Directory of Services for Disabled Children and Young People. Birth-19 Years

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1 Directory of Services for Disabled Children and Young People Aged Birth-19 Years

2 Contents Introduction 3 Universal, Targeted and Specialist Services- what does this mean? 3 More about this Directory 3 Applying for a Short Break 4 Tower Hamlets Core Offer 5 Family Information Service 6 Service Key 7 Services for children aged Birth-5 years 9 Short Breaks: Nursery and Play Services 9 Services for Children and Young People aged 5-19 years 13 Short Breaks: Playschemes and Activities 13 Short Breaks: Family Activities 17 Overnight Short Breaks 18 Family Support Services 20 Services for Children with Complex Healthcare Needs 21 Other Social/Sport Activities and Services 23 Specialist Support and Health Services 28 Services assisting with Travelling 34 Other Services for Disabled Children 35 Useful Websites 42 Local Parent/Carer Support Groups and Services 43 2

3 Introduction Many thanks to the families and professionals involved in shaping this directory, which has been produced for families with disabled children and young people by the Integrated Services for Disabled children of the London Borough of Tower Hamlets. Universal, targeted and specialist services - what does this mean? At Tower Hamlets, we aim to meet the needs of disabled children through universal and inclusive settings. However the need or disability may also require targeted provision. The two categories are described below: Universal Services: Universal services seek, in conjunction with parents and families, to meet all the needs of children and young people so that they are happy and healthy and able to learn and develop securely. Universal services are provided as a right to all children, including those with targeted and specialist needs. Examples include maternity services at birth, health visiting, the chance to use children s centres in early years, schools, extended schools services, youth services and Connexions in their teenage years. Targeted and Specialist Services: Services for children and their families with additional and vulnerable needs that go beyond what is on offer in the range of universal services are known as targeted services. Examples include behaviour support or additional help with learning in school, extra support for parents during the early years stage of their children, such as the Portage Team, or targeted youth support service. Specialist services are where the needs of the child and their family are significant to need intensive or statutory intervention to ensure their needs are being met. More about this Directory The directory sets out a range of short breaks for children and young people with disabilities, which are fun and stimulating allowing them to enjoy new experience, form new friendships and become more independent. Short breaks also offer breaks to families from the demands of caring responsibilities. The directory also lists other support services aimed at improving the personal development of children and young people and helping families to reach their full potential in caring for children with disabilities. The directory is not an exhaustive list of services, however it attempts to bring together information that is handy for parents. The needs of a majority of disabled children are met within universal services without the need for an assessment. Families can access certain short breaks directly or can ask for an assessment if there is a change in circumstances or if more than one service is required. A short break can be accessed by one of the following: 1. The Self-referral form 2. Common Assessment Framework (CAF) 3. An initial assessment (which combines with a Carers Assessment) Directory of Services for Disabled Children 3

4 Applying for a Short Break You can apply for a short break service for your child by completing the short breaks self-referral form which can be obtained from the Short Breaks Co-ordinator by calling or short.breaks@towerhamlets.gov.uk To request an assessment or access more than one specialist service, you can contact the Children with Disabilities Team on Assessments are completed by a professional. This takes into account the child s development, parent capacity and family and environmental factors, as families may have the same needs but manage differently. 4

5 tower core hamlets offer Services for disabled children in the borough are provided by integrated teams across health and Children, Schools & Families for effective joint working to meet the needs of disabled children with a timely and coordinated approach. The Core Offer is intended for parents, children and young people locally, so that families with disabled children know how the Core Offer will be in their area. There are three components of the basic offer as set out below. The bullet points describe the local offer to families. 1. Information and transparency: The information provided should be tailored to the individual needs of children and their parents and can be readily accessible. m Services available and eligibility criteria are outlined in this Directory of Services for Disabled Children and the Transition into Adult Services Directory m Short breaks statement accessible through the internet m Self referral process for short breaks (for universal and specialist provision) m National Continuing Care Criteria Guidance applied m Every Disabled Child Matters Charter 2. Assessment: Disabled children and young people receive child centred multi agency co-ordinated services from the point of referral through to identification and assessment to delivery. m Meet the national timescales for social care assessments m Multi agency assessments and resource allocation panels in place m National care pathways localised m Person centred approach to transition reviews m Family Well Being Model (identifies needs, thresholds and levels of interventions) m Parent/ carer involved and given copy of assessment 3. Participation and feedback: Disabled children and young people and their families are routinely involved and supported in making informed decisions about their treatment, care and support, and shaping services. m Short break strategy informed by 30 organisations, 150 parents, 100 parent questionnaires returned, three public meetings and 50 children s activity sheets m Access to parent seminars and programmes ( e.g. sleep, managing behaviour) m Parents as members of Commissioning Panels m The Parent Forum - PACSEN ( Parents and Carers of Children with Special Educational Needs as an independent group facilitated by the Parents Advice Centre) m Parent representatives are key members of the Integrated Services for Disabled Children Partnership Group m Disabled Children Consulted about their priorities m Parent and disabled children engaged in staff training (through DVDs) m Early Support Programme and Care Pathway independently reviewed Directory of Services for Disabled Children 5

