Kentucky Disability Resources

Transcription

1 Kentucky Disability Resources Affordable Care Act (ACA) HHS.gov: How the Health Care Law is Making a Difference for the People of Kentucky To get coverage under the ACA, go to to find out more about the Health Insurance Marketplace and the options available in your state. VSA arts of Kentucky P.O. Box 3320 Bowling Green, KY Phone: TTY: Relay: [email protected] ARTS and CREATIVITY ASSISTIVE TECHNOLOGY Kentucky Assistance Technology Services (KATS) Network 8412 Westport Road Louisville, KY Phone: Southeast ADA Center (covers Kentucky) 1419 Mayson Street NE 1

2 Atlanta, GA Phone: (voice/tty) Kentucky Assistive Technology Loan Corporation 209 St. Clair Street Frankfort, KY Phone: CAREGIVERS INFORMATION Kentucky Caregiver Support Groups Tel: (954) Barren Heights Retreat 3109 Brownsboro Vista Louisville, KY Phone: A non-profit organization that provides weekend retreats for family caregivers of a physically disabled child at no cost to the family. This is a Christian charity that focuses on strengthening family identity and Christian community. Well Spouse Association: Support Groups Greater Cincinnati Well Spouse Support Group Union KY, and Greater Cincinnati Dave Leigh Phone: (513) [email protected] Kentuckyiana Well Spouse Support Group New Albany, IN Julie Waterbury Phone: (812) COMMUNITY-BASED FITNESS PROGRAMS 2

3 Frazier Rehab Institute 200 Abraham Flexner Way Louisville, KY Phone: Contact Karey McDowell at A Reeve Foundation NRN center. CRIME VICTIM ASSISTANCE Kentucky Crime Victim Compensation Board Victim Compensation Phone: Victim Assistance Phone: Office for Victims of Crime s Directory of Crime Victim Services Choose Your State and the Type of Assistance you are looking for Safe Horizon s Links for General Crime Victim Resources/Issues DOMESTIC VIOLENCE HELP National Domestic Violence Hotline: SAFE (7233) National Resource Center on Domestic Violence: Statewide Hotline: Kentucky Domestic Violence Association 111 Darby Shire Circle, Frankfort, KY Phone: KDVA (5382) [email protected] Aardvarc s Kentucky Domestic Violence Crisis and Support Resources contact information by City/County 3

4 EASTER SEALS OFFICES Go to Search by State drop down box and pick Kentucky lists 10 Kentucky Easter Seals Offices GOVERNMENT OFFICES Kentucky State Website Kentucky Cabinet for Health and Family Services Office of the Secretary 275 East Main Street Frankfort, KY Phone: TTY: Kentucky Office of Vocational Rehabilitation 275 East Main Street Mail Stop 2E-K Frankfort, KY Phone/TTY: TTY: Kentucky Medicaid Office 275 East Main Street Mail Stop 2E-K Frankfort, KY Phone/TTY: TTY: Kentucky SCHIP Program (State Children s Health Insurance Program) 275 E. Main Street 6E-A Frankfurt, KY Phone:

5 Kentucky SHIP Program (State Health Insurance Program - for Seniors) Office of Aging Kentucky Cabinet for Health Services Phone: Kentucky Home and Community Based Services Waiver (HCBS) Kentucky Office of Insurance 215 W. Main Street Frankfort, KY Phone: TTY: Kentucky Access ATTN: Claims P.O. Box Indianapolis, IN Phone: TTY: Kentucky High Risk Insurance Plan for eligible people who are unable to get insurance coverage. Kentucky Workers Compensation Workers Compensation Branch 657 Chamberlin Ave. Frankfort, KY Phone: Kentucky Office of ADA Coordinator Capital Plaza Tower, 2 nd Floor 500 Mero Street Frankfort, KY Phone/TTY: d_official/siteapps/advocacy/search.aspx Find your elected officials to contact them on legislation that is important to you. 5

6 Kentucky Council on Developmental Disabilities 100 Fair Oaks Lane 4E-F Frankfort, KY Phone: State LTC Ombudsman Kimberly Baker Kentucky LTC Ombudsman Program 275 East Main Street 3W-F Frankfort, Kentucky Phone: (502) The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities. HOUSING Kentucky Independent Living Centers Kentucky Housing and Urban Development (HUD) Office Gene Snyder Courthouse 601 W. Broadway Room 110 Louisville, KY Phone: TTY: LIBRARY SERVICES Kentucky Library for the Blind and Physically Handicapped 300 Coffee Tree Road P.O. Box 537 Frankfort, KY Phone: Toll-free:

