Maryland Disability Resources

Transcription

1 Maryland Disability Resources Affordable Care Act (ACA) HHS.gov: How the Health Care Law is Making a Difference for the People of Maryland To get coverage under the ACA, go to to find out more about the Health Insurance Marketplace and the options available in your state. ASSISTIVE TECHNOLOGY Maryland Technology Assistance Program (MTAP) 217 E. Redwood Street, Suite 1300 Baltimore, Maryland Voice Toll Free TTY Voice info@mdtap.org Mid-Atlantic ADA Center TransCen, Inc. 401 North Washington St., Suite 450 Rockville, MD Phone/TTY: Toll Free: Volunteers for Medical Engineering (VME) 2301 Argonne Dr. Baltimore, MD Phone:

2 AT:LAST, Inc Oakland Mills Rd. Suite 160 Columbia, MD Phone: CAREGIVERS INFORMATION Maryland Caregiver Support Groups Tel: (954) Well Spouse Association Baltimore/Columbia/Eldersburg WS Group Ellicott City Kathy Feddor Phone: (410) WS Western MD Support Hagerstown Karen Taylor Clark Mayer Phone: (717) Frederick WS Support Frederick Rebecca Full Phone: (301) COMMUNITY-BASED FITNESS PROGRAMS Kennedy-Krieger Institute: Home and Community Rehabilitation 707 North Broadway 2

3 Baltimore, MD Phone: The Community Rehabilitation Program is an alternative option for rehabilitation that occurs right in a patient's home or other important community settings. The program offers a wide spectrum of services ranging from intensive, daily therapy for patients with acute needs to the use of one or two professionals to help those with less severe needs return to community activities. Victim Compensation Phone: CRIME VICTIM ASSISTANCE Victim Assistance 311 West Saratoga Stree Baltimore, MD Phone: Maryland Crime Victim Compensation and Assistance Office for Victims of Crime s Directory of Crime Victim Services Choose Your State and the Type of Assistance you are looking for Safe Horizon s Links for General Crime Victim Resources/Issues DOMESTIC VIOLENCE National Domestic Violence Hotline: SAFE (7233) National Resource Center on Domestic Violence: Statewide Hotline: 800-MD-HELPS ( ) Aardvarc s Maryland Domestic Violence contact information by City/County Maryland Network Against Domestic Violence 4601 Presiendts Dr. Suite 370 Lanham, MD

4 Phone: HelpLine: 800-MD-HELPS EASTER SEALS OFFICES Maryland Easter Seals Office BALTIMORE Easter Seals Greater Washington-Baltimore Region, Inc. Serving DC, MD, Northern VA & Eastern WV 7301 Dogwood Road Baltimore, MD Phone: COLLEGE PARK Easter Seals Greater Washington-Baltimore Region, Inc. Serving DC, MD, Northern VA & Eastern WV 8601 Adelphi Road College Park, MD Phone: HAGERSTOWN Easter Seals Greater Washington-Baltimore Region, Inc. Serving DC, MD, Northern VA & Eastern WV 101 East Baltimore St. Hagerstown, MD Phone: SILVER SPRING (MAIN OFFICE) 1420 Spring St. Silver Spring, MD Phone: Maryland State Website GOVERNMENT OFFICES Maryland Governor s Office for Individuals with Disabilities One Market Center 300 West Lexington St., Box 10 Baltimore, MD Phone:

5 Maryland Vocational Rehabilitation Office 2301 Argonne Drive Baltimore, MD Phone: Maryland Medicare Buy-In Program Phone: Maryland.php?st=MD&prodid=240 Maryland Medicare Part D Maryland Medicaid Office P.O. Box Baltimore, MD Phone: dhrhelp@dhr.state.md.us Maryland SCHIP Program (State Children s Health Insurance Program) Phone: Maryland Health Insurance Plan (MHIP) Mill Run Circle Mail Stop RR-380 Owings Mills, MD Phone: Toll-free: Maryland High Risk Insurance Plan for eligible people who are unable to get insurance coverage. Home and Community Based Services Waiver (HCBS) Maryland Insurance Commissioner 200 St. Paul Place, Suite 2700 Baltimore, MD Phone:

6 Toll-Free: TTY: Maryland Workers Compensation Commission 10 East Baltimore Street Baltimore, MD Phone: Maryland Governor s Committee on Employment of People with Disabilities 1 Market Center Box West Lexington Street, 2nd Floor Baltimore, MD Phone: d_official/siteapps/advocacy/search.aspx Find your elected officials to contact them on legislation that is important to you. State Long-Term Care (LTC) Ombudsman Patricia Bayliss Chief, Elder Affairs Unit Maryland Department of Aging 301 W. Preston Street, Room 1007 Baltimore, MD Phone: The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities. HOUSING Maryland Independent Living Centers David Sharp, SILC Chair Old Comlumbia Pike, Suite 101 Silver Spring, MD Tel: TTY: dcsharp1@comcast.net 6

