PENNSYLVANIA DISABILITY RESOURCES

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1 PENNSYLVANIA DISABILITY RESOURCES ARTS AND CREATIVITY VSA Arts of Pennsylvania 100 South Broad St., Suite 1141 Philadelphia, PA Tel: (215) ASSISTIVE TECHNOLOGY Pennsylvania's Initiative on Assistive Technology (PIAT) Institute on Disabilities 1301 Cecil B. Moore Ave. Ritter Annex 423 Temple University Philadelphia, PA Phone/TTY: (In State) TTY: (In State) Fax:

2 Regional ADA & IT Technical Assistance Center Marian Vessels, Director ADA and IT Information Center for the Mid Atlantic Region 451 Hungerford Drive, Suite 607 Rockville, MD (301) (V/TT); (800) (V/TTY) Pennsylvania Assistive Technology Foundation 1004 West Ninth Avenue First Floor King of Prussia, PA Phone: (National) TTY: (National) Fax: Caregivers Info Caregiver.com List support groups for Pennsylvania Well Spouse Association Main Line/Valley Forge WS King-of-Prussia Rita Herskovitz Phone: (610) Northeast Philadelphia/Abington Support Group Abington Kent Christman Phone: (215)

3 Philadelphia Senior Center Philadelphia Loretta Dahlen Phone: (215) Scranton/ Wayne County Wayne Co. Ellie Koelling Phone: (570) Lehigh Support Group Allentown Richard Schall Phone: (610) Pittsburgh WS Support Group Pittsburgh Edie Brozanski Phone: (724) Nancy Balfe Phone: (412) WS Southern PA Support Greencastle/Fayetville Karen Taylor (717) Crime Victim Assistance Victim Compensation/Victim Assistance Fax: Office of the Victim Advocate

4 Office for Victims of Crime s Directory of Crime Victim Services Choose Your State and the Type of Assistance you are looking for Safe Horizon s Links for General Crime Victim Resources/Issues Domestic Violence Help National Domestic Violence Hotline SAFE (7233) Aardvarc s Pennsylvania Domestic Violence Resources by City/County Pennsylvania Domestic Violence Crisis And Support Resources Statewide Hotline: Pennsylvania Coalition Against Domestic Violence National Resource Center 6440 Flank Drive, Suite 1300 Harrisburg, PA TOLL-FREE: Phone: FAX: Easter Seals Pennsylvania Offices Pennsylvania Easter Seals Offices. There are a total of 32 offices in PA National Easter Seals Office 230 West Monroe Street Suite 1800 Chicago, IL Phone: TTY:

5 Fax: Government Offices for Pennsylvania Commonwealth of Pennsylvania Website Pennsylvania Department of Public Welfare Office of Social Programs Health & Welfare Building, Room 533 PO Box 2675 Harrisburg, PA Pennsylvania Department of Health: Nursing Home Care Nursing Home locator Pennsylvania Medicaid Office Department of Public Welfare of Pennsylvania Health and Welfare Building, Room 515 Harrisburg, PA Phone: TTY: Pennsylvania SCHIP Office Pennsylvania's Children's Health Insurance Program 333 Market Street Harrisburg, PA (800) SHIIP (Senior Health Insurance Information Program) for seniors Commonwealth of Pennsylvania Department of Aging 555 Walnut Street 5 th Floor Harrisburg, PA Phone: Fax:

6 State Vocational Rehabilitation Agency Office of Vocational Rehabilitation Department of Labor and Industry 1521 N. 6th Street Harrisburg, PA (717) Pennsylvania Insurance Department/ State Insurance Commissioner Workers Compensation Office WC Claims Information Helpline: (in state only) Local and out of state calls: TTY: cial/siteapps/advocacy/search.aspx Find your elected officials to contact them on legislation that is important to you. Governor s Committee on Employment of People with Disabilities 1521 North Sixth Street Harrisburg, PA Phone: TTY: Fax: State LTC Ombudsman Wilmarie Gonzalez Pennsylvania Department of Aging 555 Walnut Street, 5th Floor P.O. Box 1089 Harrisburg, Pennsylvania Phone: (717) Fax: (717) The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities. Housing