7 NeuroRecovery Network (NRN) Frazier Rehab Institute Louisville, KY The NRN is a network of rehab programs designed to provide locomotor (treadmill) training to promote functional recovery and improve the health and quality of life for people living with paralysis. The program is for people with spinal cord injuries. The NRN is a program of the Reeve Foundation. For more info on qualifying for the program, please go to PROTECTION and ADVOCACY Kentucky Protection and Advocacy Office for Public Advocacy Division for P&A 100 Fair Oaks Lane 3 rd Floor Frankfort, KY Phone: TDD: Kentucky Client Assistance Program (CAP) 275 East Main Street, 2nd Floor Mail Stop 2EJ Frankfort, KY Phone: , or SERVICE DOGS AIM HI Service Dog Training Center (Animals in the Military Helping Individuals) Bldg Eisenhower Ave. Fort Knox, KY Phone: Areas served: International (Military dependents and veterans only) Canine Companions for Independence (CCI) North Central Regional Center 4989 State Route 37 East Delaware, OH

8 Phone: (voice/tty) Toll-free: BARK (2275) CCI s North Central Regional Center serves several states, including Kentucky. Midwest Assistance Dogs P.O. Box 1891 South Bend, IN Phone: Types of dogs trained: mobility assistance, hearing, seizure alert, emotional support, therapy, companion Areas served: Indiana, Illinois, Ohio, Michigan, Wisconsin, Iowa, Kentucky SPORTS and RECREATION Disabled Sports USA National Headquarters 451 Hungerford Drive Suite 100 Rockville, MD Phone: No Kentucky chapter listed United Spinal: Sport & Recreation Programs No Kentucky chapter listed Phone: [email protected] BlazeSports Louisville Frazier Rehab Institute Phone: (502) Frazier Rehab Institute 220 Abraham Flexner Way Louisville, KY Phone: Offers an adaptive sports program City of Louisville, Parks System Adapted Leisure Activities 8

9 2305 Douglass Boulevard #3 Louisville, KY Phone: UNITED WAY OFFICES National United Way National Headquarters 701 North Fairfax Street Alexandria, VA Phone: Enter postal code for a United Way office in your area VETERAN BENEFITS US Department of Veterans Affairs VA Hospital Locator VA Medical Centers: Lexington VA Medical Center 1101 Veterans Drive Lexington, KY Phone: Louisville VA Medical Center 800 Zorn Avenue Louisville, KY Phone: Kentucky-Indiana Chapter Paralyzed Veterans of America (PVA) Office 1030 Goss Avenue 9

10 Louisville, KY Phone: ALS Kentucky Chapter of ALS Association 2807 Amsterdam Road Villa Hills, KY Phone: BRAIN INJURY Brain Injury Alliance of Kentucky 7321 New LaGrange Road, Suite 100 Louisville, Kentucky Phone: CEREBRAL PALSY United Cerebral Palsy of Greater Cincinnati 3601 Victory Parkway Cincinnati, OH Phone: National Ataxia Foundation 2600 Fernbrook Lane, Suite 119 Minneapolis, MN Phone: FRIEDREICH S ATAXIA 10

11 NAF Ambassadors: Janice Johnson 8555 Brownsville Road Brownsville, KY Phone: GUILLAIN-BARRÉ SYNDROME Guillain-Barré Syndrome/CIDP Foundation International The Holly Building 104 1/2 Forrest Avenue Narberth, PA Phone: Call for information in your area MULTIPLE SCLEROSIS National Multiple Sclerosis Society (NMSS) 800-FIGHT-MS Indiana Chapter of NMSS 3500 DePauw Blvd. Suite 1040 Indianapolis, IN Phone: The Indiana State Chapter works to improve the quality of life for people affected by MS in Indiana and northwestern Kentucky and raise funds for critical MS research. Multiple Sclerosis Association of America (MSAA) MSAA Midwest Regional Office 5441 N. E. River Rd. #380 Chicago, IL (800) extension The Midwest office covers Ohio, Illinois, Indiana, Kentucky, Michigan, Minnesota, West Virginia, Wisconsin, Iowa, North Dakota, South Dakota, and Nebraska. MUSCULAR DYSTROPHY 11

