California Disability Resources

Transcription

1 California Disability Resources Affordable Care Act (ACA) HHS.gov: How the Health Care Law is Making a Difference for the People of California To get coverage under the ACA, go to to find out more about the Health Insurance Marketplace and the options available in your state. ARTS AND CREATIVITY VSA arts of California c/o Orange County Department of Education 200 Kalmus Drive Costa Mesa, CA Tel: (714) Jane & Terry Semel Institute for Neuroscience & Human Behavior 760 Westwood Plaza Los Angeles, CA Tel: (800) UCLA-MD1 or (310) National Institute of Arts and Disabilities rd Street Richmond, CA Phone: Fax: admin@niadart.org 1

2 AXIS Dance Company 1428 Alice St., Suite 200 Oakland, CA Phone: The Raven Drum Foundation 9595 Wilshire Blvd, Suite 900 Beverly Hills, CA Phone: An organization established by Def Leppard drummer Rick Allen to encourage the healing powers of drumming and to help people overcome the emotional and physical pain resulting from traumatic events. The foundation provides free educational programs to inspire personal growth during times of adversity. Sins Invalid San Francisco, CA area Phone: Sins Invalid is an inclusive performance project involving artists of color, queer and gender-variant artists, and artists with disabilities (broadly defined). They present multidisciplinary performances (video, poetry, spoken word, music, drama, and dance) by people with disabilities; organize performance workshops for people with and without disabilities; and offer political education workshops for community based organizations ASSISTIVE TECHNOLOGY Pacific ADA Center DBTAC (Regional Office) th Street Suite 1030 Oakland, CA Phone: or Able Closet Phone: Able Closet is a northern California non-profit organization that lends assistive technology and equipment to children with special needs. 2

3 AT Network 1234 H Street, Suite 100 Sacramento, CA Phone: (916) TTY: (916) Fax: (916) info@atnet.org The Center for Accessible Technology (CforAT) 3075 Adeline, Suite 220 Berkeley, CA Phone: TTY: Fax: info@cforat.org Began life in 1983 when a group of parents of children with disabilities came together to develop strategies for including their children into mainstream elementary school settings. With an initial focus on computer technology, these parents developed models whereby kids with disabilities could be fully included in the school curriculum. California AT Loan Program AT Unit California State Department of Rehabilitation PO Box Sacramento, CA Phone: CATE: California Assistive Technology Exchange Tel: TTY: Their mission is to enhance the quality of life for Californians with disabilities by providing them with assistive technology (AT) devices and by innovating the loan process. CAREGIVERS Caregiver.com s Support Group Directory lists California caregiver support groups. Click on Regional Resources, click on CA on map, open Support Groups Tel: (954) info@caregiver.com 3

4 Southern California Los Angeles Caregiver Resource Center 732 Mott St. Suite 150 San Fernando, CA Phone: Orange Caregiver Resource Center 130 W. Bastanchury Rd. Fullerton, CA Tel: (800) (714) Fax: (714) Inland Caregiver Resource Center 1420 E. Cooley Drive Suite 100 Colton, CA Phone: givers.org Southern Caregiver Resource Center 3675 Ruffin Road, Suite 230 San Diego, CA Phone: Valley Caregiver Resource Center 3845 N. Clark St, Suite 201 Fresno, CA Phone: Coast Caregiver Resource Center 4

5 2415 De la Vina Street Santa Barbara, CA Tel: (805) TDD: (805) Del Mar Caregiver Resource Center 1537 Pacific Ave Ste 300 Santa Cruz, CA Toll-Free: (800) Family Caregiver Alliance/Bay Area Caregiver Resource Center 785 Market Street, Suite 750 San Francisco, CA Tel: or Del Oro Caregiver Resource Center 8421 Auburn Blvd., Suite 120 Citrus Heights, CA Tel: (916) or (800) Fax: (916) Mountain Caregiver Resource Center 25 Main Street Chico, CA Tel: or Redwood Caregiver Resource Center 141 Stony Circle Suite 200 Santa Rosa, CA Phone:

