Curriculum Vitae. KATHY ZEBRACKI (JEFSON), Ph.D.

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1 Curriculum Vitae January 2015 KATHY ZEBRACKI (JEFSON), Ph.D. Education: B.S. Northwestern University (Human Development and Psychological Services) Honors Thesis Chairs: Dan Lewis, Ph.D. & Marion Fitzgibbon, Ph.D M.A. Case Western Reserve University (Clinical Psychology) Thesis Chair: Dennis Drotar, Ph.D Ph.D. Case Western Reserve University (Clinical Psychology) Dissertation Chair: Dennis Drotar, Ph.D. Postgraduate Training and Fellowship Appointments: Intern, Department of Child and Adolescent Psychiatry, Children s Memorial Hospital, Chicago, IL Postdoctoral Fellow, Department of Psychology, Loyola University Chicago, IL Military Service: None. Faculty Appointments: Visiting Scholar, Department of Neurological Surgery, Feinberg School of Medicine, Northwestern University, Chicago, IL Assistant Investigator, Scientific Staff, Shriners Hospitals for Children, Chicago, IL Lecturer, Department of Behavioral Sciences, Rush Medical College, Chicago, IL Assistant Professor, Department of Behavioral Sciences, Rush Medical College, Chicago, IL present Affiliate Assistant Professor, Department of Psychology, Loyola University Chicago, IL present Associate Investigator, Scientific Staff, Shriners Hospitals for Children, Chicago, IL Hospital and Administrative Appointments: present Pediatric/ Clinical Psychologist, Shriners Hospitals for Children, Chicago, IL present Director of Predoctoral Practicum in Pediatric Psychology, Shriners Hospitals for Children, Chicago, IL present Partner, Pediatric Rehabilitation Consultants, LLC Co-Director of Postdoctoral Fellowship in Pediatric Rehabilitation Psychology, National Institute on Disability and Rehabilitation Research, Advanced Rehabilitation Research Training, Shriners Hospitals for Children, Chicago, IL present Director of Psychology, Shriners Hospitals for Children, Chicago, IL Other Clinical Appointments: 1999 Undergraduate Intern, Practicum in Human Development and Psychological Services, Department of Child and Adolescent Psychiatry, Children s Memorial Hospital, Chicago, IL Psychology Trainee, Division of Behavioral Pediatrics and Psychology, Rainbow Babies and Children s Hospital, Cleveland, OH Psychology Trainee, Laurelwood Hospital and Counseling Center, Cleveland, OH Psychology Trainee, Department of Child Psychiatry and Pediatrics, MetroHealth Medical Center, Cleveland, OH Clinical Consultant, Pediatric Muscle Clinic, Department of Pediatrics, MetroHealth Medical Center, Cleveland, OH Clinical Consultant, Summer Camp for Children and Adolescents with Muscular Dystrophy, Camp Cheerful, Strongsville, OH

2 Kathy Zebracki (Jefson), Ph.D. Page 2 of Clinical Consultant, Summer Camp for Children and Adolescents with Diabetes, Camp Ho Mita Koda, Newbury, OH Psychology Fellow, Wellness Center, Loyola University Chicago, IL Clinical Supervisor, Wellness Center, Loyola University Chicago, IL Clinical Consultant, Anixter Village Program, Anixter Center, Chicago, IL Other Research Appointments: Research Assistant, Department of Learning Sciences, Northwestern University, Evanston, IL Research Assistant, Department of Psychiatry and Behavior Sciences, Feinberg School of Medicine, Northwestern University, Chicago, IL Research Consultant, Toxoplasmosis Center, Department of Pediatrics, University of Chicago, IL Research Consultant, General Academic Pediatrics, Children s Memorial Hospital, Chicago, IL Research Consultant, Adolescents with Chronic Disease Transition Project, Children s Memorial Hospital, Chicago, IL Specialty Certification: 2012-present National Register of Health Service Psychologists (53401) 2012 Life Care Planning Pre-Certification Program, University of Florida 2013-present Certified Life Care Planner, International Commission on Health Care Certification (1199) Licensure: 2007-present Illinois-Clinical Psychologist ( ) Awards, Honors and Memberships in Honorary Societies: Dean s Academic Honor List, Northwestern University 1999 Recipient, Owen L. Coon Scholar, Northwestern University Appointee, Research Training in Pediatric Psychology, National Institute of Mental Health (T32 training grant awarded to Dennis Drotar, Ph.D., Case Western Reserve University) 2006 Recipient, Pediatric Rehabilitation Psychology (Division 22, Section 1), Student Poster Award Appointee, Postdoctoral Fellow in Pediatric Psychology, National Institute of Child Health and Development (R01 awarded to Grayson Holmbeck, Ph.D., Loyola University Chicago) Recipient, National Institutes of Health Pediatric Loan Repayment Program Recipient, National Institutes of Health Pediatric Loan Repayment Renewal 2011 Recipient, Green Belt, Shriners Hospitals for Children LEAN Six-Sigma (White and Yellow Belts, 2009) 2012 Recipient, American Spinal Injury Association Best Poster Presentation, 1 st Place, 2012 Annual Meeting Memberships in Professional and Scientific Societies and Other Professional Activities: International Societies: International Spinal Cord Society (2011- present) National Societies: American Academy for Cerebral Palsy and Developmental Medicine (2008- present) American Association of Spinal Cord Injury Psychologists and Social Workers ( ) American Psychological Association (2000- present)

3 Kathy Zebracki (Jefson), Ph.D. Page 3 of 16 - Division 22: Rehabilitation Psychology; Section on Pediatric Rehabilitation Psychology (2006- present) - Division 38: Health Psychology ( ) - Division 54: Society of Pediatric Psychology (2000- present) American Spinal Injury Association (2008- present) Society of Developmental and Behavioral Pediatrics ( ) Society of Research on Adolescence ( ) Local Societies: Illinois Psychological Association ( ) Professional Activities: American Academy for Cerebral Palsy and Developmental Medicine - Publication Committee (2009- present) - Scientific Program Committee, 69 th Annual Meeting of AACPDM, Austin Texas (2015) American Spinal Injury Association - Pediatrics Committee (2009- present) o Chair (2014- present), Vice chair ( ) Howard H. Steel Conference on Pediatric Spinal Cord Injury and Dysfunction - Review Committee (2012) Illinois Spina Bifida Association - Board of Directors (2010- present) - Chair, Scientific Program Committee, Symposia on Spina Bifida: Current Strategies in Research and Care ( ) - Program Committee, Anixter Village ( ) - Professional Advisory Council (2011- present) o Chair (2011- present) National Institutes of Health - National Institute of Neurological Disorders and Stroke (NINDS), Member of working group to develop Common Data Elements (CDEs) in SCI (2014- present) - Pediatric Loan Repayment Program Ambassador (2011- present) Pan-European Pediatric Spinal Cord Injury Collaboration - Member (2014-present) Rehabilitation Psychology (Division 22) - Early Career Task Force ( ) Society of Pediatric Psychology (Division 54) - Task Force on Science and Practice ( ) - Task Force on Evidence-Based Practice in Psychology (2003) - Student Advisory Board ( ) - Mentoring Project Committee ( ) - Review Committee, Routh Student Research Award (2007) - Adolescent and Young Adults with Chronic Health Conditions Special Interest Group ( ) - Abstract Review Committee, National Conference (2011, 2013) - Abstract Review Committee, Regional Conference (2012) - Abstract Review Committee, American Psychological Association s 2014 Convention, Division 54 section (2014)

