Virginia Disability Resources Affordable Care Act (ACA) http://www.hhs.gov/healthcare/facts/bystate/va.html HHS.gov: How the Health Care Law is Making a Difference for the People of Virginia To get coverage under the ACA, go to https://www.healthcare.gov/ to find out more about the Health Insurance Marketplace and the options available in your state. https://www.healthcare.gov/what-is-the-marketplace-in-my-state/#state=virginia http://vsava.blogspot.com/ VSA arts of Virginia 0 East 4 th St., Studio 50 Richmond, VA 23224 Phone: 804-230-0246 ARTS and CREATIVITY ASSISTIVE TECHNOLOGY http://www.vats.org/ Virginia Assistive Technology System (VATS) Department of Rehabilitative Services 8004 Franklin Farms Drive Richmond, VA 23229 Phone: 804/662-9990 800-435-8490 (In State) Fax: 804-662-9478 E-mail: Robert.Krollman@drs.virginia.gov http://www.adainfo.org Mid-Atlantic ADA Center (covers Virginia) TransCen, Inc. 1
401 North Washington St., Suite 450 Rockville, MD 20850 Phone/TTY: 301-217-0124 Toll Free: 800-949-4232 www.free-foundation.org Foundation for Rehabilitation Equipment & Endowment (FREE) P.O. Box 8873 Roanoke, VA 24014 Phone: 540-777-4929 A not-for-profit organization that provides rehab equipment such as canes, crutches, power wheelchairs, shower chairs, etc. They refurbish, store and distribute recycled equipment to eligible individuals with a medical need. They also provide new equipment when funding is available. http://www.atlfa.org Virginia Assistive Technology Loan Fund Authority (ATLFA) 1602 Rolling Hills Drive Suite 107 Richmond, VA 23229 Phone: 804-662-9000 866-835-5976 CAREGIVERS INFORMATION http://www.caregiver.com/regionalresources/states/va/support/index.htm Virginia Caregiver Support Groups Well Spouse Association Virginia Arlington Support Group Richard Anderson Phone: 703-969-8285 Email: Richard@wellspouse.org Richmond WS Support Group Richmond Kathy Jarrell Phone: (804) 545-4952 Kathy.Jarrell@HCAHealthcare.com Northern VA WS Support Burke Dorothy Saunders 2
Phone: (703) 425-2430 dmsaundersinva@hotmail.com COMMUNITY-BASED FITNESS PROGRAMS The Reeve Foundation has several Community Fitness and Wellness facilities that are part of its NeuroRecovery Network (NRN) program. These facilities are accepting individuals with walking difficulties related to any cause (not just SCI) and are hosting activity-based exercise programs designed specifically for individuals with physical disabilities. There is not one in this state but if you would like to learn more about the program, please go to www.christopherreeve.org/nrn. CRIME VICTIM ASSISTANCE http://www.cicf.state.va.us/ Crime Victim Compensation P.O. Box 26927 Richmond, VA 23261 Phone: 804-378-3434 Fax: 804-378-4390 http://www.dcjs.virginia.gov/victims/ Victim Assistance Phone: 804-786-4000 Fax: 804-786-7980 http://ovc.ncjrs.org/findvictimservices/search.asp Office for Victims of Crime s Directory of Crime Victim Services Choose Your State and the Type of Assistance you are looking for www.safehorizon.org Safe Horizon s Links for General Crime Victim Resources/Issues DOMESTIC VIOLENCE HELP National Domestic Violence Hotline: 800-799-SAFE (7233) www.thehotline.org National Resource Center on Domestic Violence: 800-537-2238 www.nrcdv.org Statewide Hotline: 800-838-VADV (838-8238) 3
