About. The Children's Cancer Society

Transcription

1 About

2 Our Objectives improve comprehensive treatment and rehabilitation offered to children and Facts provide support and assistance to their families to cooperate with doctors, nurses and others who care for children, and to disseminate information about The Children s Cancer Society is a nationwide volunteer organization run by the parents of children who have had or still have cancer. The Society s main office is located in Oslo. The Society consists of 14 regional associations. The regional associations have independent boards that work voluntarily for the families of children with cancer. Please contact the main office for the names of contact persons and addresses of the regional associations, or consult our website: We have approximately 1600 family members and approximately 2600 support members We initiate programs and activities together government authorities and hospitals to improve the rights and conditions of children with cancer and their families We work extensively with information about childhood cancer that we share with families, kindergartens, schools and others We own apartments near regional hospitals that are available to the families of children being treated at these hospitals. In % of our funds were used for this purpose. cancer and the Children's Cancer Society to attempt to establish positive cooperation with similar foundations when this seems suitable Each year, about 180 children aged 0 18 in Norway develop some form of cancer. Childhood cancer is categorized into three main groups. About the same number of children exist in each group: Children with Acute Lymphocytic Leukemia (ALL), Children with brain tumors Children with solid tumors that can appear in many different organs of the body Most children who develop cancer will face six months to many years of intense treatment using chemotherapy foran seg. Some children will also need surgical treatment and radiation therapy. The type of treatment depends on the nature of the cancer. Even though cancer is considered a very serious illness the chances of successful treatment in children who have the most common types of cancer are good. 3

3 About 180 children in Norway develop cancer each year more than 80% of them survive 's major areas of commitment: INFORMATION We are constantly acquiring and sharing information with the families of children with cancer and their network of family, friends, schools etc. We publish new brochures, books and pamphlets that contain practical information. The Society is always searching for good books about children and cancer so we can translate them into Norwegian. 4 their membership portal, Min Side, from our webpage, which includes direct links to our webshop. Our webshop contains selective products that we sell to support our cause, or for those who wish to donate to our different programs or projects. OUR CHILDREN The Society's member magazine is called Våre Barn (Our Children). It is published twice a year and we are always looking for good content. The magazine contains reports from our regional associations, in-depth articles and useful information for families with children who have had or still have cancer. WORKSHOP AND CONFERENCES The Society arranges various workshops each year: an organizational workshop, a parent contact workshop, a workshop for teachers of children with cancer, family-based workshops for people with children with late effects and for people who have lost a child to cancer. We also have an excellent collaborative relationship with the Montebello Centre in Oslo that arranges week-long courses for families with children receiving treatment. Our website is also full of useful information on all our activities and the services and assistance we offer. Our members can access COLLABORATIONS The Society collaborates with the Norwegian Cancer Society and is a member of the Norwegian Control Committee for Fundraising. There are also many companies and individuals who willingly assist us in our work. OUR PARENT CONTACT SERVICE The Society s regional associations have an excellent network of contacts with many child care wards that treat our kids. Beside gatherings arranged at the hospitals, the regional associations have established a parent contact service that is responsible for following up on new families with children receiving treatment. OUR MOURNING SERVICE The parent contact service also offers help and support for families that have lost a child to cancer. The Children s Cancer Society wants to create a nationwide program of this kind that can help grieving families deal with this difficult process. National and regional gatherings are organized every year to reach out to grieving families. We cooperate closely in this regard with care professionals from the Norwegian Cancer Society and the Centre for Crisis Psychology. LATE EFFECTS The Society puts great effort into helping children and young people who have undergone cancer treatment so they can get better conditions for rehabilitation and training. Even though medical treatment is often successful, many children suffer from late effects when treatment is over. In a collaboration with the Øverby Competence Centre, the Society published a DVD in 2011 that focused on the challenges faced by children with late effects of brain tumor treatment. YOUTH WORK focus on progress and activities for older children (14 18 years of age) has increased in recent years. It is important for young people to meet on common ground. They should have a place to go so they can meet kids their same age who know what they are going through. We arrange a national gathering every summer/autumn at which young people with cancer can meet. 5

4 You can help us by becoming a permanent giver: If you want to support the Society on a regular basis without becoming a member. Different types of membership FAMILY MEMBERSHIP includes parents and the child with cancer. At least two people with a family membership must live at the same address. Parents at different addresses must sign separate memberships. The membership fee is 250 kroner a year. This type of membership has 3 options; Under treatment, Finished treatment and Grieving members. We have another group you can choose to participate in: The Late Effects Group. This is a special offer directed at families with children suffering late effects from cancer. SUPPORT MEMBERSHIP is for those of you who want to support work being done for children with cancer. As a support member, you will receive our member magazine - Våre Barn. The 6 membership fee is 250 kroner a year. Companies can also join as support members by paying 1250 kroner a year. PERSONAL MEMBERSHIP is for those of you over 18 years of age who have had some form of treatment for cancer as a child. The membership fee is currently 200 kroner a year. The fees collected from this membership go directly to activities at the regional association to which you belong. You can join and pay your membership fee at. You can also sign us as a permanent giver here. You can also choose how much you are willing to give, and how often. Membership in the Children's Cancer Society means joining a network of families who are or who have been in the same situation. The Society provides information, advice and support during all phases of treatment of children who have had or still have cancer. By becoming a member you will be helping other families who have had or still have a child with cancer. More members means more credibility and more influence when we deal with government authorities, the health sector etc. More members means more resources at a local, regional and national level. If you have any questions about membership or what the Society is up to, feel free to contact us. Our contact information is found on the back of this brochure. What does membership imply? YOUR CONTRIBUTION MEANS SOMETHING As a member you have a unique opportunity to influence the lives and conditions of children with cancer and their families. Please contact your regional association or get in touch with the Children's Cancer Society and tell us what is important to you. If your child is seriously ill with cancer or is diagnosed as healthy after treatment, if the child is a baby or an adolescent we want to help all children with cancer in Norway. They have a right to a good life, and each one is equally important to us. 7

5 Telephone: Visitors' address: Øvre Vollgate 11, 0158 Oslo Mailing address: Postboks 4, Sentrum, 0101 Oslo Ent. Reg. No.: Get in touch with us! The Society's main office is located in Oslo. The Society consists of 14 regional associations. These associations have independent boards that work voluntarily for the families of children with cancer. All our regional associations can be contacted by , or by phone Agder (Øst og Vest)... Buskerud... Hedmark... Hordaland / Sogn og Fjordane... hordaland.sf@barnekreftforeningen.no Møre og Romsdal... more.romsdal@barnekreftforeningen.no Nordland... nordland@barnekreftforeningen.no Oppland... oppland@barnekreftforeningen.no Oslo/Akershus... oslo.akershus@barnekreftforeningen.no Rogaland... rogaland@barnekreftforeningen.no Telemark... telemark@barnekreftforeningen.no Troms og Finnmark... troms.finnmark@barnekreftforeningen.no Trøndelag (Sør og Nord)... trondelag@barnekreftforeningen.no Vestfold... vestfold@barnekreftforeningen.no Østfold... ostfold@barnekreftforeningen.no The Executive Board... hovedstyret@barnekreftforeningen.no