ADRIANE HUNSBERGER GELPI, PhD, MPH 917-696-1876 agelpi@post.harvard.edu EDUCATION Harvard University, PhD, Health Policy and Ethics March 2014 Columbia University, Mailman School of Public Health, MPH, History and Ethics 2007 Harvard University, AB, magna cum laude, History and Science 2002 GLOBAL HEALTH CONSULTING AND POLICY EXPERIENCE Consultant, Chile Ministry of Health November 2014 Implementation of reforms to Chile s National Health Technology Assessment Commission Consultant, Pan American Health Organization (PAHO) 2012-13 Regional Program on Bioethics, with WHO s Global Bioethics Research Consortium Developed syllabus for course on Public Health Ethics for Latin America Consultant, Chile Ministry of Health and PAHO 2012-13 Planned and co-organized conference, Ethics in Priority Setting in Health, Santiago. Delivered keynote address: Implementing a Deliberative Process for Priority Setting Researcher, Mexico Secretary of Health/Harvard School of Public Health 2007-09 Led capacity-building project to promote skills in ethical analysis of priority setting in Mexico for stakeholders, policymakers and academics. Organized workshops on public health ethics for stakeholders and academics Colombian Ministry of Health, Bogotá, Colombia 2009 Advised Ministry of Health s workshops on ethical concerns in health sector reform UN Millennium Development Goals Centre, Nairobi, Kenya Summer 2006 Health Policy Intern, Departments of Malaria Control and Maternal and Child Health Mahatma Gandhi Memorial Medical Trust, Rural Andhra Pradesh, India Summer 2001 Health Educator, Conducted health education sessions at rural schools and clinics PROJECT MANAGEMENT Project Manager and Editor, Columbia University s Digital Knowledge Ventures 2004-07 Led and managed teams of editors, developers, producers, designers Created digital media projects to promote Columbia s research in Developed proposals for new projects, cultivated new clients Managed the budgets and timelines of multiple projects at once Served as principal liaison with clients, both faculty and external 1
DISSERTATION Title: Priority Setting for HIV and Mental Health in Mexico: Historical, Quantitative and Ethical Perspectives PUBLICATIONS Gelpi, Adriane, Joseph D. Tucker, After Venus, Mercury: Syphilis Treatment in the United Kingdom before Salvarsan, (Forthcoming, Sexually Transmitted Infections). Gelpi, Adriane, Joseph D. Tucker, The Magic Bullet Hits Many Targets: Salvarsan s Impact on UK Health Systems, 1909-1943, (Forthcoming, Sexually Transmitted Infections). Gelpi, Adriane, Joseph D. Tucker, Adam Gilberston, Magic Bullet: Paul Ehlrich, Salvarsan and the Birth of Venereology, (Forthcoming, Sexually Transmitted Infections). Tucker, Joseph D., Adriane Gelpi, David Bangsberg, Raul Necochea, The Disruptive Influence of Syphilis Cures within Specialist Venereal Systems: Implications for HIV Cure Preparedness, (Forthcoming, Sexually Transmitted Infections). Tucker, Joseph D., Stuart Rennie, the Social and Ethical Working Group on HIV Cure (includes Adriane Gelpi), "Social and ethical implications of HIV cure research." AIDS 28, no. 9 (2014): 1247-1250. Daniels, N., Valencia-Mendoza, A., Gelpi, A., Hernandez-Avila, M, Bertozzi. The Art of Public Health: Pneumococcal vaccine coverage in Mexico, The Lancet, vol. 375, issue 9709, 114-115, 9 January 2010. Daniels, N., Saloner B., A. H. Gelpi. "Access, Cost, and Financing: Achieving an Ethical Health Reform." Health Affairs (Project Hope) 28, no. 5 (Sep-Oct, 2009): w909-16. FELLOWSHIPS Yale-Hasting Center Program in Ethics and Health Policy Fall 2014 Postdoctoral Fellow, UNC-Chapel Hill, School of Medicine Jan 2014-Sep 2014 NIH-funded grant on Social and Ethical Implications of Curing HIV Researched community engagement in HIV cure research Tel Aviv University, Safra Center for Ethics, Israel Spring 2014 Edmond J. Safra Center for Ethics, Harvard Law School, Lab Fellow 2012-present Center for Health Decision Science, Harvard School of Public Health 2012-14 Brocher Foundation, Geneva, Switzerland, Visiting Researcher Summer 2012 Edmond J. Safra Center for Ethics, Harvard Law School, Graduate Fellow 2011-12 RESEARCH GRANTS Dissertation Completion Fellowship, Harvard Graduate Society 2011-12 Hertog Global Strategy Initiative, Columbia University Summer 2011 David Rockefeller Center for Latin American Studies, Graduate Associate 2009-11 Harvard Graduate Society, Merit-based Research Grant 2009 National Institute of Mental Health, Pre-doctoral traineeship 2007-09 Harvard Graduate Prize Fellowship 2009-11 2
