Curriculum Vitae. March 2014

Curriculum Vitae Anne Margarethe Stiggelbout, PhD Professor of Medical Decision Making Department of Medical Decision Making Leiden University Medical Center March 2014 1 Personal information Titles, Name: Prof.dr. Anne M. Stiggelbout Date of Birth: November 19, 1961 Place of birth: Caringbah (Australia) Nationality: Netherlands Professional address: Department of Medical Decision Making Leiden University Medical Center J10-S PO Box 9600, 2300 RC Leiden Email: A.M.Stiggelbout@LUMC.NL Office phone: 31-71-5264575 secr.: 71-5264574/1529 Homepage: http://www.lumc.nl/con/2050/43311/904090254455212 (Address of preference) Home Address: Pres. Kennedylaan 152 2343 GV Oegstgeest Home phone: +31-71-5170903; + 31-6-23230671 a.m.stiggelbout@hccnet.nl Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 1

2 Education and Training Education 1980-1987 Masters Degree in Human Nutrition, Agricultural University, Wageningen, The Netherlands. Majors: Human Nutrition (supervisor: prof. van Staveren), Epidemiology (supervisors: Dr. Slooff, Prof. Vandenbroucke) 1985-1986 Special Training period: Department of Epidemiology, University of Alabama at Birmingham, USA (supervision Prof.dr. P.Cole). Research assistantship; Courses in the Ph.D. program in Epidemiology. 1995 PhD Leiden University. Thesis: "Trade-offs between quality and length of life. Methodological aspects of outcome valuation in cancer patients." Supervisors: Prof.dr. J.W.H. Leer, Prof.dr. J.C.J.M. de Haes (University of Amsterdam), Prof.dr. J. Kievit Post Graduate Education and Training Scientific Decision making in aging populations: research and challenges (Drs. Diefenbach, Step, and Wu). Annual meeting of the Society for Medical Decision Making 2011 Methods for cluster randomized trials of clinical decision support (Drs. Cebul, Dawson and Love). Short Course (CME) Annual meeting of the Society for Medical Decision Making 2007 Brunswik's lens model and Social Judgement Theory (Dr. T. Stewart et al). Short Course (CME) Annual meeting of the Society for Medical Decision Making 2005 Evaluating change in Health Related Quality of Life Measures. (Dr. K. Wyrwich), ISOQOL, Prague, 2002 Philosophical Ethics. First year class in Philosophy, Leiden University (Dr. A.M. Verbrugge), 2001 Antique Philosophy. First year class in Philosophy, Leiden University (Prof. dr. D. Th. Runia), 2002 Research on quality of care: study designs and applications. Netherlands Institute for Health Sciences/Netherlands School of Primary Care Research, 1997 Bioethical Perspectives and Medical Decision Making. Dr. L. McCullough & Dr. R. McNutt. Short Course (CME) Annual meeting of the Society for Medical Decision Making, 1997 Postgraduate (CME) course "To treat or not to treat?" Boerhaave Leiden, 1995 Advanced issues in regression modelling. F. Harrell. Short Course (CME) Annual meeting of the Society for Medical Decision Making, 1994 Longitudinal Data-analysis. Medical Statistics, Leiden University, 1993 Frontiers of utility theory: past problems and future prospects. Dr. J. Miyamoto, Dr. Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 2

R Gonzalez, Dr. E. Weber. Short Course (CME) Annual meeting of the Society for Medical Decision Making, 1992 Medical Decision Making, introductory course, Leiden University, 1991; Advanced course, Leiden University, 1992 Advanced Statistical Methods in Epidemiology, International Agency for Research on Cancer, 1989 Epidemiology Summer Program 1986, New England Epidemiology Institute o Regression and categorical data methods, S. Lemeshow; o Logistic regression and survival analysis, D. Kleinbaum; o Cancer epidemiology, D. Trichopoulos Teaching, management skills, competences What To Teach in Communication Skills Teaching: Skills and Structure. Prof. Silverman, Cambridge, April 2012 Leiden Leading Professionals Program, LUMC, 2011-2012 Wet- en regelgeving van klinisch wetenschappelijk onderzoek voor senior onderzoekers ( Legislation and regulation, for senior researchers ), Leiden, Boerhaave