Texas Disability Resources Affordable Care Act (ACA) http://www.hhs.gov/healthcare/facts/bystate/tx.html HHS.gov: How the Health Care Law is Making a Difference for the People of Texas To get coverage under the ACA, go to https://www.healthcare.gov/ to find out more about the Health Insurance Marketplace and the options available in your state. https://www.healthcare.gov/what-is-the-marketplace-in-my-state/#state=texas http://www.vsatx.org VSA Texas 3710 Cedar Street Box 7, Room # 128 Austin, TX 78705 Phone: 512-454-9912 E-mail: info@vsatx.org Arts and Creativity http://www.southwestada.org/ Southwest ADA Center 2323 S. Shepherd #1000 Houston, TX 77019 Toll Free: 800-949-4232 Phone: 713-520-0232 v/tty http://techaccess.edb.utexas.edu Texas Technology Access Program Texas Center for Disability Studies The University of Texas at Austin, L4000 Commons Learning Center, Suite 1.154 10100 Burnet Road Assistive Technology 1
Austin, TX 78758-4445 Phone: 512-232-0740, 800-828-7839 (Toll-free) TTY: 512-232-0762, 800-735-2989 (Toll-free) E-mail: techaccess@teachnet.edb.utexas.edu http://www.texasat.net/ Texas Assistive Technology Network (TATN) Kirk D. Behnke, MEd., ATP, Senior Education Specialist Special Education Services Region 4 Education Service Center 7145 West Tidwell Houston, TX 77092-2096 Phone: 713-744-6559 E-mail: kbehnke@esc4.net TATN consists of representatives from each of the Texas Education Services Centers, and the Texas Education Agency. The organization provides professional development and technical assistance.works to ensure that students with disabilities receive AT devices and services when needed to benefit from a free, appropriate public education. Caregivers http://www.caregiver.com/regionalresources/states/tx/index.htm Caregiver.com: Texas Resources This page has links to support groups, non-profit resources, financial aid, and rural caregiver resources in Texas. http://www.wellspouse.org/ Well Spouse Association Houston WS Support Group Contact: Debbie Poynter Phone: 713-992-5090 E-mail: houstontxwellspouse@gmail.com Community-Based Fitness Programs http://www.projectwalkaustin.org/ Project Walk-Austin 1905-B Kramer Lane, Suite 850 Austin, TX 78758 Phone: 512-966-7110 Email: info@projectwalkaustin.org Project Walk-Austin is a physical training program for people with spinal cord injuries using Active Nervous System Recruitment (ANSR). 2
http://pressingontx.com/ Pressing On 12001 Network Boulevard #314 San Antonio, TX 78249 Phone: 210-877-2228 E-mail: info@pressingontx.org Pressing On provides a specialized exercise-based training program for those living with paralysis due to spinal cord injury, traumatic brain injury and other physical disabilities. Crime Victim Assistance http://www.oag.state.tx.us/victims/about_comp.shtml Attorney General of Texas: Crime Victims' Compensation P.O. Box 12198 Austin, Texas 78711-2198 Phone: 512-936-1200, 800-983-9933 (Toll-free) E-mail: crimevictims@texasattorneygeneral.gov http://ovc.ncjrs.org/findvictimservices/search.asp Office for Victims of Crime: Directory of Crime Victim Services Choose your state and the type of assistance you are looking for. Disabled Crime Victims Assistance, Inc. 2501 Parkview, Suite 111 Fort Worth, TX 76102 Phone: 817-338-0220 E-mail: dcva@sbcglobal.net A non-profit organization that assists crime victims that become disabled as a result of that crime, as well as those that are already disabled and become a crime victim. Domestic Violence Help http://www.thehotline.org/ National Domestic Violence Hotline Phone: 800-799-7233 (Toll-free), 800-787-3224 (TTY) http://www.safeplace.org/ Safe Place P.O. Box 19454 Austin, TX 78760 Phone: 512-267-7233 (24 hour hotline) TTY: 512-927-9616 (24 hour hotline) http://www.aardvarc.org/dv/states/txdv.shtml 3