Virginians Against Domestic Violence 2850 Sandy Bay Road, Suite 101 Williamsburg, VA 23185 Phone: 804-221-0990 Toll-free: 800-838-8238 http://www.aardvarc.org/dv/states/vadv.shtml Aardvarc s Virginia Domestic Violence contact information by City/County EASTER SEALS OFFICES www.easterseals.com Easter Seals go to search by state, drop down to Virginia www.gwbr.easterseals.com Virginia Easter Seals Office (Greater Washington Baltimore Region) serving MD/DC/VA 1420 Spring St. Silver Spring, MD 20910 Phone: 301-588-8700 Toll-free: 800-886-3771 http://nc.eastersealsucp.com/locations/ Easter Seals/UCP: North Carolina & Virginia 5171 Glenwood Ave. Suite 400 Raleigh, NC 27612 Phone: (800) 662-7119 GOVERNMENT OFFICES http://www.virginia.gov/ Virginia State Website http://www.vaboard.org/ Virginia Board For People with Disabilities Bank St & N. 12 th St. Richmond VA 23219 Phone: 804-786-0016 800-846-4464 (In State) Fax: 804-786-1118 serves as Virginia s Developmental Disabilities Planning Council 4
http://www.vadrs.org/ Virginia Dept. of Rehabilitative Services 8004 Franklin Farms Drive Henrico, VA 23229 Phone: 804-662-7000 800-552-5019 TTY: 800-464-9950 http://www.dss.virginia.gov/index.html Virginia Department of Social Services 801 E. Main Street Richmond, Virginia, 23219-2901 Phone: 804-726-7000 (Richmond) 800-552-3431 (toll-free) Email: citizen.services@dss.virginia.gov http://www.dss.virginia.gov/localagency/ Virginia Department of Social Services (listed by County) http://www.dss.state.va.us/facility/search/alf.cgi Virginia Department of Social Services Search for Assisted Living Facilities in Virginia Database lets one find private nursing homes http://www.dmas.virginia.gov/ Virginia Medicaid Office Department of Medical Assistance Services 600 East Broad Street Richmond, VA 23219 Phone: 804-786-7933 Email: dmas-info@dmas.virginia.gov http://www.famis.org/ Virginia SCHIP Program (State Children s Health Insurance Program) PO Box 1820 Richmond, VA 23218-1820 Phone: 866-873-2647 888-221-9402 http://www.dmas.virginia.gov/rcp-indigent_health_care_trust_fund.htm Virginia Department of Medical Assistance Services The Virginia Indigent Health Care Trust Fund reimburses hospitals for charity care. http://www.cms.hhs.gov/medicaidstwaivprogdemopgi/ Home and Community Based Services Waiver (HCBS) http://www.scc.virginia.gov/division/boi/index.htm 5
Virginia Insurance Commissioner, Bureau of Insurance BOI Main Mailing Address: P.O. Box 1157 Richmond, VA 23218 BOI Street Address: 1300 East Main Street Richmond, VA 23219 Phone: 804-371-9741 Toll-free 800-552-7945 (VA only) http://www.vwc.state.va.us/ Virginia Workers Compensation Commission 1000 DMV Drive Richmond, VA 23220 Phone: 877-664-2566 Email: questions@workcomp.virginia.gov http://www.christopherreeve.org/c.ddjfkrnofig/b.4518671/k.6aba/find_your_elected_offi cial/siteapps/advocacy/search.aspx Find your elected officials to contact them on legislation that is important to you. http://www.elderrightsva.org/ State LTC Ombudsman VA Association of Area Agencies on Aging 24 E. Cary Street Suite 100 Richmond, Virginia 23219 Phone: (804)565-1600 Toll-free: 800-552-3402 The mission of the state long-term care ombudsman is to protect the health, safety, welfare and rights of the elderly in nursing homes, assisted living facilities and other facilities. Find your ombudsman by clicking on your city in the directory. HOUSING http://www.ilru.org/html/publications/directory/virginia.html Virginia Independent Living Centers www.fanniemae.com Fannie Mae http://www.hud.gov/local/index.cfm?state=va 6
