Washington Disability Resources

Transcription

1 Washington Disability Resources Affordable Care Act (ACA) HHS.gov: How the Health Care Law is Making a Difference for the People of Washington To get coverage under the ACA, go to to find out more about the Health Insurance Marketplace and the options available in your state. ARTS and CREATIVITY VSA arts of Washington 305 Harrison Street Suite 303 Seattle, WA Phone: info@vsaaw ASSISTIVE TECHNOLOGY Washington Assistive Technology Act Program (WATAP) University of Washington Center for Technology and Disability Studies P.O Box Seattle, WA Phone: (in state only) Toll free watap@uw.edu 1

2 Northwest ADA Center Center for Continuing Education in Rehabilitation University of Washington th St S.W., Suite 105 Mountlake Terrace, WA Phone: Toll-free: Washington Access Fund Washington Assistive Technology Foundation 100 South King, Suite 280 Seattle, WA Phone: TTY: MS Helping Hands (MSHH) 409 Howell Way Edmonds, WA Phone: (425) MSHH is a non-profit organization that runs a donor closet. They accept and recycle Durable Medical Equipment (DME) and Mobility Equipment to people with special needs who have been denied these items by Medicare, Medicaid, DSHH, insurance companies, etc. Items often found in their closet include scooters, wheelchairs, crutches, lifts, hospital beds, commodes, transfer boards, and more. CAREGIVERS INFORMATION Washington Caregiver Support Groups Well Spouse Association Seattle Well Spouse Support Group Carin Mack Phone: (206) socialwkr@earthlink.net Vancouver Well Spouse Support Group Donita Parker Phone:

3 COMMUNITY-BASED FITNESS PROGRAMS The Reeve Foundation has several Community Fitness and Wellness facilities that are part of its NeuroRecovery Network (NRN) program. These facilities are accepting individuals with walking difficulties related to any cause (not just SCI) and are hosting activity-based exercise programs designed specifically for individuals with physical disabilities. There is not one in this state but if you would like to learn more about the program, please go to CRIME VICTIM ASSISTANCE Washington Crime Victim Compensation and Assistance Victim Compensation Phone: Office for Victims of Crime s Directory of Crime Victim Services Choose Your State and the Type of Assistance you are looking for Safe Horizon s Links for General Crime Victim Resources/Issues DOMESTIC VIOLENCE HELP National Domestic Violence Hotline: SAFE (7233) National Resource Center on Domestic Violence: Statewide Hotline: Washington Coalition of Sexual Assault Programs th Ave. SE, Suite 102 Olympia, WA Phone: TTY: info@wcsap.org Washington State Coalition Against Domestic Violence 500 Union St. 3

4 Suite 200 Seattle, WA Phone: Second office: 711 Capitol Way, Suite 702 Olympia, WA Phone: Aardvarc.org s Washington Domestic Violence contact information by City/County EASTER SEALS OFFICES Easter Seals Go to Search by State, choose Washington in dropdown box Bremerton 1740 NE Riddell Road Bremerton, WA Phone: Renton 1602 Raymond Avenue SW Renton, WA Phone: Seattle Growing Years Child Development Center 4735 East Marginal Way South Seattle, WA Phone: SeaTac Angel Lake Child Development Center 4040 S. 188 th St. Seatac, WA Phone: State Office 200 W. Mercer St. Suite E210 Seattle, WA Phone:

5 Spokane 606 Sharp Spokane, WA Phone: N. Cook St. Spokane, WA Phone: Vaughn S. Vaughn Road KPN Vaughn, WA Phone: Yakima Jane s House Child Development Center 1101 S. 13 th Ave. Yakima, WA Phone: GOVERNMENT OFFICES Washington State Website Washington State Department of Social and Health Services DSHS Constituent Services PO Box Olympia, WA Phone: Washington State Human Rights Commission 711 S. Capitol Way, Suite 402 Olympia, WA Phone: Toll-free: (English or Spanish) TTY: Washington State Health Care Authority: Medicaid Apple Health Phone:

6 Washington SCHIP Program (State Children s Health Insurance Program) Apple Health for Kids Phone: Washington SHIIP Program (State Health Insurance Information Program - for Seniors) SHIBA (Statewide Health Insurance Benefits Advisors) Phone: Toll-free: Washington State Health Insurance Pool P.O. Box 1090 Great Bend, KS Phone: Washington High Risk Insurance Plan for eligible people who are unable to get insurance coverage. Washington Insurance Commissioner Washington State Worker s Compensation Phone: cial/siteapps/advocacy/search.aspx Find your elected officials to contact them on legislation that is important to you. State LTC Ombudsman State LTC Ombudsman Program 1200 S. 336 St. Federal Way, WA Phone: The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities. HOUSING Washington Independent Living Centers 6

