Disability and Social Policy in Canada, 2e

Disability and Social Policy in Canada, 2e Mary Ann McColl, Lyn Jongbloed (Eds.) Captus University Publications, ISBN 978-1-55322-128-9 (2006) 482 pages, 660 g, 6 X 9, $54.50 (US$54.50) Concise and accessible, this book is the authoritative, up-to-date resource for academics, researchers, students and professionals engaged in the field of disability and social policy. Disability and Social Policy in Canada, 2e is the most comprehensive source of information on the present state of the disability policy in Canada. This new edition, edited by Dr. Mary Ann McColl and Dr. Lyn Jongbloed, moves beyond existing programs and history and focuses more on issues affecting policy and policy analysis. It analyzes the current state and future prospects of disability policy at the beginning of the 21st century, and attempts to identify directions for development and investment to ensure the best possible policy environment for disabled Canadians. The understanding and perception of disability has changed over the years. Guided by two major questions What does it mean to have a disability? and What is society obliged to do for those who have a disability? the book defines who the disability community is and how they are perceived by policy makers. It examines the current Canadian policy context to identify the issues that are most pressing and strategic for people with disabilities. It also looks at disabled people in the political environment the organizations that represent them and their relative success or failure as political actors. The authors provide an up-to-date presentation of specific policy issues that are of particular interest to people with disabilities: employment and income, health and social services, as well as culture and community services. Furthermore, they highlight the trends that currently dominate disability issues and discuss the obstacles yet to be overcome, the resources that are available and the future directions. In the enormously complex and fragmented area of disability policy, this book clarifies the most complicated questions and raises the awareness of the future of disability policy. Table of Contents top INTRODUCTION SECTION I Disability in Canada 1. Disability Surveys in Canada Adele Furrie 2. Profiling Canadians with Disabilities Adele Furrie 3. Portraits of Disability in National Surveys Mary Ann McColl 4. Policy, Disability, Reciprocity? Tanya Titchkosky SECTION II The Disability Policy Context 5. Canadian Charter v. American ADA: Individual Rights or Collective Responsibilities Jerome E. Bickenbach 6. Obscuring Disability: The Impact of a Universalism/Minority Group Dichotomy on Assessing Equality Ian Joiner

7. A National Strategy for Disability Supports: Where Is the Government of Canada in This Social Project? Michael J. Prince 8. Trends Impacting Disability: National and International Perspectives Marcia H. Rioux and Rita M. Samson SECTION III Advocacy and Consumer Participation 9. Perhaps Not Yet: Policy Making through Citizen Engagement Ian Joiner 10. Who Are We? The Disability Community in Canada Michael J. Prince 11. Social Change Partnerships: Advocates, Business and Government Aileen Wight Felsk and Olga Krassioukova-Enns 12. Policy Shifts and Challenges: Coping Strategies of Disability Organizations Will Boyce, Kari Krogh and Emily Boyce 13. People with Disabilities and Political Participation Deborah Stienstra and April D'ubin 14. Electoral Participation among Disabled People in Canada Mary Ann McColl SECTION IV Specific Policy Issues 15. Disability Income and Employment Policies in Canada: Historical Development Lyn Jongbloed 16. Lean and Mean Times: Employment and Income Support Policies for Persons with Disabilities Emily Boyce, Will Boyce and Kari Krogh 17. Canada Pension Plan Disability Program: Building a Solid Foundation Nancy Lawand and Rita Kloosterman 18. Disability and Social Policy in Canada: A Focus on Inclusion Initiatives Vianne Timmons 19. Structural Determinants of Access to Health Care for People with Disabilities Mary Ann McColl 20. The Emergence of the Self-Managed Attendant Services in Ontario: An Independent Living Model for Canadians Requiring Attendant Services Karen Yoshida, Vic Willi, Ian Parker and David Locker 21. Mental Capacity through a Disability Law Lens Lana Kerzner 22. Exile from the China Shop: Cultural Injunction and Disability Policy Catherine Frazee 23. Making Federally Regulated Transportation Systems Accessible to Persons with Disabilities April D'Aubin DIRECTIONS FOR THE FUTURE REFERENCES AND INDEX The contributors of Disability and Social Policy in Canada, 2e