6 Tower Hamlets FIS is a free and impartial information service for mums, dads, carers of children and young people from birth to 19 years. The FIS provides information, advice and assistance on a wide range of services from helping to find your nearest children s centre or youth club to exploring what funding is available for childcare. Information officers are available to offer help. You can access information through the online Family Services Directory. This directory allows you to search for local and national services for families with children and young people. Our website is: The FIS is open Monday to Friday from 8.00am pm. 2nd Floor Mulberry Place Town Hall 5 Clove Crescent London E14 2BG Tel: Fax: csf@towerhamlets.gov.uk 6

7 Service Key Specialist Short Break funding is targeted at two groups of disabled children at the higher end of need. Nationally the two groups are identified as group A and group B and the services listed on this directory indicate their target group as A, B or for both. A: Children and young people with Autistic Spectrum Disorder (who have severe learning disabilities or behaviour which is challenging) OR those children and young people whose challenging behaviour is associated with other impairments such as severe learning disabilities. B: Children and young people with complex health needs including those with physical and/or learning disabilities, those who require palliative care (nursing care) and those with associated sensory impairments. A&B: Both of the above. The services listed will also indicate whether they can be accessed directly or whether a referral and assessment is needed and the keys are as follows: 3 Self-referral. Apply for a short break service by completing the self-referral form which can be obtained from the Short Breaks Co-ordinator by calling or contact the service provider for more information W Assessment and referral will be needed. Contact the relevant service provider All information is correct at time of print. If you require further information on the services listed on this directory, please contact the service provider directly. An electronic version of this directory is also available on the Tower Hamlets website which is updated annually: 7 Directory of Services for Disabled Children

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9 A range of specialist early years services are available for pre-school children with additional needs to improve outcomes for them and help with their physical and emotional development. Nursery and Play Services Children s Centres (age birth - years) A&B 3 Children's centres offer high quality inclusive services to families with children under 5 through a range of family support and early learning activities. Children's Centres also work in partnership with a range of agencies and organisations to deliver advice and support on health and wellbeing, employment, training and volunteering. Throughout all our provision we support children, parents and carers with additional needs to access services and contribute to the development of children's centres across the borough. Little Oaks Childrens Centre, Pelter Street, London E2 7PE Telephone: Under Fives Playaway Saturday, 10.00am 12.00pm Stay and Play session for male carers/parents who find it difficult to get to sessions during the week. Children over five are welcome as long as they have a sibling under five years old. Millwall and Blackwall Childrens Centre Blackwall Millwall Dads and Children s Soft Play (Any Male Care) Second, third and fourth Saturday of the month, 10.00am 12.00pm Tiller Road Leisure Centre Limited spaces first come first serve basis Millwall and Blackwall Childrens Centre Fathers Morning of Play (Any Male Carer) (First Saturday of each month) 11.00am 2.00pm Millwall One O clock Club Directory of Services for Disabled Children 9

10 Day Care Providers (age birth - 5 years) Day Care by John Smith Children s Centre (age birth - 5 years)a&b W Provide a day care facility of play sessions for 22 children under five years old and 40% of take-up is by children with additional needs. Referral must be made by the Child Development Team (CDT)- see below for information on CDT. John Smith Children s Centre, 90 Stepney Way, London E1 2EN Tel: Hearing Impaired Resource Base (age 18 months - 5 years) B W Overland Day Nursery has 10 part time places reserved for children with a hearing impairment within the Hearing Impaired Resource Base. Applications must be supported by a statement from a GP, Health Visitor or other professional involved with the family. Application forms can be obtained from Overland. Overland Children s Centre, 60 Parnell Road, London E3 2RU Tel: Little Explorers (age birth - 5 years) A&B All day care providers welcome disabled children and children with additional needs. They will have a named Inclusion Coordinator who is responsible for working with parents to plan for children's needs. They are supported by Tower Hamlets Early Years Inclusion Team, who provide advice and support to include disabled children and children with additional needs. For specific provider details contact FIS on All day care settings have a named Inclusion Coordinator and are supported by Tower Hamlet's Early Years Inclusion Team to include disabled children and children with additional needs. A&B W This is a support group for young children with additional needs. The group offers therapy and play sessions which are run fortnightly on Fridays from 10.00am pm, term time only. The group is co-ordinated by health staff from the Child Development Team (CDT) but takes place at the Whitehorse Play Centre. Whitehorse Play Centre, Whitehorse Road, London E1 0NW Tel: CDT, Wellington Way Centre, 1a Wellington Way E3 4NE Tel:

11 Tower Hamlets Opportunities Group (THOG) (age 2-5 years) A&B 3 Provide fully inclusive play sessions for children with additional needs. Sessions take place from 9.30am pm Monday - Friday and up to 36 places are available for the sessions each morning although this number may differ each day depending on the availability of space. There is a fee of 50p per session. As well as offering a playgroup, THOG provide an outreach programme where staff members regularly visit families with children with additional needs to help their access to supervised play in a safe, secure and stimulating environment. THOG, 115 Three Colt Street, Limehouse, London E14 8AP Tel: Fax: thog@btconnect.com Website: Home Visiting Mobile Toy Library Service (pre-school children) A&B 3 Visits families of pre school children with special needs in their own home to provide information, support and appropriate toys to borrow to support play, learning and development. Service is for all the family thus offering a break from the demands of living with a child with special needs. Visits are pre planned, booked in advance at a mutually agreed time during the school day. Serves around 30 families but this may vary. Special Sensory Play (pre-school children) A&B 3 A weekly play session for pre school children with special needs, their pre school siblings and parents, with access to sensory experiences plus support, both for adults and the children. Sessions take place on Wednesdays 1.00pm pm during term time at The Toyhouse Centre. Sessions are for an average of 6 families but this may vary. Toyhouse Libraries, The Toyhouse Centre, 92 St Paul s Way, Bow, London E3 4AL Tel: Fax: info@toyhouselibraries.org.uk Website: Please note that some of the services listed on the rest of the directory may also apply to children aged birth-5 years. Directory of Services for Disabled Children 11

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13 Please note that some of the services listed below may also apply to children aged birth-5 years. Short Breaks: Playschemes and Activities Easter Scheme (age 5-19 years) A&B 3 Offer a secure place for a period of eight days over the holiday period providing structured on and off site activity programme for children with physical and learning disabilities and/or autism. Examples of activities provided are arts and craft, therapy pool, sensory room sports, cinema tips and visits to local places. Provide breakfast, snacks and hot lunch as well as door to door transport. Scheme runs Monday to Friday from 9.00am pm and offers 50 places. February/October half-term Scheme (age 5-19 years) A&B 3 Offer a secure place for a period of five days over the half-term period providing structured on and off site activity programme for children with physical and learning disabilities and/or autism. Examples of activities provided are arts and craft, therapy pool, sensory room sports, cinema tips and visits to local places. Provide breakfast, snacks and hot lunch as well as door to door transport. Scheme runs Monday to Friday from 9.00am pm and offers 50 places. Summer Scheme (age 5-19 years) A&B 3 Provide a four week summer holiday scheme in an inclusive setting for children with physical and learning disabilities and/or autism. Service offers a full on and off activity programme and transport is provided to meet needs. Exciting activities offered include site visits and day trips, swimming, cinema trips, cooking, arts and crafts, sailing and wall climbing. Breakfast, snacks and hot lunch are also provided. The scheme runs Monday to Friday from 9.00am pm and offers 120 places. Summer Holiday Scheme with Phoenix (for Phoenix pupils only) A 3 Provide a three week summer holiday scheme in an inclusive setting for children living in Tower Hamlets and attending Phoenix School. A range of indoor and outdoor activities are organised such as arts and craft, play sessions and outings to attractions. Breakfast, snacks and hot lunch provided as well as transport to meet needs. 30 places are available for each scheme although this may differ each year. Directory of Services for Disabled Children 13

14 Autistic Leisure Group (age 5-19 years) A 3 Provide stimulating activities to encourage independence, integration, creativity with social and cultural events for children and young people with autism. Door to door transport provided. Service available on Wednesdays from 6.00pm pm and 6 places are available for each session. After School Club (age 8-19 years) B 3 Provide positive activities for children and young people with complex needs. Service available for two age groups: year olds (senior group) and 8-13 year olds (junior group). The club for the senior group operates Monday to Friday from 3.30pm pm and has 12 places available for each session. The club for the junior group operates on Fridays from 3.30pm pm and has 12 places available for each session. Children and young people are given the opportunity to engage in a range of activities such as glass painting, photography, music and dance, pottery, sporting activities and cooking. After School Deaf Club (age 5-25 years) B 3 Children and young people have access to artistic material, IT provision and other activities. Service offered to two age groups: 5-12 year olds (junior group) and year olds (senior group). The club for the junior group operates Monday to Friday from 4.00pm pm and 15 places are available for each session. The club for the senior group operates on Mondays, Tuesdays, Thursdays and Fridays from 6.30pm pm and places are available for each session. Service also provides holiday schemes at Easter time, for 1 week, and during the summer, for 3 weeks. The Tower Project, Whitehorse Road, Stepney, London E1 0ND Tel: Fax: info@towerproject.org.uk Website: Befriending Service (age 8-19 years) A&B 3 Provide outings, activities and befrienders for children aged 8 or above, in particular to young people aged years with complex health needs or challenging behaviour due to their impairment. Service is also available to their siblings, carers and family members. Provide an environment that is safe, secure, stable and that ensures children are suitably cared for. Places are available for up to 20 children who will have access to a 3 hour activity session per week. Befrienders offer one to one support to each child enabling the child/young person to get out and about and enjoy a range of activities which may include attending a youth club, a visit to a leisure centre, going out for a meal, a shopping trip or staying at home engaging in indoor activities. Barnardo s, Gladstone Place, 1 Ewart Place, Bow, London E3 5EQ Tel:

15 Aut and About (age 8-19 years) A 3 A Saturday community based service for children and young people aged 8-13 years (junior group) and years (senior group) with autism, offering group based indoor and outdoor activities from 10.30am pm, term time only. Service takes place fortnightly and serves 20 children/young people and takes place at the Atlee Youth and Community Centre, 5 Thrawl Street, London E1 6RT. Barnardo s, Gladstone Place, 1 Ewart Place, Bow, London E3 5EQ Tel: Family Link (age birth - 18 years) A&B 3 Offer high quality support to disabled children and young people by offering play and positive activities to meet an individual s needs. A support worker directly engages in indoor and outdoor leisure activities with the child or young person and their family during agreed hours. The support will be based either in the family home or local community. Each session will take place after school, college or at the weekend. A session lasts for up to 4 hours or less and takes place at the same time each week. Children with Disabilities Team, Mulberry Place, 3rd Floor, Town Hall, 5 Clove Crescent, London E14 2BG Tel: Fax: family.link@towerhamlets.gov.uk Website: The National Autistic Society (NAS) Tower Hamlets Befriending Scheme (age 2-19 years) A 3 The service provides training to befrienders who are recruited to spend a few hours per week with a person with an Autistic Spectrum Disorder or their families to undertake agreed indoor and outdoor activities. Service is for children and young people and around 50 volunteers are trained to become befrienders. The National Autistic Society (NAS) Tower Hamlets, Montefiore Centre, Hanbury Street, Whitechapel, London E1 5HZ Tel: or thamsbefriending@nas.org.uk Website: The National Autistic Society Tower Hamlets - Inclusion Service A&B 3 The National Autistic Society have two Inclusion Officers who support children and young people with autism, ADHD or Asperger syndrome access a range of fun and positive activities at universal settings such as youth services, after school clubs and children s centres. The youth clubs and after school clubs include football coaching, drama club, dance club and a range of activities such as pool, video games and table tennis. The Inclusion Workers also offer autism-specific support and training to mainstream youth clubs and after schools clubs to help them fully support children and young people with autism. The National Autistic Society, Montefiore Centre, Hanbury Street, Whitechapel, London E1 5HZ Tel: inclusion.officers@nas.org.uk Directory of Services for Disabled Children 15

16 Saturday Sibling Group (age 8-11 years) A&B 3 This group is for pupils with siblings in other schools. The service aims to enable pupils to interact and play together, build new skills and work as a team. A session lasts from 9.30am 1.00pm and during this time a variety of activities is offered such as arts and crafts, sports, swimming, music and cooking. The pupils have a snack time and then take the school bus home escorted by a member of staff. The sessions are held on Saturdays, once a month. Stephen Hawking School Trust, Brunton Place, Isle of Dogs, London E14 7LL Tel: Fax: admin@stephenhawking.towerhamlets.sch.uk Website: Scope Inclusion Whoosh (age 2-10 years) A&B 3 Provide holiday play schemes for children with profound or multiple disabilities who may also have complex health needs. Easter play scheme operates for 4 or 5 days for children aged 7-10 years during the Easter break and 25 places are available (for Stephen Hawking School pupils only). The summer scheme lasts for three weeks during the summer period and has places available for 45 pupils (aged 2 to 10 years) with priority given to pupils of Stephen Hawking School. Examples of activities organised are swimming, outings such as a trip to the London Zoo, cooking and story telling. Stephen Hawking School Trust, Brunton Place, Isle of Dogs, London E14 7LL Tel: Fax: admin@stephenhawking.towerhamlets.sch.uk Website: 16 A&B 3W Scope Inclusion offer short break services tailored to the needs of families which can include the following: m Family link services- one to one support enabling a young person to enjoy community activities of their choice such as swimming, bowling, cinema, community gardening and sports groups m Sitting services- one to one support in the young person s home, enabling a positive experience whilst the parent or carer enjoys a break from their caring role m Weekend and holiday schemes- these are group-based activity sessions, which will include arts, performance and developmental activities m Sport sessions- these are group based sports sessions, with programmes offering football, martial arts and drama. Services by Scope can be accessed through the self-referral process for short breaks however places are limited. Their services can also be accessed via direct payment which requires an assessment. To access Scope services through direct payment, please contact the Children with Disabilities Team on and the Duty Worker will direct you to the right person who will guide you through the assessment process. Scope Inclusion North London, 6 Market Road, London N7 9PW Tel: islington.inclusion@scope.org.uk Website:

17 Short Breaks: Family Activities Family Holiday Break (age birth - 19 years) A&B 3 Provide five weeks of short breaks per year to allow 5 families (with up to 6 individuals per family/ family friends) to have a 5 day supported holiday break. An additional break may take place during the Easter break or other school break. The service includes self-catering facilities, food pack including halal meat, transport, swimming, sensory theatre, adventure playground, junior playground, animal farm, gym, basketball, football, tennis, cycling activities, radio and recording studios. The holiday takes place in Dorton House, Wilderness Avenue, Seal, Sevenoaks, Kent (TN15 0EB). Royal London Society for the Blind, Victoria Charity Centre, 11 Belgrave Road, London SW1V 1RB Tel: / Fax: Website: Saturday Special Play Project (age birth - 6 years) A&B 3 For children with special needs aged 2-6 years, their siblings aged birth - 6 years plus their parents and carers, held at the Toyhouse Centre on Saturday mornings from 10.00am pm. A range of activities are offered including exciting sensory tent. The session offers children a range of possibilities and adults an opportunity to build supportive networks with others. There is a book store for borrowing relevant books on living with a child with special needs. All Children can borrow toys from the Toy Library to extend the play to the whole family in the home throughout the week. Toyhouse Libraries, The Toyhouse Centre, 92 St Paul s Way, Bow, London E3 4AL Tel: Fax: info@toyhouselibraries.org.uk Website: Directory of Services for Disabled Children 17