4 Kathy Zebracki (Jefson), Ph.D. Page 4 of 16 Additional Program Committees - Comprehensive Care for Children with Chronic Physical Illness, Organizing Committee, Cleveland, OH, Oct 20-21, Measuring Child Health: Critical Challenges in Developing and Applying Health Status and Outcome Measures, Organizing Committee, Chicago, IL, Mar 24-25, Use of New Technology, Organizing Committee, Cleveland, OH, Oct 1-2, 2004 Editorial Positions: Editorial Board: Developmental Medicine and Child Neurology (2010-present; reviewer ) Journal of Pediatric Psychology (2012-present; reviewer panel , reviewer ) Mac Keith Press (2010-present) Physical & Occupational Therapy in Pediatrics (2011-present) Topics in Spinal Cord Injury Rehabilitation (2012-present) Reviewer: BioMed Central Complementary and Alternative Medicine ( ) Child: Care, Health & Development (2011) Children s Health Care (2005) Clinical Orthopaedics and Related Research ( ) Health and Quality of Life Outcomes (2005) International Perspectives on Spinal Cord Injury (2010) Journal of Neurosurgery (2006) Grant Reviewer: Paralyzed Veterans of America (2013) Academic and Institutional Committees: Student Board Member: University Interdisciplinary Training Consortium Case Western Reserve University School of Medicine and University Hospitals Student Representative: Clinical Committee, Department of Psychology, Case Western Reserve University Committee on Diversity Affairs: Loyola University Chicago present Clinical Ethics Committee, Shriners Hospitals for Children, Chicago - Chair (2012- present) present Research Committee, Shriners Hospitals for Children, Chicago present Editor, SCI Informer, A quarterly publication of Shriners Hospitals for Children, Chicago Major Academic and Clinical Teaching Responsibilities: 1. Teaching Assistant: Child Psychology. Undergraduate course at Case Western Reserve University (Fall 2001). 2. Teaching Assistant: Introduction to Psychology. Undergraduate course at Case Western Reserve University (Spring 2002). 3. Graduate Student: Teaching Psychology. Graduate course at Case Western Reserve University (Spring 2003). 4. Course Instructor: Assessment and Management of Psychosocial Issues in Pediatric Patients. Pediatric Residency course at MetroHealth Medical Center (Fall 2002 & Spring 2003). 5. Course Instructor: Attachment Theory across the Lifespan. Undergraduate course at Case Western Reserve University (Fall 2004). 6. Course Instructor: Methods of Assessment Practicum. Graduate course at Case Western Reserve University ( ).

5 Kathy Zebracki (Jefson), Ph.D. Page 5 of Course Instructor: Cognitive Behavioral Therapy. Graduate course at Loyola University Chicago (Spring 2008). 8. Course Instructor: Evidence-Based Practice in Clinical Psychology. Graduate course at Loyola University Chicago (Spring 2011). Lectures by Invitation: 1. A healing process: Coping with a father s terminal illness and death (November 7, 2003). Clinical case conference at Case Western Reserve University. 2. Treatment of an 11-year old child with multiple presenting concerns (February 17, 2004). Clinical case conference at Rainbow Babies and Children s Hospital. 3. Developmental and behavioral pediatrics (Fall 2004). Lecture for medical students at Case Western Reserve University School of Medicine. 4. Pediatric sleep problems (September May 2005). Monthly lecture for medical students at Case Western Reserve University School of Medicine. 5. Treatment of an 8-year old child with inadequate sleep hygiene (March 8, 2005). Clinical case conference at Rainbow Babies and Children s Hospital. 6. A modern look at the Age of Aquarius: Clinical implications (April 10, 2006). Clinical case conference at Children s Memorial Hospital. 7. Health-related quality of life and pain in children and adolescents with Duchenne or Becker muscular dystrophy (May, 2006). Invited presentation at the Virginia Tarlow, M.D., Grand Rounds: Annual Scholar s Day, Department of Psychiatry and Behavioral Sciences, Feinberg School of Medicine, Northwestern University. 8. Sleep in children and adolescents (June 23, 2006 & September 15, 2006). Lecture for Child/ Pediatric Psychology Predoctoral Internship Program, Seminar in Neuropsychology, Children s Memorial Hospital. 9. Developmental and behavioral pediatrics (Fall 2006). Lecture for medical students at Feinberg School of Medicine, Northwestern University. 10. Change over time: Psychosocial and family functioning in adolescents with spina bifida (December 2007). Invited presentation at the Academic Day Conference, Department of Neurological Surgery, Feinberg School of Medicine, Northwestern University. 11. Therapy with children and adolescents (Spring 2008). Lecture for graduate students, Introduction to the Profession of Clinical Psychology, Loyola University Chicago. 12. Sleep in children and adolescents (March 25, 2008). Lecture for graduate students, Clinical Treatment: Children and Adolescents, Loyola University Chicago. 13. Psychosocial functioning of young adults with pediatric-onset spinal cord injury (November 21, 2008). Invited presentation at the 19 th Annual Sofield Day, Shriners Hospitals for Children, Chicago. 14. Psychosocial functioning of young adults with pediatric-onset spinal cord injury (April 1, 2009). Spinal Cord Injury Lecture Series at Shriners Hospitals for Children, Chicago. 15. Psychosocial and family functioning in adolescents with spina bifida: A longitudinal study (June, 2009). Invited presentation at the Rush Psychology Grand Rounds, Department of Behavioral Sciences, Rush University Medical Center. 16. Pediatric sleep and neurobehavioral consequences of sleep disorders (November 20, 2009 & October 29, 2010). Lecture for Child/ Pediatric Psychology Predoctoral Internship Program, Seminar in Neuropsychology, Children s Memorial Hospital. 17. The transition from adolescence to emerging adulthood in youth with disabilities and chronic health conditions (September 10, 2010). Keynote address at the Transitional Care in Osteogenesis Imperfecta: Advances in Biology, Technology and Clinical Practice Symposium, Shriners Hospitals for Children, Chicago. 18. Overview of research study: Long-term outcomes in pediatric-onset spinal cord injury (November 3, 2010). Spinal Cord Injury Lecture Series at Shriners Hospitals for Children, Chicago. 19. Long-term outcomes of individuals with pediatric-onset spinal cord injury (November 12, 2010). Invited presentation at the 21 st Annual Sofield Day, Shriners Hospitals for Children, Chicago. 20. Behavioral sleep problems in adolescents (February 15, 2011). Lecture for teaching staff at Saint Ignatius College Prep, Chicago.