Commissie 2012 Curriculum Development in Communication Skills Teaching. Prof. Silverman, Cambridge, September 2011 Baak Senior Executive Program (light). Baak, Noordwijk, 2009-2010 Teaching Lectures (Hoorcolleges geven). Leiden, ICLON 2008 Effective Executive Functioning and Management, LUMC, 2007-2008 Training Outcome and Development Interviews, Leiden University, 2007 Training Yearly Performance Interviews for executives, LUMC, 2007 Effective Communication, LUMC, 2006 Work and Time Management, Schouten en Nelissen, 2003 Fast and Effective Reading, Vergouwen&Overduin, 1995 3 Employment History Academic Appointments 1/07-present Professor of Medical Decision Making, Leiden University Medical Center, The Netherlands Deputy Head of the Department of Medical Decision-Making 1/00-1/07 Associate Professor in Medical Decision Making, Leiden University Medical Center, The Netherlands Deputy Head of the Department of Medical Decision-Making 1/98-1/00 Senior Research Associate at the Department of Medical Decision Making, Leiden University Medical Center, The Netherlands 1/95-1/98 Research Associate at the Department of Medical Decision Making, Leiden University Medical Center, The Netherlands Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 3

10/90-12/94 Researcher at the Leiden University Medical Center, Medical Decision Making (utility assessment and health status assessment) 1/89-08/91 Researcher at the Netherlands Cancer Institute 10/87-12/88 Trainee in Epidemiology at the International Agency for Research on Cancer, Lyons, France Spring 1987 Research Assistant at the Spring Term course in Epidemiology of the Dept. of Health Sciences at the Agricultural University Wageningen Professional Society Memberships (all full/regular membership, current only) Society for Medical Decision Making International Society for Quality of Life Research European Association for Decision Making European Association for Communication in Health Gerionne (Stichting Geriatrische Oncologie Nederland) SIOG (International Society of Geriatric Oncology) Working Party Psychosocial Oncology of the Dutch Cancer Society Netherlands Working Party for Health Status Assessment/ ISOQOL-NL Netherlands Society for Technology Assessment in Health Care Netherlands Society for Bioethics Honours and Awards External Examiner PhD-theses: S. Sivell (Cardiff University, Wales, 2013); P. Halvorsen (University of Southern Denmark, Odense, 2008) Fellowship to the 2009 Summer Institute on Informed Patient Choice ("Complexity in Decision Support / Patients' Decision Aids"), Boston, MA, june 2009 Visiting professor at the 2007 Summer Institute for Informed Patient Choice, Dartmouth Hitchcock Medical Center, June 2007 VIDI-award of the Netherlands Organisation for Scientific Research NWO Innovational Research Incentives Scheme, for a program entitled "Health state valuations: bridging the gap between the imagined and the real" 2004 The paper "Cost measurement in economic evaluations of health care: whom to ask?" (authors: Van de Brink M, Van den Hout W, Stiggelbout AM, Van de Velde CJH, Kievit J) in Med Care 2004;42:740-746) has received the MTA-award 2006 of the Netherlands Society for Technology Assessment in Health Care The paper "Correcting biases in standard gamble and time trade-off utilities" (authors: Van Osch SMC, Wakker PP, Van den Hout W, Stiggelbout AM, in Med Decis Making 2004;24:511-517) has received the MTA-award 2005 of the Netherlands Society for Technology Assessment in Health Care The paper Unstable preferences: a shift in valuation or an effect of the elicitation procedure? (authors Jansen SJT, Stiggelbout AM, Wakker PP, Nooij MA, Noordijk EM, Kievit J, in Med Decis Making 2000;20:62-71) has received three awards: Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 4