A.A.R.D.V.A.R.C.: Texas Domestic Violence Resources http://www.tcfv.org/ Texas Council on Family Violence P.O. Box 161810 Austin, TX 78716 Phone: 512-794-1133 Easter Seals Offices http://www.centraltx.easterseals.com/ Easter Seals Central Texas 1611 Headway Circle Building 2 Austin, TX 78754 Phone: 512-478-2581 http://east-texas.easterseals.com Easter Seals East Texas Brazos Valley Rehabilitation Center 1318 Memorial Drive Bryan, TX 77802 Phone: 979-776-2872 http://rgv.easterseals.com Easter Seals Rio Grande Valley, TX P.O. Box 489 McAllen, TX 78505-0489 Phone: 956-631-9171 Toll-free: 800-728-5491 http://ntx.easterseals.com/ Easter Seals North Texas 1424 Hemphill Street Fort Worth, TX 76104 Phone: 817-332-7171 Toll-free: 888-617-7171 http://ntx.easterseals.com/ Easter Seals North Texas Oak Cliff Center 4201 Brook Spring Drive, Building B Dallas, TX 75224 http://www.centraltx.easterseals.com/ Easter Seals Central Texas Workforce Development 315 East St. Elmo Road Austin, TX 78745 Phone: 512-440-7819 http://east-texas.easterseals.com Easter Seals East Texas Temple Memorial Rehabilitation Center 1315 Walnut Street Texarkana, TX 75501 Phone: 903-794-2705 TDD: 903-793-0086 http://rgv.easterseals.com Easter Seals Rio Grande Valley, TX Child Development Center 1217 Houston Street McAllen, TX 78501 Phone: 956-423-9171 http://ntx.easterseals.com/ Easter Seals North Texas Trinity Center 4443 North Josey Lane, Suite 100 Carrollton, TX 75010 Phone: 972-394-8900 Toll-free: 888-617-7171 http://www.eastersealshouston.org/ Easter Seals Greater Houston 4500 Bissonnet, Suite 340 Bellaire, TX 77401 Phone: 713-838-9050 4
Phone: 214-372-3300 E-mail: info@eastersealshouston.org http://www.christopherreeve.org/c.ddjfkrnofig/b.4518671/k.6aba/find_your_electe d_official/siteapps/advocacy/search.aspx Find your elected officials to contact them on legislation that is important to you. Government Agencies and Programs http://www.state.tx.us TexasOnline: Official Website of the State of Texas http://www.dars.state.tx.us Texas Department of Assistive and Rehabilitative Services 4800 North Lamar Boulevard Austin, TX 78756 Phone: 800-628-5115 (Toll-free) TTY: 866-581-9328 E-mail: DARS.Inquiries@dars.state.tx.us http://www.texaschildrenshealthplan.org/ Texas Children s Health Plan Texas offers two health insurance programs for children: Children s Health Insurance Program (CHIP) and Children s Medicaid. CHIP Call Center: 877-543-7669 (Toll-free), 800-647-6558 (Toll-free) http://www.tdi.texas.gov/consumer/hicap/hicaphme.html Texas Health Information Counseling and Advocacy Program (HICAP) Texas Department of Insurance P.O. Box 149104 Austin, TX 78714-9104 Phone: 512-463-6169 Consumer Helpline: 800-252-3439 (Toll-free) http://www.hhsc.state.tx.us Texas Health and Human Services Commission Office of the Ombudsman, MC H-700 P.O. Box 13247 Austin, TX 78711-3247 Phone: 877-787-8999 (Toll-free) TDD: 888-425-6889 (Toll-free) Medicaid Client Hotline: 800-252-8263 (Toll-free) CHIP Call Center: 877-543-7669 (Toll-free), 800-647-6558 (Toll-free) 5
http://www.dads.state.tx.us/providers/hcs/index.cfm Texas Department of Aging and Disability Services: Home and Community-based Services http://www.medicaid.gov/medicaid-chip-program-information/by- Topics/Waivers/Waivers.html Medicaid.gov: Waivers http://www.medicare.gov Medicare Medicare is a federal program; this site is included for convenience. http://www.txhealthpool.org/ Texas Health Insurance Pool P.O. Box 6089 Abilene, TX 79608-6089 Phone: 888-398-3927 (Toll-free) TDD: 800-735-2989 E-mail: texashealthpool@bcbstx.com The Texas Health Insurance Pool was created by the Texas Legislature to provide health insurance to eligible Texas residents who, due to medical conditions, are unable to obtain coverage from individual commercial