TEACHING and COURSE DEVELOPMENT (all at Harvard) Undergraduate Classes: Global Health Challenges: Complexities of Evidence-Based Policy, History of Global Health (online course), Introduction to Health Care Policy Graduate-level Classes: Justice and Resource Allocation, Ethics of Public Health, Political Analysis and Strategy for US Health Policy, Global Justice and Global Health (also co-developed syllabus) Mentoring: Harvard s Cordeiro Fellowship for Undergraduate Research; Columbia Hertog Initiative for History and Public Policy. SELECTED CONFERENCE PRESENTATIONS and ACTIVITIES Panel Organizer, HIV Cure Research and Social Participation, American Society for Bioethics and Humanities Annual Meeting, San Diego, October 2014. Speaker, Panel: Public Engagement: From Tokenism to Full Accountability, American Society for Bioethics and Humanities Annual Meeting, San Diego, October 2014. Speaker, Stakeholder Deliberation in Research Ethics: The Case of HIV Cure, The Hastings Center, Garrison, NY, September 18, 2014. Speaker, Rethinking the Ethics of Public Engagement for Health Reform, O Neill Institute for National and Global Health Law, Georgetown U. Law Center, Washington, DC, date TBD. Speaker, Institutional Corruption and the Case of Mexico s Mental Health System, National Autonomous University of Mexico, Mexico City, June 2014. Speaker, Rethinking Public Engagement in an Era of Health Reform, Center for Bioethics and Humanities Center Seminar, SUNY Upstate Medical University, Syracuse, NY, June 2014. Speaker, Normative and Empirical Dimensions of Public Deliberation for HIV Cure," Brocher Foundation, Geneva, Switzerland, May 2014. Speaker, Ethics and Priority Setting for Mental Health: The Case of Mexico, Association of Spanishspeaking Mental Health Professionals in Israel, Jerusalem, Israel, May 2014. Speaker, Normative Challenges of Stakeholder Participation in Health Policymaking, Tel Aviv University, Edmond J. Safra Center for Ethics, Tel Aviv, Israel, February 2014. Keynote Speaker, From Theory to Practice: Implementing Fair Process for Priority Setting, Chilean Ministry of Health/PAHO Regional Bioethics Division, Santiago, Chile, March 2013. Speaker, Stakeholder and Advocate Engagement, Special Session of the National Commission for Health Technology Assessment, Santiago, Chile, March 2013. Speaker, The evolution of an interdisciplinary research program on stigmatized diseases in Mexico, Workshop at the Brocher Foundation, Geneva, Switzerland, July 2012. 3
Speaker, Outrage and Evidence: Mental Health Reform in Mexico, 1975-2010, Annual Conference, American Association for the History of Medicine, Philadelphia, April 2011. Speaker, Beyond Universal Treatment Access: A Multi-Level Analysis of Mental Health Care in HIV Clinics in Mexico, National Institute of Public Health, Mexico City, January 2011. Co-presenter (with Norman Daniels), Role of the Courts in Health Reform: Lessons from Colombia, Tele-seminar to University of Texas Law School, Workshop: Philosophy and Law, 2009. Speaker, Priority Setting in Mexico and Colombia, Workshop on Ethics of Priority Setting in Global Health, Arusha, Tanzania, June 2009. Speaker, Ethics of Priority Setting in Mexico, Biannual Conference of the International Society for Priorities in Health Care, Newcastle, U.K., October 2008. AWARDS and HONORS Rothschild Prize, Best Thesis in History of Science 2001 Thomas Temple Hoopes Prize, Outstanding Senior Thesis 2001 John Harvard Scholarship for Academic Achievement (4.0 GPA) 2001 Harvard College Scholarship for Academic Achievement (3.9 GPA) 2000 ACADEMIC SERVICE Reviewer, MIT University Press 2012-present International Society for Priority Setting in Health, Organizing Committee, Annual Conference, Boston, April 2010. 4