18 Overnight Short Breaks Weekend Breaks (age 7-17 years) B W This is a short break for children and young people with disabilities offering a range of activities that are educational, social, leisure and recreational. The service runs 270 weekend blocks during all school terms and the weekend block starts from Friday 4.00pm to Monday 10.00am. 6 children are allocated a slot per weekend. Transport is provided. Holiday Breaks (age 7-17 years) Service provides overnight short breaks for a maximum of 7 days to children and young people with a disability offering a variety of recreational activities according to children s wishes and choice. The breaks are provided for 7 disabled children and/or young people at any one time. After School Club (age 7-17 years) B W B 3W Runs every Tuesday from 3.30pm pm providing indoor activities such as arts and crafts, music and play therapy. The service provides for 8 children/ young people. The after school club may also be accessed by young people without the need for an assessment. Day Care (age 7-17 years) B W Day Care weekend short break is provided to prepare a child for overnight short breaks over a specified period. The weekend service runs on Saturdays and Sundays from 9.00am pm on each day. Day Care also provides a programme of activities that contribute to a healthy lifestyle from 4.00pm pm on Tuesdays and Fridays and a minimum of 22 children are served each day. Weekend Breaks for Children with ASD (age 7-17 years) A W The service offers overnight short break for children at the higher end of the spectrum of autism for one weekend a month. A minimum of 5 places is available for the weekend offering meaningful social and recreational activities. QALB - Discovery Home Overnight and Day Short Breaks Service, Spelman Street Whitechapel, London E1 5LQ Tel: Fax: office@discoveryhome.biz Website: 18

19 Overnight Short Break at 1 Discovery House (age 7-17 years) A W This is an overnight service offering holiday and weekend breaks, day care and after school clubs to children and young people with autism or challenging behaviour. The service allows young people an opportunity to engage in a range of stimulating activities such as sports and outings to support the inclusion, independence and empowerment of children and young people benefiting from the service. Up to 5 places are available for each weekend and school holiday overnight service. The After School Club may be accessed directly without the need for an assessment. QALB - 1 Discovery House, 21 Newby Place, London E14 0EY Tel: office.newbyplace@discoveryhome.biz Overnight Stays (age birth - 19 years) B 3 Short break care is offered to children which is available throughout the year. Children are allocated up to 21 nights per year, seven are to be taken during weekends or school holidays, seven during term times and the remaining seven as occupancy allows. Parents/ carers have the option to stay with the children in one of the family flats. Richard House Children s Hospice, Richard House Drive, Beckton (Newham), London E16 3RG Tel: info@richardhouse.org.uk Website: Directory of Services for Disabled Children 19

20 Family Support Services Early Intervention for Children with Autism (age birth - 5 years) A 3 A family centred approach to autism that offers parent groups and individual support work (1:1 sessions). Service includes coaching, modelling, video-reviews and some direct work with the child with the aim to increase effective involvement from parents. Service for families with children with developmental delays including communication, behaviour problems, attachment difficulties or autistic/pre-autistic behaviours. The service caters for children and their parents/carers a year. All parents or carers interested in receiving support from MindBuilders are advised to attend an Introductory Session which is organised once a month. This will help parents and carers gain an insight into the work of MindBuilders and lead to further support via 1:1 sessions. MindBuilders, Montefiore Centre, Hanbury Street, Whitechapel, London E1 5HZ Main office: 62 Roman Road, Bethnal Green, London E2 0PG Tel: info@mindbuilders-consulting.org Autism Support Project A 3 Family Support Worker works to improve the knowledge and confidence of parents with children with autism- support provided via 1:1, over the telephone or through group workshops and seminars and will include sign-posting parents with children with Autistic Spectrum Disorder (ASD) to available services. Support is offered at post-diagnostic stage as well as at other times of need. The Family Support Worker runs a Help! programme (post diagnostic programme) or Help!2 workshop (on a specific ASD-related topic) each term. The Family Support Worker works 9.30am 5.30pm Monday Friday. You can download the Tower Hamlets Parent Information pack from The National Autistic Society (NAS) Tower Hamlets, Montefiore Centre, Hanbury Street, Whitechapel, London E1 5HZ Tel: / thamssupport@nas.org.uk Website: Portage Service (LBTH) (age birth - 5 years) A&B 3 Works in partnership with parents of pre-school children with special needs/learning difficulties by supporting them in designing teaching programmes for their child which is then carried out daily by parents. Meath Gardens, 1 Smart Street, E2 0SN Tel: Fax: portage@towerhamlets.gov.uk Website: 20