6 Well Spouse Association Long Beach Area LB/Lakewood Anita Gonzales (562) Sacramento Area WS Support Galt Marilyn Vogler (209) San Diego WS Support San Diego Mitzi Swift (619) Inland Empire WS Riverside Anita Millhollin (951) COMMUNITY-BASED FITNESS PROGRAMS NextStep Fitness 4447 Redondo Beach Blvd. Lawndale, CA Phone: Fax: Contact Janne Kouri at NextStep Fitness is a non profit that provides people living with paralysis the opportunity for health and recovery through affordable and progressive community fitness and wellness facilities. NextStep is a Reeve Foundation NRN center. Project Walk Spinal Cord Injury Recovery 5850 El Camino Real 6

7 Carlsbad, CA Phone: Project Walk provides an improved quality of life for people with spinal cord injuries through intense exercise-based recovery programs, education, support and encouragement. Project Walk Fresno 8555 North Cedar Avenue Fresno, CA Phone: Project Walk Fresno is located at Break the Barriers. SCI Total Fitness Kristin McNealus, PT 7105 Marina Pacifica Dr. South Long Beach, CA Phone: Located in Southern California, classes may be joined in person or online. Class is led by a physical therapist who is experienced with spinal cord injury patients. Some private in home classes may be arranged in the Southern California area. Fitness, strength training and weight loss services are offered as well as wheelchair evaluation. The Dynamics WalkAgain Rehabilitation Unit 1830 West Olympic Boulevard, Suite 123 Los Angeles, CA Phone: , (Toll-free) info@walkagain.com Dynamics provides prosthetics, orthotics, durable medical equipment, and physical therapy in Southern California. Center of Restorative Exercise (C.O.R.E.) 9667 Reseda Boulevard Northridge, CA Phone: info@corecenters.info C.O.R.E. is a state-of-the-art facility for people with chronic illness or debilitating conditions. It is equipped with unique and specialized equipment and provides low cost integrated, structural, personalized and progressive evaluations, treatment plans, and education to help improve function, independence, and self-efficacy. 7

8 Medical Rehabilitation & Kinematics Lab, Inc Trade St., Suite F San Diego, CA Phone: Medical Rehabilitation & Kinematics Lab offers a wide range of rehabilitation services including physiatry, physical therapy, motor and gait training, and kinematics. Victim Compensation Phone: (800) CRIME VICTIM ASSISTANCE DOMESTIC VIOLENCE HELP National Domestic Violence Hotline SAFE (7233) California Coalition Against Sexual Assault 1215 K ST, Suite 1100 Esquire Plaza Sacramento, CA Tel: Fax: TTY/TDD: info@calcasa.org California Partnership to End Domestic Violence P.O. Box 1798 Sacramento, CA Toll Free: Phone: Fax: info@cpedv.org CORA, serving victims of domestic violence in San Mateo county P.O. Box 4245 Burlingame, CA Tel: Fax:

9 Aardvarc Domestic Violence Resources in California EASTER SEALS California Easter Seals Offices Use the Finder by putting in your state Lists 54 Easter Seals offices in California. Official website of the State of California GOVERNMENT OFFICES Governor s Committee on Employment of People with Disabilities California Employment Development Department: People with Disabilities California Dept. of Rehabilitation 721 Capitol Mall Sacramento, CA Tel: (916) TTY: (916) California Health Advocates 5380 Elvas Avenue, Suite 221 Sacramento, CA Tel: Fax: news@cahealthadvocates.org MediCal: Medicaid program in California EDS Attn: CSU PO Box Sacramento, CA Phone:

10 Medi-Cal (Medicare for California) California Department of Health Services PO Box Sacramento, CA Phone: TTY: Healthy Families California s SCHIP (child health insurance approved plan information) P.O. Box Sacramento, CA Phone: healthyfamilies@maximus.com Provides low cost health insurance to children who don t qualify for free Medi-Cal. Department of Health Care Services: California Children's Services is a state program for children with certain diseases or health problems. Through this program, children up to 21 years old can get the health care and services they need. CCS will connect you with doctors and trained health care people who know how to care for your child with special health care needs. California Health Advocates: California HICAP Association Counsels people on Medicare benefits and options. Tel: State of California, Department of Managed Health Care California Department of Managed Health Care 980 9th Street, Suite 500 Sacramento, CA Voice: Fax: TDD: State of California, HMO Help Center California Department of Managed Health Care 980 9th Street, Suite 500 Sacramento, CA Voice:

11 Fax: TDD: Home Based Waivers California Dept. of Social Services IHSS (In Home Supportive Services) Tel: (916) Managed Risk Medical Insurance Board (MRMIB) P.O. Box 2769 Sacramento, CA Phone: Fax: The hearing impaired can contact the ADA Coordinator through the California Relay Services at California High Risk Insurance Plan for eligible people who are unable to get insurance coverage. State of California Dept. of Insurance Consumer Services Division 300 South Spring Street, South Tower Los Angeles, CA Tel: HELP (4357) (Calling from within CA) (Outside California) TDD: California Division of Workers Compensation d_official/siteapps/advocacy/search.aspx Find your elected officials to contact them on legislation that is important to you. State LTC Ombudsman Joseph Rodrigues California Dept. of Aging 1300 National Dr. Suite 200 Sacramento, CA Phone: (916) Fax: (916) TDD: (800)

12 The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities. HOUSING Independent Living Centers in California Teddie-Joy Remhild, SILC Chair 1600 K Street, Suite 100 Sacramento, CA Tel: (916) or (866) TTY: (916) Fax: (916) teddiejoy@att.net California State Independent Living Council Mission is to maximize options for independence for persons with disabilities. Provides names of ILCs in California. California State Independent Living Council (SILC) 1600 K Street, Suite 100 Sacramento, CA Main Phone: (916) Toll-free: (866) Fax: (916) TTY (toll-free): (866) California Foundation for Independent Living Centers 1234 H Street, Suite 100 Sacramento, CA Phone: TTY: Fax: cfilc@cfilc.org HUD: U.S. Dept. of Housing and Human Development HUD has 6 offices in California LIBRARY SERVICES 12

13 California State Library Services for the Blind and Physically Handicapped California State Library P.O. Box Sacramento, CA Tel: Local: Statewide: (toll free in CA) Fax: Website: NeuroRecovery Network (NRN) The NRN is a network of rehab programs designed to provide locomotor (treadmill) training to promote functional recovery and improve the health and quality of life for people living with paralysis. The program is for people with spinal cord injuries. The NRN is a program of the Reeve Foundation. There is no NRN center in this state but if you are interested in finding one outside of this state, please go to PROTECTION AND ADVOCACY SERVICES Protection and Advocacy Inc K Street Sacramento, CA Tel: Fax: Tel: Protection and Advocacy, Inc. (PAI) is a nonprofit agency that provides legal assistance to people with disabilities, including physical, developmental and psychiatric disabilities. Services available from PAI include: information and referral to other sources of assistance; peer and self-advocacy training; representation in administrative and judicial proceedings; investigation of abuse and neglect and legislative advocacy. PAI is funded from federal and state agencies, and from private donations. Disability Rights Advocates 2001 Center St., 4 th Floor Berkeley, CA Phone: A national non-profit organization that advances and defends the civil rights of people with disabilities. 13

14 Disability Rights Legal Center Loyola Law School Public Interest Law Center 800 South Figueroa Street, Suite 1120 Los Angeles, CA (213) or (866) THE-CLRC ( ) California Department of Rehabilitation 721 Capitol Mall Sacramento, CA Mailing Address: P.O. Box Sacramento, CA (916) (VOICE) (916) (TTY) Legal Rights of Persons with Disabilities (updated April 2006) California Dept. of Justice SERVICE DOGS Bergin University of Canine Studies/Assistance Dog Institute 5860 Labath Avenue Rohnert Park, CA Phone: Canine Angels Service Teams P.O. Box 5256 Diamond Bar, CA Phone: 888-K9 ANGLS Canine Companions for Independence: Southwest Regional Center 124 Rancho del Oro Drive Oceanside, CA Phone: Canine Companions for Independence: Northwest Regional Center PO Box

15 Santa Rosa, CA Phone: TDD: Canine Support Teams PO Box Temecula, CA Phone: Discovery Dogs P.O. Box 582 Roseville, CA Tel: Fax: Paws itive Teams 7031 Carroll Road San Diego, CA Phone: Office: (858) press 0 to leave message Pro-Train 1544 Avohill Drive Vista, CA Phone: Tender Loving Canines Assistance Dogs P.O. Box 1244 Solana Beach, CA Train Rite 610 Silverwood Street Oceanside, CA Phone: SPORTS AND RECREATION 15