Virginia Housing and Urban Development (HUD) Office 600 East Broad Street Third Floor Richmond, VA 23219 Phone: 804-822-4805 http://www.dss.virginia.gov/facility/search/alf.cgi Virginia Dept. of Social Services Assisted Living Facility Locator http://www.easyaccess.virginia.gov/housing.shtml#none Virginia Dept. of Aging s Housing info for elderly and disabled http://www.accessva.org/ Access VA: Virginia s Accessible Housing Resource LIBRARY SERVICES http://www.vdbvi.org/lrcservices.htm Virginia Library and Resource Center Virginia Department for the Blind and Vision Impaired 401 Azalea Avenue Richmond, VA 23227 Phone: 804-371-3151 E-mail: barbara.mccarthy@dbvi.virginia.gov Provides materials for the physically disabled and those with impaired vision or blindness. http://www.alexandria.lib.va.us/client/home Alexandra Library Beatley Central Talking Book Service 5005 Duke Street Alexandria, VA 22304-2903 Phone: 703-519-5911 703-519-5918 E-mail: mccaffrey@alexandria.lib.va.us http://www.arlingtonva.us/departments/libraries/outreach/librariesoutreachspecialneeds.aspx Talking Book Service Arlington County Sub-Regional Library 1015 North Quincy Street Arlington, VA 22201 Phone: 703-228-6333 703-228-6320 E-mail: talkingbooks@arlingtonva.us 7
http://www.fairfaxcounty.gov/library/branches/as/talkingbook.htm Fairfax County Public Library 12000 Government Center Parkway Fairfax, VA 22035-0012 Phone: 703-324-8380 703-324-8365 E-mail: access@fairfaxcounty.gov Newport News Subregional Library for the Blind and Physically Handicapped Newport News Public Library System 110 Main Street Newport News, VA 23601 Phone: 757-591-4858 757-591-4858 E-mail: nnlbph@nngov.com http://www.roanokegov.com/library/talking.html Roanoke Public Library Talking Book Services 2607 Salem Turnpike NW Roanoke, VA 24017-5397 Phone: 540-853-2648 800-528-2342 (In-state) E-mail: branchmelrose@hotmail.com 8
www.vbgov.com/libraries Bayside and Special Services Library, Department of Public Libraries 936 Independence Boulevard Virginia Beach, VA 23455 Phone: 757-464-9175 757-460-7575 757-385-2684 http://www.staunton.va.us/talkingbooks Talking Book Center Staunton Public Library 1 Churchville Avenue Staunton, VA 24401 Phone: 540-885-6215 800-995-6215 (In-state) http://www.librarypoint.org/ Fredericksburg Area Subregional Library Central Rappahannock Regional Library 1201 Caroline Street Fredericksburg, VA 22401 Phone: 540-372-1144 540-371-9165 800-628-4807 (In-state) NeuroRecovery Network (NRN) The NRN is a network of rehab programs designed to provide locomotor (treadmill) training to promote functional recovery and improve the health and quality of life for people living with paralysis. The program is for people with spinal cord injuries. The NRN is a program of the Reeve Foundation. There is no NRN center in this state but if you are interested in finding one outside of this state, please go to www.christopherreeve.org/nrn. PROTECTION and ADVOCACY http://www.vopa.state.va.us/ Virginia Office for Protection and Advocacy 1910 Byrd Avenue Suite 5 Richmond, VA 23230 Phone: 804-225-2042 800-552-3962 Fax: 804-662-7057 9
Email: general.vopa@vopa.virginia.gov SERVICE DOGS http://www.wolfpacks.com/serviced.htm#c Wolf Packs, Inc. s Service Dog Directory Blue Ridge Assistance Dogs Lydia Wade 11215 Dumfires Road Manassas, VA 20112 Phone: 703-369-5878 Email: BLRDGAD@aol.com Types of dogs trained: Service, Social/Therapy Areas served: VA, DC, MD Saint Francis of Assisi Service Dogs Carol Willoughby PO Box 21403 Roanoke, VA 24018 (540) 989-6354 Cripple Creek Canine Service Sound Companions Hearing Dogs Route 1 Box 190 Ivanhoe, VA 24350 (540) 699-1172 (voice) VA Relay 1-800-828-1120 email: cck9@mail.naxs.com Caring Canine Companions, Inc. Amy Skelton PO Box 353 Verona, VA 24482 (540) 248-6655 Types of dogs trained: Service, Social/Therapy Areas served: VA SPORTS and RECREATION www.dsusa.org Disabled Sports USA pick Chapters, pick Virginia http://www.fairfaxcounty.gov/rec/trs/ctya.htm#wheelchairsportsandfitness 10