insurers. http://www.tdi.texas.gov/ Texas Department of Insurance P.O. Box 149104 Austin, TX 78714-9104 Phone: 512-463-6169 Consumer Helpline: 800-252-3439 (Toll-free) http://www.tdi.texas.gov/wc/indexwc.html Texas Department of Insurance: Division of Workers Compensation Phone: 512-804-4000, 800-372-7713 (Toll-free) Injured Employee Hotline: 800-252-7031 E-mail: WorkersCompCustomerServices@tdi.state.tx.us http://www.governor.state.tx.us/disabilities/ Governor s Committee on People with Disabilities http://www.houstontx.gov/disabilities City of Houston: Mayor s Office for People with Disabilities 1475 West Gray, Box #10 Houston, TX 77019 Phone: 713-284-1990 E-Mail: mopdmail@houstontx.gov http://www.dads.state.tx.us/news_info/ombudsman/index.html 6
Texas Long-Term Care Ombudsman Program Texas Department of Aging and Disability Services P. O. Box 149030 MC-W250 Austin, TX 78714-9030 Phone: 800-252-2412 (Toll-free) Across Texas, through all 28 Area Agencies on Aging, certified ombudsmen serve residents, their families and friends. Ombudsmen advocate for quality of life and care for people living in nursing homes and assisted living facilities. Federal and state authority mandates ombudsmen to identify, investigate and resolve complaints made by, or on behalf of, residents and to provide services to help in protecting health, safety, welfare and rights. Information and assistance in choosing the most appropriate living residence is also a valuable service. Housing http://www.ilru.org/html/publications/directory/texas.html Independent Living Research Utilization: Directory of Centers & SILCs in Texas http://portal.hud.gov/hudportal/hud?src=/states/texas Housing and Urban Development (HUD) in Texas Dallas 525 Griffin Street, Room 860 Dallas, TX 75202-5032 Phone: 214-767-8300 Houston 1301 Fannin Suite 2200 Houston, TX 77002 Phone: 713-718-3199 Fort Worth 801 Cherry Street, Unit #45 Suite 2500 Fort Worth, TX 76102 Phone: 817-978-5965 Lubbock 1205 Texas Avenue Room 511 Lubbock, TX 79401-4093 Phone: 806-472-7265 San Antonio One Alamo Center 106 South St. Mary s Street, Suite 405 San Antonio, TX 78205-3625 Phone: 210-475-6806 http://www.tsl.state.tx.us/tbp The Talking Book Program Library Services 7
Texas State Library and Archives Commission P.O. Box 12927 Austin, TX 78711-2927 Phone: 512-463-5458, 800-252-9605 (Toll-free) E-mail: tbp.services@tsl.state.tx.us The Talking Book Program provides free library service to Texans of all ages who are unable to read standard print material due to visual, physical, or reading disabilities whether permanent or temporary. The Talking Book Program's collection is provided in alternative media formats: cassette, braille, and large print. NeuroRecovery Network (NRN) The Institute for Rehabilitation and Research (TIRR) Houston, TX The NRN is a network of rehab programs designed to provide locomotor (treadmill) training to promote functional recovery and improve the health and quality of life for people living with paralysis. The program is for people with spinal cord injuries. The NRN is a program of the Reeve Foundation. For more info on qualifying for the program, please go to www.christopherreeve.org/nrn Protection and Advocacy http://www.disabilityrightstx.org/ Disability Rights Texas (formerly Advocacy, Inc.) Statewide intake for new callers: 800-252-9108 (Toll-free) Main Office 7800 Shoal Creek Boulevard Suite 171-E Austin, TX 78757-1024 Phone: 512-454-4816 East Texas Regional Office 1500 McGowen, Suite 100 Houston, TX 77004 Phone: 713-974-7691 North Texas Regional Office 1420 West Mockingbird Lane Suite 450 Dallas, TX 75247-4932 Phone: 214-630-0916 Central Texas Regional Office 7800 Shoal Creek Boulevard Suite 142-S Austin, TX 78757-1024 Phone: 512-454-4816 El Paso Regional Office 300 East Main, Suite 205 El Paso, TX 79901 Phone: 915-542-0585 South Texas Regional Office 6800 Park Ten Boulevard Suite 208-N San Antonio, TX 78213 Phone: 210-737-0499 West Texas Regional Office 8
