Hoyer Lecture December 6,2013
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1 Hoyer Lecture December 6,2013 Pediatric epilepsy: small steps, big challenges American Epilepsy Society Annual Meeting
2 AES Salutes our Annual Meeting Volunteers Director, Education Council R. Edward Hogan, M.D. Annual Meeting Chair Elinor Ben-Menachem, M.D., Ph.D. Scientific Program Chair Kimford Meador, M.D. American Epilepsy Society 2013 Annual Meeting
3 AES Salutes our Annual Meeting Volunteers Annual Course Chair Joseph Sirven, M.D. Investigators Workshop Chair Michael Wong, M.D., Ph.D. Clinical Investigators Workshop Chair Hal Blumenfeld, M.D., Ph.D. American Epilepsy Society 2013 Annual Meeting
4 AES Salutes our Annual Meeting Volunteers Spanish Symposium Patricio E. Abad, M.D. and Mario Alonso -Vanegas, M.D. Hot Topics Symposium Elinor Ben-Menachem, M.D. Ph.D. and R. Edward Hogan, M.D. Presidential Symposium Jacqueline A. French, M.D. American Epilepsy Society 2013 Annual Meeting
5 AES Salutes our Annual Meeting Volunteers Professionals In Epilepsy Care Symposium Janelle Wagner, Ph.D. And Paul M. Levisohn, M.D. Translational Research Symposium Daniel H. Lowenstein, M.D. And Karen S. Wilcox. Ph.D. Antiepileptic Therapy Symposium Aristea Galanopoulou, M.D., Ph.D. And Angus A. Wilfong, M.D. American Epilepsy Society 2013 Annual Meeting
6 AES Salutes our Annual Meeting Volunteers Merritt-Putnam Symposium Amy Brooks-Kayal, M.D Pediatric State Of The Art Symposium Mohamad Mikati, M.D. Scientific Plenary Raman Sankar, M.D., Ph.D. American Epilepsy Society 2013 Annual Meeting
7 AES Salutes our Annual Meeting Volunteers North American Commission Symposium Meir Bialer, M.B.A., Ph.D. And Sheryl Haut, M.D. Skills Workshops Greg Cascino, M.D.; Dennis Spencer, M.D.; Mike Sperling, M.D.; R. Edward Hogan, M.D.; Christina Gurnett, M.D., Ph.D.; Elinor Ben-Menachem, M.D., Ph.D. American Epilepsy Society 2013 Annual Meeting
8 2013 AES Service Award Roger J. Porter, M.D. American Epilepsy Society 2013 Annual Meeting
9 The Grass Foundation AES Young Investigator Travel Award D e t a i l s O n Pa ge 1 6 O f Yo u r P ro g ra m B o o k D av i d A u e r b a c h, P h. D. P l at fo r m C. 0 2 L i d i a M a r i a M o u ra, M. D. Po s te r I v a n S a n c h e z F e r n á n d e z, M. D. Po s te r C at h e r i n e C h r i s t i a n, P h. D. P l at fo r m C. 0 1 S h a n t i F ra u s t o, B. S. Po s t e r J o c h e n M e ye r, P h. D. Po s te r Kare n B l a c k m o n, P h. D. Po s te r D av i d C a n t u, P h. D. P l at fo r m C. 0 4 American Epilepsy Society 2013 Annual Meeting
10 2014 AES/AAN/Epilepsy Foundation Susan S. Spencer Clinical Research Training Fellowship Not Announced Yet American Epilepsy Society 2013 Annual Meeting
11
12 The International League Against Epilepsy Emilio Perucca President
13 What is the ILAE? An organization consisting of member chapters from 114 countries, including over 15,000 health care professionals and researchers dedicated to epilepsy United by a vision: a world in which no person s life is limited by epilepsy Focused on advancing knowledge on epilepsy and improving quality of care for people with epilepsy Working in partnership with IBE, WHO, governments and other scientific societies
14 ILAE Chapters
15 Contribution of Individual Chapters to ILAE Commissions and Task Forces Africa-Middle East (22) Rest of Latin America (9) USA (60) Brazil (11) Rest of Asia-Oceania (25) Australia (11) Japan (12) Canada (10) UK (20) Rest of North America (1) Rest of Europe (27) Switzerland (7) Germany (12) Italy (16) France (15)
16 Recent Developments A new procedure of public consultation for ILAE position papers, to incorporate feedback from all stakeholders Standardized procedures for the production of consensus documents / guidelines Re-definition of goals of Global Campaign projects in collaboration with WHO and IBE Scaling up of advocacy efforts to increase allocation of resources to epilepsy research and epilepsy care
17 Many Gaps to Be Overcome Information Knowledge Diagnosis Treatment Legislation, human rights Social support Research
18 Annual Research Contributions of U.S. Non-Profits to 4 CNS Disease Areas (2011) 5, Parkinson's Disease - $61M Muscular Dystrophy - $46M Multiple Sclerosis - $40M Epilepsy - $5.3M 46 Data from Forms; some data are July-July; Epilepsy inc, CURE, EF, ERF, ETP. Courtesy of Dr Roger Porter, May 2013
19 Making the Vision Come True: A Key Action for All Goals Influence the Political Agenda in All Countries
20 STAND UP FOR EPILEPSY!
21 The Team Emilio Perucca President Tatsuya Tanaka Vice President Sam Wiebe Treasurer Helen Cross Secretary General Solomon Moshé Past President A. Gallo Diop CAA Byung-In Lee CAOA Hassan Hosny CEMA Meir Bialer CEA Marco Medina CLAA Sheryl Haut CNAA Gary Mathern Epilepsia Editor-in-chief Astrid Nehlig Epilepsia Editor-in-chief Athanasios Covanis IBE President Sari Tervonen IBE Secretary General Robert Cole IBE Treasurer
22 NIH/NINDS Story Landis, M.D. American Epilepsy Society 2013 Annual Meeting
23 Rep. Hoyer Video American Epilepsy Society 2013 Annual Meeting
24 Hoyer Lecture December 6,2013 PEDIATRIC EPILEPSY: SMALL STEPS, BIG CHALLENGES American Epilepsy Society Annual Meeting
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