7 Fannie Mae Partnership Offices Northeastern and Central Pittsburgh Partnership Office Pennsylvania Partnership Office Dominion Tower 39 Public Square, Suite Liberty Avenue, Suite 910 Wilkes-Barre, PA Pittsburgh, PA Joe Terrana, Director Howard B. Slaughter, Jr. Director (fax) (fax) Housing and Urban Development (HUD) Office for Pennsylvania Philadelphia Regional Office Milton R. Pratt, Jr. The Wanamaker Building Regional Director 100 Penn Square, East (215) Philadelphia, PA Fax (215) Pittsburgh Field Office Richard Nemoytin 339 Sixth Avenue Field Office Director Sixth Floor (412) Pittsburgh, PA Fax (412) Access Home Modification Program PA Housing Finance Agency Independent Living Centers Library Services Commonwealth of Pennsylvania libraries Special Format Library Library for the Blind and Physically Handicapped Free Library of Philadelphia 919 Walnut Street Philadelphia, PA (215) ;

8 Protection and Advocacy Center for Disability Law & Policy (Client Assistance Program) 1617 J.F.K. Blvd., Suite 800 Philadelphia, PA \ Fax: Pennsylvania Protection and Advocacy Inc N. Cameron Street, Suite C Harrisburg, PA (717) ; (800) (in PA) (717) ; (877) (TTY) Service Dogs New Life Assistance Dogs Susquehanna Service Dogs Olde Homestead Lane Nancy Fierer Lancaster, PA Le Sentier (800) Harrisburg, PA (717) FAX (717) Serve us Canines Independence Dogs, Inc. Sabina Hower M. Jean King 564 Sickman Mill Road 146 State Line Road Conestoga, PA Chaddsford, PA (717) (610) / (610) FAX Canine Partners for Life C&M Care-9s, Inc. Darlene Sullivan Carole and Michael Artim PO Box 170 Merger Mountain 334 Faggs Manor Rd. 51 Hausman Rd. Cochranville, PA Lenhartsville, PA (610) (610) (610) FAX

9 Amazing Tails, LLC 651 Scroggy Rd. Oxford, PA (717) Sports and Recreation Disabled Sports USA-- pick Chapters, pick state Pennsylvania Center for Adaptive Sports #4 Boathouse Row, Kelly Drive Philadelphia, PA Phone: Fax: Three Rivers Adaptive Sports (TRAS) PO Box Pittsburgh, PA Phone: Fax: Magee Rehab s Recreation Resource Guide to Pennsylvania for the Disabled For information on any program contact Pat Thieringer at (215) United Spinal: Sport & Recreation Philadelphia Regional Office 5000 Wissahickon Avenue Box Philadelphia, PA Phone: American DanceWheels Foundation, Inc. PO Box 88 Bala-Cynwyd, PA19004

10 Phone: Upper Main Line YMCA Adaptive Swim Lessons 1416 Berwyn-Paoli Road Berwyn, PA Phone: Mainstream swim lessons and drown proofing techniques for youth and adults with special needs. United Way Offices United Way of America Enter your postal code for a United Way in your area National Headquarters 701 North Fairfax Street Alexandria, VA Phone: Veterans Benefits US Dept of Veterans Affairs VA Hospital Locator Click on PA for VA facilities in your area Keystone Paralyzed Veterans of America 700 Old Pond Road, Suite 603A Bridgeville, PA / / Fax Chapters of the ALS Association: ALS