6 Kathy Zebracki (Jefson), Ph.D. Page 6 of Use of attendant care in individuals with pediatric-onset spinal cord injury (May 20, 2011). Invited presentation at the 6 th Annual Millar Day, Shriners Hospitals for Children, Chicago. 22. An overview of pediatric spinal cord injuries: Clinical and research implications (July 14, 2011). Invited presentation at Stoke Mandeville Hospital, Aylesbury, Buckinghamshire, United Kingdom. 23. Anatomy and medical complications of spinal cord injuries (November 3, 2011). Lecture for graduate students, Neuropsychology, Loyola University Chicago. 24. Pathophysiology and secondary health conditions of pediatric spinal cord injuries (September 16, 2013). Lecture for graduate students, Neuropsychology, Loyola University Chicago. 25. Long-term outcomes and sexuality (October 12, 2013). Invited presentation at the 3 rd Annual Lawrence C. Vogel Pediatric Spinal Cord Injury (SCI) Symposium: An Interdisciplinary Approach to the Unique Issues of SCI, Shriners Hospitals for Children, Chicago. 26. Pediatric spinal cord injury: anatomy and pediatric rehabilitation. (May 22, 2014). Lecture for Clinical Psychology Pre-doctoral Internship Program, Department of Behavioral Sciences, Rush University Medical Center. 27. Maintaining your emotional health (August 2, 2014). Invited presentation at Caring for Caregivers: Supporting Caregivers of Youth with Spinal Cord Injury Forum, Shriners Hospitals for Children, Chicago. 28. Participation, quality of life, and mobility- A research perspective (October 4, 2014). Invited presentation at the 4 th Annual Lawrence C. Vogel Pediatric Spinal Cord Injury (SCI) Symposium: An Interdisciplinary Approach to the Unique Issues of SCI, Shriners Hospitals for Children, Chicago. 29. Suicide prevention (October 14, 2014). Lecture for hospital in-service, Shriners Hospitals for Children, Chicago. 30. Sexuality in spinal cord injury: Anatomy, pathophysiology, management, and outcomes (November 5, 2014). Spinal Cord Injury Lecture Series at Shriners Hospitals for Children, Chicago. Instructional Courses and Symposia 1. Vogel, L., Zebracki, K., Mulcahey, M., Betz, R., & Graham, A. (September 4, 2012). Review of current recommended treatment and management practices of children and adolescents with a spinal cord injury. Symposium at the 51 st Annual Scientific Meeting of the International Spinal Cord Society, London, UK. 2. Mulcahey, M., DeVivo, M., Wilson, P., Betz, R., Zebracki, K., Bogdan, W., Klaas, A., & Vogel, L., (May 7, 2013). Pediatric-adolescent spinal cord injury over the last 40 years. Instructional Course at the 39 th Annual Scientific Meeting of the American Spinal Injury Association, Chicago, IL. 3. Vogel, L., Zebracki, K., & Mulcahey, M. (October 17, 2013). Pediatric spinal cord injuries in infants and young children. Instructional Course at the 67 th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Milwaukee, WI. 4. Vogel, L. & Zebracki, K. (November 9, 2013). Long-term outcomes of adults with pediatric-onset spinal cord injuries. Breakout session at the International Association of Rehabilitation Professionals 2013 Forensic Conference, Charleston, SC. 5. Betz, R., Mulcahey, M., Vogel, L., & Zebracki, K. (September, 2014). Comprehensive interprofessional approach to management of pediatric spinal cord injury. Instructional Course at the 68 th International Spinal Cord Society Annual Scientific Meeting, Maastricht, The Netherlands. Bibliography: Research Publications, peer-reviewed (print or other media): 1. Drotar, D., Walders, N., Burgess, E., Nobile, C., Dasari, M., Kahana, S., Miller, V., Schwartz, L., Schaefer, E., & Zebracki, K. (2001). Recommendations to enhance comprehensive care for children with chronic health conditions. Children s Services: Social Policy, Research, and Practice, 4, doi: /S CS0404_07 2. Zebracki, K., Drotar, D., Kirchner, H. L., Schluchter, M., Redline, S., Kercsmar, S., & Walders, N. (2003). Predicting attrition in a pediatric asthma intervention study. Journal of Pediatric Psychology, 28(8), doi: /jpepsy/jsg042

7 Kathy Zebracki (Jefson), Ph.D. Page 7 of Zebracki, K. & Drotar, D. (2004). Outcome expectancy and self-efficacy in adolescent asthma self- management. Children s Health Care, 33(2), doi: /s chc3302_4 4. Palermo, T., Zebracki, K., Newman, A., & Singer, N. (2004). Juvenile idiopathic arthritis: Predictors of parent-child discrepancy on reports of pain and disability. Journal of Rheumatology, 31(9), PMID: Zebracki, K., Palermo, T., Hostoffer, R., Drotar, D., & Duff, K. (2004). Health-related quality of life of children with primary immunodeficiency: A comparison to children with a chronic health condition and to health controls. Annals of Allergy, Asthma & Immunology, 93(6), doi: /peds WWW 6. Drotar, D., Greenley, R., Hoff, A., Johnson, C., Lewandowski, A., Moore, M., Spilsbury, J., Witherspoon, D., & Zebracki, K. (2006). Summary of issues and challenges in the use of new technologies in clinical care and with children and adolescents with chronic illness. Children's Health Care, 35(1), doi: /s chc3501_8 7. Pai, A., Drotar, D., Zebracki, K., Moore, M., & Youngstrom, E. (2006). A meta-analysis of the effects of psychological interventions in pediatric oncology on outcomes of psychological distress and adjustment. Journal of Pediatric Psychology, 31(9), doi: /jpepsy/jsj Cotton, S., Zebracki, K., Rosenthal, S., Tsevat, J., Drotar, D. (2006). Religion/ spirituality and adolescent health outcomes: a review. Journal of Adolescent Health, 38(4), doi: /j.jadohealth Hoff, A., Palermo, T., Schluchter, M., Zebracki, K. & Drotar, D. (2006). Longitudinal relationships of depressive symptoms to pain intensity and functional disability among children with disease-related pain. Journal of Pediatric Psychology, 31(10), doi: /jpepsy/jsj McLone, D. & Zebracki, K. (2007). Intelligence quotient in children with meningomyeloceles. [Editorial]. Journal of Neurosurgery: Pediatrics, 106 (2), doi: /ped Zebracki, K. & Stancin, T. (2007). Cultural considerations in facilitating coping to a father s illness and bereavement in a Latino child. Clinical Case Studies, 6(1), doi: / Zebracki, K., Holzman, K., Bitter, K., Feehan, K., & Miller, M. (2007). Brief report: Use of complementary and alternative medicine and psychological functioning in Latino children with juvenile idiopathic arthritis or arthralgia. Journal of Pediatric Psychology, 32(8), doi: /jpepsy/jsm Weissberg-Benchell, J., Goodman, S., Antisdel-Lomaglio, J., & Zebracki, K. (2008). The use of continuous subcutaneous insulin infusion (CSII): Parental and clinician perceptions of self-care autonomy in children and adolescents with Type 1 diabetes. Journal of Pediatric Psychology, 33(10), PMID: Zebracki, K. & Drotar, D. (2008). Pain and activity limitations in children with Duchenne or Becker muscular dystrophy. Developmental Medicine and Child Neurology, 50(7), doi: /j x 15. Kelly, L., Zebracki, K., Gershenson, L., & Holmbeck, G. (2008). Adolescent development and family functioning in youth with spina bifida. Journal of Pediatric Rehabilitation Medicine, 1(4), PMID: Friedman, D., Holmbeck, G., DeLucia, C., Jandasek, B., & Zebracki, K. (2009). Trajectories of autonomy development across the adolescent transition in children with spina bifida. Rehabilitation Psychology, 54(1), doi: /a Jandasek, B., Holmbeck, G., DeLucia, C., Zebracki, K., & Friedman, D. (2009). Trajectories of family processes across the adolescent transition in youth with spina bifida. Journal of Family Psychology, 23(5), doi: /a Zebracki, K., Anderson, C., Chlan, K., & Vogel, L. (2010). Outcomes of adults with pediatriconset spinal cord injury: Longitudinal findings and implications on transition to adulthood. Topics in Spinal Cord Injury Rehabilitation, 16(1), Doi: /sci Holmbeck, G., DeLucia, C., Essner, B., Kelly, L., Zebracki, K., Friedman, D., & Jandasek, B. (2010). Trajectories of psychosocial adjustment in adolescents with spina bifida: A six-year four-