4747 South Loop 289, Suite 120 Lubbock, TX 79424 Phone: 806-765-7794 http://www.tlsc.org/ Texas Legal Services Center 815 Brazos, Suite 1100 Austin, TX 78701 Phone: 512-477-6000 TLSC is a non-profit legal office which provides assistance and training to poverty law advocates and their clients in the areas of litigation support, education and communication. TLSC sponsors projects that assist individuals in Texas and, in some cases, nationwide. There is an online intake form to determine if you are eligible for services. http://www.tlsc.org/programs/facilityvictims.asp Texas Legal Services Center: Facility Victim Program Phone: 800-622-2520 x127 (Toll-free) The Facility Victim Program offers legal advice and assistance to facility residents and those who receive at-home nursing services on issues of abuse, neglect, exploitation, residents rights, and other matters http://www.tlsc.org/programs/healthlaw.asp Texas Legal Services Center: Health Law Project Phone: 866-979-4343 (Toll-free) The Health Law Project provides free legal services to Texans with modest incomes that have questions regarding healthcare issues. http://www.tlsc.org/programs/legalhotline.asp Texas Legal Services Center: Legal Hotline Phone: 800-622-2520 (Toll-free) The Legal Hotline for Texans gives free legal advice, self-help publications, and referrals to Texans over the age of 60 and Texans who receive Medicare. http://www.servicedogs.org/ Texas Hearing and Service Dogs 4803 Rutherglen Austin, TX 78749 Phone: 512-891-9090 Toll-free: 877-TEX-DOGS (877-839-3647) Training Center: 512-858-1495 Service Dogs Sports and Recreation 9
http://campforall.org/ Camp for All Houston Office 10500 NW Freeway, Suite 220 Houston, TX 77092 Phone: 713-686-5666 E-mail: houstonoffice@campforall.org Campsite 6301 Rehburg Road Burton, TX 77835 Phone: 979-289-3752 E-mail: campsite@campforall.org Camp for All hosts campers with cancer, muscular dystrophy, epilepsy, severe burns, sickle cell, cerebral palsy, cognitive challenges, cardiac issues, spinal cord injuries, PKU, neurofibromatosis, HIV, dermatological issues, autism and more. http://www.morganswonderland.com Morgan s Wonderland Morgan's Wonderland is a 25-acre park located in San Antonio. It was designed specifically for children and adults with special needs, their family members, caregivers, friends and the entire community. http://www.dsusa.org/ Disabled Sports USA (DS/USA) Click on Chapters to find a chapter near you. http://www.operationcomfort.org/ Operation Comfort 4900 Broadway, Suite 400 San Antonio, TX 78209 Phone: 210-826-0500 E-mail: info@operationcomfort.org Operation Comfort provides recreational opportunities to wounded soldiers who have served in Iraq and Afghanistan and are being treated at Brooke Army Medical Center and Audie Murphy VA Hospital in San Antonio. http://www.taasports.org Texas Adaptive Aquatics 103 Page Lane Huffman, TX 77336 Phone: 281-324-4653 Texas Adaptive Aquatics provides water skiing for disabled children and adults. http://www.turningpointnation.org Turning Point Nation Turning Point teaches people with mobility impairments the skills necessary to fully enjoy the outdoors and sponsors a wide variety of activities. The organization has East Texas, West Texas, and North Texas chapters. BlazeSports Grand Prairie 10