REFERENCES Professor Norman Daniels, PhD Mary B. Saltonstall Professor of Ethics and Population Health Department of Global Health and Population Building I, Rm 1210D Harvard School of Public Health 665 Huntington Ave Boston MA 02115 Email: ndaniels@hsph.harvard.edu; Tel: 617-432-2360 Professor Allan Brandt, PhD Dean Emeritus of the Graduate School of Arts and Sciences; Professor of the History of Science; Amalie Moses Kass Professor of the History of Medicine at Harvard Medical School Department of History of Science Science Center 371 Cambridge, MA 02138 Email: brandt@fas.harvard.edu; Tel: 617-496-1464 Professor David Cutler, PhD Otto Eckstein Professor of Applied Economics, Department of Economics Littauer Center, 230 1875 Cambridge Street Harvard University Cambridge, MA 02138 Email: dcutler@harvard.edu; Tel: 617-496-5216 Professor Lawrence Lessig, JD Roy L. Furman Professor of Law and Leadership, Harvard Law School Faculty Director, Edmond J. Safra Center for Ethics, Harvard University 124 Mount Auburn Street, Suite 520N Cambridge, MA 02138 Email: lessig@pobox.com; Tel: 617-496-1124 5
DISSERTATION ABSTRACT This dissertation, Priority Setting for HIV and Mental Health in Mexico: Historical, Quantitative and Ethical Perspectives, consists of three thematically-related, yet methodologically distinct, articles. Each article employs a different discipline history, statistics or ethics-- to examine the central topic: priority setting for health in general, and specifically HIV and mental health policy in Mexico. The focus on both mental health and HIV two highly stigmatized diseases with almost opposite histories of prioritization serves to highlight the role of non-rational factors ethical, cultural, social, historical and political-- in shaping health policy. Together, the three articles examine how Mexico, and by extension other countries, has, does and should, develop policies to address the related burdens of HIV and mental illness in its population. First, the historical component of the dissertation, Outrage and Evidence: The Politics of Mental Health in Mexico, 1968-2000, uses historical methods to analyze how mental health advocates in Mexico have adapted their strategies to respond to a shifting social, medical and political landscape. By integrating primary and secondary sources with never-before-used archival research and interviews with leading policymakers and activists, I trace continuity and change in Mexican mental health advocacy movements by following the career of Julio Frenk, a leader in Mexican, and global health. Second, the quantitative component of the dissertation, Beyond Universal Treatment Access: A Mixed-Methods Study of Mental Health Care at Public HIV Clinics in Mexico, represents the first study of mental health services within the Mexican national HIV program. Combining historical and quantitative approaches, this paper analyzes a cross- sectional survey of Mexico s HIV response collected by the Mexican National Institute of Public Health. Though official Mexican guidelines recommend that all HIV+ patients receiving care at public HIV clinics should receive mental health care, 80% of patients surveyed report that they have not received such care. My paper examines what drives that gap, and uses multi-level modeling to show that clinical-level factors appear to have a much stronger association receiving mental health care than individual-level factors. Third, the normative component of the dissertation, What Magic is there in the Pronoun My? The Role of Non-expert Stakeholders in Democratic Deliberation for Health Policy, employs ethical analysis to examine the role of stakeholder participation in priority setting for health policy. Like many countries, Mexico has recently explored increasing democratic participation in policymaking as a means of advancing democracy and integrating civil society into government. Yet stakeholders, both individuals affected by the disease and patient advocacy groups, pose particular challenges: their special connection to the disease in question expands the range of available evidence, but it also raises the risk of bias. My paper draws on deliberative democratic theory to map the risks and benefits of including stakeholders, by framing the practical topic through the lens of the philosophical debate between impartiality and partiality. Defending a proper role for partiality in deliberation suggests under certain procedural constraints the benefits of stakeholder inclusion may offset the risks. 6