Best Poster award of the 6ht Annual Conference of the International Society for Quality of Life Research, Barcelona, Spain, 1999 MTA-award 2002 of the Netherlands Society for Technology Assessment in Health Care Publication award for 2002 of the Decision Analysis Society of INFORMS (Institute for Operations Research and the Management Sciences) Jane Beattie Memorial Scholarship for Travel to the US, 1999 (conference grant) Expert Panel on Patient preferences 1998 (consensus project run by Prof.dr. A.M. O Connor, Canada) 4 Clinical Activities and Experience (not applicable) 5 Administrative Activities and Responsibilities Institutional Activities and Responsibilities Chair LUMC Medical Research Profile Innovation in Health Strategy and Quality of Care (2012-) Deputy-chair of the Department of Medical Decision Making, Leiden University Medical Center, The Netherlands (2000-) Member Vaste Commissie voor Wetenschapsbeoefening (VCW) LUMC 2013- Member Committee Graduate School LUMC 2014- Member NFU-Faculty Executive Master Quality and Safety of Patient Care 2012- Member Steering Committee LUMC Strategic Study Research ICT 2013-2014 Member Extended Team Vitality Medical Delta 2012-2013 Member of the Program Committee of the Leiden International Medical Student Conference 2011, 2013, 2015 Member/Chair of Advisory Committees LUMC Chairs (Wenselijkheids- en benoemingscommissies) Chair of the Committee on Information protection and personal data protection, Leiden University Medical Center 2008-2013 Chair of the Academic Women s Network of the Leiden University Medical Center 2007-2011 National and International Activities and Responsibilities National Member Commissie Bevolkingsonderzoek (Population Screening) Gezondheidsraad 2013- Member Working Group Patient Profiles in Diabetes Mellitus Type 2. Netherlands Diabetes Federation 2014- Member Advisory Committee Cancer and the Elderly Dutch Cancer Society 2014- Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 5

Chair of the Working Party Teaching and Training, of the National Platform Shared Decision Making 2012- Member Begeleidingscommissie Kennissynthese ZonMw Wat beweegt de kiezer? Over de betekenis van weloverwogen en geïnformeerde keuzes voor gezondheid en preventie. Prof. Dr. D.R.M. Timmermans 2013 Member Klankbordgroep Wat is Goede Zorg?, Raad voor de Volksgezondheid en Zorg 2012-2013 Member of the Privacy Committee of Dutch Hospital Data 2010-2013 (NFU representative) Vice-chair of the subcommittee Research on Effectiveness and Efficiency, Program Prevention, The Netherlands Organisation for Health Research and Development - Medical Sciences (ZonMw) 2008- Member of the Steering Committee of the Academische Werkplaats Public Health, Northern South-Holland, research network of the LUMC and the municipal health services 2009-2011 Member of the subcommittee Research on Effectiveness and Efficiency, Program Prevention, The Netherlands Organisation for Health Research and Development - Medical Sciences (ZonMw) 2006-2008 Member Advisory Committee of the NWO Mozaïek Program 2006 Scientific Council for Social Oncology of the Dutch Cancer Society 1999-2006 Chair of the National Working Party for Health Status Assessment, 2001-2005 Organising Committee Netherlands Forum for Medical Decision Making 1993-1999 Secretary of the Working Party for Psychosocial Oncology of the Dutch Cancer Society, 1998-2001 Organising Committee Netherlands Working Party in Utility Assessment 1994-1997 International Member National Advisory Committee International PsychoOncology Society World Congress 2013 (2012-2013) President of the Society for Medical Decision Making 2011-2012 Member Oncotyrol Center for Personalized Cancer Medicine Task Force Expert Panel 2012 Member Scientific Committee Society for Medical Decision Making-Europe 2012, 2014 Associate Editor of the journal Medical Decision Making 2005-2011 Executive & Scientific Committee International Shared Decision Making meeting, Maastricht 2011 Program & Scientific Committee International Shared Decision Making meeting, Boston 2009 Advisory board member for the Encyclopedia of Medical Decision Making (Editor MW Kattan, Sage Reference Project, 2008-2009) Vice-president of the Society for Medical Decision Making 2006-2007 Chair Education Committee of the Society for Medical Decision Making 2006-2007 Scientific Review Committee Society for Medical Decision Making-Europe 2006 Scientific Review Committee Society for Medical Decision Making 2006 Student prize jury European Society for Medical Decision-making 2004, 2006 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 6