16 Access to Recreation 8 Sandra Court Newbury Park, CA Phone: (800) Accessible San Diego Accessible San Diego is a non profit information center for visitors and locals with disabilities, veterans, and seniors. AmpSurf: Association of Amputee Surfers P.O. Box 5045 San Luis Obispo, CA Phone: (805) info@ampsurf.org AmpSurf provides learn to surf clinics, adaptive surfing, and fun, safe, outdoor activities to disabled veterans, adults and children. Bay Area Association of Disabled Sailors Pier 40, The Embarcadero San Francisco, California Tel: info@baads.org Bay Area Recreation and Outreach Program 3075 Adeline St, Suite 155 Berkeley, CA Tel: info@borp.org accessleisure.pdf BlazeSports Sacramento City of Sacramento, Dept. of Parks and Recreation Sports and Recreation for People with Disabilities Phone: (916) BlazeSports San Jose City of San Jose Parks & Recreation and Neighborhood Services 3369 Union Avenue San José, CA

17 Tel: Fax: BlazeSports San Diego Disabled Services Advisory Council, Inc. Spring Valley, CA Phone: (619) BlazeSports Central Coast PARC Foundation for Adapted Programs Santa Barbara, CA Bridges to Ability Foundation P.O. Box Santa Clarita, CA Phone: Bridges to Ability provides quality vocational, educational, social, and recreational programs to teens 16 years and above and adults with disabilities, including Down Sydrome, cerebral palsy, autism, Asperger's syndrome, hearing and vision impairments, and physical disabilities. California State Parks: Accessibility Casa Colina Center for Rehabilitation 255 East Bonita Avenue PO Box 6001 Pomona, CA Toll-free: Fax: TDD-TTY-Q: Challenged Athletes Foundation (CAF) 9591 Waples Street San Diego, CA Phone: CAF s mission is to provide opportunities and support to people with physical disabilities so they can pursue active lifestyles through physical fitness and competitive athletics. 17

18 Disabled Sports Eastern Sierra PO Box 7275 Mammoth Lakes, CA Phone: Disabled Sports USA Far West 6060 Sunrise Vista Drive Suite 2540 Citrus Heights, CA Phone: Disabled Veterans SCUBA Project P.O. Box 782 Los Alamitos, CA Phone: The Disabled Veterans SCUBA Project serves disabled veterans (paraplegic, quadriplegic, PTSD, TBI, poly-trauma, blind, or amputee) by helping them experience the camaraderie of SCUBA diving and the wonders of the underwater world. DS/USA Orange County Chapter -- The Achievers PO Box Fullerton, CA Phone: Fax: DS/USA Los Angeles Chapter -- The Unrecables PO Box Los Angeles, CA Environmental Traveling Companions (ETC) Fort Mason Center Landmark Building C San Francisco CA Phone: info@etctrips.org Environmental Traveling Companions opens the beauty and challenge of the great outdoors to people with disabilities and disadvantaged youth. Every year, more than 18

19 2,000 people join ETC to raft whitewater rivers, ski alpine meadows, kayak the waters of the Golden Gate and Tomales Bay, and build leadership skills. Far West Wheelchair Sports 1677 Park Ave. San Jose, CA The Far West Wheelchair Athletic Association (FWWAA) is a non-profit organization which promotes, develops, and organizes wheelchair sports for individuals with physical disabilities in California, Arizona and Nevada. Handicapped Scuba Association International Jim & Pat Gatacre 1104 El Prado San Clemente, CA Phone: Fax: hsa@hsascuba.com Jimmy Miller Memorial Foundation: Wounded Warriors Program th Street Manhattan Beach, CA Phone: info@jimmymillerfoundation.org The Foundation currently serves Marines of the Wounded Warrior Battalions at Camp Pendleton and 29 Palms with unique, year-round ocean therapy sessions. The adaptive surfing sessions are held on base at Camp Pendleton. Junior Reign Sled Hockey Practice Location: Icetown Magnolia Avenue, Suite A Riverside, CA Contact: Todd S. Jenkins, program director Phone: TJenkins@JrReign.com An adaptive sports program for kids and adults (ages 5 and up) with mobility disorders like spina bifida, spinal cord injury, cerebral palsy and leg amputation. The program is affiliated with USA Hockey and the Ontario Reign, and offers recreational and competitive opportunities as Southern California's first-ever sled hockey program. Practice is every other Monday evening from 7:00 to 8:30 pm. 19