Grand Prairie Parks & Recreation 2750 Graham Street Grand Prairie, TX 75050 Phone: 972-237-7529 Contact: Mariana Espinoza, mespinoza@gptx.org http://www.memorialhermann.org/locations/tirr/content.aspx?id=1250 TIRR Memorial Hermann Sports Phone: 713-797-5997 TIRR Memorial Hermann Sports was developed to give athletes with all types of disabilities an outlet to continue playing sports both competitively and through intramural programs under the following adaptive sports programs: basketball, golf, rugby, sled hockey, hand cycling, sitting volleyball, and swimming. http://www.ci.pasadena.tx.us/default.aspx?name=prk.fac-v_cox City of Pasadena: Multipurpose Recreation Center 5200 Burke Road Pasadena, TX 77504 Phone: 281-487-1755 The Multipurpose Recreation Center is a facility specifically dedicated to recreational activities, programs, and events for youth and adults ages 5 to 55 years of age with any type of physical and/or cognitive disability. Programs include: wheelchair sports, Special Olympics, after-school, support groups, fitness, aquatics and summer day camps. http://www.sanantonio.gov/parksandrec/sports.aspx San Antonio Parks and Recreation: Adaptive Sports and Recreation Program Phone: 210-207-3018 The Adapted Sports & Recreation Program provides recreational programs and adapted sports activities for both youth and adults with physical and intellectual challenges. Sports include football, softball, golf, rugby, and cycling. Therapeutic Riding Programs http://www.hannahshorseshoesofhope.org Hannah s Horseshoes of Hope P.O. Box 574 Bonham, TX 75418 Phone: 903-965-9300 A therapeutic horseback riding center for people with disabilities. http://www.sire-htec.org SIRE, Houston s Therapeutic Equestrian Centers 24161 Spring Drive Hockley, TX 77447 Phone: 281-356-7588 11
United Way Offices http://www.unitedway.org/ United Way Enter your postal code to find an office in your area. http://www.uwtexas.org United Ways of Texas 701 Brazos Street, Suite 500 Austin, TX 78701 Phone: 512-478-6601 http://unitedwayhouston.org/ United Way of Greater Houston 50 Waugh Drive Houston, TX 77007 Phone: 713-685-2300 Veterans Benefits http://www1.va.gov/directory/guide/home.asp?isflash=1 U.S. Department of Veterans Affairs: VA Facility Locator Enter your postal code or click on your state to find a facility in your area. http://www.tvc.state.tx.us/ Texas Veterans Commission Phone: 512-463-5538, 800-252-8387 (Toll-free) E-mail: info@tvc.state.tx.us http://www.pva.org/ Paralyzed Veterans of America To locate a chapter near you, scroll to the bottom of the page, click on Chapters and NSOs. Chapter Offices http://mypva.org/ Lone Star Chapter 3925 Forest Lane Garland, TX 75042 Phone: 972-276-5252, Toll-free: 800-583-5252 http://www.texaspva.org/ Texas Chapter 2656 South Loop West, Suite 130 Houston, TX 77054 Phone: 713-520-8782 Toll-free: 800-933-4261 12
E-mail: lspva@lspva.net E-mail: info@texaspva.org Satellite Offices South Texas 4531 Ayers, No. 228 Corpus Christi, TX 78415 Phone: 888-382-3830 (Toll-free) San Antonio 3830 River Falls San Antonio, TX 78259-3647 Phone: 210-494-4205 National Service Offices Houston VA Regional Office 6900 Almeda Road, Room 1028 Houston, TX 77030-4200 Phone: 713-383-2727, 713-383-2723 Toll-free: 800-795-3571 Waco TX 1 Veterans Plaza 701 Clay Avenue, Room 115 Waco, TX 76799 Phone: 254-299-9944, 254-299-9942 254-299-9941 Toll-free: 800-795-3573 Houston VA Medical Center Michael E. DeBakey VA Medical Center 2002 Holcombe Boulevard, Room 1-B-164 Houston, TX 77030 Phone: 713-794-7993 Audie Murphy VAMC 7400 Merton Minter Boulevard Room C-014 San Antonio, TX 78229 Phone: 210-617-5300 x6819 Toll-free: 800-795-3572 Dallas Spinal Cord Injury Center 4500 S. Lancaster Road, Room 1-A-102 Dallas, TX 75216 Phone: 214-857-0105, 214-857-0106 Toll-free: 800-795-3570 ALS http://www.alsa.org The ALS Association National Office 1275 K Street NW, Suite 1050 Washington, DC 20005 Phone: 202-407-8580 Care services (providing information and referrals): 800-782-4747 (Toll-free) E-mail: alsainfo@alsa-national.org ALS Association Chapters Houston Office 13