Nominations Committee of the Society for Medical Decision-making 2004 Scientific Council for Social Oncology of the Dutch Cancer Society 1999-2006 Awards Committee of the Society for Medical Decision-making 2003-2006 Editorial Board of Medical Decision Making 2000-2003 Scientific Review Committee Society for Medical Decision Making 2000-2005 Lee Lusted Student prize jury Society for Medical Decision-making (several years between 1997 and 2005) Scientific Review Committee European Society for Medical Decision Making 2002, 2004 Education Committee of the Society for Medical Decision Making 2000-2003 Member of the Board of Trustees, Society for Medical Decision Making 1998-2001 International Newsletter Editor Society for Medical Decision Making 1997-1998 List holder of the Mailing list for European members of the Society for Medical Decision Making 1998-2001 Manuscript reviewer for: British J Cancer, British J Surgery, Canadian Medical Association J, Eur J Surgical Oncology, Eur J Cancer, Health Economics, Health Economics Letters, Health Expectations, J Behav Med, J Clinical Epidemiology, J General Internal Medicine, J Rheumatology, J Medical Ethics, Medical Decision Making, Nederlands Tijdschrift voor Geneeskunde, The Patient, Patient Education and Counselling, Pediatrics, Pharmacoeconomics, Psychology and Health, PsychoOncology, Quality of Life Research, Social Science and Medicine Grant reviewer for: Arthritis Research Campain (UK), Breast Cancer Research Campaign (UK), Cancer Research Campaign (UK), Dutch Cancer Society (Psychosocial Oncology), Dutch Health Council, Dutch Arthritis Association, Foundation for Informed Medical Decision Making (US), Netherlands Organization for Scientific Research NWO- ZONMW (Programmes Efficiency in Health Care, Prevention, and Innovational Research Incentives Scheme), NHS R&D National Coordinating Centre for Health Technology Assessment (UK), Wellcome Trust (UK) 6 Teaching Activities and Responsibilities Undergraduate level Development and teaching of the Minor Patient-empowerment: Shared Decision Making and Self-management. Curriculum Medicine LUMC 2013- Medical Decision Making and Patient Preferences. Honors Class Medicine and Biomedical Sciences Leiden University, January 2014 Development, organisation and teaching of the Module Shared decision making and risk communication. Curriculum Medicine LUMC, 2000-present (3-week full-time elective course (Keuzeblok), 2 nd year, 16-20 students) Development and teaching of lectures on quality of life assessment and valuation, and on questionnaire development; in the Course Scientific skills (Practische Onderzoeks Vaardigheden). Curriculum Medicine LUMC, 2006-present (4 th year, 3 hours Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 7

lectures) Development, organisation and teaching of the Module Quality of Life: description and valuation. Curriculum Medicine LUMC, 2001-2010, 2014 (1 day elective course (Keuzethema), 4 th year, 20 students) Development, organisation and teaching of the Module Questionnaire Research. Curriculum Medicine LUMC, 2011-present, (1 day elective course (Keuzethema), 4 th year, 20 students) Graduate level Development, organisation and teaching of the Module Decision-making: evidencebased medicine in practice. Curriculum Medicine LUMC, 2002-present (1/2 day, preinternship ALCO, 12 students) Shared Decision Making and End-of-Life Care. Morning in course Multimorbidity, Master Vitality and Ageing 2013-2014, Leiden Academy on Vitality and Ageing (with dr. N. Kerse, Auckland), February 2014 Shared Decision Making. Lecture in Executive Master in Vitality and Ageing 2013-2014, Leiden Academy on Vitality and Ageing, February 2014 Development, organisation and teaching of the Module Doctor-patient communication and decision-making. Curriculum Medicine LUMC, 2005-present (1/2 day, internship Centrale Onderwijs Momenten - 12-16 students) Judgment and decision making in medicine. Heuristics and biases. 