21 Services for Children with Complex Healthcare Needs Day Care/After School Care (age birth - 19 years) B 3 Richard House is able to offer a limited amount of day care where the child can attend for a few hours after school or a whole day and participate in activities alongside the children who are resident. Call service provider for further information. Richard House Children s Hospice, Richard House Drive, Beckton (Newham), London E16 3RG Tel: info@richardhouse.org.uk Website: Emergency Short Breaks (age birth - 19 years) B 3 Richard House operates an emergency bed system which allows them to respond to an emergency request at short notice. Special set of rooms are available for children where a child can be cared for at the end of their life. Emergency and end of life care requests will take priority over other short break services. Referrals for end of life care will be fast tracked. Richard House Children s Hospice, Richard House Drive, Beckton (Newham), London E16 3RG Tel: info@richardhouse.org.uk Website: Family Support Services (age birth - 19 years) B 3 Offer pre and post bereavement counselling, sibling support group, social events, family counselling and play therapy for siblings. Richard House Children s Hospice, Richard House Drive, Beckton (Newham), London E16 3RG Tel: info@richardhouse.org.uk Website: Directory of Services for Disabled Children 21

22 Rainbow Trust Children s Charity (age birth - 18 years) B 3W Offer practical and emotional support to families who have a child with a life threatening or terminal illness. The service offers the whole family (the ill child, parents, brothers and sisters, grandparents and all extended family) individually tailored high quality non medical support for as long as the family need it. The range of support available is as follows: m Help maintain continuity in the home by working with and caring for siblings, and aim to ensure that usual activities are continued for the family m Provide emotional support to each member of the family throughout the child's illness m Spend time with the ill child at home or in hospital m Accompany and support parents and their child during clinic and hospital appointments m Provide practical support, housework, shopping etc m Offer transport to appointments m Offer end of life care and ongoing bereavement support Service operates 9.00am pm Monday - Friday. Rainbow Trust Children's Charity, NE London and Essex Family Support Work Team Heaton Way URC, Heaton Way, Romford RM3 7EU Tel: Team Manager: Peter Smale V N 22

23 Other Social/Sport Activities and Services Positive Activities for Young People (PAYP) Programme (age 8-19 years) A&B 3 PAYP supports young people (with priority given to year olds) by offering a range of activities during school holidays. By engaging them in positive activities, the programme encourages young people to engage with their community and make valuable use of their free time during holiday periods. Some provisions cater for the needs of young people with learning difficulties/ disabilities (LDD) or Special Educational Needs (SEN). Examples of activities organised by various service providers include sports, arts and crafts, street dance, music, ICT, media, interpersonal skill development, customer services, healthy lifestyles, driving lessons and first aid training. These activities can be accessed by contacting the PAYP Key Workers or the PAYP Co-ordinator. PAYP Key Workers Connexions Tower Hamlets, 35 Bow Road, Bow, London E3 2AD Tel: martha.barden@towerhamlets.gov.uk PAYP Co-ordinator Youth & Connexions Service, London Borough of Tower Hamlets, Mulberry Place, 5 Clove Crescent, London E14 2BG Tel: abul.ali@towerhamlets.gov.uk Website: Surjamuki Extension (age 1-19 years) B 3 Bangladeshi Group project for children and young people aged 1-19 years with mild to moderate physical and/or learning disabilities. Groups meet Wednesday evenings 5pm - 9pm and Saturdays 10.00am pm and provide informal social education to service users and support to empower them to take control of their lives. Activities include creative workshops, indoor/outdoor sports and regular outings. The service serves 40 children and young people annually and up to 15 places are available for each session. St Hilda s Community Centre, 18 Club Row, Bethnal Green, London E2 7EY Tel: Fax: Website: The Urban Adventure Base (for young people) A&B 3 The Urban Adventure Base deliver adventurous and sporting activities to young people across Tower Hamlets, such as canoeing, biking and climbing as well as day and residential trips. The Adventure Base have great facilities such as a climbing wall which can be accessed by young people with disabilities. Mile End Park, 150 Burdett Road, Mile End Park, London E3 4JT Tel: Website: Directory of Services for Disabled Children 23