7 Fannie Mae Baltimore Partnership Office 120 East Baltimore Street, Suite 1710 Baltimore, MD Phone: Maryland Housing and Urban Development (HUD) Office City Crescent Building 10 S. Howard Street, Fifth Floor Baltimore, MD Phone: ext Maryland HealthCare Commission: Nursing Home Guide LIBRARY SERVICES Maryland State Library for the Blind and Physically Handicapped 415 Park Avenue Baltimore, MD Phone: NeuroRecovery Network (NRN) The NRN is a network of rehab programs designed to provide locomotor (treadmill) training to promote functional recovery and improve the health and quality of life for people living with paralysis. The program is for people with spinal cord injuries. The NRN is a program of the Reeve Foundation. There is no NRN center in this state but if you are interested in finding one outside of this state, please go to 7

8 Maryland Protection and Advocacy Maryland Disability Law Center 1500 Union Avenue; Suite 2000 Baltimore, MD Phone: Toll-free: PROTECTION and ADVOCACY Client Assistance Program (CAP) Maryland State Department of Education Maryland Rehabilitation Center Division of Rehabilitation Services 2301 Argonne Drive Baltimore, MD Phone: Fido for Freedom, Inc. PO Box Sandy Spring Rd. Laurel, MD Phone: (TDD) Area served: 75 mile radius from Laurel Dog Ears and Paws Inc Enterprise St. Sykesville, MD Phone: Area served: all of MD SERVICE DOGS SPORTS and RECREATION Adaptive Martial Arts Association: Maryland Chapter 8

9 Disabled Sports USA National Headquarters 451 Hungerford Drive Suite 100 Rockville, MD Phone: Baltimore Adapted Recreation and Sports (BARS) P.O. Box 878 Sparks, MD Phone: Downtown Sailing Center 1425 Key Highway Suite 110 Baltimore, MD Phone: Camp Greentop The League Camping & Therapeutic Recreation, 1111 East Cold Spring Lane Baltimore, MD Phone: ext Chesapeake Region Accessible Boating P.O. Box Third St., Suite 3B Annapolis, MD Phone: Kennedy Krieger Institute Physically Challenged Sports and Recreation Program 3825 Greenspring Avenue Baltimore, MD Phone: Dance Wheels DC 9

10 Sue Green, President 1805 Duke Drive Silver Springs, MD Phone: UNITED WAY OFFICES National United Way National Headquarters 701 North Fairfax Street Alexandria, VA Phone: Enter postal code for a United Way office in your area VETERAN BENEFITS =1&flash=1 Baltimore Regional Office 31 Hopkins Plaza Federal Building Baltimore, MD Phone: US Department of Veterans Affairs VA Hospital Locator VARO, Baltimore Phone: ext Maryland Chapter PVA Offices (Delaware Maryland Chapter) Glasgow Pines Business Center 111 E. Scotland Drive Bear, DE Toll-free: Phone: office@colonialpva.org 10

11 ALS ALS Association s DC/MD/VA Chapter (Serving Maryland, Washington, DC and Virginia) 7507 Standish Place Rockville, MD Phone: FITE ALS Muscular Dystrophy Association s ALS Research Center: MDA/ALS Center at Johns Hopkins University School of Medicine Baltimore Phone: jrothste@jhmi.edu BRAIN INJURY Brain Injury Association of Maryland 2200 Kernan Drive Baltimore, MD Phone: info@biamd.org United Cerebral Palsy (UCP) UCP on the Potomac 4409 Forbes Blvd. Lanham, MD, Phone: CEREBRAL PALSY 11

12 Unified Community Connections (formerly United Cerebral Palsy Central Maryland) McCormick Road, Suite 1100 Hunt Valley, MD Phone: National Ataxia Foundation 2600 Fernbrook Lane Suite 119 Minneapolis, MN Phone: FRIEDREICH S ATAXIA NAF Ambassador Karen Rosenberger Frederick, MD Phone: kdrosenberger@comcast.net NAF Ambassador Tim Daly Phone: (410) tim@accessgroup-md.com GUILLAIN-BARRÉ SYNDROME / CIDP Guillain-Barré Syndrome / CIDP Foundation International The Holly Building 104 1/2 Forrest Avenue Narberth, PA Phone: Toll Free: Call for information in your area 12