P.O. Box 271561 Houston, TX 77277 Phone: 972-714-0088 Muscular Dystrophy Association s ALS Research Centers: MDA/ALS Center at the University Of Texas Jeffrey L. Elliott, M.D., Director Southwest Medical Center at Dallas 5323 Harry Hines Boulevard Dallas, TX 75235-8897 Phone: 214-648-2871 E-mail: Jeffrey.Elliott@utsouthwestern.edu MDA/ALS Center at Methodist Hospital Neurological Institute Stanley H. Appel, M.D., Director Ericka P. Simpson, M.D., Co-Director The Methodist Hospital Neurological Institute 6560 Fannin, Suite 802 Houston, TX 77030 Phone: 713-441-3760 E-mail: sappel@tmhs.org MDA/ALS Center at the University of Texas Health Science Center at San Antonio Carlayne E. Jackson, M.D., F.A.A.N., MDA Clinic Director Department of Neurology University of Texas Medicine San Antonio/UTHSCSA Medical Arts & Research Center 8300 Floyd Curl Drive San Antonio, TX 78229 Phone: 210-450-9700 E-mail: jacksonce@uthscsa.edu Brain Injury http://www.biatx.org Texas Brain Injury Alliance 316 West 12 th Street, Suite 405 Austin, TX 78701 Phone: 512-326-1212, 800-392-0040 (Toll-free) E-mail: info@biatx.org http://www.msktc.org/researchcenter/detail/texastbi North Texas Traumatic Brain Injury Model System 14
University of Texas Southwestern Medical Center and Baylor Institute of Rehabilitation Dallas, TX Cerebral Palsy http://chat.houston-texas.org/chatrooms/cerebral-palsy.html Houston Cerebral Palsy Chat http://www.ataxia.org National Ataxia Foundation (NAF) 2600 Fernbrook Lane, Suite 119 Minneapolis, MN 55447 Phone: 763-553-0020 National Ataxia Foundation Ambassadors Friedreich s Ataxia Dana Leblanc 2801 West Sunset #59H Orange, TX 77630 Phone: 409-883-5570 E-mail: tilessal@yahoo.com Debra Whitcomb 6821-b Escondido El Paso, TX 79912 Phone: 915-329-0721 E-mail: debrawhitcomb@hotmail.com Support Groups Central TX Support Group Linda Crawley 200 Spring Grove Drive Liberty Hill, TX 78642 Phone: 512-635-9478 E-mail: lcrawley57@gmail.com Houston Ataxia Support Group Angela Cloud 9405 Highway 6 South Houston, TX 77083 E-mail: angelahcloud@aol.com North Texas Support Group David Henry, Jr. 7 Wentworth Court Trophy Club, TX 76262 E-mail: Cheve11e@sbcglobal.net http://gbs-cidp.org/ Guillain-Barré Syndrome / CIDP 15
GBS/CIDP Foundation International 104½ Forrest Avenue Narberth, PA 19072 Phone: 610-667-0131, 866-224-3301 (Toll-free) Call for information in your area Multiple Sclerosis http://www.nationalmssociety.org National Multiple Sclerosis Society Toll-free phone: 800-FIGHT MS (800-344-4867) http://www.nationalmssociety.org/find-a-chapter/index.aspx National Multiple Sclerosis Society: Find a Chapter Search for chapter by state or zip code. National Multiple Sclerosis Society Offices http://www.nationalmssociety.org/txh Lone Star 8111 North Stadium Drive, Suite 100 Houston, TX 77054 Phone: 713-394-2900 Toll-free: 800-323-4873 Amarillo 6222 Canyon Drive Amarillo, TX 79109 Phone: 806-468-8005 Dallas 2105 Luna Rd., Ste. 390 Carrollton, TX 75006 Phone: 469-619-4700 Toll-free: 800-686-7415 Lubbock 3610 22nd Street, Suite 201 Lubbock, TX 79410 Phone: 806-687-4816 Austin 9600 N. Mopac, Suite 150 Austin, TX 78759 Phone: 512-340-2700 Toll-free: 877-524-4044 Corpus Christi 4601 Corona, Ste. 2303 Corpus Christi, TX 78411 Phone: 361-855-1974 Fort Worth 4086 Sandshell Drive Fort Worth, TX 76137 Phone: 817-306-7003 Midland 1031 Andrews Highway, Suite 201 Midland, TX 79701 Phone: 432-522-2143 San Antonio 9830 Colonnade Boulevard, Suite 130 San Antonio, TX 78230-2203 Phone: 210-694-3200 16