24 Glamis Adventure Playground (The Shadwell Community Project) A&B 3 Glamis Adventure Playground (part of the Shadwell Community Project) is an exciting outdoor space open for all children and young people aged 5-15 years. Visit the playground as a family to enjoy the adventurous, challenging and natural outdoor play environment. The playground also benefits from a fully accessible shelter and a tree house providing a stimulating and innovative play area for children and young people. It is open 5 days a week during term time (Tuesday- Saturdays) and is attended by children and young people daily. During the school holidays it is open Monday Fridays. Glamis Adventure Playground, 10 Glamis Road, London E1W 3EG Tel: Fax: info@glamisadventure.org.uk Website: Roman Road Adventure Playground A&B 3 Roman Road Adventure Playground is run by Old Ford Housing Association The Adventure Playground is staffed and fully accessible with a vibrant outdoor space and modern purpose built building. The playground is for children aged 6 15 years old and is open from Tuesday to Friday from 3.30pm to 7.00pm and Saturday 12.00pm-5.00pm. Holiday opening hours are from Monday- Friday 12.00pm 5.00pm (please contact the Senior Play Officer on to check to see in which holidays the provision is open). The Playground runs a number of activities from arts & craft to cooking and boasts wooden facilities such as balancing equipment, sand pits, water play, hammocks, boulders, bespoke swings and sensory areas. Roman Road Adventure Playground, 48 Hewlett Road, Bow E3 5NA Tel: Website: Disability Sports Sessions (age 6-18 years) A&B 3 Provide free sport and swimming sessions on Wednesdays for children/young people with disabilities or learning difficulties as well as judo on Thursdays. Swimming (Wednesdays) 6.00pm pm session for ages 6-14 years 6.45pm pm session for ages years 7.30pm pm session for autistic young people aged years Sports Hall (Wednesdays) 6.00pm pm Multi-sports activities for ages 6-18 years Siblings are welcome to attend the swimming sessions although restrictions may be imposed to allow equal access to facilities. All siblings may take part in the sports activities. Disability Judo (Thursdays) Provide judo training for children aged 6-12 years on Thursdays from 6.00pm pm (term time only) and up to 14 places are available. Mile End Park Leisure Centre, 190 Burdett Road, Mile End Park, London E3 4HL Tel: or Marianne Sharp - Community Support Disabilities Coach /

25 Disability Football (age 8-16 years) A&B 3 Football coaching is available for children and young people with a disability. The session takes place on Saturdays, term time only, from 11.00am pm and up to 20 places are available. Mile End Park, Mini Soccer, London E14 7TW Tel: simon.butler@towerhamlets.gov.uk Website: Disability Athletics (age 8-16 years) A&B 3 Provide athletics coaching covering running, jumping and throwing. The session takes place on Saturdays, term time only, from 11.00am pm and up to 16 places are available. Mile End Stadium, London E14 7TW Tel: simon.butler@towerhamlets.gov.uk Website: Disability Athletics for Young People (age 13 and over) A&B 3 Provide athletics coaching covering running, jumping and throwing for young people. Session takes place on Wednesdays from 5.00pm pm throughout the year and up to 16 places are available. Mile End Stadium, London E14 7TW Tel: simon.butler@towerhamlets.gov.uk Website: Wheelchair Racing (age 8 and over) A&B 3 Provide athletic sessions for wheelchair users aged 8 or above. Session takes place on Saturdays, term time only, from 10.00am am and up to 10 places are available. Mile End Stadium, London E14 7TW Tel: peatymurine@aol.com Website: Directory of Services for Disabled Children 25

26 Bikeworks All Ability Club A&B 3 Bikeworks offer a range of activities that include: recycling & refurbishing second hand bikes in London, providing dedicated (free to the public) training to get more people cycling on the road and doing so safely and affordably, creating training and employment opportunities for disadvantaged communities in a booming cycling industry. The All Ability Club is a fun place to meet, get some exercise and have a go on different kinds of bikes. The Club meets on alternate Saturday afternoons from 1.00pm-3.00pm. The club is free to attend and open to all, regardless of age or physical disability. The Club meets by the Gunmakers Lane entrance to Victoria Park. Bikeworks East, Unit 8 Gun Wharf, 241 Old Ford Road, Victoria Park, London E3 5QB Tel: cycletraining@bikeworks.org.uk Sitting Volleyball (age 6-17 years) A&B 3 This is a Paralympics sport played by two teams of 6 people separated by a net on a rectangular court. The aim of the game is to floor the ball on the opponents side of the court. The sessions take place on Mondays 6.00pm pm and Saturdays 11.30am pm. Bishop Challoner Catholic Collegiate School, Hardinge Street, London E1 0EB Tel: gxavier36@googl .com South London Special League (SLSL) (for young people) Ability Bow (age 16 and over) A&B 3 Ability Bow provides inclusive fitness facilities and expert help from highly-qualified instructors. They strive to attract people to the fitness facility who have never used a gym before, or who would not normally take part in exercise. They particularly focus on people who have disabilities or those who would not be able to afford to use a gym. Some projects may be organised aimed at young children. Ability Bow, St Paul s Church, St Stephen s Church, Bow, London E3 5JL Tel: Fax: info@abilitybow.co.uk Website: A&B 3W SLSL offers opportunities for young people through sport to improve their lives, increase fitness, raise their self-esteem and heighten their aspirations. The project enables young players with disabilities to participate and complete at a level appropriate to their ability allowing them to have fun, keep fit and make new friends. South London Special League, London Marathon Playing Fields, 304 Shooters Hill Road, London SE18 4LT Tel: or info@sl-sl.co.uk Website: 26