8 Kathy Zebracki (Jefson), Ph.D. Page 8 of 16 wave longitudinal follow-up. Journal of Consulting and Clinical Psychology, 78(4), doi: /a Kaugars, A., Zebracki, K., Kichler, J., Fitzgerald, C., Greenley, R., Alemzadeh, R., & Holmbeck, G. (2010). Use of an observational coding system with families of adolescents: Psychometric properties among pediatric and healthy populations. Journal of Pediatric Psychology, 36(5), doi: /jpepsy/jsq Forcier, M., Ahlm, S., Boudos, R., Shah, P., Mukherjee, S., Zebracki, K., & Weissberg-Benchell, J. (2010). A hospital-wide initiative to support medically complex adolescents and young adults transition experience: The process of a systems approach to transition in a tertiary care setting. International Journal of Child and Adolescent Health, 3(4), doi: 22. Vogel, L., Chlan, K., Zebracki, K., & Anderson, C. (2011). Long-term outcomes of adults with pediatric-onset spinal cord injuries as a function of neurological impairment. Journal of Spinal Cord Medicine, 34(1), doi: / X Chlan, K., Zebracki, K., Vogel, L. (2011). Spirituality and life satisfaction in adults with pediatric-onset spinal cord injury. Spinal Cord, 49, doi: /sc Agrawal, R., Shah, P., Zebracki, K., Sanabria, K., Kohrman, C., & Kohrman, A. (2011). Barriers to care for children and youth with special health care needs: Perceptions of Illinois Pediatricians. Clinical Pediatrics, 51(1), doi: / Hwang, M., Chlan, K., Vogel, L., & Zebracki, K. (2012). Substance use in young adults with pediatric-onset spinal cord injury. Spinal Cord, 50(7), doi: /sc Agrawal, R., Shah, P., Zebracki, K., Sanabria, K., Kohrman, C., & Kohrman, A. (2013). The capacity of primary care pediatricians to care for children with special health care needs. Clinical Pediatrics, 52(4), doi: / Zebracki, K. Hwang, M., Patt, P., & Vogel, L. (2013). Autonomic cardiovascular dysfunction and vitamin D deficiency in pediatric spinal cord injury. Journal of Pediatric Rehabilitation Medicine, 6, doi: /prm Hwang, M., Zebracki, K., Betz, R., Mulcahey, M., & Vogel, L. (2013). Normative blood pressure and heart rate in pediatric spinal cord injury. Topics in Spinal Cord Injury Rehabilitation, 19(2), doi: /sci Zebracki, K., Thawrani, D., Oswald, T., Anadio, J., Sturm, P., & Spine Deformity Study Group (2013). Predictors of emotional functioning in youth after surgical correction of idiopathic scoliosis. Journal of Pediatric Orthopaedics, 33(6), doi: /BPO.0b013e318288b77f 30. January, A., Zebracki, K., Chlan, K., & Vogel, L. (2014). Mental health and risk of secondary medical complications in adults with pediatric-onset spinal cord injury. Topics in Spinal Cord Injury Rehabilitation, 20(1), doi: /sci Hwang, M., Zebracki, K., Chlan, K., & Vogel, L. (2014). Longitudinal changes in medical complications in adults with pediatric-onset spinal cord injury. Journal of Spinal Cord Medicine, 37(2), doi: / Y Hwang, M., Zebracki, K., Chlan, K., & Vogel, L. (2014). Longitudinal employment outcomes in adults with pediatric-onset spinal cord injury. Spinal Cord, 52(6), doi: /sc January, A., Zebracki, K., Chlan, K., & Vogel, L. (2014). Symptoms of depression over time for individuals with pediatric-onset spinal cord injury. Archives of Physical Medicine and Rehabilitation, 95(3): doi: /j.apmr Holbein, C., Zebracki, K., & Holmbeck, G. (in press). Development and validation of the Peer Interaction Macro-coding System scales (PIMS): A new tool for observational measurement of social competence in youth with spina bifida. Psychological Assessment. 35. Saunders, Lee., Selassie, A., Cao, Y., Zebracki, K., & Vogel, L. (in press). Epidemiology of Pediatric Traumatic Spinal Cord Injury in a Population-based Cohort, Topics in Spinal Cord Injury Rehabilitation. 36. Hwang, M., Zebracki, K., & Vogel, L. (in press). Occupational characteristics of adults with pediatric-onset spinal cord injury. Topics in Spinal Cord Injury Rehabilitation.

9 Kathy Zebracki (Jefson), Ph.D. Page 9 of Holbein, C. E., Lennon, J. M., Kolbuck, V. D., Zebracki, K., Roache, C., & Holmbeck, G. N. (in press). Observed differences in social behaviors exhibited in peer interactions between youth with spina bifida and their peers: Neuropsychological correlates. Journal of Pediatric Psychology. 38. January, A., Zebracki, K., Czworniak, A., Chlan, K., & Vogel., L. (in press). Predictive factors of hospitalization in adults with pediatric-onset SCI: A longitudinal analysis. Spinal Cord. Chapters: 1. Holmbeck, G. N., Zebracki, K., McGoron, K. (2009). Research design and statistical applications. In M. Roberts & R. Steele (Eds.), Handbook of Pediatric Psychology (4 th ed., pp ). New York: Guilford Press. 2. Zebracki, K., Zaccariello, M., Zelko, F., & Holmbeck, G. N. (2010). Adolescence and emerging adulthood in individuals with spina bifida: A developmental neuropsychological perspective. In S. Hunter & J. Donders (Eds.), Principles and Practice of Lifespan Developmental Neuropsychology (pp ). Cambridge: Cambridge University Press. 3. Holmbeck, G. N., Bauman, L., Essner, B. Kelly, L., Zebracki, K. (2010). Developmental context: The transition from adolescence to emerging adulthood in youth with disabilities and chronic conditions. In D. Lollar (Ed.), Launching into Adulthood: An Integrated Response to Support Transition of Youth with Chronic Health Conditions and Disabilities (pp ). Baltimore, MD: Brookes Publishing. 4. Zebracki, K. & Vogel, L. (2012). Epidemiology of childhood-onset spinal cord injuries in the United States. In V. Rahimi-Movaghar, S. Jazayeri, & A. Vaccaro (Eds.), Epidemiology of Spinal Cord Injuries (pp ). New York: Nova Science Publishers, Inc. 5. Zebracki, K., Chlan, K. & Vogel, L (2014). Long-term outcomes of pediatric-onset spinal cord injury. In L. Vogel, K. Zebracki, R. Betz, & M. Mulcahey (Eds.), Spinal Cord Injury in the Child and Young Adult (pp ). London, UK: MacKeith Press. 6. Kamaraj, D., Zebracki, K., Klaas, S., Cooper, R. (2014). Leisure and recreational activities for children with spinal cord injury. In L. Vogel, K. Zebracki, R. Betz, & M. Mulcahey (Eds.), Spinal Cord Injury in the Child and Young Adult (pp ). London, UK: MacKeith Press. Books: 1. Drotar, D., Witherspoon, D., Zebracki, K., Peterson, C. (2006). Psychological Interventions in Childhood Chronic Illness. Washington, D.C.: American Psychological Association. 2. Vogel, L., Zebracki, K., Mulcahey, M., & Betz, R (2014). Spinal Cord Injury in the Child and Young Adult. London, UK: MacKeith Press. Research Publications, non-peer-reviewed: 1. Holmbeck, G. N., Zebracki, K., Johnson, S. Z., Belvedere, M., & Schneider, J. (2007). Child-peer interaction macro-coding manual. Unpublished manual, Loyola University Chicago. 2. Holmbeck, G. N., Zebracki, K., Johnson, S. Z., Belvedere, M., & Schneider, J. (2007). Parentchild interaction macro-coding manual. Unpublished manual, Loyola University Chicago. Presentations: 1. Chlan, K., Zebracki, K., & Vogel, L. (2009, September). Religiosity and life satisfaction in adults with pediatric-onset spinal cord injury. Presentation at the Congress on Spinal Cord Medicine and Rehabilitation, Dallas, TX. Journal of Spinal Cord Medicine, 32(4), Zebracki, K., Vogel, L., & Chlan, K. (2009, September). Sexuality in adults with pediatric-onset spinal cord injury. Presentation at the Congress on Spinal Cord Medicine and Rehabilitation, Dallas, TX. Journal of Spinal Cord Medicine, 32(4), Kelly, E., Anderson, C., Klaas, S., Russell, H., Daharsh, E., Gorzkowski, J., Zebracki, K., & Vogel, L. C. (2009, October). Participation and quality of life among youth with spinal cord injury. Platform Presentation at the 48 th Annual Scientific Meeting of the International Spinal Cord Society, Florence, Italy. 4. Chlan, K., Zebracki, K., & Vogel, L. (2009, December). Religiosity and life satisfaction in adults with pediatric-onset spinal cord injury. Presentation at the Howard H. Steel Conference: Pediatric Spinal Cord Injuries and Dysfunction, Orlando, FL.

