Massachusetts Disability Resources

Transcription

1 Massachusetts Disability Resources Affordable Care Act (ACA) HHS.gov: How the Health Care Law is Making a Difference for the People of Massachusetts To get coverage under the ACA, go to to find out more about the Health Insurance Marketplace and the options available in your state. ARTS and CREATIVITY VSA arts of Massachusetts 89 South Street, Suite 101 Boston, MA Phone: TTY: Fax: cjwashburn@vsamass.org ASSISTIVE TECHNOLOGY MassMATCH Massachusetts Rehabilitation Commission 600 Washington St. Boston, MA Phone: Toll free: info@massmatch.org Massachusetts Initiative to Maximize Assistive Technology in Consumer s Hands 1

2 New England ADA Center Adaptive Environments Center, Inc Portland St., Suite 1 Boston, MA Phone: Toll Free: Fax: adainfo@newenglandada.org Massachusetts Assistive Technology Loan Program Easter Seals Massachusetts 484 Main Street Worchester, MA Phone: jluciano@eastersealsma.org CAREGIVERS INFORMATION Caregiver Support Groups for Massachusetts by County Tel: (954) Fax: (954) info@caregiver.com Well Spouse Association Greater Boston WSA Support Boston Martha Scott Phone: (617) mascott33@rcn.com Northampton WS Support Northampton Mary Beth Averill Phone(413) Mbaverill@sol.com Cape Cod WS Group Sandwich Harry Charlton 2

3 (508) COMMUNITY-BASED FITNESS PROGRAMS Journey Forward 755 Dedham Street Canton, MA Phone: , (Toll-free) Journey Forward is an exercise based program designed to assist those with spinal cord injuries so they too can achieve some of these most basic lifelong functions and benefits. CRIME VICTIM ASSISTANCE Massachusetts Crime Victim Compensation Phone: Fax: Massachusetts Crime Victim Assistance 1 Ashburton Place, Suite 1101 Boston, MA Phone: Fax: Office for Victims of Crime s Directory of Crime Victim Services Choose Your State and the Type of Assistance you are looking for Safe Horizon s Links for General Crime Victim Resources/Issues DOMESTIC VIOLENCE HELP National Domestic Violence Hotline: SAFE (7233) National Resource Center on Domestic Violence: Statewide Hotline: Statewide Spanish Hotline:

4 Jane Doe, Inc. The Massachusetts Coalition Against Sexual Assault and Domestic Violence 14 Beacon Street Suite 507 Boston, MA Phone: TTY: Fax: Aardvarc s Massachusetts Domestic Violence contact information by City/County EASTER SEALS OFFICES Easter Seals Massachusetts Technology and Training Center 89 South Street Boston, MA Phone: Easter Seals State Headquarters 484 Main Street Worcester, MA Phone: GOVERNMENT OFFICES Massachusetts State Website Massachusetts Office on Disability 1 Ashburton Place Room 1305 Boston, MA Phone: Fax:

5 Massachusetts.php?st=MA&prodid=240 Massachusetts Medicare Part D Massachusetts Office of Health and Human Services One Ashburton Place 11 th Floor Boston, MA Phone: The Massachusetts Rehabilitation Commission Administrative Offices Fort Point Place 27 Wormwood Street Boston, MA Phone: Fax: Massachusetts Medicaid Office One Ashburton Place, 11th Floor Boston, MA Phone: Massachusetts SCHIP Office (State Children s Health Insurance Program) MassHealth (Medicaid and CHIP) Phone: TTY: Massachusetts SHIP Program (State Health Insurance Program for Seniors) 800AgeInfo Executive Office of Elder Affairs 1 Ashburton Place 5 th Floor (the McCormack Building) Boston, MA Phone: AGE-INFO ( ) Home and Community Based Services Waiver (HCBS) 5

6 Community First Grant Massachusetts Insurance Commissioner 1000 Washington Street, Suite 810 Boston MA Phone: (617) Fax: (617) Consumer Line: (617) Massachusetts Worker s Compensation Boston Office Department of Industrial Accidents 600 Washington Street 7 th Floor Boston, MA Phone: Fax: Fall River Office Department of Industrial Accidents 30 Third Street Fall River, MA Phone: Fax: Lawrence Office Department of Industrial Accidents 160 Winthrop Avenue Lawrence, MA Phone: Fax: Springfield Office Department of Industrial Accidents 436 Dwight Street Room 105 Springfield, MA Phone: Fax:

7 Worcester Office Department of Industrial Accidents 340 Main Street Worcester, MA Phone: TTY: Massachusetts Governor s Committee on Employment of People with Disabilities Department of Employment and Training Policy Office 19 Stanford Street 3 rd Floor Boston, MA Phone: Fax: d_official/siteapps/advocacy/search.aspx Find your elected officials to contact them on legislation that is important to you. State LTC Ombudsman Mary McKenna Massachusetts Exec Office of Elder Affairs 1 Ashburton Place 5th Floor Boston, Massachusetts 2108 Phone: (617) Fax: (617) The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities. HOUSING Massachusetts Independent Living Centers Fannie Mae offices: Northeastern Regional Office 1900 Market Street 7