11 Greater Philadelphia Chapter Western Pennsylvania Chapter 321 Norristown Rd. 416 Lincoln Avenue Suite 260 Pittsburgh, PA Ambler, PA (fax) ALS Support Groups: BUCKS/MONTGOMERY RESOURCE GROUP Abington Memorial Health Ctr., Pennwood Bldg. Ground Fl., Rm. 1 (near rear of bldg.), 2500 Maryland Road Willow Grove, PA Karen Dawson-Haines CAREGIVERS & FAMILY MEMBERS RESOURCE GROUP ALS Chapter Office, Springhouse Corporate Center 321 Norristown Rd. Suite 260 Ambler, PA Karen Dawson-Haines HARRISBURG RESOURCE GROUP LEHIGH VALLEY RESOURCE GROUP Hershey Medical Center (Dining Room B) Lehigh Valley Hospital-Cedar Crest 500 University Dr. Anderson Wing, President's Room Hershey, PA Allentown, PA Judy Lyter Wendy Barnes NORTH CENTRAL RESOURCE GROUP Avis Psychological Services 302 West Central Ave Avis, PA Patricia Dershem (570) SOUTH CENTRAL - BEREAVEMENT SUPPORT GROUP BW Zimmerman Offices 4811 Jonestown Rd. Suite 227 Harrisburg, PA 17109

12 Barbara Brunk Gascho, Parish Nurse/Chaplain ALS Certified Centers The ALS Center at The The ALS Clinic, Penn Neurological Institute Milton S. Hershey Medical Center An ALSA Certified Center An ALSA Certified Center The University of Pennsylvania Penn State Geisinger Health System 330 S. 9th Street 500 University Drive Philadelphia, PA Hershey, PA Leo McCluskey, M.D. Zachary Simmons, M.D (fax) ALS Clinics University of Pittsburgh ALS Clinic Allegheny Neurological Associates Department of Neurology 420 E. North Ave 811 Kaufmann Bldg. Suite Fifth Avenue Pittsburgh, PA Pittsburgh, PA Sandeep Rana MD David Lacomis, MD Muscular Dystrophy Association s ALS Research Centers: MDA/ALS Center of Hope at Drexel University College of Medicine Philadelphia Phone: or MDA/ALS Center at the University Of Pittsburgh Medical Center Phone: Brain Injury Brain Injury Association of Pennsylvania 2400 Park Drive Harrisburg, PA 17110

13 Moss TBI Model System Moss Rehabilitation Research Institute Philadelphia, PA Telephone: University of Pittsburgh Medical Center Traumatic Brain Injury Model System University of Pittsburgh Pittsburgh, PA Telephone: Cerebral Palsy United Cerebral Palsy 1660 L Street, NW, Suite 700 Washington, DC Phone: (800) USA-5-UCP or (202) TTY: (202) Fax: (202) Contact National Office for a Chapter in your area Margaret E. Moul Home (York County Cerebral Palsy Home, Inc.) 2050 Barley Road York, PA Phone: Friedreich s Ataxia National Ataxia Foundation

14 Support Group SE Pennsylvania Support Group Liz Nussear (610) Guillain-Barré Syndrome/CIDP Guillain-Barré Syndrome / CIDP Foundation International P.O. Box 262 Wynnewood, PA Call for local info. Multiple Sclerosis National Multiple Sclerosis Society s Allegheny District 1040 Fifth Avenue 2 nd Floor Pittsburgh, PA Phone: NMSS--Central Pennsylvania 2209 Forest Hills Drive Suite 18 Harrisburg, PA Phone: NMSS-- Greater Delaware Valley One Reed Street Suite 200 Philadelphia, PA Phone: National MS Society-- Western New York/Northwestern Pennsylvania 4245 Union Road

15 Suite 108 Buffalo, NY Phone: Multiple Sclerosis Association of America MSAA Northeast Regional Office 706 Haddonfield Road Cherry Hill, NJ , ext. 106 (856) Fax (856) Pennsylvania Support Groups Langehorne Legionaire Thompson Levittown Library Town Hall Room B Barneskason Hospital New Falls Road East Main Street New Conf. First Floor Laura Lwears Dr. Stein, MD Diane Sabatelli First Saturday Second Thursday Third Friday 1 PM 7 PM 6 PM Muscular Dystrophy Muscular Dystrophy Association Enter a zip code in the Find your local MDA section to find clinics that treat MD in your area. National Headquarters 3300 East Sunrise Drive Tucson, AZ Phone: Post-Polio Health International (PHI) 4207 Lindell Blvd. #110 St. Louis, MO Post-Polio Syndrome

16 Phone: Directory lists Health Professionals, Clinics, and Support Groups by state. Clinics PHILADELPHIA JOHNSTOWN University of Pennsylvania Conemaugh Health System Mary Ann Keenan, MD William M DeMayo, MD / Fax fax Fax Spina Bifida Association of America Spina Bifida SBA of Greater Pittsburg 361 Princeton Drive Pittsburg, PA Pone: SBA of the Delaware Valley PO Box 468 Media, PA Phone: Fax: SBA of Greater Pennsylvania 215 East State Street Suite D Quarryville, PA Phone: Clinics: Good Shepherd Physician Group Milton S. Hershey Medical Center Spina Bifida Program Spina Bifida Clinic 501 St. John's St. 500 University Dr.