BlazeSports Fairfax County Department of Community and Recreation Services Phone: (703) 324-5587 BlazeSports Virginia Beach Virginia Beach Parks & Recreation Department Phone: (757) 385-0442 http://sportable.org/ Sportable 1365 Overbrook Rd. Richmond, VA 23220 Phone: 804-340-2991 Sportable is part of the US Paralympics Network of Paralympic Sport Clubs leading the adaptive sports movement-officially referred to as Paralympic Sport Richmond. They provide adaptive recreation, sport, and healthy lifestyle programs in the greater Richmond area. Participants must have a physical or visual disability and be at least 5 years old to become a member. Annual Individual membership is $50 and lasts a lifetime. http://www.skiwas.org/ Wintergreen Adaptive Sports P.O. Box 578 Lovingston, VA 22949 Phone: 434-325-2007 Offers adaptive skiing and snowboarding and a Wounded Warriors program. UNITED WAY OFFICES http://national.unitedway.org/ National United Way Enter postal code for a United Way office in your area National Headquarters 701 North Fairfax Street Alexandria, VA 22314 Phone: 703-836-7112 VETERAN BENEFITS http://www2.va.gov/directory/guide/home.asp?isflash=1 11
US Department of Veterans Affairs VA Hospital Locator http://www.pvamidatlantic.org Virginia & Mid-Atlantic Paralyzed Veterans of America Chapter 11620 Busy Street North Chesterfield, VA 23236 Phone: 804-378-0017 800-852-7639 http://www.vhda.com/pages/home.aspx Phone: 877-VHDA-123 Granting Freedom: Virginia s Military Home Modification Grant Program Virginia Housing Development Authority is making grants for home modifications available to Virginia servicemen and women injured while serving the country. ALS http://www.alsinfo.org/ The ALS Association Virginia Chapter (Serving Maryland, Washington, DC and Virginia) 7507 Standish Place Rockville, MD 20855 301-978-9855 info@alsinfo.org Under Choose Services box, click on Support Groups There you will find support groups for patients and caregivers in various parts of VA http://www.biav.net/ Brain Injury Association of Virginia 1608 Spring Hill Rd. Suite 110 Vienna, VA 22182 Phone: 703-761-0750 BRAIN INJURY http://www.tbi.pmr.vcu.edu/ The Virginia Commonwealth TBI Model System Virginia Commonwealth University/Medical Center College of Virginia 12
1200 East Broad St., Rm. 3-102 Richmond, VA 23298-0542 Phone: 804-828-3704 866-296-6904 Holds SCI education classes for patients and families on many topics. CEREBRAL PALSY http://www.ucpdc.org/ United Cerebral Palsy of Washington DC & Northern Virginia 3135 8 th St., NE Washington, DC 20017 Phone: 202-269-1500 FRIEDREICH S ATAXIA http://www.ataxia.org/ National Ataxia Foundation 2600 Fernbrook Lane Suite 119 Minneapolis, MN 55447 Phone: 763-553-0020 Chesapeake Chapter 1444 Crowell Rd. Vienna, VA 22182-1510 Phone: 703-759-2008 GUILLAIN-BARRÉ SYNDROME / CIDP http://gbs-cidp.org/ Guillain-Barré Syndrome / CIDP Foundation International The Holly Bldg., 104 ½ Forrest Ave. Narberth, PA 19072 Phone: 610-667-0131 Call for information in your area MULTIPLE SCLEROSIS http://www.nationalmssociety.org National Multiple Sclerosis Society (NMSS) 13
Click on Find a Chapter http://www.nationalmssociety.org/vax/home/ NMSS Blue Ridge Chapter 1020 Carrington Place Charlottesville, VA 22901 Phone: 434-971-8010 800-451-0373 Email: VAB@NMSS.ORG http://www.nationalmssociety.org/chapters/var/index.aspx NMSS--Central Virginia Chapter 4200 Innslake Drive, Suite 301 Glen Allen, VA 23060 Phone: 804-353-5008 Email: kathryn.zapach@nmss.org http://www.nationalmssociety.org/chapters/vax/index.aspx Hampton Roads Chapter 760 Lynnhaven Pkwy, Suite 201 Virginia Beach, VA 23452 Phone: 757-490-9627 Email: info@fightms.com http://www.msassociation.org/regional/ Multiple Sclerosis Association of America MSAA Southeast Regional Office Alabama, Florida, Georgia, North Carolina, South Carolina, Virginia, Tennessee, Mississippi 2870 Peachtree St. Atlanta, GA 30305-2918 Phone: 800-532-7667, ext. 160 E-mail: southeast@msassociation.org MUSCULAR DYSTROPHY http://www.mdausa.org/ Muscular Dystrophy Association National Headquarters 3300 East Sunrise Drive Tucson, AZ 85718 Phone: 800-572-1717 Enter your postal code in the Find your local MDA section of the website for MD clinics in your area. 14