Jerome E. Bickenbach is a full professor in the Department of Philosophy and Faculties of Law and Medicine at Queen's University, and the holder of a Queen's Research Chair. He is the author or editor of several books, chapters of books and articles on various aspects of disability, focusing on the nature of disability and disability law and policy. He is a content editor of Sage Publications' 5 volume Encyclopedia of Disability. His research interests include disability quality of life, disability epidemiology, universal design and inclusion, modelling disability statistics, the relationship between disability and health, and the policy implications of summary health measures. (bickenba@post.queensu.ca) Emily Boyce is a PhD student in Sociology at Simon Fraser University. Her interests include gender, disability and health, and feminist and poststructuralist theory. Her current research focus is the social construction of able-bodyliness, in terms of its discursive and cultural (re)production over time as a site of symbolic, material and embodied privilege. (Emilyboyce55@yahoo.ca) William Boyce is Professor and Director of the Social Program Evaluation Group (SPEG) at Queen's University. He has a joint appointment to the Faculty of Education and Queen's Centre for Health Services & Policy Research. He conducts applied research and evaluations of programs in education, health, and rehabilitation for youth and disadvantaged groups in Canada and developing countries. He has numerous publications on disability and community-level policy to his name and is lead author on A Seat at the Table: Disabled Canadians' Participation in Policy Making (McGill-Queen's University Press). April D'Aubin works for the Council of Canadians with Disabilities as a research analyst. Catherine Frazee is a writer and educator who draws from her own experience of disablement in entering ethical and cultural dialogues about citizenship and personhood. A Professor of Distinction in Disability Studies at Ryerson University, she has lectured and published extensively on disability rights, disability arts and the disability experience. Her work is informed by many years of involvement in the equality struggles of marginalized groups, most notably during her term as Chief Commissioner of the Ontario Human Rights Commission from 1989 to 1992. Dr. Frazee was awarded an honorary Doctor of Letters from the University of New Brunswick in 2002. (cfrazee@ryerson.ca) Adele Furrie is President of Adele Furrie Consulting Inc., a management consulting company that provides a range of research and analytical services to both government and non-governmental organizations. The foundation for the company is the extensive experience Ms. Furrie garnered from her national work in disability at Statistics Canada and her international work through consultancies. This work has been accomplished through the analysis of statistical surveys and administrative files, the design of survey questions to identify persons with disabilities and the construct of indicators to measure the nature and extent of barriers that prevent or impede their full participation. (adfurrie@magma.ca) Ian Joiner is the Manager, Rehabilitation and Mental Health at the Canadian Institute for Health Information (CIHI) in Ottawa. At CIHI, Ian is responsible for key strategic, operational and analytical activities for three hospital-based reporting systems. He is a Registered Physiotherapist and is currently pursuing his PhD in Rehabilitation Science at Queen's University in Kingston, Ontario. For his PhD studies, his interest lies in assessing access to administrative and policy-making initiatives for people with disabilities and disability-related organizations. (ijoiner@cihi.ca)

Lyn Jongbloed is an associate professor in occupational therapy at the School of Rehabilitation Sciences at the University of British Columbia, Vancouver, Canada. Her research interests focus on the interrelationships between disability and the social, economic and political environments. (lynjon@interchange.ubc.ca) Lana Kerzner is a lawyer with ARCH Disability Law Centre in Toronto, Canada. Since her call to the Ontario bar in 1994, she has represented persons with disabilities and their families while working in private practice and at Advocacy Centre for the Elderly. Currently her work focuses on areas of law including mental capacity, abuse, attendant services, health care, developmental services and telecommunications. Educating the public on disability law is integral to her work. Ms. Kerzner has authored public legal education materials on home care and abuse, and law reform submissions in which she advocates for the autonomy and equality rights of persons with disabilities. (kerznel@lao.on.ca) Rita Kloosterman is Senior Research and Policy Analyst with the Canada Pension Plan Disability Directorate at Human Resources and Social Development Canada. (rita.kloosterman@sdc-dsc.gc.ca) Olga Krassioukova-Enns is Executive Director, Canadian Centre on Disability Studies. She has over 25 years of experience working in health, social and education fields and has particular interest and experience in interdisciplinary methodology, partnership development, disability policy and programs development and evaluation, poverty reduction and promotion of disability studies in Canada and internationally. Kari Krogh is on disability leave from her positions as Assistant Professor in the School of Disability Studies at Ryerson University and Senior Research Fellow with the Canadian Institutes of Health Research. She developed innovative participatory research methodologies; investigated disability-related support and health policies; and acted as temporary advisor to the World Health Organization. She has received numerous academic recognitions, including the Royal Society of Canada's Alice Wilson award. After contracting a tropical virus, Kari developed a sudden on-set severe disability. She is currently engaged in "work without choice", navigating disability support bureaucracies and service systems. (kkrogh@ryerson.ca) Nancy Lawand has spent her career in the federal public service, developing and managing social programs and policy. Since the 1980s she has specialized in disability issues, initially as head of the Status of Disabled Persons Secretariat, then as the Disability Policy Lead for the Social Security Reform initiative, and since 1995, as Director of Policy for CPP Disability at Human Resources and Social Development Canada. (nancy.lawand@sdc-dsc.gc.ca) David Locker is Professor in the Department of Community Dentistry, Faculty of Dentistry, University of Toronto. Mary Ann McColl is Associate Director, Research at the Centre for Health Services & Policy Research, and Professor in the Department of Community Health and Epidemiology as well as in the School of Rehabilitation Therapy at Queen's University. Dr. McColl served as Head of Occupational Therapy at Queen's University from 1992 to 1998. Prior to coming to Queen's, she served as Director of Research at Lyndhurst Spinal Cord Centre in Toronto. Dr. McColl's areas of research interest include: disability, aging, access to primary care,