7 Fannie Mae Check with them for local offices. Washington Housing and Urban Development (HUD) Office Seattle Regional Office Seattle Federal Office Building 909 First Avenue, Suite 200 Seattle, WA Phone: LIBRARY SERVICES Washington Talking Book & Braille Library Administered by Seattle Public Library th Avenue Seattle, WA Phone: NeuroRecovery Network (NRN) The NRN is a network of rehab programs designed to provide locomotor (treadmill) training to promote functional recovery and improve the health and quality of life for people living with paralysis. The program is for people with spinal cord injuries. The NRN is a program of the Reeve Foundation. There is no NRN center in this state but if you are interested in finding one outside of this state, please go to Client Assistance Program (CAP) 2531 Rainier Avenue South Seattle, WA Phone: jcap@qwestoffice.net PROTECTION and ADVOCACY 7

8 Disability Rights Washington 315 5th Avenue South, Suite 850 Seattle, WA Phone: Toll-free: (nationwide) SERVICE DOGS Paws Abilities (predominately an obedience school) 914 Industry Drive #22 Tukwila, WA Phone: Summit Assistance Dogs PO Box 699 Anacortes, WA Phone: Cedarwoods Canine School 6497 Woodlyn Rd. Ferndale, WA Phone: Prison Pet Partnership Program PO Box 17 Gig Harbor, WA Phone: C.A.S.T. for Kids Foundation 227 S.W. 41 st Street Renton, WA Phone: (425) SPORTS and RECREATION 8

9 Disabled Sports USA click Chapters, pick Washington Footloose Sailing Association 7683 SE 27 th St., PMB #239 Mercer Island, WA Phone: Seattle Adaptive Sports 1111 East Madison St. #137 Seattle, WA Phone: Outdoors for All Foundation 6344 NE 74 th St., Suite 102 Seattle, WA Phone: Washington Trails Association: Accessible Trails Washington State Accessible Outdoor Recreation Guide Washington State Parks BlazeSports Spokane Team St. Luke s Phone: (509) UNITED WAY OFFICES National United Way National Headquarters 701 North Fairfax Street Alexandria, VA Phone: Enter postal code for a United Way office in your area 9

10 VETERAN BENEFITS US Department of Veterans Affairs VA Hospital Lists all VA facilities in Washington state Washington Chapter Paralyzed Veterans of America Offices 616 SW 152 nd Street, Suite B Burien, WA Phone: pvachnw@mindspring.com ALS The ALS Association (ALSA) National Office 1275 K Street NW, Suite 1050 Washington, DC Phone: Call for info in your area Evergreen Chapter of ALSA th Avenue S Suite H-105 Kent, WA Phone: info@alsa-ec.org Oregon and SW Washington Chapter of ALSA 700 NE Multnomah Street Suite 1180 Portland, OR Phone: info@alsa-or.org 10

11 Washington ALSA Support Groups listed here Muscular Dystrophy Association s ALS Research Center: MDA/ALS Center at the University of Washington Medical Center Michael Weiss, M.D., Director Department of Neurology/Electromyography 1959 NE Pacific, Suite Seattle, WA Brain Injury Alliance of Washington BIAWA P.O. Box 3044 Seattle, WA Toll Free: admin@biawa.org BRAIN INJURY Washington TBI Model System University of Washington UW Department of Rehabilitation Medicine 325 Ninth Ave. Seattle, WA Phone: CEREBRAL PALSY United Cerebral Palsy Oregon & SW Washington Office 305 NE 102 nd Ave., Suite 100 Portland, OR Phone: ucpa@ucpaorwa.org FRIEDREICH S ATAXIA 11

12 National Ataxia Foundation 2600 Fernbrook Lane Suite 119 Minneapolis, MN Phone: Please contact them for local chapters or support groups in Washington Seattle Area Support Groups Milly Lewendon th Ave. NE Kirkland, WA Phone: (425) GUILLAIN-BARRÉ SYNDROME / CIDP Guillain-Barré Syndrome / CIDP Foundation International The Holly Bldg., 104 ½ Forrest Ave. Narberth, PA Phone: Call for information in your area MULTIPLE SCLEROSIS National Multiple Sclerosis Society s Washington Chapter 192 Nickerson Street Suite 100 Seattle, WA Phone: 800 FIGHT MS ( ) greaterwainfo@nmsswas.org Multiple Sclerosis Association of America Northwest Regional Office (Alaska, Oregon, Nevada, Utah, Arizona, Washington, Hawaii) 584 Castro St. #846 San Francisco, CA Phone: Toll-free: ext western@mymsaa.org MS Helping Hands (MSHH) 12