Toll-free: 800-683-1627 http://www.msassociation.org/ Multiple Sclerosis Association of America National Headquarters 706 Haddonfield Road Cherry Hill, NJ 08002 Phone: 856-488-4500, 800-532-7667 (Toll-free) E-mail: webmaster@msassociation.org Support Groups Beaumont Phone: 409-866-2837 Meets 3 rd Saturday of each month Fort Worth Phone: 817-460-8503 Meets 2 nd Wednesday of each month Muscular Dystrophy http://www.mdausa.org Muscular Dystrophy Association (MDA) Enter your zip code in the Find your local MDA section for MDA offices and clinics that treat MD in your area. http://www.post-polio.org Post-Polio Health International 4207 Lindell Boulevard #110 Saint Louis, MO 63108-2930 Phone: 314-534-0475 E-mail: info@post-polio.org Post-Polio Syndrome http://www.post-polio.org/net/poldir.pdf The Post-Polio Directory 2012 lists by state clinics, physicians, support groups and associations which specialize in post-polio syndrome. It can be downloaded for free; print copies are available for $12. http://www.spinabifidaassociation.org Spina Bifida Association (SBA) Spina Bifida 17
4590 MacArthur Boulevard, NW Suite 250 Washington, DC 20007 Phone: 202-944-3285, 800-621-3141 (Toll-free) E-mail: sbaa@sbaa.org SBA Chapters http://www.sbatx.org/ Spina Bifida Texas 1550 NE Loop 410, Suite 224 San Antonio, TX 78209 Phone: 210-826-7289 http://spinabifidant.org/ SBA of North Texas 705 West Avenue B, Suite 409 Garland, TX 75040 Phone: 972-238-8755 E-mail: information@spinabifidant.org http://www.sbahgc.org/ SBA of Houston Gulf Coast 440 Benmar, Suite 3052 Houston, TX 77060 Phone: 281-447-2707 Clinics Dell Children's Medical Center of Central Texas Specialty Care Center (pediatric, will refer adults) 4900 Mueller Boulevard Austin, TX 78723 Phone: 512-324-0137 http://www.moodyclinic.net/ Moody Clinic (pediatric only) 1901 E. 22nd Street Brownsville, TX 78521 Phone: 956-542-8504 http://www.tsrhc.org Texas Scottish Rite Hospital for Children Spina Bifida Clinic (pediatric) 2222 Welborn St. Dallas, TX 75219 Phone: 214-559-7857 http://www.tsrhc.org Texas Tech Orthopaedic Clinic (pediatric and adult orthopaedic only) 4801 Alberta El Paso, TX 79905 http://www.cookchildrens.org Cook Children's Medical Center Department of Neurology (pediatric, will refer adults) 901 Seventh Avenue, Suite 120 Fort Worth, TX 76104 Phone: 682-885-2500 Shriners Hospital for Children University of Texas Medical Branch Special Services Clinic 301 University Boulevard Galveston, TX 77555-0340 Phone: 409-772-2331 Texas Children's Hospital 18
Myelo Program (pediatric only) 6977 Main Street Houston, TX 77030 Phone: 713-797-1616 Wilford Hall Medical Center Department of Urology (pediatric and adult) 2200 Berquiest Drive, Suite 1 Lackland AFB, TX 78236-5300 Phone: 210-292-5767 Spina Bifida Clinic (pediatric, will refer adults) 6701 Fannin Street Houston, TX 77030 Phone: 832-822-4308 Christus Santa Rosa Center for Children and Families Spina Bifida Evaluation Center 333 N. Santa Rosa San Antonio, TX 78207 Phone: 210-704-2963, 210-704-2335 (ask for SB clinic) http://www.sahealth.com/ Methodist Healthcare Pediatric Specialty Clinics (pediatric only) 4499 Medical Drive Sublevel 1 @ Methodist Plaza San Antonio, TX 78229 Phone: 800-297-1021 (Toll-free) Spinal Cord Injury http://www.spinalcord.org National Spinal Cord Injury Association (NSCIA) http://www.spinalcord.org/about/nscia-chapters/ NSCIA Chapters Rio Grande Chapter Highlands Regional Rehabilitation Hospital 1395 George Dieter El Paso, TX 79936 Phone: 915-532-3004 Contact: Sukie Armendariz Phone: 915-298-7241, 915-241-2805 Contact: Ron Prieto http://www.txspinalcord.org Houston Chapter of NSCIA P.O. Box 70515 Houston, TX 77270 Phone: 713-364-4724 Contact: Rafferty Laredo E-mail: txspinalcord@gmail.com http://www.spinalcord.org/about/nscia-chapters/ NSCIA Support Groups Recovery with E.A.S.E. (Education, Advocacy and Support for Everyone) Friday: 7 8:30 pm Central Market Strength Unlimited Health and Wellness Activity and Support Monday and Wednesday: 4 8 pm Friday: 3 7 pm 19