1-hour lecture Research Master Course Cognitive Psychology, Leiden University, 2011 - present Quality of life in Medicine. 2-hour Course Master Behaviour and Health, University of Amsterdam, November 2010 (40 students) Session Clinical Outcomes and Quality of Life ; in From clinical problem to successful grant application Master-+ course Leiden University Medical Center 2009-present Post-graduate level/cme Faculty Shared Decision Making and End-of-Life Care. Leiden Academy on Vitality and Ageing, Master Vitality and Ageing 2013-2014, February 2014 Member NFU-Faculty Executive Master Quality and Safety of Patient Care 2012- The LUMC is responsible for the Module Patient-centered medicine and patientcentered health care improvement, in this 1-year executive Master Program. Member Introduction to shared decision making and decision aids. ½ day Short Course European Association for Communication in Health. St Andrews, September 2012 Introduction to shared decision making and decision aids. ½ day Short Course Society for Medical Decision Making European meeting, Oslo June 2012 (CME) The Psychology of Decision Making: risk perception, constructing preferences and making up your mind. ½ day workshop International Shared Decision Making Conference, Maastricht, June 2011 Shared Decision Making. 2-hour lecture and debate in Executive Program Leiden Academy on Vitality and Ageing. Leiden, LAVA, February 2013 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 8

Omgaan met kansen: risicocommunicatie en besluitvorming 1-hour lecture in: Regionale counselingscursussen voor prenatale screening in Regio noord Zuid Holland ( Dealing with risks: risk communication and decision making Regional courses in counseling for prenatal screening in Nothern Zuid-Holland). Leiden, Boerhaave Commissie, 2010 - present De patiënt helpen kiezen. ( Helping the patient decide. ) 1-hour Lecture in Continuing Medical Education Oncology for General Practitioners, Leiden, Boerhaave Commissie 2011 Shared decision making: the role of patient preferences in clinical decision making. 1-hour lecture in Coeur Research Seminar, Erasmus Medical Center Rotterdam, May 2010 Risicocommunicatie en gezamenlijke besluitvorming ( Risk communication and Shared Decision Making ). 1-hour Capitum Selectum in the European Postgraduate Gastro-Surgical- school: New Developments in Endoscopy. Amsterdam, Academic Medical Center, April 2009 Ouderen en medische beslissingen: andere rollen en voorkeuren dan jongeren? ( The elderly and medical decisions: different roles and preferences than younger patients? ). 1-hour Capitum Selectum in the Boerhaave course in Continuing Medical Education, Leiden, September 2008 Voorkeuren van patiënten voor behandelingen en uitkomsten van behandelingen: een rol in besluitvorming en therapie-evaluatie? (Patient preferences for treatments and outcomes of treatments: a role in decision-making and therapy evaluation?). 1- hour lecture in EMGO Seminar Series, april 2008 The role of patient preferences in decision making. 1-hour lecture in Seminar Department of Public Health, Erasmus Medical Center Rotterdam, February 2007 7 Research Main Research Themes My research focuses on two major themes. The first concerns individual patient decision making, broadly speaking the role of the patient and of his/her preferences in medical decision making. This research involves doctor-patient communication, with emphasis on risk communication, as a constituent of shared decision making. My research is both methods-focuses and implementation-focused. Further, normative and ethical aspects of medical decision making are topic of this line of research. The second theme concerns the incorporation of quality of life and preferences in meso- and macro-level decision making. This theme concerns mostly research on methods to assess quality of life and health state preferences/utilities, e.g. in cost-effectiveness analysis and health technology assessment. All of the above, as well as clinimetrics are a major part of the consultations I do for clinical departments of the LUMC. Theses (promoties) Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 9