13 9792 Edmonds Way, #229 Edmonds, WA Phone: (425) MSHH is a non-profit organization that runs a donor closet. They accept and recycle Durable Medical Equipment (DME) and Mobility Equipment to people with special needs who have been denied these items by Medicare, Medicaid, DSHH, insurance companies, etc. Items often found in their closet include scooters, wheelchairs, crutches, lifts, hospital beds, commodes, transfer boards, and more. MSHH also provides financial assistance to people with MS who have lived in Washington state for at least one year and have exhausted all other means of support. The maximum amount of a grant being requested shall not exceed $1,500 per year except on very special serious conditions. Please see their website or call for other details. MUSCULAR DYSTROPHY Muscular Dystrophy Association National Headquarters 3300 East Sunrise Drive Tucson, AZ Phone: Enter your postal code in the Find your local MDA section of the website for MD clinics in your area. POST-POLIO SYNDROME Post-Polio Health International (PHI) 4207 Lindell Blvd. #110 St. Louis, MO Phone: info@post-polio.org Directory lists Health Professionals, Clinics, and Support Groups by state. Spina Bifida Association of America P.O. Box Arlington, VA Phone: sbaa@sbaa.org Please contact them for info in your area SPINA BIFIDA 13

14 SBAA Washington Clinics: Children's Hospital and Regional Medical Center 4800 Sandpoint Way NE Seattle, WA Phone: Shriner's Hospital for Children Myelodysplasia Clinic 911 W 5th Ave. Spokane, WA Phone: SPINAL CORD INJURY Spinal Cord Injury Association of Washington 200 2nd AVE W Seattle, WA info@sciaw.org Northwest Regional Spinal Cord Injury System Model SCI facility University of Washington Department of Rehabilitation Medicine Box Seattle, WA Phone: nwrscis@u.washington.edu Pushing Boundaries th Ave NE, Bldg. 1 Redmond, WA Phone: info@pushingboundaries.org SCI rehab and exercise facility. They are offering FES biking, exercise and gait training. STROKE 14

15 American Stroke Association National Center 7272 Greenville Avenue Dallas, TX Phone: Call them for the stroke support group in your area Primary Stroke Centers accredited by the Joint Commission on Accreditation of Healthcare Organizations: Harborview Medical Center 325 Ninth Avenue Box Seattle, WA Phone: Providence Sacred Heart Medical Center 101 W. 8th Avenue Spokane, WA Phone: Peace Health Southwest Washington Medical Center 400 Mother Joseph Place Vancouver, WA Phone: Swedish Health Services, Stroke Program 747 Broadway Seattle, WA Phone: Virginia Mason Medical Center 1100 Ninth Avenue Seattle, WA Phone:

16 SYRINGOMYELIA/CHIARI MALFORMATION American Syringomyelia & Chiari Alliance Project PO Box 1586 Longview, TX Phone: ASAP Support Group: Michele McGraw Edmonds, WA Phone: American Syringomyelia & Chiari Alliance Project Online Support Group TRANSVERSE MYELITIS Transverse Myelitis Association 1787 Sutter Parkway Powell, OH Phone: Please contact them for info in your area. TM & Rheumatic Disorders Support Group Sharon Robinson 111 Carter Dr. Bellingham, WA Phone: TM MeetUp Enter your postal code for a MeetUp in your area. Meetings are usually held in local restaurants. 16

17 GENERAL DISABILITY RESOURCES Disability Resources.org: Washington Washington NICHCY: National Dissemination Center for Children with Disabilities Click on State organizations, pick Washington Washington Yellow Pages for Kids with Disabilities DO-IT: Disabilities, Opportunities, Internetworking and Technology University of Washington Box Seattle, WA Phone: DOIT (3648) DOIT (3648) DOIT (3648 Outside Seattle) Newsletter available online at Promotes educational opportunities for people with disabilities. Washington Chapter of the American Occupational Therapy Association Washington Occupational Therapy Association Tammy Shorr, Secretary Highway 99, Suite 2C Edmonds, WA Phone: Washington Chapter of the American Physical Therapy Association Physical Therapy Association of Washington 208 Rogers Street, NW Olympia, WA Phone: ext Washington First Call Phone:

18 Provides callers with information about and referrals to human services for every day needs and in times of crisis. Can offer access to the following types of services: adult day care, respite care, home health care, transportation, support groups, Medicaid/Medicare, etc. The caller is provided with phone numbers, programs and services provided, location, hours of operation, and any other relevant information for the inquiry. All calls are confidential. Provail Aurora Ave North Seattle, WA, Phone: Toll-free: Provides services for adults and children with disabilities such as assistive technology, employment training, dental clinic, etc. Northwest Regional Spinal Cord Injury System s Community Mobility: Getting Where You Want to Go online video A taped forum on transportation options for people with disabilities in the greater Seattle area. ThinkFirst National Injury Prevention Foundation 1801 N. Mill Street, Suite F Naperville, IL Phone: THINK56 thinkfirst@thinkfirst.org ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter information in your area, please go to their website and click on the Chapter Site tab. The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message. 18