10 Kathy Zebracki (Jefson), Ph.D. Page 10 of Patt, P., Vogel, L., & Zebracki, K. (2009, December). Evaluation of body mass index to trunk fat and metabolic risk factors in youth with spinal cord injury. Presentation at the Howard H. Steel Conference: Pediatric Spinal Cord Injuries and Dysfunction, Orlando, FL. 6. Shah, P., Boudos, R., Zebracki, K., Mukherjee, S., Ahlm, S., Forcier, M., & Weissberg-Benchell, J. (2010, May). Creative approaches to improving services at a tertiary institution. Presentation at the Transitions Conference 5, Toronto, ON. 7. Zebracki, K., Chlan, K., & Vogel, L. (2010, September). Change in health status in adults with a pediatric-onset spinal cord injury. Presentation at the 2010 Annual Meeting of the Academy of Spinal Cord Injury Professionals, Inc., Las Vegas, NV. 8. Chlan, K., Zebracki, K., & Vogel, L. (2010, September). Gender differences in outcomes of adults with pediatric-onset spinal cord injury. Presentation at the 2010 Annual Meeting of the Academy of Spinal Cord Injury Professionals, Inc., Las Vegas, NV. 9. Agrawal, R., Shah, P., Zebracki, K., Sanabria, K., & Kohrman, A. (2011, April). Inadequate clinical experience as a barrier to primary care of children and youth with special health care needs. Platform session at the Pediatric Academic Societies meeting, Denver, CO. 10. Shah, P., Weissberg-Benchell, J., Boudos, R., Ahlm, S., Mukherjee, S., Zebracki, K., Forcier, M. (2011, April). Knowledge of and independence in health care activities leads to increased perception of overall independence in young adults. Presentation at the Pediatric Academic Societies meeting, Denver, CO. 11. Zebracki, K., Vogel, L., & Chlan, K. (2011, June). Use of attendant care in individuals with pediatric-onset tetraplegia. Presentation at the International Conference of Spinal Cord Medicine and Rehabilitation, Washington, D.C. Topics in Spinal Cord Injury Rehabilitation, 16(Suppl 1), Zebracki, K., DeVivo, M., Chlan, K., Moss, A. & Vogel, L., (2011, September). Cause of death for children and adolescents with a spinal cord disorder. Presentation at the Annual Conference of the Academy of Spinal Cord Injury Professionals, Las Vegas, NV. 13. Thomas, S., Buckon, C., Bagley, A., Fowler, E., Zebracki, K., McDonald, C., & Sussman, M. (2011, October). Assessment of behavior in boys with Duchenne muscular dystrophy: Influence of steroids. Presentation at the 65 th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Las Vegas, NV. Developmental Medicine and Child Neurology, 53(Suppl 5), Prasad, M., Zebracki, K., Chaviano, A., & Vogel, L. (2011, October). Adults with Pediatric- Onset Spinal Cord Injury: Associations with Urinary Tract Infection. Presentation at the North Central Section of the American Urological Association, Inc. 85 th Annual Meeting, Rancho Mirage, CA. 15. Hwang, M., Zebracki, K., Chlan, K., & Vogel, L. (2011, October). Substance use in young adults with pediatric-onset spinal cord injury. Presentation at the 88 th Annual Meeting of the American Congress of Rehabilitation Medicine/ 18 th Annual Meeting of the American Society of Neurorehabilitation, Atlanta, GA. Archives of Physical Medicine and Rehabilitation, 92(10), Hwang, M., Vogel, L., & Zebracki, K. (2012, April). Baseline blood pressure and heart rate in youth with spinal cord injury. Presentation at the 38 th Annual Scientific Meeting of the American Spinal Injury Association, Denver, CO. 17. Chlan, K., Vogel, L., Zebracki, K. (2012, April). Medical complications and aging in adults with pediatric-onset spinal cord injury. Presentation at the 38 th Annual Scientific Meeting of the American Spinal Injury Association, Denver, CO. 18. Kelly, E., Russell, H., Garma, S., Klaas, S., Zebracki, K., & Vogel, L. (2012, September). Duration of Injury and Outcomes in Pediatric Spinal Cord Injury. Presentation at the 2012 Annual Meeting of the Academy of Spinal Cord Injury Professionals, Las Vegas, NV. 19. Gannotti, M., Gorton, G., Daniels, C., & Zebracki, K. (2012, September). Level of severity indirectly related to life satisfaction of adults with cerebral palsy and spina bifida. Presentation at the 66 th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Toronto, ON. Developmental Medicine and Child Neurology, 54(Suppl 6), Zebracki, K., Chlan, K. & Vogel, L. (2012, September). Effect of mobility on long-term outcomes of childhood-onset tetraplegic spinal cord. Presentation at the 51 st Annual Scientific Meeting of the International Spinal Cord Society, London, UK.

