QUESTIONNAIRE SUMMARY
Objectives & Methodology. OBJECTIVES OF THE RESEARCH 1.) Collect basic information about national associations in BIF-EC 2.) Briefly describe the situation and the system of care after brain injury in individual countries METHODOLOGY OF THE RESEARCH Research tool: Questionnaire 18 questionnaires were sent to the BIF-EC partners Returnability: 9 complete questionnaires (Austria, Czech Republic, France, Iceland, Ireland, Portugal, Slovenia, Spain, UK)
FINANCING OF THE BIF ORGANISATION A5. How is your organisation financed? Could you estimate the approximate percentage of the funding? 35 2 6 12 2 52 35 10 5 Other way Company Sponsorship 1 30 8 24 2 78 100 4 41 3 80 2 6 12 2 84 20 17 28 3 13 50 10 20 5 95 5 Foundations - charities Ministry of Health Ministry of Labour Ministry of Social Affairs Government Member Fees Czech Republic UK Portugal Sweden Iceland France Spain Slovenia Ireland Private Funds %
HOSPITAL FOLLOW UP RHB RESPONSIBILITY B8. Who is responsible for moving the patient with BI from hospital/in-patient rehabilitation to follow-up care/rehabilitation in your country? REFERENT CASE MANAGER KEY WORKER FAMILIES DOCTORS NO ONE OTHER UK FRANCE SWEDEN IRELAND AUSTRIA CZECH REPUBLIC SPAIN ICELAND SLOVENIA
SERVICES OF THE BIF ORGANISATION A4. Which of the following services does your organisation provide? AUT CZ FR IS SLO SPA SWE UK IR Help line x Psychological support Social Services Supported Accomodation Supported Employment Reha Centres Vocational reha Community reha Outreach Team x Other x x x x
SERVICES OF THE BIF ORGANISATION A4. What fields of cooperation with other EU/international associations is your association interested? (possible projects) AUT CZ FR IS P SLO SPA SWE UK IR Awareness Campaing Sharing of experience rehabilitation Sharing of experience provision of social services x Sharing of experience supported employment services * Sharing of experience vocational rehabilitation * Cultural events * Capacity building * How system of care/rehabilitation should be organised Research x *After year 2010
STATE ASSESSMENT OF THE SERVICES
EARLY REHABILITATION VERY WELL WELL POORLY VERY POORLY AUSTRIA ICELAND SLOVENIA FRANCE IRELAND UNITED KINGDOM CZECH REPUBLIC SPAIN
REHABILITATION (FOLLOW UP) VERY WELL WELL POORLY VERY POORLY AUSTRIA FRANCE IRELAND SLOVENIA CZECH REPUBLIC UNITED KINGDOM ICELAND SPAIN
LONG-TERM CARE VERY WELL WELL POORLY VERY POORLY FRANCE IRELAND UNITED KINGDOM AUSTRIA CZECH REPUBLIC ICELAND SLOVENIA SPAIN
RESPITE CARE VERY WELL WELL POORLY VERY POORLY AUSTRIA FRANCE SPAIN CZECH REPUBLIC ICELAND IRELAND SLOVENIA UNITED KINGDOM
SOCIAL SERVICES VERY WELL WELL POORLY VERY POORLY FRANCE SPAIN AUSTRIA CZECH REPUBLIC ICELAND SLOVENIA UNITED KINGDOM IRELAND
EMPLOYMENT SERVICES VERY WELL WELL POORLY VERY POORLY CZECH REPUBLIC FRANCE IRELAND SLOVENIA SPAIN UNITED KINGDOM AUSTRIA ICELAND
SUPPORT ACCOMODATION SERVICES VERY WELL WELL POORLY VERY POORLY FRANCE UNITED KINGDOM AUSTRIA CZECH REPUBLIC ICELAND SLOVENIA SPAIN IRELAND
Key provider of information Who is the key provider of information to the patient with BI and family in hospital / after leaving hospital (in community or rehabilitation centre)? In hospital Doctors Therapist and other professional Patient s organisation After leaving hospital Doctors Therapist and other professional in the field Patient s organisation
that functions well B13. What do you think that functions well for people after BI in the systém of care in your country? Acute care and rehabilitation ( FRANCE) Acute care and tretment, neurosurgery for people with TBI. Acute tretment for patients with cerebrovascular incidents is not that well organized yet. However, from now on they will be directed to special strokes units that will also provide them with multidosciplinary early rehabilitation. (CZECH REPUBLIC) Nothing, because they don t any basic need covered. (SPAIN) Acute treatment is generally excellent. Rehabilitation provision is good excellent where available. Where they are available, all of our services operate to a very high standard within general NHS and more neurological-conditions specific guidelines (NSF). We are lucky to have some good services in this country. Our welfarú social services are quite well developed and provide a good service but there is a wide variation (UK) Acute care and early rehabilitation to some extent (ICELAND) Daily care in bigger cities (socialization and learning of people with BI in associations (SLOVENIA) Acute care is excellent, early intensive care as well. The long term rehabilitation is not up to best practice (SWEDEN) Neurosurgery and acute care is well delivered. Post acute inpatient rehabiitation is high quality when it can be accesed (AUSTRIA) Neurosurgery and acute care is well delivered. Post acute inpatient rehabilitation is high quality when it can be accessed.