13 MULTIPLE SCLEROSIS National Multiple Sclerosis Society: Maryland Chapter 2219 York Rd., Suite 302 Timonium, MD Phone: Multiple Sclerosis Association of America Northeast Regional Office (DE, CT, ME, MD, MA, NH, NJ, NY, PA, RI, VT, DC) 706 Haddonfield Road Cherry Hill, NJ Phone: ext Call them for local support groups MUSCULAR DYSTROPHY Muscular Dystrophy Association National Headquarters 3300 East Sunrise Drive Tucson, AZ Phone: Enter your postal code in the Find your local MDA section of the website for MD clinics in your area. POST-POLIO SYNDROME Post-Polio Health International (PHI) 4207 Lindell Blvd., #110 St. Louis, MO Phone: Directory lists Health Professionals, Clinics, and Support Groups by state. 13

14 Spina Bifida Association of America P.O. Box Arlington, VA Phone: Please contact them for info in your area SPINA BIFIDA Spina Bifida Association of America s Chesapeake Potomac Chapter SBA of Maryland 2416 Lampost Lane Baltimore, MD Contact: Sue Whelan, President Phone: SBAA Maryland Clinics Kennedy Krieger Institute Center for Spina Bifida and Related Conditions 707 N. Broadway, Tower 100 Baltimore, MD Phone: spinabifidacenter@kennedykrieger.org SPINAL CORD INJURY National Spinal Cord Injury Association chapter SCI Network of Metropolitan Washington 14 Wolf Drive Silver Spring, MD Attn: Kimball Gray Voice: (Ask for Kimball) TTY: (Ask for Kimball) Scin.kimball@yahoo.com Kennedy Krieger Institute s spinal cord injury support group Baltimore, MD Gina Albright, DPT Phone: (office) 14

15 STROKE American Stroke Association 7272 Greenville Ave. Dallas, TX Phone: Call them for the stroke support group in your area Joint Commission on Accreditation of HealthCare Organization s Primary Stroke Centers. 2 facilities accredited in stroke care: Tel: Johns Hopkins Bayview Medical Center 4940 Eastern Avenue Baltimore, MD Phone: rllinas@jhmi.edu University of Maryland Medical Center 22 South Greene Street Baltimore, MD Phone: SYRINGOMYELIA/CHIARI MALFORMATION American Syringomyelia & Chiari Alliance Project PO Box 1586 Longview, TX Phone: ASAP info@asap.org TRANSVERSE MYELITIS 15

16 Transverse Myelitis Association 1787 Sutter Parkway Powell, OH Phone: or Please contact them for info in your area. Transverse Myelitis Association Maryland Support groups Alan & Kelly Connor 9 Evergreen Rd. Sevem, MD 2144 Phone: aoconnor@myelitis.org TM MeetUp Enter your postal code for a MeetUp in your area. Meetings are usually held in local restaurants. GENERAL DISABILITY RESOURCES Disability Resources.org: Maryland Maryland Yellow Pages for Kids with Disabilities Maryland Council on Developmental Disabilities 217 E. Redwood Street Suite 1300 Baltimore, MD Phone: (410) (800) (within MD) Maryland Chapter of the American Occupational Therapy Association Post Office Box 2742 Columbia, Maryland Phone: mota@gmail.com 16

17 Maryland Chapter of the American Physical Therapy Association PO Box 674 Arlington, VA Phone: Maryland Association of People Supporting EmploymentFirst (ASPE) The ARC of Prince George's County Sweitzer Lane, Suite 102 Laurel, MD Phone: Ext The League for People with Disabilities Baltimore, MD Phone: (410) Offers adult medical day care, camping, vocational resources, a wellness center that offers exercise, PT and pool. Healthboards.com message boards on health related topics. Topics include SCI, CP, Stroke, and more. First Call Phone: 211 Provides callers with information about and referrals to human services for every day needs and in times of crisis. Can offer access to the following types of services: adult day care, respite care, home health care, transportation, support groups, Medicaid/Medicare, etc. The caller is provided with phone numbers, programs and services provided, location, hours of operation, and any other relevant information for the inquiry. All calls are confidential. Hint: Can only be dialed from a land line. If you dial 211 or your state s number and you are not connected, this service has not yet been provided to your area. Determined2Heal 8112 River Falls Dr. Potomac, MD Phone: Simplifying the transition to paralysis, promoting beach safety, funding research. 17

18 ThinkFirst National Injury Prevention Foundation 1801 N. Mill Street, Suite F Naperville, IL Phone: THINK56 thinkfirst@thinkfirst.org ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter information in your area, please go to their website and click on the Chapter Site tab. The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message. 18