Utah Disability Resources

Transcription

1 Utah Disability Resources Affordable Care Act (ACA) HHS.gov: How the Health Care Law is Making a Difference for the People of Utah To get coverage under the ACA, go to to find out more about the Health Insurance Marketplace and the options available in your state. Art Access/VSA arts of Utah 230 South 500 West #125 Salt Lake City, UT Tel: TTY: ARTS and CREATIVITY ASSISTIVE TECHNOLOGY Utah Assistive Technology Program Center for Persons with Disabilities 6835 Old Main Hill Logan, UT Phone: TTY: Fax: uatpat@cc.usu.edu 1

2 Rocky Mountain ADA Center (covers Utah) 3630 Sinton Road, Suite 103 Colorado Springs, CO Phone/TTY: Toll-free: Utah Alternative Financing Program aka Utah Assistive Technology Foundation Center for Persons with Disabilities 6835 Old Main Hill Logan, UT Phone: TTY: Toll-free: CAREGIVERS INFORMATION Utah Caregiver Support Groups Neuroworx South Jordan Gateway South Jordan, UT Phone: Fax: A Reeve Foundation NRN center. COMMUNITY-BASED FITNESS PROGRAMS CRIME VICTIM ASSISTANCE Utah Crime Victim Compensation and Assistance Utah Office for Victims of Crime (UOVC) 350 East 500 South Suite 200 Salt Lake City, Utah Phone: (801) Toll-free: (800)

3 Office for Victims of Crime s Directory of Crime Victim Services Choose Your State and the Type of Assistance you are looking for Safe Horizon s Links for General Crime Victim Resources/Issues DOMESTIC VIOLENCE HELP National Domestic Violence Hotline: SAFE (7233) National Resource Center on Domestic Violence: Statewide Hotline: Aardvarc.org s Utah Domestic Violence contact information by City/County Utah Domestic Violence Council 320 West 200 South Suite #270 B Salt Lake City, UT Phone: (801) Toll-free: EASTER SEALS OFFICES Easter Seals Find offices in Utah by clicking on right hand side of website under Search by State Utah State Website Utah Developmental Disabilities Council 155 S. 300 W., Suite 100 Salt Lake City, UT Phone: GOVERNMENT OFFICES 3

4 Utah State Office of Rehabilitation PO Box Salt Lake City, UT Phone: Utah Department of Human Services 195 North 1950 West Salt Lake City, Utah Phone: (801) Utah Medicaid Office Utah Department of Health P.O. Box Salt Lake City, UT Phone: Utah CHIP Program (Children s Health Insurance Program) Utah Children's Health Insurance Program Utah Department of Health P.O. Box Salt Lake City, UT Toll-Free: State Health Insurance Information Program (SHIIP) for seniors Utah Division of Aging and Adult Services Department of Social Services (In-State Calls only) Utah Comprehensive Health Insurance Pool (HIPUtah) 3110 State Office Bldg. Salt Lake City, UT Phone: Utah High Risk Insurance Plan for eligible people who are unable to get insurance coverage. Utah Insurance Commissioner Utah Insurance Dept State Office Bldg. Salt Lake City, UT Phone:

5 Utah Workers Compensation Labor Commission of Utah 160 E. 300 S., 3 rd Floor Salt Lake City, UT Phone: d_official/siteapps/advocacy/search.aspx Find your elected officials to contact them on legislation that is important to you. State LTC Ombudsman Daniel Musto Department of Human Services Utah Division of Aging & Adult Services 195 North 1950 West Salt Lake City, Utah Phone: (801) The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities. HOUSING Utah Independent Living Centers Fannie Mae Fannie Mae Southwestern Regional Office International Plaza II Dallas Parkway, Suite 1000 Dallas, TX Phone: HOME (4663) Areas served: Arizona, Arkansas, Colorado, Kansas, Louisiana, Missouri, New Mexico, Oklahoma, Texas, Utah 5

6 Utah Housing and Urban Development (HUD)Office Salt Lake City Field Office Department of Housing and Urban Development 125 South State Street Suite 3001 Salt Lake City, UT Phone: TTY: LIBRARY SERVICES Utah State Library for the Blind and Disabled Regional Library Utah State Library Division Program for the Blind and Disabled 250 North 1950 West, Suite A Salt Lake City, UT Telephone: Toll-free (In-state): TDD: blind@utah.gov NeuroRecovery Network (NRN) The NRN is a network of rehab programs designed to provide locomotor (treadmill) training to promote functional recovery and improve the health and quality of life for people living with paralysis. The program is for people with spinal cord injuries. The NRN is a program of the Reeve Foundation. There is no NRN center in this state but if you are interested in finding one outside of this state, please go to Utah Protection and Advocacy Disability Law Center 205 North 400 West Salt Lake City, UT \ TTY: PROTECTION and ADVOCACY 6

7 SERVICE DOGS Canine Companion Concepts Bob Reid 859 N. 300 East Spanish Fork, UT Phone: (801) Common Ground Outdoor Adventures 335 N. 100 East Logan, UT Phone: Chairbound Hunters, Utah Chapter P.O. Box Provo, UT Cell Phone: ( ) National Ability Center P.O. Box Ability Way Park City, UT Contact Person: Meeche White Phone: Fax: SPORTS and RECREATION SPLORE (Special Populations Learning Outdoor Recreation and Education) 880 East 3375 South Salt Lake City, UT Phone: TRAILS (Therapeutic Recreation and Independent Lifestyles) 7

