MERS-CoV Outbreak Management Database Case Management, Contact Tracing, and Symptom Monitoring

Transcription

1 MERS-CoV Outbreak Management Database Case Management, Contact Tracing, and Symptom Monitoring

2 Presenter Information Tennessee Department of Health (TDH), Nashville, TN Presented by Shannon Harney, CDC/CSTE Applied Epidemiology Fellow, Healthcare Associated Infections Program On behalf of: Marion Kainer, MD, MPH (TDH) Jessica Vakili, MSPH (TDH) 1

3 Objectives Provide an overview of REDCap as a database and survey tool for public health entities Provide an overview of two applications for situational awareness and communication dashboards idashboards WEAVE 2

4 Session Overview Schedule 1:30-2:15 REDCap 2:15-2:30 idashboards 2:30-2:45 WEAVE 2:45-2:59 Q & A 3

5 Outbreak Management Needs Database for data entry, storage, and management Hardcopy forms for data collection Workflow protocols for data collection, entry, and reporting (state/local public health, facilities) Reports (electronic; templates within REDCap) Analysis and complex reports Dashboard for external communications 4

6 REDCap Overview Research Electronic Data Capture Developed at Vanderbilt University Online application, real-time data capture, mobile Data are secure, system is HIPAA compliant Almost FREE- Costs include hosting on a server Variety of project formats and organizational functions Development and Production sides of the system 5

7 The Call Situation: Student with flu-like illness is in the ED after returning from Saudi Arabia. Exposures within the 14 days prior to onset include camels and an ill cousin. What data need collected? Case interview: exposures, testing, contacts, settings Contact tracing: risk assessment, symptom monitoring Healthcare workers: risk assessment, symptom monitoring Facility practices: Infection control, PPE 6

8 Workflow Who collects/enters/manages/reports the data? Case? Community contacts? Healthcare workers? Facility? Who needs access to what data, when, and for what purposes? Case/contact level or aggregate data? Symptom monitoring, resource allocation (staffing), or media? 7

9 8 Map of the Public Health Regions & Metros

10 Workflow Case Region/Metro Central Office Partners & Stakeholders Contact Region/Metro HC Facility Central Office HCW Region/Metro Central Office HC Facility 9

11 REDCap Orientation Tabs across the top Home My Projects Create New Project Training Resources Help & FAQ Send-It Control Center 10

12 Project/Database Orientation Menu: general, data collection, applications, reports, help & information Tabs: project home, project setup, other functionality, project revision history Project Setup Online Designer- data collection instruments Data Dictionary- project blueprint 11

13 Data Collection Tools Demographics Risk Assessment Public Health Action Infection Control Patient Outcome Symptom Monitoring 12

14 Building a Data Collection Tool Edit View/Preview Instrument Yellow= section header, White= data field Label and Variable Name Field Functions: edit, copy, branching logic, move, delete Adding a Field/ Field Types Editing: label, variable name, validation, alignment, identifier, field note 13

15 Record Dashboards Choose an existing Record ID Data search Add new record Record level dashboard Orientation to the record level dashboard (select other record) Record Status Dashboard (all records) 14

16 Add / Edit Record Data Collection Instrument Demographics Risk Assessment Public Health Action Infection Control Final Outcome Symptom Monitoring Entity Responsible Healthcare Facility (Intake) + Public Health (Interview) Public Health (Interview) Public Health (Interview) Public Health (Interview) Public Health (Interview) Public Health, Healthcare Facility (HCW employer), Healthcare Worker 15

17 Symptom Monitoring Survey Methods Public survey link (Manage Survey Participants) Scheduled surveys by (Automated Invitations) Private link to a list of surveys (Survey Queue) Survey Features Survey settings: instructions, closure Automated invitations: message, schedule 16

18 User Rights + Data Access Groups Record + User + Role + Data Access Group User rights may be defined at the user or role level User: person accessing REDCap Role: title (e.g., data entry, hospital infection preventionist) Data Access Group Control access to a group of records (e.g., all patients at ABC hospital) Each record and each user may be in ONLY ONE data access group 17

19 Data Access Groups No Data Access Group Public Health Users/Roles: - Epidemiologist - Administrative (view only) Data Access Group HC Facility A Data Access Group HC Facility B 17b

20 User Rights + Data Access Groups Record + User + Role + Data Access Group User rights may be defined at the user or role level User: person accessing REDCap Role: title (e.g., data entry, hospital infection preventionist) Data Access Group Control access to a group of records (e.g., all patients at ABC hospital) Each record and each user may be in ONLY ONE data access group (dual monitoring obstacle) 18

21 Reports and Stats Reports Edit reports / Report name Create New Report: user access, fields, filters, order My Reports & Exports: view, export; edit, copy, delete PDF & Other Export Options View Report Stats All data, Selected instruments and/or events, Report 19

22 REDCap Summary PROS Free application/server cost Not a relational database Non-profit, university-based Consortium, calls, wiki Survey delivery options Project templates available Data dictionary editing Data dictionary shareable Code book Point and click development Code available for the API 20

23 REDCap Summary CONS Not a relational database No tailored menus No programmed buttons Limited use of SQL Basic reports Limited analysis 21

24 REDCap Resources REDCap homepage: Technical Overview (under the Software tab) Video Resources: Detailed Overview of REDCap (78 min) Library Become a Partner (terms of use and agreement) Questions & Answers 22

25 REDCap Resources Survey link options for questions/practice: Public survey link: EETNX Survey access code: Then enter this code: HKWDDFHC8 23

26 REDCap Resources Use the QR code to view the mobile version 24

27 Dashboards Web-based for reporting, situational awareness, and communication Variety of graphic options Secure access for protection of data Public access data representations for general use Access by public health (Central Office and regional offices) and facilities for symptom monitoring 25

28 idashboard Company webpage: Free 30 day trial: Form/via/se.aspx Demonstration page: Customers and Success Stories: 26

29 idashboards Summary PROS CONS Cloud/Host $ Password protected view User guides, tutorials, TA Online demo/30 day trial Existing maps for county/city Gantt chart/chart options 27

30 WEAVE Web-based Analysis and Visualization Environment Developed at the University of Massachusetts Lowell Members: Demos: User Forum: 28

31 WEAVE Summary PROS FREE application/dl available Desktop or server Open Source- consortium Online demo presentations Flexible window for charts University-based Different visualizations (text) CONS Open Source- security User materials coming Menus may not be intuitive 29

32 Acknowledgements Vanderbilt University REDCap Development Team: Paul Harris, Lauren Davis HAI EP FB/Z/VD SSIP Dr. Marion Kainer Dr. Paul Petersen Dr. John Dunn Erin Holt-Coyne Jessica Vakili Dr. Rendi Murphree Dr. Heather Henderson Natalie Raketich Meredith Kanago Caleb Wiedeman Dr. Josh Clayton Rebecca Meyer Jeff Sexton L. Amanda Ingram Jennifer Ward Corinne Davis Dr. David Lucero This study/report was supported in part by an appointment to the Applied Epidemiology Fellowship Program administered by the Council of State and Territorial Epidemiologists (CSTE) and funded by the Centers for Disease Control and Prevention (CDC) Cooperative Agreement Number 1U38OT

33 Contact Information Shannon Harney CDC/CSTE Applied Epidemiology Fellow Tennessee Department of Health Healthcare Associated Infections Program

34 Thank You!