11 Kathy Zebracki (Jefson), Ph.D. Page 11 of 16 Abstracts: 21. Zebracki, K., January, A., Chlan, K., Hwang, M., Wasserman, R., & Vogel, L. (2012, November). Long-term mental health outcomes of individuals with childhood-onset spinal cord injury. Presentation at the Howard H. Steel Conference Pediatric Spinal Injuries and Dysfunction, Orlando, FL. 22. Vogel, L., Zebracki, K., Chlan, K., Hwang, M., Wasserman, R., & January, A. (2012, November). Long-term outcomes of individuals with childhood-onset spinal cord injury. Presentation at the Howard H. Steel Conference Pediatric Spinal Injuries and Dysfunction, Orlando, FL. 23. Hwang, M., Vogel, L., Zebracki, K. (2012, November). Baseline blood pressure and heart rate in youth with spinal cord injury. Presentation at the Howard H. Steel Conference Pediatric Spinal Injuries and Dysfunction, Orlando, FL. 24. January, A., Zebracki, K., Chlan, K., Hwang, M., & Vogel, L. (2013, May). Change in depression scores over time for individuals with pediatric-onset spinal cord injury. Presentation at the 39 th Annual Scientific Meeting of the American Spinal Injury Association, Chicago, IL. Topics in Spinal Cord Injury Rehabilitation, 19(Suppl 1), Hwang, M., Zebracki, K., Chlan, K., & Vogel, L. (2013, May). Longitudinal changes in medical complications in adults with pediatric-onset spinal cord injury. Presentation at the 39 th Annual Scientific Meeting of the American Spinal Injury Association, Chicago, IL. Topics in Spinal Cord Injury Rehabilitation, 19(Suppl 1), a. Hwang M, Zebracki K, Chlan KM, Vogel LC. Longitudinal changes in medical complications in adults with pediatric-onset spinal cord injury. (Academy of Spinal Cord Injury Professionals Educational Conference 2014, presentation). Recipient of Bors Award. 26. Zebracki, K., Chlan, K., & Vogel, L. (2013, October). Employment status of adults with pediatric-onset spinal cord injury. Presentation at the 52 nd Annual Scientific Meeting of the International Spinal Cord Society, Istanbul, Turkey. 27. January, A., Kelly, E., Zebracki, K., Russell, H., & Vogel, L. (2013, October). Coping with childhood onset disability and psychosocial outcomes: A comparison of coping patters across the lifespan. Presentation at the 67 th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Milwaukee, WI. Developmental Medicine and Child Neurology, 55(Suppl 3), Hwang, M., Zebracki, K., Chlan, K., & Vogel, L. (2014, May). Longitudinal employment outcomes in adults with pediatric-onset spinal cord injury. Presentation at the 40 th Annual Scientific Meeting of the American Spinal Injury Association, San Antonio, TX. 29. Zebracki, K., Holbein, C., Chlan, K., & Vogel, L. (2014, May). Dating and relationships in adults with pediatric-onset spinal cord injuries. Presentation at the 40 th Annual Scientific Meeting of the American Spinal Injury Association, San Antonio, TX. Topics in Spinal Cord Injury Rehabilitation, 20(Suppl 1), January, A., Zebracki, K., Chlan, K., & Vogel, L. (2014, September). The role of bladder management and functional mobility in promoting life satisfaction over time for individuals with childhood-onset disabilities. Presentation at the 68th Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine, San Diego, CA. a. January, A., Zebracki, K., & Vogel, L. (2014, October). The role of bladder management and functional mobility in promoting life satisfaction over time for individuals with childhood-onset disabilities. Presentation at the American Congress of Rehabilitation Medicine 91 st Annual Conference, Toronto, ON, Canada. 31. Van Middendorp, J., Augutis, M., Burkhart, H., Castelli, E., Graham, A., Glott, T., Hagen, E., Hakova, R., van Hedel, H., Henderson, N., Kelly, E., Dolado, E., Mulcahey, M., Scheel, A., Smith, E., Vogel, V., and Zebracki, K. (2014, September). Spinal cord injury in children and adolescents: Identifying research priorities through an international service user survey. Presentation at the 68 th International Spinal Cord Society Annual Scientific Meeting, Maastricht, The Netherlands.

12 Kathy Zebracki (Jefson), Ph.D. Page 12 of Zebracki, K., Drotar, D., Kirchner, H. L., Redline, S., Kercsmar, S., & Schluchter, M. (2002, April). Predicting attrition in a pediatric asthma intervention study. Poster session at the Great Lakes Regional Conference on Child Health Psychology, Milwaukee, WI. 2. Palermo, T., Zebracki, K., Newman, A., & Singer, N. (2003, March). Juvenile Chronic Arthritis: Predictors of Parent-Child Discrepancy on Reports of Pain, Disability, and Quality of Life. Poster session at Pediatric Rheumatology 2003: Park City and Beyond, Park City, UT. 3. Zebracki, K. & Drotar, D. (2003, August). Outcome Expectancy and Self-Efficacy in Adolescent Asthma Self-Management. Poster session at the 2003 Annual Convention of the American Psychological Association (APA), Toronto, ON. 4. Zebracki, K., Palermo, T., Tcheurekdijan, H., Hostoffer, R. & Drotar, D. (2004, April). Healthrelated quality of life of children with primary immunodeficiency disease: A comparison study. Poster session at the Society of Pediatric Psychology National Conference on Child Health Psychology, Charleston, SC. 5. Cotton, S., Zebracki, K., Rosenthal, S., Tsevat, J. & Drotar, D. (2005, March). Spirituality and adolescent health outcomes: A systematic review. Poster session at the Society of Adolescent Medicine Annual Meeting, Los Angeles, CA. 6. Palermo, T.M, Hoff, A.L., Schluchter, M., Drotar, D. & Zebracki, K. (2005, March). Depressive symptoms predict persistence of pain and disability in children with disease-related pain. Poster session at the 2005 Annual Scientific Meeting of the American Pain Society, Boston, MA. Journal of Pain, 6(3 Suppl 1), S1. 7. Zebracki, K. & Drotar, D. (2005, April). Health-related quality of life in children and adolescents with Duchenne or Becker muscular dystrophy. Poster session at the Great Lakes Regional Conference on Child Health, Columbus, OH. 8. Zebracki, K., Weissberg-Benchell, J., Goodman, S. & Antisdel, J. (2006, April). The use of continuous subcutaneous insulin infusion (CSII): Clinician and parental perceptions of self-care autonomy in children and adolescents with diabetes. Poster session at the National Conference on Child Health Psychology, Gainesville, FL. 9. Zebracki, K. & Drotar, D. (2006, April). Pain in children and adolescents with Duchenne or Becker muscular dystrophy. Poster session at the National Conference on Child Health Psychology, Gainesville, FL. 10. Witherspoon, D., Drotar, D., Greenley, R., Zebracki, K., Palermo, T. & Burant, C. (2006, September). Exploratory and confirmatory factor analyses of the Child Health Questionnaire- Child Form 87 (CHQ-CF87) with children chronic conditions and healthy children. Poster session at the Annual Meeting of the Society for Developmental and Behavioral Pediatrics, Philadelphia, PA. 11. Zebracki, K., Kelly, L., Szewerniak, D. & Miller, M. (2007, April). The use of complementary and alternative medicine and psychological functioning in Latino children with juvenile idiopathic arthritis or arthralgia. Poster session at the Regional Conference on Child Health Psychology, Cincinnati, OH. 12. Felsenthal, R., Jandasek, B., Holmbeck, G., & Zebracki, K. (2007, September). Bowel management and social acceptance in spina bifida. Poster session at the Annual Meeting of the Social of Developmental and Behavioral Pediatrics, Providence, RI. 13. Essner, B. & Zebracki, K. (2008, September). Pain and psychological adjustment in children and adolescents with Duchenne muscular dystrophy. Poster session at the Annual Meeting of the Midwest Pain Society, 32 nd Scientific Session, Chicago, IL. 14. Zebracki, K., Devine, K., Holmbeck, G., & McLone, D. (2009, March). Relations among cognitive, academic, executive function, and independent living in young adults with spina bifida preparing to live independently. Poster session at the First World Congress on Spina Bifida Research and Care, Orlando, FL. 15. Shah, P., Agrawal, R., Zebracki, K., Sanabria, K., & Kohrman, A. (2009, May). Subspecialty access and communication as a barrier to caring for children with special health care needs (CYSHCN). Poster session at the Pediatric Academic Societies meeting, Baltimore, MD. 16. Agrawal, R., Shah, P., Zebracki, K., Sanabria, K., & Kohrman, A. (2009, May). Barriers to provision of primary care to children and youth with special health care needs. Poster session at the Pediatric Academic Societies meeting, Baltimore, MD.