POST-POLIO SYNDROME http://www.post-polio.org Post-Polio Health International (PHI) 4207 Lindell Blvd. #110 St. Louis, MO 63108-2930 Phone: 314-534-0475 Email: info@post-polio.org http://www.post-polio.org/net/pdir.pdf Directory lists Health Professionals, Clinics, and Support Groups by state. SPINA BIFIDA www.spinabifidaassociation.org Spina Bifida Association of America Click on Find Clinic Virginia Clinics: UVA Kluge Childrens Rehab Center 2270 Ivy Road Charlottesville, VA 22903 Phone: 800-627-8596 Children's Hospital of the King s Daughter 601 Children s Lane Norfolk, VA 23507 Phone: 757-668-7136 Linda Baringer INOVA 8505 Arlington Blvd., Suite 100 Fairfax, VA 703-970-2685 Children s Hospital Spina Bifida Program 2924 Brook Road Richmond, Virginia 23220 804-228-5818 15
Toll Free 800-443-0893 Website: www.childrenshosp-richmond.org http://www.sbamar.org SBA of the Mid-Atlantic Region 4590 MacArthur Blvd. NW Suite 250 Washington, DC 20007 Phone: 800-621-3141 www.spinalcord.org National Spinal Cord Injury Association Lists state chapters http://www.sciava.org/ Spinal Cord Injury Association of Virginia P.O. Box 8326 Richmond, VA 23226 Phone: 804-726-4990 Rebuild Spinal Cord Injury Group Fairfax Hospital, Inova Rehabilitation Center 3300 Gallows Rd. Falls Church, Virginia, 22042 Phone: 703-776-2295 Spinal Cord Injury Model System Virginia Commonwealth University Medical College of Virginia Hospital P.O. Box 980661 Richmond, VA 23298-0661 Phone: 804-828-2156 Fax: 804-828-5074 Virginia SCI Registry Woodrow Wilson Rehabilitation Center Box 279 PO Box 1500 Fishersville, VA 22939-1500 Phone: 540-332-7200 SPINAL CORD INJURY STROKE 16
http://www.strokeassociation.org/ American Stroke Association National Center 7272 Greenville Avenue Dallas, TX 75231 Phone: 1-888-478-7653 Call them for the stroke support group in your area or click on Local Info at website American Heart Association Virginia offices: Greater Richmond Area 4217 Park Place Court Glen Allen, VA 23060 Phone: 804-747-8334 Hampton Roads Area 500 Plume Street East Suite 110 Norfolk, VA 23510 Phone: 757-628-2610 Western Virginia 3140 Chaparral Ave. Bldg. C Roanoke, VA 24018 Phone: 540-989-2810 www.jointcommission.org http://www.jointcommission.org/certification/primary_stroke_centers.aspx Primary Stroke Centers accredited by the Joint Commission on the Accreditation of Healthcare Organizations (JCAHO) Click on Certification, then under Certification Top Spots click on Find Certified Organizations, Enter State you are looking up and Primary Stroke Centers SYRINGOMYELIA/CHIARI MALFORMATION www.asap.org American Syringomyelia & Chiari Alliance Project PO Box 1586 Longview, TX 75606-1586 Phone: 903-236-7079 800-ASAP-282 Email: info@asap.org 17