community integration, spinal cord injury, health policy, spirituality, and qualitative research. (mccollm@post.queensu.ca) Ian Parker is one of the founders of the innovative Self-Managed Attendant Services Direct Funding Program in Ontario. He implemented its successful pilot (1994) and manages the program to the present day. He is also spokesperson for Attendant Consumer Action Coalition. Ian has had a disability and used attendant services for over 30 years. He was a pioneer in the attendant service/housing demonstration projects (1975) and has successfully advocated safeguarding attendant service activities from all medical and other external interference. Ian has lectured on the Independent Living movement at the University of Toronto. He lives in Toronto with his wife and daughter. (cilt@cilt.ca) Michael J. Prince is the Lansdowne Professor of Social Policy in the Faculty of Human and Social Development at the University of Victoria, Victoria, British Columbia. He was a faculty member at Carleton University, from 1978 to 1987, in the School of Public Administration. From 1997 to 2005 he served as Associate Dean and Acting Dean of the Faculty of Human and Social Development. Dr. Prince has been a consultant or advisor to all levels of government and four Royal commissions. His recent books are Changing the Rules: Canadian Regulatory Regimes and Institutions (1999) and Changing Politics of Canadian Social Policy (with James J. Rice, 2000). (mprince@uvic.ca) Marcia H. Rioux holds several positions at York University -- Graduate Programme Director of the M.A. (Critical Disability Studies), Chair and Professor in the School of Health Policy and Management and Director of the York Centre of Health Studies. Her research addresses health equity, universal education, international monitoring of disability rights, the impact of globalization on welfare policy, literacy policy, disability policy, and social inclusion. Dr. Rioux has lectured throughout the Americas, Europe, Africa and India and has been an advisor to a number of federal and provincial commissions, parliamentary committees, international NGOs and United Nations agencies. She is currently writing a book on law and disability and is engaged in a number of international research projects. (mrioux@yorku.ca) Rita Samson is a lawyer with experience litigating and advising on human rights law and policy in both the public and private sectors. She has a Master of Arts degree in Understanding and Securing Human Rights from the University of London. Rita has worked with human rights and development NGOs in the United Kingdom and Canada. Currently, she is Project Coordinator of Disability Rights Promotion International, a collaborative project working to establish comprehensive and sustainable systems to monitor the human rights of people with disabilities worldwide. (ritasamson@hotmail.com) Deborah Stienstra is is Professor and Director of the Interdisciplinary Master's Program in Disability Studies at the University of Manitoba. She is especially interested in disability policy, as well as gender and policy, and leads several large research grants related to information technologies and end of life care for people with disabilities. (stienstr@cc.umanitoba.ca) Vianne Timmons is the Vice President Academic Development at the University of Prince Edward Island. Her research interests include inclusive education, family literacy and knowledge translation. Dr. Timmons has been working with teachers nationally and internationally in the area of inclusive education. (vtimmons@upei.ca)

Tanya Titchkosky is Assistant Professor in the Department of Sociology and Equity Studies at the Ontario Institute for Studies in Education (OISE) of the University of Toronto. Prior to joining OISE, she taught courses in Disability Studies at St. Francis Xavier University. Her research aims to reveal how the meaning of disability is constituted through government documents, news media and everyday talk and interaction. She is author of Disability, Self and Society (2003) and Reading and Writing Disability Differently: The Textured Life of Embodiment, forthcoming from University of Toronto Press. (tanyatitchkosky@oise.utoronto.ca) Aileen Wight-Felske is the Coordinator of Disability Studies, Department of Social Work and Disability Studies at Mount Royal College and an Adjunct Assistant Professor at the Community Rehabilitation and Disability Studies Program, University of Calgary. She has been a board member of various advocacy groups, including the Canadian Association for Community Living, and is currently a board member of the Canadian Centre on Disability Studies. Her research interests are in the areas of disability social policy and community capacity. (awightfelske@mtroyal.ca) Victor R. Willi has been the executive director of the Centre for Independent Living in Toronto (CILT) Inc. for 16 years. Victor's 40-year experience with being a quadriplegic has been invaluable in terms of learning how to live and thrive with a disability in a world of nondisabled persons, giving him a key area of expertise in both research and life experience. Victor is a Registered Social Worker but claims to be in remission now. (cilt@cilt.ca) Karen Yoshida is Associate Professor (Tenured) in the Department of Physical Therapy and the Graduate Department of Rehabilitation Science at the University of Toronto. She is a research member with the Centre for Research in Women's Health at the University of Toronto, and she is co-chair of the Gender and Disability Research Network, part of the National Network on Environments and Women's Health. She has worked in collaborative teaching and research partnerships related to Disability Studies for the past 15 years. Her current research focuses on issues of embodiment related to women living with disabilities and cultural representation(s) of disability. (Karen.yoshida@utoronto.ca)