13 Kathy Zebracki (Jefson), Ph.D. Page 13 of Chlan, K., Zebracki, K., & Vogel, L. (2009, October). Religiosity, spirituality, and life satisfaction in adults with pediatric-onset spinal cord. Poster session at the 48 th Annual Scientific Meeting of the International Spinal Cord Society, Florence, Italy. 18. Zebracki, K., Vogel, L., Chlan, K., Bland, M., & Kelly, E. (2009, October). Relationship outcomes in adults with pediatric-onset spinal cord injury. Poster session at the 48 th Annual Scientific Meeting of the International Spinal Cord Society, Florence, Italy. 19. Zebracki, K., Vogel, L., Chlan, K., & Bland, M. (2009, December). Relationship outcomes in adults with pediatric-onset spinal cord injury. Poster session at the Howard H. Steel Conference: Pediatric Spinal Cord Injuries and Dysfunction, Orlando, FL. 20. Salkas, K., Devine, K. A., Holmbeck, G. N., McLone, D. G., & Zebracki, K. (2010, April). Functional math skills, quality of life, and independent living skills in young adults with spina bifida. Poster session at the Annual Meeting of the Midwestern Psychological Association, Chicago, IL. 21. Zebracki, K., Vogel, L., & Chlan, K. (2010, May). Pain and medical complications in adults with pediatric-onset spinal cord injury. Poster session at the 36 th Annual Scientific Meeting of the American Spinal Injury Association, Nashville, TN. Journal of Spinal Cord Medicine, 33(2), Shah, P., Boudos, R., Zebracki, K., Mukherjee, S., Ahlm, S., Weissberg-Benchell, J., & Forcier, M. (2010, May). Independence, participation, and transition readiness of an adolescent population with chronic illnesses. Poster session at the Transitions Conference 5, Toronto, ON. 23. Agrawal, R., Shah, P., Zebracki, K., Sanabria, K., Kohrman, C. & Kohrman, A. (2010, May). Primary care pediatrician familiarity with state and federal programs for children and youth with special health care needs. Poster session at the Pediatrics Academic Societies meeting, Vancouver, B.C. 24. Agrawal, R., Shah, P., Zebracki, K., Sanabria, K., & Kohrman, A. (2010, May). The comfort of primary care pediatricians with children dependent on medical technology. Poster session at the Pediatric Academic Societies meeting, Vancouver, B.C. 25. Zebracki, K., Sturm, P., & Oswald, T. (2010, July). Predictors of emotional functioning in children and adolescents after surgical correction of idiopathic scoliosis. Poster presentation at the 17 th International Meeting on Advanced Spine Techniques, Toronto, ON. 26. Altiok, H., Kelly, E., Zebracki, K., Gorzkowski, J., Abrams, J., & Vogel, L. (2010, September). A cross-sectional study of community participation among youth with spina bifida. Poster presentation at the 64 th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Washington D.C. Developmental Medicine and Child Neurology, 52(Suppl 5), Agrawal, R, Shah, P., Zebracki, K., Sanabria, K., Kohrman, C., & Kohrman, A. (2010, September). Pediatrician preparation to provide primary care to children with cerebral palsy. Poster presentation at the 64 th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Washington D.C. Developmental Medicine and Child Neurology, 52(Suppl 5), Zebracki, K., Chlan, K., & Vogel, L. (2010, September). Gender differences in outcomes of adults with pediatric-onset spinal cord. Poster presentation at the 64 th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Washington D.C. Developmental Medicine and Child Neurology, 52(Suppl 5), Zebracki, K., Vogel, L., & Chlan, K. (2010, September). Change in economic status in young and middle-aged adults with a pediatric-onset spinal cord injury over a ten-year period. Poster session at the 64 th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Washington D.C. Developmental Medicine and Child Neurology, 52(Suppl 5), Yang, C., Zebracki, K., Chaviano, A, & Vogel, L. (2010, September). Life satisfaction and quality of life related to bladder function after spinal cord injury. Poster session at the North Central Section of the American Urological Association, Inc. 84 th Annual Meeting, Chicago, IL. 31. Zebracki, K., Vogel, L., & Chlan, K. (2010, October). Pain and medical complications in adults with pediatric-onset spinal cord injury. Poster session at the 49 th Annual Scientific Meeting of the International Spinal Cord Society, New Delhi, India.

14 Kathy Zebracki (Jefson), Ph.D. Page 14 of Zebracki, K. & Sturm, P. (2011, April). Psychological functioning in youth two years after surgical correction of idiopathic scoliosis. Poster session at the National Conference of the Society of Pediatric Psychology, San Antonio, TX. 33. Chlan, K., Vogel, L., & Zebracki, K. (2011, June). The effect of age at injury on outcomes in adults with pediatric-onset spinal cord injury. Poster session at the International Conference of Spinal Cord Medicine and Rehabilitation, Washington, D.C. 34. Hwang, M., Zebracki, K., Chlan, K., & Vogel, L. (2011, September). Substance use in young adults with pediatric-onset spinal cord injury. Poster session at the 2011 Annual Meeting of the Academy of Spinal Cord Injury Professionals, Inc., Las Vegas, NV. 35. Prasad, M., Zebracki, K., Chaviano, A., & Vogel, L. (2011, October). Adults with Pediatric- Onset Spinal Cord Injuries: Associations with Urinary Tract Infection. Poster session at the American Academy of Pediatrics National Conference and Exhibition, Boston, MA. 36. Zebracki, K., DeVivo, M., Chlan, K., Moss, A., & Vogel, L. (2011, October). Cause of death for children and adolescents with a spinal cord disorder. Poster session at the 65 th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Las Vegas, NV. Developmental Medicine and Child Neurology, 53(Suppl 5), Rusnak, E., Mounts, N., Zebracki, K., & Ackman, J. (2012, March). Sibling relationships in adolescents with orthopedic conditions. Poster session at the 2012 Biennial Meeting of the Society for Research on Adolescence, Vancouver, British Columbia. 38. Zebracki, K. & Holmbeck, G. (2012, March). Mothers expectations of developmental milestones in children with spina bifida. Poster session at the Second World Congress on Spina Bifida Research and Care, Las Vegas, NV. 39. Sussman, M., Thomas, S., Buckon, C., Bagley, A., Fowler, E., Staudt, L., Zebracki, K., & McDonald, C. (2012, March). Assessment of behavior and quality of life in boys with Duchenne muscular dystrophy. Poster session at Muscular Dystrophy Association Clinical Conference, Las Vegas, NV. 40. Zebracki, K., Chlan, K., Vogel, L. (2012, April). Employment and earnings in adults with pediatric-onset spinal cord injury. Poster session at the 38 th Annual Scientific Meeting of the American Spinal Injury Association, Denver, CO. Topics in Spinal Cord Rehabilitation, 18(Suppl 1), Zebracki, K., Chlan, K., & Vogel, L. (2012, April). Adult outcomes in childhood-onset spinal cord injury. Poster session at the Pediatric Academic Societies meeting, Boston, MA. 42. Chlan, K., Vogel, L., & Zebracki, K. (2012, August). Medical complications and aging in adults with pediatric-onset spinal cord injury. Poster session at the Paralyzed Veterans of America Summit Expo, Las Vegas, NV. 43. Kelly, E., Russell, H., Garma, S., Klaas, S., Zebracki, K., & Vogel, L. (2012, September). Outcomes of youth with spinal cord injury of long duration. Poster session at the 51 st Annual Scientific Meeting of the International Spinal Cord Society, London, United Kingdom. 44. Rusnak, E., Halas, C., Mounts, N., Zebracki, K., Ackman, J. (2013, April). Severity of limb differences, social difficulties, and adolescents' psychological adjustment. Poster session at 2014 Society for Research in Child Development, Seattle, WA. 45. January, A., Vogel, L., & Zebracki, K. (2013, April). Correlates of mental health outcomes for individuals with childhood-onset spinal cord injury. Poster session at the National Conference in Pediatric Psychology, New Orleans, LA. 46. Chlan, K., Zebracki, K., & Vogel, L. (2013, May). Sexual intimacy in adults with pediatric-onset spinal cord injury. Poster session at the 39 th Annual Scientific Meeting of the American Spinal Injury Association, Chicago, IL. Topics in Spinal Cord Injury Rehabilitation, 19(Suppl 1), 10. a. Chlan, K., Zebracki, K., & Vogel., L. (2013, August). Sexual intimacy in adults with pediatric-onset spinal cord injury. Poster session at the Paralyzed Veterans of America Summit 2013, Orlando, FL. 47. Ward, A., Zebracki, K., & Vogel, L. (2013, August). Exercise, life satisfaction, and depressive symptoms among individuals with spinal cord injury. Poster session at the Paralyzed Veterans of America s Summit 2013 and Expo, Orlando, FL. a. Ward, A., Zebracki, K., & Vogel, L. (2013, October). Exercise, life satisfaction, and depressive symptoms among individuals with pediatric-onset spinal cord injury. Poster