20 Life Rolls On Foundation (a subsidiary of the Christopher & Dana Reeve Foundation) 400 Corporate Pointe, Suite 525 Culver City, CA Phone: Provides adaptive surfing and skating to people with disabilities. Monterey Bay Veterans Inc. Sports Rehab Center P.O. Box 481 Monterey, CA Phone: (831) Tahoe Adaptive Ski School SDUSA Far West PO Box 9780 Truckee, CA Phone: Fax: South Bay Wheelchair Athletic Program 5730 Chambertin Drive San Jose, CA Phone: TDD: Fax: Summer s Excellent Adventures Camp Recreation, Open Space & Sciences 1305 Middlefield Road Palo Alto, CA Phone: Fax: Turning Point Turning Point teaches people with mobility impairments the skills necessary to fully enjoy the outdoors and sponsors a wide variety of activities. The organization has chapters in Texas, Oklahoma, California and North Carolina. Up & Away Windsor, CA Phone:

21 Offers wheelchair accessible hot air ballooning. U.S. Adaptive Recreation Center PO Box 2897 Big Bear Lake, CA Tel: Fax: TTY: via the California Relay Service at USARC is committed to facilitating challenging and adventurous recreational programming for people with disabilities. Winter programs include skiing and snowboarding. Summer programs include wet and wild water skiing, jet skiing, kayaking, sailing and fishing. Wheels2Water Cod Circle #C Huntington Beach, CA Phone: WALK (Wheels2Water East Coast) Wheels 2 Water exists to share the ocean experience through adaptive surfing and scuba diving for everyone who has a spinal cord injury or uses a wheelchair. UNITED WAY Enter your postal code for an office in your area. VETERANS BENEFITS California Dept. of Veterans Affairs 1227 O Street Sacramento, CA Tel: 1 (800) (800) (Outside California) TDD: 1 (800) US Dept of Veterans Affairs VA Hospital Locator Click on state of California 21

22 Paralyzed Veterans of America Chapters & Service Offices: California Bay Area & Western chapter of PVA 3801 Miranda Ave. Bldg. 101, Room A1-219 Palo Alto, CA Phone: Phone: Cal-Diego Chapter of PVA VAMC, Room 1a La Jolla Village Dr. San Diego, CA Phone: California Chapter of PVA 5901 E. Seventh St. Long Beach, CA Phone: Phone: ALS The ALS Association National Office 1275 K Street NW, Suite 1050 Washington, DC Phone: Spanish Speaking Support Group Leland R. Weaver Library 4035 Tweedy Blvd South Gate, CA Contact: Martha Mowatt Tel.: Muscular Dystrophy Association s ALS Research Centers: Jerry Lewis MDA/ALS 22

23 Clinical and Research Center (213) W. King Engel, M.D., Director University of Southern California School of Medicine Los Angeles MDA/ALS Center at UCLA (310) Michael C. Graves, M.D., Director Los Angeles MDA/ALS Center at the University of California, Irvine (714) Tahseen Mozaffar, M.D., Codirector (949) John Weiss, M.D., Codirector Department of Neurology Orange Forbes Norris MDA/ALS Research Center (415) Robert G. Miller, M.D., Director California Pacific Medical Center San Francisco BRAIN INJURY California Traumatic Brain Injury Information Hotline Operated by: Betty Clooney Foundation for Persons with Brain Injury /2 E. Village Road Long Beach, CA Tel: (562) California Brain Injury Association 23

24 CALBIA th St., Suite 250 Bakersfield, CA Tel: Fax: Brain Injury Association of America s National Family Helpline: FamilyHelpline@biausa.org Northern California Model TBI System Rehabilitation Research Center for TBI & SCI Santa Clara Valley Medical Center 751 South Bascom Avenue San Jose, CA Phone: Fax: High Hopes Head Injury Program 2953 Edinger Ave. Tustin, CA Phone: A non-profit organization that offers an adult day care program to people with brain injuries. Their physical programs include conditioning classes, therapeutic swimming at a local pool, nautilus weight training at a local gym, and physical therapy. Rehabilitation activities are offered for cognitive and social challenges. Students manage a "Lunch Express" business that makes lunch twice weekly for students and staff. Other services include vocational art classes, pre-vocational training, music classes, community activities, independent living classes, occupational therapy and speech therapy. Jodi House Brain Injury Support Center 625 Chapala St. Santa Barbara, CA Telephone: (805) Facsimile: (805) Welcome@jodihouse.org Jodi House II Santa Ynez Valley Non Profit Building 595 Alamo Pintado Road Solvang, CA