TRANSVERSE MYELITIS http://www.myelitis.org/local/va/index.htm Transverse Myelitis Association s Virginia Support groups Hampton Roads/Eastern Shore support group Agnes Killough PO Box 24 Pungoteague, VA 23422 (757)422-4024 jandakillough@verizon.net Virginia/southwest area support group Drema O'Dell 3695 Bill Street Pulaski, VA 24301 (540)230-6402 dho.dell@comcast.net http://transmyelitis.meetup.com TM MeetUp Enter your postal code for a MeetUp in your area. Meetings are usually held in local restaurants. GENERAL DISABILITY RESOURCES http://www.disabilityresources.org/virginia.html Disability Resources.org: Virginia http://www.familyvillage.wisc.edu/comm/virginia.html Family Village Resources for Virginia http://nichcy.org/state-organizations-search-by-stateresults?typegroup=all&statesheet%5b%5d=va&start=search+state+organizations Virginia NICHCY: National Dissemination Center for Children with Disabilities http://www.yellowpagesforkids.com/help/va.htm Virginia Yellow Pages for Kids with Disabilities 18
http://www.vaota.org/ Virginia Chapter of the American Occupational Therapy Association Virginia Occupational Therapy Association 3720 Parchment Circle Rockville, VA 23229 Phone: 804-754-4120 Email: office@vaota.org http://www.vpta.org/ Virginia Chapter of the American Physical Therapy Association Virginia Physical Therapy Association 8400 Westpark Dr. 2 nd Floor McLean, VA 22102-5116 Phone: 703-610-9036 Email: info@vpta.org www.apse.org http://www.apse.org/chapters/details.cfm?id=33 Virginia Association of People Supporting EmploymentFirst Amy Thomas Phone: 804-365-6626 Email: aathomas@co.hanover.va.us http://www.healthboards.com/boards/index.php Healthboards.com message boards on health related topics. Topics include SCI, CP, Stroke, and more. http://www.vairs.org/id7.html First Call 2-1-1 Phone: 211 Provides callers with information about and referrals to human services for every day needs and in times of crisis. Can offer access to the following types of services: adult day care, respite care, home health care, transportation, support groups, Medicaid/Medicare, etc. The caller is provided with phone numbers, programs and services provided, location, hours of operation, and any other relevant information for the inquiry. All calls are confidential. http://www.virginia.org/accessibletravel http://www.accessiblevirginia.org/ Virginia Travel Guide for People with Disabilities 901 E. Byrd Street Richmond, VA 23219 Phone: 804-633-6752 Please call 1-800-742-3935 for a print copy of the guide (TTY 1-804-371-0327), visit www.travelguides.org/vaguide.html for a web-accessible version of the guide, or contact The Opening Door, Inc. at 1-804-633-6752 for more information. 19
www.thinkfirst.org ThinkFirst National Injury Prevention Foundation 1801 N. Mill St., Suite F Naperville IL 60563 Phone: 630-961-1400 800-THINK56 Email: thinkfirst@thinkfirst.org ThinkFirst offers evidence-based injury prevention programs for students of all ages through their network of healthcare-based chapters. Health educators and people who have experienced brain or spinal cord injuries help students understand the importance of making safe choices related to vehicles, sports, violence and falls. To find chapter information in your area, please go to their website and click on the Chapter Site tab. The information contained in this message is presented for the purpose of educating and informing you about paralysis and its effects. Nothing contained in this message should be construed nor is intended to be used for medical diagnosis or treatment. It should not be used in place of the advice of your physician or other qualified health care provider. Should you have any health care related questions, please call or see your physician or other qualified health care provider promptly. Always consult with your physician or other qualified health care provider before embarking on a new treatment, diet or fitness program. You should never disregard medical advice or delay in seeking it because of something you have read in this message. 20