8 Suite 800 Philadelphia, PA Phone: Massachusetts Partnership Office 265 Franklin Street 10 th Floor Boston, MA Phone: Massachusetts Housing and Urban Development (HUD) Office New England Regional Office Thomas P. O Neill, Jr. Federal Building 10 Causeway Street 3 rd Floor Boston, MA Phone: TTY: Fax: Home Modifications for Persons with Disabilities Loan Program A Collaboration of the Massachusetts Rehabilitation Commission (MRC) and Community Economic Development Assistance Corporation (CEDAC) Mass Access: The Accessible Housing Registry a free program that helps people with disabilities find rental housing in Massachusetts, primarily accessible and barrier-free housing. LIBRARY SERVICES Massachusetts Braille and Talking Book Libraries 98 North Washington St., Suite 401 Boston, Massachusetts Tel: (in state) Fax: NeuroRecovery Network (NRN) 8

9 The NRN is a network of rehab programs designed to provide locomotor (treadmill) training to promote functional recovery and improve the health and quality of life for people living with paralysis. The program is for people with spinal cord injuries. The NRN is a program of the Reeve Foundation. There is no NRN center in this state but if you are interested in finding one outside of this state, please go to PROTECTION and ADVOCACY Massachusetts Protection and Advocacy Disability Law Center, Inc. 11 Beacon Street Suite 925 Boston, MA Phone: TTY: Fax: cgriffin@dlc-ma.org Massachusetts Client Assistance Program (CAP) Massachusetts Office on Disability 1 Ashburn Place Room 1305 Boston, MA Phone: Fax: Barbara.Lybarger@modi.state.ma.us Greater Boston Legal Services 197 Friend Street Boston, MA Phone: TDD: Fax:

10 Disabled Persons Protection Commission 300 Granite Street, Suite 404 Braintree, MA Phone: V/TTY Fax: SERVICE DOGS Tutor Service Dogs & Coast to Coast SAR, Inc Pelham Road Suite 400, #141 Greenville, SC Tel: Training Privately-Owned Dogs: National Hearing Dog Center, Inc South Main Street Athol, MA Phone: National Education for Assistance Dog Services (NEADS) PO Box 213 West Boylston, MA Phone/TTY: Fax: SPORTS and RECREATION AccesSportAmerica 119 High Street Acton, MA Tel: Toll Free: SPORT (77678) Kartwheels in Motion, Inc. 526 North Avenue Weston, MA

11 Phone: Cape Cod Disability Access Directory Kids in Disability Sports P.O. Box 1397 Lowell, MA Tel: Dial: 1 for General Info 2 for Registration Info 3 for Sports Info 4 for Volunteer Info info@kidsinc.us STRIDE (Sports and Therapeutic Recreation Instruction/Developmental Education) 476 North Greenbush Rd, Suite 9 Rensselaer, NY Phone: Fax: info@stride.org Some of their winter programs are in Massachusetts Mass Parks Department of Conservation and Recreation 251 Causeway Street Suite 900 Boston, MA Phone: Fax: mass.parks@state.ma.us Universal Access Program Department of Conservation and Recreation 251 Causeway Street, Suite 900 Boston, MA DCR Main Phone: DCR Main Fax: mass.parks@state.ma.us 11

12 UNITED WAY OFFICES National United Way Enter postal code for a United Way office in your area United Way National Headquarters 701 North Fairfax Street Alexandria, VA Phone: VETERAN BENEFITS US Department of Veterans Affairs VA Hospital Locator VA Boston Healthcare System - West Roxbury Division 1400 VFW Parkway West Roxbury, MA Phone: New England PVA Chapter 1600 Providence Highway Suite 143 Walpole, MA Phone: Fax: info@nepva.org The ALS Association s Massachusetts Chapter 315 Norwood Park South, 1st Floor Norwood, MA Phone:

13 888-CURE-ALS Fax: Massachusetts ALS Chapter - Wakefield Office 7 Lincoln Street Wakefield, MA Phone: customerservice@als-ma.org Compassionate Care PO Box 1052 West Falmouth, MA Phone: Muscular Dystrophy Association s ALS Research Centers: MDA/ALS Center at Massachusetts General Hospital Boston (617) rbrown@partners.org MDA/ALS Center at the University Of Massachusetts Medical Center Worcester (508) ChadD@ummhc.org BRAIN INJURY Brain Injury Association of Massachusetts 30 Lyman Street Suite 10 Westborough, MA Phone: Fax: Mbia@mbia.net Spaulding/Partners TBI Model System at Harvard Medical School Spaulding Rehabilitation Hospital 125 Nashua Street, 2nd Floor 13