15 Kathy Zebracki (Jefson), Ph.D. Page 15 of 16 session at the 67 th Annual Meeting of the American Academy of Cerebral Palsy and Developmental Medicine, Milwaukee, WI. Developmental Medicine and Child Neurology, 55 (Suppl 3), January, A., Zebracki, K., Chlan, K., & Vogel, L. (2013, September). Violent etiology and associated outcomes in pediatric-onset spinal cord injury. Poster session at the 2013 Annual Meeting of the Academy of Spinal Cord Injury Professionals, Las Vegas, NV. Recipient of Best Student Poster Award. 49. Murray, C., Reed, B., Palermo, T., Mir, S., Psihogios, A., Klages, K., Zebracki, K., & Holmbeck, G. (2013, October). The impact of chronic pain and executive function on depressive symptoms of youth with spina bifida. Poster session at the 9 th International Form on Pediatric Pain, Nova Scotia, CA. 50. Murray, C., Essner, B., Palermo, T., Holbein, C., Mir, S., Zebracki, K., & Holmbeck, G. (2013, October). Chronic pain in children and adolescents with spina bifida. Poster session at the 9 th International Form on Pediatric Pain, Nova Scotia, CA. 51. Holbein, C., Zebracki, K., Chlan, K., & Vogel, L. (2014, March). Romantic relationship involvement and sexual activity in adults with pediatric-onset spinal cord injury. Poster session at Society of Pediatric Psychology Annual Meeting, Philadelphia, PA. 52. January, A., Zebracki, K., & Vogel, L. (2014, March). Sleep problems in young adults with spinal cord injury: A longitudinal study of sleep and associated risk after pediatric-onset spinal cord injury. Poster session at Society of Pediatric Psychology Annual Meeting, Philadelphia, PA. 53. January, A., Zebracki, K., Chlan, K., & Vogel, L. (2014, May). Understanding personal growth and resiliency in response to pediatric-onset spinal cord injury. Poster session at the 40 th Annual Scientific Meeting of the American Spinal Injury Association, San Antonio, TX. 54. Zebracki, K., Hwang, M., Chlan, K., & Vogel, L. (2014, August). Employment over time in adults with pediatric-onset spinal cord injury. Poster session at the Paralyzed Veterans of America s Summit 2014 and Expo, Las Vegas, NV. 55. January, A., Zebracki, K., & Vogel, L. (2014, September). Sleep problems and associated risks in young adults with pediatric-onset spinal cord injury. Poster session at the 68 th International Spinal Cord Society Annual Scientific Meeting, Maastricht, The Netherlands. 56. January, A., Kelly, E., Russell, H., Zebracki, K., & Vogel, L. (2015, March). Patterns of coping among caregivers of children with spinal cord injury: Associations with parent and child wellbeing. Poster Session at the Society for Research in Child Development Biennial Meeting, Philadelphia, PA. Alternative Media: 1. Spirito, A., Stancin, T. & Zebracki, K. (2003, Spring). Empirically Supported Treatment (EST) Bibliography. Retrieved from 2. Zebracki, K. (2006). Operationally Defining Attrition. Retrieved from 3. Zebracki, K. & Vogel, L. (2012). Pediatric Spinal Cord Injury: Evidence-based Fact Sheet. Retrieved from 4. Zebracki, K., Moss, A., Kelly, E., Russell, H., Mulcahey, M.J. & the Pediatric Committee of the American Spinal Injury Association (2012). Parent-child discrepancy on reports of health-related quality of life in youth with spinal cord injury. Retrieved from 5. Nicholls, E., Russell, H., Zebracki, K. & the Pediatric Committee of the American Spinal Injury Association (2013). Best practices for school reintegration of youth with co-occurring SCI and TBI. Retrieved from Contributions to peer-reviewed research publications, editorials, chapters, committee reports, participation cited but not by authorship: 1. National Clinical Guideline Centre (2012). Infection: Prevention and control of healthcareassociated infections in primary and community care (partial update of NICE clinical guideline 2). Clinical guideline: Methods, evidence, and recommendations. Retrieved from

16 Kathy Zebracki (Jefson), Ph.D. Page 16 of Bermingham, S., Hodgkinson, S., Wright, S., Hayter, E., Spinks, J., & Pellowe, C. (2013). Intermittent self catheterisation with hydrophilic, gel reservoir, and non-coated catheters: a systematic review and cost effectiveness analysis. British Medical Journal, 346, e8639. doi: 3. Bickenbach, J., Bodine, C., Brown, D., Burns, A., Campbell, R., Cardenas, D., Xiong, X. (2013). International perspectives on spinal cord injury. Geneva, Switzerland: World Health Organization (WHO) Press. Retrieved from Grant Support: Federal: 09/ /2017 Co-I: The process of adjustment among caregivers of individuals with spinal cord injury: A qualitative study, Department of Defense Spinal Cord Injury Research Program, Qualitative Research Award. 2%, $496,001 Private Foundation (including internal grants): 07/ /2008 PI: Biological, neuropsychological, and social functioning in young adults with spina bifida residing at Anixter Village, The Village Foundation Grant. 25%. 06/ /2008 PI: Providing young adolescents with disabilities, work experience and guidance toward adulthood: A Summer Transition Program, Shriners Hospitals for Children. 10%. 07/ /2011 Co-PI: Long-term outcomes and life satisfaction in adults with childhood onset spinal cord injury, Shriners Hospitals for Children, Chicago. 50%. 01/ /2015 PI: Long-term outcomes and life satisfaction in adults with childhood onset spinal cord injury, Shriners Hospitals for Children, Chicago. 50%. 01/ /2014 Co-I: Relationships between psychosocial factors of youth with spinal cord injury and their caregivers, Shriners Hospitals for Children. 5%. (PI: Kelly). 04/ /2016 Co-I: Caring for caregivers: Supporting caregivers of youth with spinal cord injury, Craig H. Neilsen Foundation. 5% (PI: Kelly). 04/ /2017 PI: Living with SCI: Middle adulthood psychosocial outcomes of pediatric SCI, Craig H. Neilsen Foundation. 10%.

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