12 Muscular Dystrophy Association National Headquarters 3300 East Sunrise Drive Tucson, AZ Phone: Enter your postal code in the Find your local MDA section of the website for MD clinics in your area. POST-POLIO SYNDROME Post-Polio Health International (PHI) 4207 Lindell Blvd. #110 St. Louis, MO Phone: Directory lists Health Professionals, Clinics, and Support Groups by state. Kentucky Post Polio Support Group Polio Survivors Organization, Inc. Frances L. Brown Phone: Spina Bifida Association of America P.O. Box Arlington, VA Phone: Please contact them for info in your area SPINA BIFIDA Spina Bifida Association of Kentucky (chapter of Spina Bifida Association of America) 982 Eastern Pkwy. Box 18 Louisville, KY Phone: SBAK 12

13 SBAA Kentucky Clinics: Shriner's Hospital for Children Spina Bifida Program (ortho clinic only-will refer for pediatric and adult care) 1900 Richmond Road Lexington, KY Phone: KY Commission for Children with Special Health Care Needs (pediatric-will refer adults) 310 Whittington Parkway, Suite 200 Louisville KY (502) (800) Frazier Rehab Institute Adult Spina Bifida Clinic (Adults Only) 220 Abraham Flexner Way Louisville, KY Phone: SPINAL CORD INJURY Kentucky Spinal Cord Injury Research Center University of Louisville 511 S. Floyd Street Louisville, KY Phone: Frazier Rehab Institute: Spinal Cord Medicine Program 220 Abraham Flexner Way Louisville, KY Phone: NSCIA Kentucky Chapters, Support Groups and State Resources Derby City Area Chapter, NSCIA 305 West Broadway 13

14 Louisville, KY, Phone: Contact: David Allgood, President CDC s Heart Disease & Stroke Maps Click on Kentucky STROKE American Stroke Association National Center 7272 Greenville Avenue Dallas, TX Phone: Call them for the stroke support group in your area Primary Stroke Care Centers accredited by Joint Commission on Accreditation of Healthcare Organizations (JCAHO): Jewish Hospital Abraham Flexner Way Louisville, KY Phone: University of Kentucky Hospital 800 Rose Street H-106 Lexington, KY Phone: Ghbutl2@ .uky.edu University of Louisville Hospital 530 South Jackson Street Louisville, KY Phone: [email protected] SYRINGOMYELIA/CHIARI MALFORMATION 14

15 American Syringomyelia & Chiari Alliance Project PO Box 1586 Longview, TX Phone: ASAP American Syringomyelia & Chiari Alliance Project Online Support Group Transverse Myelitis Association 1787 Sutter Parkway Powell, OH Phone: Please contact them for info in your area. TRANSVERSE MYELITIS TM MeetUp Enter your postal code for a MeetUp in your area. Meetings are usually held in local restaurants. GENERAL DISABILITY RESOURCES Disability Resources.org: Kentucky Kentucky Yellow Pages for Kids with Disabilities Kentucky Chapter of the American Occupational Therapy Association P.O. Box 5531 Louisville, KY Phone: [email protected] 15

16 Kentucky Chapter of the American Physical Therapy Association Teal Road Verona, KY Phone: Kentucky chapter of the Association of People Supporting EmploymentFirst (ASPE) Katie Wolf-Smith, President Lex-Care, Inc. P.O. Box 1328 Lexington, KY Phone: Lex-Care is a non-profit organization that helps Kentucky residents in need of transportation, diapers, etc. Lex-Care maintains a fund to assist people with financial and material needs when no other source is available. The fund is supported solely by private contributions. To receive support, the referral must come from a social worker. The fund specifically does not help pay for drugs. Kentucky AgrAbility University of Kentucky N106F Ag Science North Lexington, KY Phone: Toll-free phone: Provides technical assistance with modifying tools, equipment or machinery, provides information and professional training to farmers with disabilities. Healthboards.com message boards on health related topics. Topics include SCI, CP, Stroke, and more. First Call Phone: 211 Provides callers with information about and referrals to human services for every day needs and in times of crisis. Can offer access to the following types of services: adult day care, respite care, home health care, transportation, support groups, Medicaid/Medicare, etc. The caller is provided with phone numbers, programs and services provided, location, hours of operation, and any other relevant information for the 16

17 inquiry. All calls are confidential. Can only be dialed from a land line. If you dial 211 or your state s number and you are not connected, this service has not yet been provided to your area. ThinkFirst National Injury Prevention Foundation 1801 N. Mill Street, Suite F Naperville, IL Phone: THINK56 [email protected] ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter information in your area, please go to their website and click on the Chapter Site tab. The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message. 17