Promotor S. Hofstede (Orthopedic Surgery: Decision-making in elective orthopedic surgery), expected early 2016; E. Engelhardt (Medical Decision Making: Risk communication using breast cancer prediction models), expected Fall 2015; M. Kunneman (Medical Decision Making: Patient preferences in radiotherapy decisionmaking), expected Spring 2015; V. Hamelinck (Surgery: Treatment preferences of elderly breast cancer patients), expected Spring 2015; S. Rodenburg (Psychiatry: Shared decision-making in anxiety and depression), expected Spring 2015; I. Groenenberg (Public Health and Primary Care: The role of health checks in vulnerable poplulations), expected Spring 2014; M. Garvelink (Gynecology: Breast cancer patients decision-making regarding fertility preservation ), expected Spring 2014; M. Snijders (Surgery: Decision-making around colorectal surgery), expected Fall 2013 J. Vos (Clinical Genetics: Opening the psychological black box in genetic counseling ), May 2011; Y. Peeters (Medical Decision Making: Mind the gap: Explanations for the differences in utilities between respondent groups ), May 2011; J. van Til (University Twente: ; Integration of preferences in decision making - the treatment of ankle-foot impairment in stroke ), May 2009; S.M.C. van Osch (Medical Decision Making: The construction of health state utilities ), September 2007. Co-promotor: A.C. Molewijk (Medical Decision Making: Individualized evidence-based decision support and the ideal of patient autonomy in acutal medical decision making ), January 2006; M. van den Brink (Medical Decision Making: Economic evaluation of preoperative radiotherapy in rectal cancer ), June 2005; M. Visser (Neurology: The disablement process in Parkinson's disease ), November 2005; J. Marinus (Neurology: Clinimetrics in Parkinson's Disease ), June 2003; S.J.T. Jansen (Medical Decision Making: The impact of experience ), September 2001. Manuscript review committee: A. Schouffour (Rheumatology, Leiden University 2014) S. Sivell (Primary Care, Cardiff University, UK 2013) E. Fenema (Psychiatry, Leiden University 2013) A. El Barzouhi (Neurosurgery, Leiden University 2013) C. van der Hurk (Clinical Oncology, Leiden University 2013) A. Knops (Vascular Surgery, University of Amsterdam 2013) D. Twijnstra (Gynecology, Leiden University 2013) Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 10

E. Hiemstra (Gynecology, Leiden University 2012) C. So-Osman (ImmunoHematology and Bloodtransfusion, Leiden University 2012) D. Bijlenga (Public Health, University of Amsterdam 2010) M. Koelewijn-van Loon (Primary Care, Maastricht University 2010) E. Taminiau-Bloem (Medical Psychology, University of Amsterdam 2010) E. Boormans (Gynecology, Leiden University 2010) M. Kimman (Health Economics, Maastricht University 2010) S. Keus (Neurology, Leiden University 2010) W.M.C. Klop (Otorhinolaryngology, Leiden University 2009) H. van Dongen (Gynecology, Leiden University 2009) D. Verbaan (Neurology, Leiden University 2009) SM van der Kooij (Rheumatology, Leiden University 2009) M.S. Vos (Medical Psychology, University of Amsterdam 2009) P. Voorham-v.d. Zalm (Urology, Leiden University 2008) P. Halvorsen (Health Economics, University of Southern Denmark Odense, 2008) W. Peul (Neurosurgery, Leiden University 2008) M. de Vries (Social Psychology, Nijmegen University 2008) A.J. Mol (Psychiatry, Leiden University 2007) A. Attema (ibmg, Erasmus University Rotterdam 2007) Local, National and International Research Collaborations Local: Medical Decision Making: I collaborate on grants of drs. Bodegom-Vos, Marang-van de Mheen, Pieterse, Van