Room: Community Lounge 3815 Westheimer Road Houston, TX 77027 Contact: Suzette Sova Shaikh, MA, LPC E-mail: suzette_sova@yahoo.com Phone: 832-584-3810 Spinal Cord Injury Survivors of Houston Facilitated by persons living with SCI Monday, 3 4 pm TIRR Memorial Hermann Outpatient Rehabilitation Room: Staff Lounge 2455 S. Braeswood Houston, TX 77030 Contact: Kathy Carrico, LCSW E-mail: kathleen.carrico@memorialhermann.org Phone: 713-383-5613 Saturday 9 am 1 pm TIRR Memorial Hermann Outpatient Rehabilitation 2455 Braeswood Houston, TX 77030 Contact: Anna de Joya, PT E-mail: Anna.Dejoya@memorialhermann.org Phone: 713-797-7627, 713-524-9702 Survivors! Wednesday, 3 4 pm TIRR Memorial Hermann Outpatient Rehabilitation Room: Staff Lounge 2455 S. Braeswood Houston, TX 77030 Contact: Kathy Carrico, LCSW E-mail: kathleen.carrico@memorialhermann.org Phone: 713-383-5613 Texas Regional Model SCI System The Institute for Rehabilitation and Research (TIRR) 1333 Moursund Avenue Houston, TX 77030 Phone: 713-797-5908 Sherman support group Phone: 903-647-0387 http://pressingontx.com/ Pressing On 12001 Network Boulevard #314 San Antonio, TX 78249 Phone: 210-877-2228 Pressing On is a non-profit organization which provides a specialized exercise-based training program for those living with paralysis due to spinal cord injury, traumatic brain injury, multiple sclerosis, stroke and other physical disabilities. http://www.lonestarparalysis.org/ Lone Star Paralysis Foundation 1215 Red River, Suite 421 Austin, TX 78701 20
The mission of the Lone Star Paralysis Foundation is to cure spinal cord paralysis through funding research, advanced recovery, and community outreach. http://www.strokeassociation.org/ American Stroke Association Phone: 888-478-7653 (Toll-free) Call for a support group in your area. Stroke Syringomyelia/Chiari Malformation http://www.asap.org/ American Syringomyelia & Chiari Alliance Project (ASAP) P.O. Box 1586 Longview, TX 75606-1586 Phone: 903-236-7079, 800-272-7282 (Toll-free) E-mail: info@asap.org Support Groups North Houston Chiari & Syringo Support Group Kerry Chu Cypress, TX Phone: 516-330-7152 E-mail: Kerry_Chu@ASAP.org San Antonio / Houston Area Susie Brasseal P. O. Box 859 Cypress, TX 77410-0859 Phone: 281-246-1909 (leave message) E-mail: sbrasseal@aol.com or Texas4ASAP@aol.com Central Houston Chiari & Syringo Support Group Eva Storey Houston, TX Phone: 713-820-8095 E-mail: estorey@signshares.com Transverse Myelitis 21
http://texastm.tripod.com/ Texas Transverse Myelitis Coalition Dallas/Fort Worth Contact: Barbara Lamb E-mail: Babbsie1982@yahoo.com Central Texas Contact: Cossy Hough E-mail: cossyh@yahoo.com Houston Contact: Bob Cook E-mail: rcookhook@earthlink.net http://transmyelitis.meetup.com/cities/us/tx/ TM MeetUp Click on a city to see if it has a TM meet-up group. General Disability Resources http://www.disabilityresources.org/texas.html DRM Regional Resource Directory: Texas http://www.familyvillage.wisc.edu/comm/texas.html Family Village: Texas Disability Resources http://nichcy.org/state-organization-search-by-state National Dissemination Center for Children with Disabilities: Search by State Search for state agencies, disability-specific organizations, organizations for parents, and other disability organizations in Texas. http://www.yellowpagesforkids.com/help/tx.htm Texas Yellow Pages for Kids http://www.abilityconnectiontexas.org/ Ability Connection Texas (formerly UCP Dallas) 8802 Harry Hines Boulevard Dallas, TX 75235 Phone: 800-999-1898 (Toll-free) Ability Connection Texas provides a full range of services for people with physical and intellectual disabilities as they strive to achieve their highest level of independence. http://www.tpta.org/ Texas Physical Therapy Association 900 Congress Avenue, Suite 410 Austin, TX 78701 Phone: 512-477-1818 22