27 Half Moon (age 11 and under) A&B 3 Half Moon is a community organisation specialising in work for young people and run a friendly and informal theatre. They have a season of fantastic family shows suitable for under 11 s so share your child s first theatre experience with the theatre for free (free entry subject to availability of funds). Half Moon, 43 White Horse Road, London E1 0ND Tel: Website: Museum of Childhood A&B 3 As well as having exhibitions and galleries of UK s national collection of toys, games and childhood objects, the museum offers a programme of activities for children and families, such as drop-in arts and crafts, storytelling sessions, drama and a short family tour and activity allowing families to uncover the hidden history behind key objects in the Museum. A range of activities are available during the school holidays too. Free entry. V&A Museum of Childhood, Cambridge Heath Road, London E2 9PA Tel: Fax: moc@vam.ac.uk Website: Deaf Accessing Positive Activities (DAPA) by Deaffinity B 3 DAPA helps young people aged who are deaf or hard of hearing engage and develop life and leadership skills through a range of innovative courses. Examples of courses and activities include: m Capoeira- fun recreational sport, combining martial arts, music and Brazilian dance. m Life skills- programme to prepare young people for employment. m Warrior Women - personal safety programme, including self-defence. For up to date information on the courses and activities available, contact DAPA on the number people. Deaffinity, Rich Mix, 35-47Bethnal Green Road, London E1 6LA Tel: info@deaffinity.com Website: Play Association Tower Hamlets (PATH) (age 5 and over) A&B 3 Provides support and advocates and promotes the play needs of all disabled children aged 5 or over by promoting Tower Hamlets green spaces as part of the Inclusion Project. Range of services offered include information on play projects and places to play, advice and guidance on design and planning for play, training and mentoring support, capacity building and fundraising, models of good practice and play consultation. Oxford House, Derbyshire Street, Bethnal Green, London E2 6HG Tel: Website: Directory of Services for Disabled Children 27

28 Rich Mix A&B 3 Rich Mix is an arts and cultural centre providing a range of programmes and facilities such as cinema, a performing arts venue, educational programmes and creative workshops for all to enjoy. Examples of workshops for children are storycraft workshops and film-making workshops. Wiggly Jigglers, a free service provided in collaboration with Little Oaks Children s Centre, offers creative movement for babies and toddlers which are sessions that give young children the space, the freedom and the time to move in ways that support their development and stimulate their imaginations. Rich Mix, Bethnal Green Road, London E1 6LA Tel: Fax: Website: Specialist Support and Health Services These services work in partnership to support the health and education needs of disabled children and young people. Such services aim to improve the mental health and wellbeing of children. Audiology Diagnostic Service (age 8 months to 16 years) A&B W Audiology is a service for people of all ages and abilities with hearing and balance difficulties. The Audiology Diagnostic Service, operating at Steel s Lane, offers an assessment service, including hearing aid repairs and rehabilitation, for children with hearing and learning difficulties. Referrals for new patients must be made by family doctors/gps. Steel s Lane Health Centre, Commercial Road, London E1 0LR Tel: /3690 Autistic Spectrum Disorder Assessment Service (age birth - 19 years) A W The primary purpose of the service is to provide evidence based assessments to children with suspected Autistic Spectrum Disorder in partnership with their families, to enable the child or young person to achieve their optimum health and reduce the impact of their disability on their health and well being. The service provides early identification of suspected autistic spectrum disorders, a coordinated approach to ensure the child s needs are addressed including referral on to appropriate services, advice and support to families and other professionals and multi disciplinary assessment carried out by a range of professionals such as health and social care professionals. Wellington Way Centre, 1a Wellington Way, London E3 4NE Tel: Fax:

29 Bilingual Health Advocacy Service A&B 3 The service is provided by a team of trained health advocates and it is for Tower Hamlets residents whose first language isn t English. They aim to increase access to primary resources for people in a number of ways such as through helping residents understand the health service, providing information about the Health and Social Services available, providing health education and health promoting. Bilingual Health Advocacy Service, Alderney Building, Mile End Hospital, Bancroft Road, London E1 4DG Tel: Fax: Child and Adolescent Mental Health Services (CAMHS) (age birth - 18 years) A&B W Tower Hamlets CAMHS aims to offer high quality mental health assessment and treatment services to all children and young people who are experiencing serious risks to their emotional and psychological wellbeing and development. For children with difficulties such as Autistic Spectrum Disorder, brain injury or learning difficulties. Where there is concern about a significant mental health difficulty there is a dedicated Neurodevelopmental Care Pathway. Children with a physical disability and significant mental health difficulties would receive a service through our Emotional & Behavioural Care Pathway. This is a tier 3 service and so referrals must come from another professional who knows the child using the Common Assessment Framework. Referrals for children living in E1 or E2 should be sent to: Tower Hamlets CAMHS West Sector, Children and Young People s Centre, Greatorex Street, London E1 5NF Tel: Fax: Referrals for children living in E3 or E14 should be sent to: Tower Hamlets CAMHS East Sector, Emmanuel Miller Centre, Gill Street, London E14 8HQ Tel: Fax: For urgent referrals the duty worker in the relevant East or West Sector should be contacted by telephone. Child Development Team (CDT) (age birth - 19 years) A&B 3W Provides an assessment and co-ordination service for children with multiple disabilities and their families where there are 2 or more areas of developmental delay identified in the child. CDT, Wellington Way Centre, 1a Wellington Way, London E3 4NE Tel: Directory of Services for Disabled Children 29