Den Akker -Van Marle, and Van Den Hout regarding the research themes of my chair. LUMC (other): I currently collaborate with many clinical departments regarding the research themes of my chair (Clinical Oncology, Gynecology, (ImmunoHematology and Bloodtransfusion, Neurosurgery, Obstetrics, Orthopedic Surgery, Otorhinolaryngology, Psychiatry, Public Health and Primary Care, Rehabilitation Medicine, Surgery). I am consultant to many other departments. Department of Psychology UL: collaboration in social psychology experiments with drs. Noordewier and van Putten. National: CaRe Research School (Maastricht, Nijmegen, VUMc, NIVEL): resubmission of Zwaartekracht -grant entitled: SHARED CaRe. Improving health care by combining personalised medicine with patient-centred care. (Prof. dr. O. van Schaijk, Maastricht); MUMC collaboration on grants of prof. T. Van der Weijden (Primary Care), prof. R. Kruitwagen (Gynecology) and prof. C. Dirksen (Medical Technology Assessment); Department of Medical Psychology AMC Amsterdam (Prof. dr. J.C.J.M. de Haes and dr. E. Smets). Various grants of Dutch Cancer Society and Alpes dhuzes; Consortium Making Better Decisions Together (national collaboration on the development and implementation of Decision Aids in Oncology; Alpes dhuzes); Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 11

Collaborator on PhD-research of prof. dr. A.V. Ranchor, University Medical Center Groningen (research institute SHARE), regarding utility assessment (building on my VIDI-research); Collaborations with Erasmus Medical Center Rotterdam on: 1) VIDI-grant application and MSc research of Prof. dr. J.J.M. Takkenberg (cardiothoracic surgery); 2) fellowhip of dr. I. Korfage (Public Health); CZ-funded national project JIPPA, on the implementation of patient decision aids in prostate cancer (Tilburg University, VUMc, Radboud University); UPPER (Dept of Pharmacology Utrecht University, prof. M. Bouvy) on a shared ZonMw grant on patient preferences and experiences with medications (completed January 2013) International: Prof. dr. D. Alden (University of Hawaii) and Prof.dr. M. Schapira (Penn University): cultural aspects of patient decision aids (workshops, paper submitted) Oncotyrol Taskforce on personalized medicine (partner in international research consortium funded by Austrian Government and Pharma; Chair: prof.dr. U. Siebert, UMIT, Hall, Austria) 2012- IPDAS: International Patient Decision Aids Standardization, an international expert collaboration. Part of writing group of the updated background document (2011-2012) Dr. H.L. Bekker (Leeds University UK): collaborator on grant of the Foundation for Informed Medical Decision Making Grant Support Grants (Principle Investigator/Applicant) current On-going Pieterse AH, Stiggelbout AM, Van der Weijden T. Developing and validating measures for Shared Decision Making in Oncology (Dutch Cancer Society UL 2013-6108) 477.000 Liefers GJ, Stiggelbout AM, Van de Velde CJH. Elderly patients preferences for early stage breast cancer treatment. (Pink Ribbon; WO2012-6 (2012-2014)) - 149.500 Liefers GJ, Stiggelbout AM, Van de Velde CJH. Climb every mountain - physical exercise in elderly breast cancer survivors. (Alpes d Huzes/Dutch Cancer Society; UL 2011-5263 (2012-2014) - 470.000 Stiggelbout AM, Van den Hout WB. Development and validation of a functioning scale for Cervical Radicular Syndrome (ZonMW 80-82310-97-12200 (2012-2014)) - 72.000 Stiggelbout AM, De Haes JCJM, Nortier JWR. Communicating risk from prediction models in the clinical encounter (Dutch Cancer Society UL-2010-4805 (2011-2015)) - 550.000 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 12