25 Telephone: (805) Facsimile: (805) CEREBRAL PALSY UCP local chapter finder Lists 12 California chapters. FRIEDREICH S ATAXIA National Ataxia Foundation click on support groups, click on California California Ataxia Support Groups Los Angeles Ataxia Support Group Sherry McLaughlin Altadena, CA Tel: ccherilynmc@yahoo.com Northern California Support Group Joanne Loveland 1980 Saint George Rd Danville, CA Tel: joanneloveland@gmail.com Orange County Support Group Daniel Navar 829 W Gary Ave Montebello, CA Tel: danieln27@gmail.com San Diego Support Group Earl McLaughlin 2087 Granite Hills Dr 25

26 El Cajon, CA (619) NAF Ambassadors Barbara Bynum 3801 W Bailey Merced, CA Phone: (209) Mike Fernandes 7251 Brentwood Blvd #114 Brentwood, CA Phone: (925) fernandesml@comcast.net Darrell Owens 917 Paseo Camarillo #717 Camarillo, CA Phone: (805) droopydog36@hotmail.com GUILLAIN-BARRÉ SYNDROME / CIDP Guillain-Barré Syndrome / CIDP Foundation International The Holly Bldg., 104 ½ Forrest Ave. Narberth, PA Phone: Call for information in your area MULTIPLE SCLEROSIS National Multiple Sclerosis Society chapters: Great Basin Sierra Office-AAC All America Chapter 4600 Kietzke Ln., Ste. K225 Reno, NV Phone:

27 Fax: Website: Great Basin Sierra Office-AAC website Northern California Chapter 1700 Owens Street, Suite 190 San Francisco, CA Phone: Website: Northern California Chapter website Show Local Offices Pacific South Coast Chapter 5950 La Place Ct., Ste. 200 Carlsbad, CA Phone: Fax: Website: Pacific South Coast Chapter website Show Local Offices Southern California Chapter 2440 South Sepulveda Blvd., Suite 115 Los Angeles, CA Phone: Fax: Website: Southern California Chapter website Multiple Sclerosis Association of America Redding CA Support Group MUSCULAR DYSTROPHY 27

28 Muscular Dystrophy Association Enter zip code for California chapters. POST POLIO SYNDROME lists clinics and support groups that specialize in Post-Polio Syndrome in California San Francisco Bay Area Polio Survivors P.O. Box 5104 Concord, CA Phone: REFLEX SYMPATHETIC DYSTROPHY SYNDROME Reflex Sympathetic Dystrophy Syndrome Association of California PO Box 771 San Marcos, CA Phone: SPINA BIFIDA Spina Bifida Association of America California chapters in San Diego and Tracy SBAA lists 16 SB clinics in California QUAD Foundation 306-N West El Norte Parkway #441 Escondido, CA SPINAL CORD INJURY Life Rolls On Foundation (a subsidiary of the Christopher & Dana Reeve Foundation) 400 Corporate Pointe, Suite 525 Culver City, CA

29 Rancho Los Amigos 7601 East Imperial Highway Downey, CA Telephone: TTY/TDD: Santa Clara Valley Rehabilitation Research Center for TBI and SCI Rehabilitation Research Center Santa Clara Valley Medical Center 751 S Bascom Ave San Jose CA Tel: (408) Fax: (408) Santa Clara Valley Medical Center s Peer Support Network 751 South Bascom Ave. San Jose, CA Phone: They offer various support groups for people with spinal cord injuries--including one for women and one for the newly injured and their families. Placerville Mobility Support P.O. Box 1327 Placerville, CA Phone: Mr. Lynn Murray, Founder A support group for SCI and other mobility issues. HeadNorth Foundation 2658 Del Mar Heights Rd, #559 Del Mar, CA Tel: (858) The HeadNorth Foundation is dedicated to providing comprehensive personalized assistance to SCI survivors and their families in the greater San Diego area. WYNGS (When you need group support) 7900 Nelson Road Panorama City, CA Phone: Fax:

30 Awards in Motion to Succeed program helps fill the gap after insurance coverage, family assistance and government resources have been exhausted. Through the AIMS Program, WYNGS has provided survivors of spinal cord injury with essential equipment and services that they cannot afford to pay for themselves. Most items and services granted through AIMS cost from $200 to $2,000. Items of greater expense may occasionally be possible through WYNGS partnerships with other foundations. Open to residents of the greater Los Angeles area, Orange and Ventura counties. Northridge Hospital Medical Center Roscoe Blvd. Northridge, CA , ext Spinal cord injury education support group Roman Reed Spinal Cord Injury Research Fund at Reeve-Irvine STROKE American Stroke Association Phone: Call them for the stroke support group in your area Stroke Association of Southern California PO Box 2098, Santa Monica, CA Phone: (310) Stroke and Rehab Center at Santa Clara Valley Medical Center 751 South Bascome Avenue San Jose, CA Phone: UCLA Stroke Center Reed Neurological Research Building 757 Westwood Plaza UCLA Medical Center Los Angeles, CA Phone: (310)

31 Stanford University Stroke Center 300 Pasteur Drive Stanford, CA Phone: (650) SYRINGOMYELIA & CHIARI MALFORMATION American Syringomyelia Alliance Project s online support group Tel: 800-ASAP-282 (Toll Free) Info@ASAP.org Fax: TRANSVERSE MYELITIS Transverse Myelitis Support Group in California TM MeetUp People with TM meet in a local area usually at a restaurant. Enter your zip code or enter US, then your state, lists the cities in that state that are having meetings. Lists 36 cities in California that will have a meeting. GENERAL DISABILITY RESOURCES AbilityFirst 1300 Green Street Pasadena, CA Phone: Fax: Carries the endorsement of the Social Service Department of the City of Los Angeles. All centers are licensed by the State of California Department of Social Services. Vocational 31

32 Services programs are accredited by the Commission on the Accreditation of Rehabilitation Facilities (CARF) and the Resident Camps are accredited by the American Camping Association (ACA). Access Northern California 1427 Grant Street Berkeley, CA Phone: A non-profit organization dedicated to facilitating greater access to travel and recreational opportunities in Northern California for people with physical disabilities. Access San Francisco booklet from the San Francisco Convention & Visitors Bureau 900 Market Street San Francisco, CA Phone: (415) Fax: (415) Accessible San Diego Tel: Asian Rehabilitation Services, Inc E. Washington Boulevard Los Angeles, CA Phone: Fax: Bay Area Coalition for Employment Development (BACED) 1150 S. Bascom Ave., Suite 7A San Jose, CA A network of agencies working to increase the hiring of people with disabilities. California Advocates for Nursing Home Reform s Nursing Home Guide Database lets you enter a city and search by some special needs like spinal cord injury, MS, ALS as well as whether the nursing home accepts Medicare or Medi-Cal. 32

33 California Care Network is designed to help you find state-licensed health, social services, mental health, alcohol and other drug, disability and elder care services and facilities for a loved one, a friend, or yourself. California Council on Developmental Disabilities st Street, Suite 210 Sacramento, CA Tel: Toll-Free: Fax: council@scdd.ca.gov California Healthcare Foundation Helps locate and evaluate long-term care, nursing homes, and hospice care in California Webster Street Suite 400, Oakland, CA Tel: Fax: California Institute for Regenerative Medicine (CIRM) 210 King Street San Francisco, CA Phone: (415) Fax: (415) info@cirm.ca.gov California Telephone Access Program Phone: This state program provides specialized free phones to eligible Californians. The phones make it easier to dial, call, and hear. Californians for Disability Rights. Inc th St., Suite 200 Sacramento, CA Phone: A cross-disability group whose members promote advocacy for people with disabilities. Connections for Information and Resources on Community Living--CIRCL's mission is to create opportunities for building and sharing individual, organizational and community strengths in supported living. 33

34 Disability Benefits 101(for California) DisabilityResources.org s California directory Embrace All Abilities San Jose, CA Phone: Promotes advocacy and puts on community and sports events for people with disabilities. In Spirit Box 383 Woodacre, CA Phone: Offers financial aid for Personal Care Attendants to empower quadriplegics in Marin County to sustain their health, continue their participation in their families and communities, and avoid nursing home placement. Interwork Institute, San Diego State University 3590 Camino del Rio North San Diego, CA Phone: Interwork s core mission is to enable individuals, organizations and communities to support, appreciate and engage diverse members in community integration through education, research and advocacy. Joni and Friends International Disability Center PO Box 3333 Agoura Hills, CA Phone: TTY: Fax: Kids Included Together San Diego, Inc. (KIT) 2820 Roosevelt Road, Suite 202 San Diego, CA Phone:

35 Fax: Supports recreational and social programs that include children with and without disabilities in after school programs and community programs like Girl Scouts. Legal Rights of Persons with Disabilities. Publication from the California Department of Justice. Nov ed. Long Beach s Citizens Advisory Commission on Disabilities (CACOD). Department of Human Resources 333 West Ocean Blvd 13 th Floor Long Beach, CA Phone: TTY: Fax: CACOD's purpose is to advise the Mayor and City Council on the concerns and issues affecting people with disabilities in the community. Loving Your Disabled Child 4528 Crenshaw Blvd Los Angeles, CA Phone: Fax: info@lydc.org To provide parents and families of children with disabilities emotional, educational, and spiritual support. Matrix parents network and resource center. Empowering families of children with special needs to successfully understand and access the systems that serve them. 94 Galli Dr., Ste. C Novato, CA Tel: Toll-Free Helpline info@matrixparents.org Mi Razon de Vivir Support Group (in Spanish) for parents of children with disabilities Located in LA 35

36 NICHCY (National Dissemination Center for Children with Disabilities): California The Orange County Asian and Pacific Islander Community Alliance (OCAPICA) Garden Grove Boulevard Suite 214A Garden Grove, CA Phone: Parents Helping Parents Sobrato Center for Nonprofits 1400 Parkmoor Ave., Suite 100 San Jose, CA A non-profit organization where parents help parents of kids with special needs. PossAbilities Loma Linda University Orthopaedic & Rehabilitation Institute Barton Rd. Loma Linda, CA Phone: LLUMC-4U Vivi Burns, Director vburns@ahs.llumc.edu Fitness center, sports program, support group, social activities for the physically disabled. OneJustice/Legal Aid Association of California 433 California St., Suite 815 San Francisco, CA Phone: Directory of California and Nevada Legal Services Programs Ralph s Riders Foundation 1925 Century Park East, Suite 1150 Los Angeles, CA Phone: Provides peer support and information to people with spinal cord injuries or paralysis. Rowell Family Empowerment of Northern California Supports education and advocacy centers. Connects families of children with special needs. 962 Maraglia St. Redding, CA Local:

37 Toll Free: Fax: Santa Clara Valley Medical Center s Resource Options for Back on Track (ROBOT): A Comprehensive Guide to Northern California for Individuals with Disabilities. 2 nd ed Support for Families of Children with Disabilities offers information, education, and parent-to-parent support free of charge to families of children with any kind of disability or special health care need in San Francisco Mission Street 7th Floor San Francisco, CA Tel: (415) info@supportforfamilies.org Team of Advocates for Special Kids 100 Cerritos Avenue Anaheim, CA Phone: Fax: taskca@yahoo.com Team of Advocates for Special Kids (TASK) is a Parent Training and Information Center that Parents & Professionals can turn to for assistance in seeking and obtaining needed early intervention, educational, medical or therapeutic support service for children. ThinkFirst National Injury Prevention Foundation 1801 N. Mill Street, Suite F Naperville, IL Phone: THINK56 thinkfirst@thinkfirst.org ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter information in your area, please go to their website and click on the Chapter Site tab. Toolworks, 25 Kearny Street Suite

38 San Francisco, CA Phone: TTY: Fax: Toolworks, in partnership with people with disabilities, is a human service agency dedicated to providing the tools and resources that promote independence, equality, and personal satisfaction. Unification of Disabled Latin Americans 555 S. Somewhere Street Los Angeles, CA Tel: sponsors@udla-socal.com UDLA is a non-profit organization, celebrating their 25th anniversary, founded by and for physically challenged and developmentally disabled individuals and their families. As such, UDLA offers various programs and services of which many are provided free of charge. They take donations in the form of wheelchairs, TDD telephones, computers, tax-deductible monetary donation, etc. A Wheelchair Rider s Guide: Los Angeles & Orange County A Wheelchair Rider s Guide: San Francisco Bay & Nearby Coast Wheelchair Accessible Transportation: Wheelchair Getaways of California Phone: (800) getawayscaandhi@aol.com Los Angeles County Metropolitan Transit Authority One Gateway Plaza Los Angeles, CA Phone: For phone numbers of Los Angeles s taxi companies-all of which have accessible cabs visit: For a Los Angeles tourist accessibility guide visit: 38

39 The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message. 39