14 Boston, MA Phone: Gen Info: CEREBRAL PALSY UCP of Berkshire County 208 West Street Pittsfield, MA Phone: Fax: UCP of MetroBoston 71 Arsenal Street Watertown, MA Phone: Fax: FRIEDREICH S ATAXIA National Ataxia Foundation 2600 Fernbrook Lane Suite 119 Minneapolis, MN Phone: Fax: New England Support Group Donna and Richard Gorzela 45 Juliette St. Andover, MA (978) Massachusetts Support Groups Contact: Michael Martignetti 14

15 Phone: Contact: Ben Canton Phone: GUILLAIN-BARRÉ SYNDROME / CIDP Guillain-Barré Syndrome / CIDP Foundation International The Holly Building 104 1/2 Forrest Avenue Narberth, PA Phone: Call for information in your area MULTIPLE SCLEROSIS National Multiple Sclerosis Society Central New England Chapter 101A First Avenue Suite 6 Waltham, MA Phone: FIGHT-MS communications@mam.nmss.org Multiple Sclerosis Association of America Northeast Regional Office 706 Haddonfield Road Cherry Hill, NJ Phone: ext Fax: northeast@msaa.com MUSCULAR DYSTROPHY Muscular Dystrophy Association National Headquarters 15

16 3300 East Sunrise Drive Tucson, AZ Phone: Enter your postal code in the Find your local MDA section of the website for MD clinics in your area. POST-POLIO SYNDROME Post-Polio Health International (PHI) 4207 Lindell Blvd. #110 St. Louis, MO Phone: Directory lists Health Professionals, Clinics, and Support Groups. International Rehabilitation Center for Polio (IRCP) at Spaulding Spaulding-Framingham Outpatient Center Phone: SPINA BIFIDA Massachusetts Spina Bifida Association 733 Turnpike Street #282 North Andover, MA Phone: Fax: Massachusetts Spina Bifida Clinics: Children s Hospital Myelodysplasia Clinic 300 Longwood Avenue Fegan 3 Boston, MA Phone:

17 Massachusetts General Hospital Myelo Clinic Gray 502 Fruit Street Boston, MA Phone: New England Medical Center Myelodysplasia Clinic 750 Washington Street #340 Boston, MA Phone: Massachusetts Hospital School (DPH) 3 Randolph Street Canton, MA Phone: Shriner s Hospital for Children Myelodysplasia Clinic 516 Carew Street Springfield, MA Phone: SPINAL CORD INJURY Greater Boston Chapter of NSCIA Two Rehabilitation Way Woburn, MA Phone: Fax: sciboston@aol.com New England Regional Spinal Cord Injury Center Boston Medical Center One Boston Medical Center Place Boston, MA Phone: TTY:

18 Boston University Medical Center 88 East Newton Street F-511 Boston, MA Phone: CareCure State Forum Must become an online member to access information Scroll down to New England States STROKE CDC s Massachusetts Cardiovascular Health American Stroke Association National Center 7272 Greenville Avenue Dallas, TX Phone: Call them for the stroke support group in your area Massachusetts American Heart Association offices SYRINGOMYELIA/CHIARI MALFORMATION American Syringomyelia & Chiari Alliance Project PO Box 1586 Longview, TX Phone: ASAP-282 Fax: info@asap.org 18

19 TRANSVERSE MYELITIS Transverse Myelitis Association Massachusetts Support groups Contact: Leslie Cerio TM MeetUp Enter your postal code for a MeetUp in your area. Meetings are usually held in local restaurants. GENERAL DISABILITY RESOURCES Disability Resources.org: Massachusetts Family Village Resources for Massachusetts Massachusetts NICHCY: National Dissemination Center for Children with Disabilities Massachusetts Yellow Pages for Kids with Disabilities JustCan.com Massachusetts Disability Services Massachusetts chapter of the American Occupational Therapy Association 57 Madison Road Waltham, MA Phone: Fax: maot@maot.org Massachusetts Chapter of the American Physical Therapy Association 19

20 15 North River Rd Tolland, CT Telephone: Fax: Massachusetts Association for Persons in Supported Employment Boston: Central MA: Northeast MA: x227 Southeast MA: West MA: Healthboards.com message boards on health related topics. Topics include SCI, CP, Stroke, and more. ee1 American Association on Health and Disability s Health and Disability News, Fall 2004 article Massachusetts Mammography Access Project. Partners for Youth with Disabilities 95 Berkeley Street Suite 109 Boston, MA Phone: Fax: Mass Long Term Care a consumer-focused website developed for the people who will use or need information about the continuum of senior and long term care services and facilities available across Massachusetts. Massachusetts Catastrophic Illness in Children Relief Fund Book: 20

21 Jackins, Barbara D. Legal Planning for Special Needs in Massachusetts. Brookline, Mass.: DisabilitiesBooks, Inc., ThinkFirst National Injury Prevention Foundation 1801 N. Mill Street, Suite F Naperville, IL Phone: THINK56 thinkfirst@thinkfirst.org ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter information in your area, please go to their website and click on the Chapter Site tab. The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message. 21