17 Allentown, PA Hershey, PA Phone: Phone: Geisinger Health System Shriner s Hospital for Children-Erie Spina Bifida Clinic Spina Bifida Clinic 100 N Academy Avenue 1645 West 8th St. Danville, PA Erie, PA Phone: Phone: Children's Hospital of Philadelphia Shriner's Hospital for Children Spina Bifida Program Spina Bifida Clinic 34th and Civic Center Blvd 3551 North Broad St., 4th Floor Philadelphia, PA Philadelphia, PA Phone: Phone: Moss Rehabilitation Center for Adults 1200 W. Tabor Road Philadelphia, PA Phone: St. Christopher's Hospital for Children Children's Hospital of Pittsburgh Spina Bifida Clinic Spina Bifida Clinic Erie Ave. at Front St th Ave Philadelphia, PA Pittsburgh, PA Phone: Phone: Spinal Cord Injury National Spinal Cord Injury Association (NSCIA) SCI Support Groups for Pennsylvania NSCIA SUPPORT GROUPS HEALTHSOUTH HEALTHSOUTH Rehabilitation Hospital of Altoona Greater Pittsburgh Rehabilitation Hospital 2005 Valley View Blvd McGinley Rd. Altoona, PA Monroeville, PA Telephone: (800) Telephone: (800) Delaware Valley Spinal Cord Injury Association 2610 Belmont Ave.

18 Philadelphia, PA Telephone: (215) Magee Rehabilitation SCI Resource & Support Group 6 Franklin Plaza Philadelphia, PA Telephone: (215) Fax: (215) HEALTHSOUTH Rehabilitation Hospital of York 1850 Normandie Dr., York, PA Telephone: (800) ext. 820 Contact: Lisa Schneider Stroke American Stroke Association National Center 7272 Greenville Avenue Dallas, TX Phone: Call them for the stroke support group in your area

19 Syringomyelia/Chiari Malformation American Syringomyelia & Chiari Alliance Project PO Box 1586 Longview, TX Phone: ASAP-282 Fax: Has online support groups PA Support groups 108 Moyallen Street Wilkes Barre, PA Transverse Myelitis Transverse Myelitis Association State Support groups TM MeetUp Enter your postal code for a MeetUp in your area. Meetings are usually held in local restaurants. General Disability Resources Disability Resources.org: Pennsylvania Family Village Community Center NICHCY: National Dissemination Center for Children with Disabilities

20 Pennsylvania Yellow Pages for Kids with Disabilities Exceptional Needs Foundation 8701A West Chester Pike Upper Darby, PA Phone: Fax: Moving On: A Directory of Transition Resources Distributed at no cost to students with disabilities who are planning for life after high school. Most of the entries and resources pertain to Pennsylvania. Pennsylvania chapter of the American Physical Therapy Association Suite 6, 4701 Devonshire Road Harrisburg, PA Phone: PPTA Pennsylvania chapter of the American Occupational Therapy Association Eileen Family Administrative Assistant Post Office Box Philadelphia, PA Phone: or Fax: Association for Persons in Supported Employment Pennsylvania Chapter Abilities in Motion (AIM) 416 Blair Ave. Reading PA Is a center for independent living that provides help with advocacy, independent living skills, and peer counseling. Penn State Hershey Rehab Hospital Harrisburg, PA

21 ThinkFirst National Injury Prevention Foundation 29W120 Butterfield Rd., Suite 105 Warrenville IL Phone: THINK56 Fax: ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter information in your area, please go to their website and click on the Chapter Site tab. The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message.

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