Asthma/COPD Day, March 26,
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1 Row Your Own Boat Presented by: Doris Listoe, Coordinator I identify no real or potential conflicts of interest to disclose 2 Definition of self-management Self-management relates to the tasks that an individual must undertake to live well with one or more chronic conditions. 3 Asthma/COPD Day, March 26,
2 Self-management Tasks 1. To take care of your illness 2. To carry out your normal activities 3. To manage your emotional changes 4 Core self-management skills 1. Problem solving 2. Decision making 3. Knowing how to find and utilize resources 4. Forming partnerships with health care providers 5. Taking action 5 Row Your Own Boat Program 6 weeks, 2 ½ hours / week Small group format Peer led by volunteers and/or staff: Leaders have chronic condition or are caregivers Trained as per Stanford program Follow a carefully scripted course 6 Asthma/COPD Day, March 26,
3 Row Your Own Boat Program Regular workshop offered for adults 18 years and over in English, Punjabi and Cantonese Adolescent in Transition workshop offered for transitioning youth (ages 15 25) and separate workshop for parents / caregivers 7 Be Your Own Boss* CSDMP was adapted by CDSMP Trainers and youth in the Edmonton area. Workshop adapted specifically for adolescents and young adults living with long term illnesses Separate workshop adapted for parents of adolescents with long term illnesses (*called Row Your Own Boat in Calgary area) 8 Objectives of program: Help participants gain self-confidence in their ability to control their symptoms Help participants learn the skills to manage their health problems 9 Asthma/COPD Day, March 26,
4 Topics include: Goal setting Problem solving Using your mind to manage symptoms Medication management Healthy eating Exercise guidelines Communication Working with your healthcare professional Self-Management Toolbox 12 Asthma/COPD Day, March 26,
5 Core Assumptions People with different chronic diseases have similar self-management problems and disease-related tasks People can learn to take responsibility for the day-to-day management of their disease(s) 13 Core Assumptions Trained lay persons with chronic conditions can effectively deliver a structured patient education program Confident, knowledgeable persons practicing self-management will experience improved health status and use fewer health care resources 14 Row Your Own Boat Program* Utilization-Focused Evaluation Quantitative CDSMP Survey baseline, 6 month, & 1 yr Qualitative Participant Feedback Post-workshop surveys & letters Ongoing Communication with Leaders & Participants *Regular English Program 15 Asthma/COPD Day, March 26,
6 Demographics Age Gender Percentage Age of Participants Gender Male 24% 0 45 or younger Fe m ale 76% Age n = 193 n = Demographics Chronic Condition Mood Disorders Pain Asthma COPD Hypertension Heart Disease Diabetes Arthritis n = 195 Percentage 17 Survey Results Baseline to 6 month surveys Less limitations to daily activities More self-confidence for managing chronic conditions Less health distress Less physical disabilities Better coping with symptoms 18 Asthma/COPD Day, March 26,
7 Survey Results Effects maintained to 1 year Better coping with symptoms Less limitations to daily activities More self-confidence for managing chronic conditions 19 What participants valued most: Making an Action Plan / Problem solving Discussion with other participants Learning skills to better manage condition Learning how to work with your healthcare professional 20 Participants most important things learned : Making an Action Plan / Problem solving Discussion with other participants Learning I was not alone I can make a difference for myself Learning skills to better manage condition Be positive 21 Asthma/COPD Day, March 26,
8 RYOB Contact information Regular workshop: Call 9-HEALTH Youth or parent workshop call: Marielle LeClair (Currently collecting names on a wait list) 22 Main references: What is Self-Management? Flinders Human Behaviour & Health Research Unit Lorig, K., Holman, H. Self-Management Education: History, Definition, Outcomes, and Mechanisms. Annals of Behavioral Medicine 2003, 26(1):1-7 McGowan, Patrick, PhD, Self-Management: A Background Paper. New Perspectives: International Conference on Patient Self- Management 23 Websites (includes extensive bibliography re. self-management) 24 Asthma/COPD Day, March 26,
9 Questions / Comments? Questions 25 Asthma/COPD Day, March 26,
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