Iowa County Jefferson County Juneau Counties Lafayette County Richland County Rock County Guide.pdf Sauk County Walworth County WEBSITES Dean Clinic and Dean Health Plan Dean Pharmacy St. Mary s Hospital American Cancer Society Chemotherapy Info Cancer Information Service of the National Cancer Institute People Living with Cancer National Cancer Institute 10

11 The Brain Tumor Society National Coalition for Cancer Survivorship CDC: Center for Disease Control Susan G. Komen Breast Cancer Foundation Pancreatic Cancer Network Breast Cancer Medline Plus Esophageal Cancer Association Lance Armstrong Foundation American Lung Association Leukemia and Lymphoma Society Lung Cancer Support Breast Cancer Recovery Foundation Melanoma Research Foundation Colorectal Cancer Information Colon Cancer Alliance Prostate Cancer Foundation 11

12 Stomach Cancer (ACS) Oncolink (University of Pennsylvania Cancer Center Resource) Head & Neck Cancer Food, Nutrition & Exercise (US Dept of Agriculture) Clinical Trials Women with increased risk of cancer due to family history/genetic status Emmi 12