Family members or carers of people who have a personal budget

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1 Family members or carers of people who have a personal budget Please tell us what you think

2 Family members or carers of people who have a personal budget These questions are for anyone who cares for someone living in England who has a personal budget. This survey is being done by the Putting People First consortium, In Control, and Lancaster University. Your answers will help us find out how personal budgets and direct payments are working. About this survey These questions are only for people who are a family member or care for someone who has a personal budget. These questions are about you, not the person you care for. If you are not a family member or carer for someone with a personal budget or direct payment please do not answer these questions. 1

3 There are different questions if you are someone who has a personal budget. You can ask someone independent like a friend or advocate to help you. There are 18 questions to answer. Keeping your personal information safe We will not ask for your name or personal information. We will not give your council a copy of your individual answers. Other people will not be able to tell which are your answers in reports or other information about this survey. Please read the agreement below and let us know if you are happy to answer the questions. Agreement I am happy to answer the questions and for my answers to be used in the way that has been explained. Yes No 2

4 Question 1 Which council provides your personal budget? Questions about you as a carer Question 2 Who do you give care and support to? Your partner Any older member of your family, like a parent A grown up son or daughter Someone else like a friend or neighbour 3

5 Question 3 How many hours a week do you spend caring for this person? Question 4 Do you live in the same house as the person you care for? Yes No Question 5 Do you get any help from social services for yourself? A carer s personal budget or direct payment A personal budget or direct payment because of my own needs Other. Please tell us what below: 4

6 Questions about the person you care for Question 6 Did the person you care for get any support from social services before they got a personal budget? Yes No Question 7 How long have they had a personal budget? Less than 1 year Between 1 and 3 years More than 3 years 5

7 Changes in your life These questions are about things that have changed in your life and the things you planned to do.? Question 8 Has a personal budget for the person you care for changed any of these things for you? Your finances the amount of money you have Made things a lot worse Made things worse Not made any difference Made things better Made things a lot better 6

8 Having the support you need to continue caring and remain well Made things a lot worse Made things worse Not made any difference Made things better Made things a lot better Your quality of life Made things a lot worse Made things worse Not made any difference Made things better Made things a lot better 7

9 Your physical and mental well-being Made things a lot worse Made things worse Not made any difference Made things better Made things a lot better Your social life Made things a lot worse Made things worse Not made any difference Made things better Made things a lot better 8

10 Being able to do paid work Made things a lot worse Made things worse Not made any difference Made things better Made things a lot better Your relationship with the person you care for Made things a lot worse Made things worse Not made any difference Made things better Made things a lot better 9

11 Your relationships with other people who are important to you (like family and friends) Made things a lot worse Made things worse Not made any difference Made things better Made things a lot better Choice and control you have over the important things in your life Made things a lot worse Made things worse Not made any difference Made things better Made things a lot better 10

12 Question 9 When the support plan was written, were your views and opinions fully included? Yes, very much Yes, mostly A little No, not really No, not at all 11

13 Question 10 If you want to say anything else about personal budgets please write it here: 12

14 Equalities monitoring The next questions are to help us see if personal budgets are working for different groups of people. You can skip any of the questions you do not want to answer. We do not need your name and will keep your information safe. Question 11 Are you: A man A woman 13

15 Question 12 How old are you: 16 to 24 years old 25 to 34 years old 35 to 44 years old 45 to 54 years old years old Older than 65 years old A law called the Disability Discrimination Act says that you are disabled if: it is very hard for you to do normal everyday things you have found these things hard for at least 1 year 14

16 Question 13? Do you have a disability that affects you like this? Yes No Question 14 Please tell us about any disabilities you have. If your disability is not in this list please choose other. Physical disability Sensory impairment Mental health condition Learning disability Long standing illness or health condition Other (tell us if you want to) 15

17 Question 15 Are you: White Black or Black British Mixed Any White background White and Black Caribbean White and Black African White and Asian Any other mixed background Caribbean African Any other Black background Chinese or other ethnic group Chinese Any other background Asian or Asian British Indian Do not want to say Pakistani Bangladeshi Any other Asian background 16

18 Question 16 What is your religion? No religion Christian Buddhist Hindu Jewish Muslim Sikh Any other religion Do not want to say 17

19 Question 17 Are you: Heterosexual/ Straight Gay or lesbian Bisexual Other Do not want to say Question 18 Please tell us what you thought about answering these questions about personal budgets: 18

20 Thank you for telling us what personal budgets have been like for you. Credits This paper has been designed and produced by the EasyRead service at Inspired Services Publishing Ltd. Ref ISL230/10. October European Easy-to-Read logo: Inclusion Europe 19

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