8 University of Utah Hospital 50 North Medical Drive Salt Lake City, UT Phone: TRAILS, which is run by the Spinal Cord Injury Rehabilitation Center at the University of Utah, serves roughly 400 people each year. Activities include kayaking, sailing, camping, cross-country skiing, swimming, hand cycling and wheelchair tennis. UNITED WAY OFFICES National United Way Enter postal code for a United Way office in your area National Headquarters 701 North Fairfax Street Alexandria, VA Phone: VETERAN BENEFITS US Department of Veterans Affairs VA Hospital Locator, click on UTAH on map Mountain States Paralyzed Veterans of America E. Iliff Ave., Suite 107 Aurora, CO Phone: (303) Toll-free: (800) info@mscpva.org ALS The ALS Association National Office 1275 K Street NW, Suite 1050 Washington, DC Phone:

9 Brain Injury Association of America 1608 Spring Hill Rd., Suite 110 Vienna, VA Phone: Family Helpline: Please contact them for any state info. UCP (United Cerebral Palsy) 1825 K St. NW Washington DC Toll-free Phone: Please contact them for any state info. BRAIN INJURY CEREBRAL PALSY FRIEDREICH S ATAXIA National Ataxia Foundation 2600 Fernbrook Lane, Suite 119 Minneapolis, MN Phone: NAF s Utah Support Group Lisa Ord, PhD, LCSW University of Utah - Moran Eye Clinic 65 Mario Copecchi Dr Salt Lake City, UT Phone: Lisa.ord@hsc.utah.edu GUILLAIN-BARRÉ SYNDROME/CIDP 9

10 Guillain-Barré Syndrome / CIDP Foundation International The Holly Bldg., 104 ½ Forrest Ave. Narberth, PA Phone: Call for information in your area MULTIPLE SCLEROSIS National Multiple Sclerosis Society s Utah-Southern Idaho Chapter 1440 Foothill Drive, Suite 200 Salt Lake City, UT Phone: Toll-free: (800-FIGHT-MS), option 2 utah.idaho@nmss.org Phone: National toll-free: FIGHT-MS info@fightmsutah.org Multiple Sclerosis Association of America s Western Regional Office (Arizona, California, Hawaii, Nevada, Oregon, Utah) 1819 Polk Street Mailbox #326 San Francisco, CA Toll-free Phone: , ext.155 Phone: MUSCULAR DYSTROPHY Muscular Dystrophy Association National Headquarters 3300 East Sunrise Drive Tucson, AZ Phone: Enter your postal code in the "Find your local MDA" section of the website for MD clinics in your area. POST-POLIO SYNDROME 10

11 Post-Polio Health International (PHI) 4207 Lindell Blvd. #110 St. Louis, MO Phone: Directory lists Health Professionals, Clinics, and Support Groups by state. SPINA BIFIDA Spina Bifida Association of America 4590 MacArthur Blvd NW, Suite 250 Washington, DC Phone: Toll-free: Click on Find a Chapter to get local info. SPINAL CORD INJURY Utah Partner of the Christopher & Dana Reeve Foundation Katie Johnson-Hill, Chairperson Cell: Office: Fax: kjohnson-hill@comcast.net STROKE American Stroke Association National Center 7272 Greenville Avenue Dallas, TX Phone: Call them for the stroke support group in your area 11

12 American Heart Association office: 465 South 400 East, Suite 110 Salt Lake City, UT, Primary Stroke Care Centers-accredited by the Joint Commission on Accreditation of HealthCare Organizations (JCAHO): University of Utah Hospital and Clinics 30 N E 3R226 Salt Lake City, UT SYRINGOMYELIA/CHIARI MALFORMATION American Syringomyelia & Chiari Alliance Project PO Box 1586 Longview, TX Phone: ASAP info@asap.org Please contact them for info in your area. TRANSVERSE MYELITIS Transverse Myelitis Association State Support groups 1787 Sutter Parkway Powell, OH Phone: Please contact them for info in your area. TM MeetUp Enter your postal code for a MeetUp in your area. Meetings are usually held in local restaurants. GENERAL DISABILITY RESOURCES 12

13 Disability Resources.org: Utah Family Village Resources for Utah Utah NICHCY: National Dissemination Center for Children with Disabilities Utah Yellow Pages for Kids with Disabilities Utah Chapter of the American Occupational Therapy Association Utah Occupational Therapy Association Jeanette Koski Public Relations Chair P. O. Box Salt Lake City, UT Phone: President: Katherine Bruner, OTR/L Utah Chapter of the American Physical Therapy Association Utah Physical Therapy Association PO Box 91 Centerville, UT Amberleigh Farrell, Executive Secretary Association of People Supporting EmploymentFirst (APSE)-Utah Chapter Healthboards.com - message boards on health related topics. Topics include SCI, CP, Stroke, and more. First Call Phone: 211 Provides callers with information about and referrals to human services for every day needs and in times of crisis. Can offer access to the following types of services: adult day care, respite care, home health care, transportation, support groups, Medicaid/Medicare, etc. The caller is provided with phone numbers, programs and services provided, 13

14 location, hours of operation, and any other relevant information for the inquiry. All calls are confidential. Hint: Can only be dialed from a land line. If you dial 211 or your state s number and you are not connected, this service has not yet been provided to your area. Ability Found Attn: Ernest Robison Ph.D S. Greenpine Drive Salt Lake City, UT Toll-free: Phone: info@abilityfound.org Helps individuals with disabilities (who are in financial need) purchase equipment such as power wheelchairs, power scooters, manual wheelchairs with custom seating, handicapped vans, walkers, gait trainers, standing frames, bath equipment, continence supplies, braces hospital beds and pressure relieving mattresses. Please contact Ability Found for details on qualifying for their assistance. ThinkFirst National Injury Prevention Foundation 1801 N. Mill Street, Suite F Naperville, IL Phone: THINK56 thinkfirst@thinkfirst.org ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter information in your area, please go to their website and click on the Chapter Site tab. The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message. 14