Maritta Perälä-Heape

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1 Maritta Perälä-Heape

2 OULU INNOVATION ALLIANCE (OIA) BRINGS TOGETHER REGIONAL STAKEHOLDERS MODE OF OPERATION Systematic, contract-based RD co-operation between regional players Composing and coordinating multidisciplinary RD projects and programmes Supporting business driven RD Facilitating strategic cooperation through international networks and partnerships GOALS AND OUTCOMES Channeling of ideas and expertise for practical use Increasing R&D investments New business opportunities

3 From regional to national and global collaboration Finnish academy Tekes VTT University of Oulu Open Knowledge Foundation City of Oulu OAMK OKF CHT H2020 Innovati ve cities program Ministries OYS Busin ess Oulu Technopolis Regional Concil

4 Paradigm change in healthcare and Finnish national programs led by OIA partners CHALLENGE Provider centric Reactive healthcare Spending in treatment Clinical data in focus Health data stored in silos Quantifying self not linked to clinical workflows Premature Digital health market INKA Future Health Digital Health Revolution Human centric SOLUTION Proactive healthcare Spending in prevention and health promotion All health related data has relevance and is controlled by citizens Seamless MyData based service ecosystem Evidence based self care solutions Open innovation platforms

5 Citizen s involvement is made easy - Opportunity for Digital health market S Health Platform Value added through Data integration platform New apps, analytics built on integrated data Holistic view of individual health and fitness Business model = drive smartphone / tablet sales or health / wellness services? Source: Frost & Sullivan

6 Digital Health Revolution Human centric proactive healthcare Maritta Perälä-Heape, Director

7 Hidden health parameters are treasures to maintain health over one s lifetime HEALTH PROMOTION & RISK MANAGEMENT DISEASE & RISK MANAGEMENT REHABILITATI ON & OUT HOSPITAL CARE from a static health system to a learning one that improves individual, community and population health The life-long journey to Better Health and Care

8 My(personal) Data is used to create a picture of a healthy human and to use that data to proactively identify and address health problems We will contribute to the change in the control of data in favor of the individual explore health-related data from genomics to digital footprint develop successful personal data movement across systems and services build pilots of new service concepts study the business logics and consumer involvement invite actors to join the Mydata ecosystem

9 Towards Personalized, predictive, preventive, participatory service ecosystem PROACTIVE DIGITAL HEALTCARE SOCIETY MYDATA BASED SERVICES NEW DIGITAL HEALTH MARKETPLACE REAL-TIME SELF-MANAGEMENT OF HEALTH AND WELLBEING

10 - Outcomes so far Personalized, predictive, preventive, participatory service ecosystem PROACTIVE DIGITAL HEALTCARE SOCIETY MYDATA BASED SERVICES NEW DIGITAL HEALTH MARKETPLACE MY Data Principles My Data architecture definition My data clinics Research Pilot set up Ethical and regulatory, privacy issues on data sharing User interface and My Data My Data ecosystem players Benchmarking REAL-TIME SELF-MANAGEMENT OF HEALTH AND WELLBEING

11 What is My Data? My Data is a human-centered approach to personal information management and processing. My Data is a global phenomenon and the future scenario, around which technology and business is being developed at a growing pace. My data principles: Human Centric: individual in control, transparency to personal data usage, privacy, trust Usability of Data: guarantee data portability, machine readable, open formats, APIs, standards Open Business Environment: interoperability, possibility to change services without data locks Source: Human Centric Approach for organizing Personal Data; Ministry of Transport&Communication

12 DHR PILOT

13 Intelligent & real time communication with several service providers- MyData to action Digital check up with validated self services

14 Forerunners in precision medicine and holistic view in health President Obama: a new Precision Medicine Initiative will bring us closer to curing diseases like cancer and diabetes and to give all of us access to the personalized information we need to keep ourselves and our families healthier, Dr. Eric Topol: Deep personal data from an individual is a comprehensive picture of health Leonard J Kish & Eric J Topol: Unpatients why patients should own their medical data- For the benefits of digital medicine to be fully realized, we need not only to find a shared home for personal health data but also to give individuals the right to own them Prof. Leroy Hood (the Institute of Systems biology, Seattle): Medicine gets up close and personal if personal health data is fed back to participants via life coaches

15 Political environment supports the use of personal data and it s openness In Finland A new strategy for information and data management in health and social care in preparation (MyData working group & Exploitation of personal data in future health care systems) The strategic government plan: Finland will strengthen citizen s right to monitor and control the use of their personal data, and at the same time guarantee the fluid exchange of data between public authorities A radical health care reform on-going: the responsibility to organize care will be the task of five special responsibility areas (SOTE) instead of present system where municipalities share the task.

16 Thank You Maritta Perälä-Heape, Director Centre for Health and Technology Maritta.perala-heape(at)oulu.fi

Centre for Health and Technology. Maritta Perälä-Heape

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