Peeters Y, Stiggelbout AM, Van den Hout WB. Web-based time trade-off incorporating interviewer help: efficiency with validity. (ZonMw 80-82500-98-10211 (2011-2013)) - 125.000 Ter Kuile, Stiggelbout, Kenter. Sexual complaints in female cancer survivors: Is there a need for treatment? (Alpes d Huzes/Dutch Cancer Society; UL 2010-4716 (2011-2015)) - 200.000 Pieterse AH, Stiggelbout AM, Marijnen CAM. Tailored patient values elicitation task for rectal cancer treatment decision-making ((Dutch Cancer Society UL-2009-4431; 2010-2014) - 450.000 Hilders CGJM (Nortier JWM, Stiggelbout AM, Ter Kuile MM). A decision aid for fertility preservation for young women with breast cancer: a randomized multi-center controlled trial (DSW Healthcare / Pink Ribbon; 2009-2013) - 200.000 Stiggelbout AM, Assendelft WJJ, Maes S. Health checks in vulnerable groups: the role of beliefs and expectations. (Collaborating Dutch Health Funds Program Lekker Lang Leven 2009-2012) - 280.000 Grants (Principle Investigator/Applicant) completed Bekker HL. Identifying components of decision aid interventions that enable informed decision making about dialysis modality. (Foundation for Informed Medical Decision Making (US) 2011-2012) - 98.000 Hilders, ter Kuile, Stiggelbout, Louwe (LUMC), van Dulmen, van den Berg, Overbeek (VUMC). Knowledge, attitudes and practices regarding fertility preservation in young females with cancer. (DSW Healthcare 2011) - 24.000 HL Bekker, AM Stiggelbout. Grant-in-aid for the workshop The use of Quality of Life as a decision aid in doctor-patient decision making in oncology (British Council - NWO Partnership Programme in Science 2006) - 2660 Van Hilten JJ, Stiggelbout AM. SCOPA-PROPARK (Leiden University Medical Center Grant) - 90.000 Van Hilten JJ, Stiggelbout AM. Clinical expression profiling of patients with Parkinson s disease. (Prinses Beatrix Fonds MAR05-0120; 2005-2009) - 250.000,- Van Hilten JJ. Quality of life in Parkinson's Disease. (Foundation Nuts-Ohra 2005-2006) - 63.000 Stiggelbout AM, Marijnen CAM, Van de Velde CJH. Decision making in rectal cancer: the costs and benefits of preoperative radiotherapy (Dutch Cancer Society UL 2005-3213; 2005-2007) 323.000 Marijnen CAM, Stiggelbout AM, Van de Velde CJH. A decision tool to help patients to determine their preference for the type of surgery in rectal cancer: permanent stoma or low anterior resection (MLDS-Dutch Gastrointestinal Disease Society SWO 04-06; 2005-2006) - 78.000 Stiggelbout AM. The consequences of (treatment for) rectal cancer for quality of life and societal participation (MLDS-Dutch Gastrointestinal Disease Society SWO 02-15; 2002-2003) - 60.000 Stiggelbout AM. Medical Information on the Internet: normativity of medical information and the transformation of the clinical consultation. (Netherlands Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 13

Organization for Scientific Research NWO - Ethics and Policy 210-11-214; 2002-2003) - 70.000 Stiggelbout AM. The construction of health state utilities. (Netherlands Organization for Scientific Research NWO 904-66-089; 2000-2004) - 120.000 Kievit J, Stiggelbout AM, Otten W. Evidence-based decision support for surgeon and patient: the effect of individualized risk-information on decision-making in abdominal aneurysms. VAZ Efficiency Program 2001-2003 - 64.000 Stiggelbout AM, Otten W, Van de Velde CJH. Adjuvant chemotherapy for rectal cancer: patients considerations and preferences (Dutch Cancer Society; RUL 2000-2334) - 280.000 Van Hilten JJ, Stiggelbout AM. The assessment of the disablement process in Parkinson s Disease (Netherlands Organization for Scientific Research NWO - Chronic Diseases - Neurological and Psychiatric Disorders; 940-33-024; 1999-2004) - 460.000 Kievit J. Decision making in life-threatening disease: the meaning of information for the patient s autonomy (Netherlands Organization for Scientific Research NWO - Ethics and Policy; 210.10.3; 1996-2000) - 124.000 Stiggelbout AM, Kievit J, Nooy MA. Stability of patient preferences: do utilities for breast cancer treatment change as a result of experience with the treatment? (Dutch Cancer Society; RUL 95-734; 1996-2000) - 215.000 Grants (collaborator/consultant) current De Vries M. et al. De patiënt centraal bij de behandelkeuze voor prostaatkanker. CZ Fonds 2013-2014 100.000 Bodegom-Vos L. Designing a strategy to implement shared decision making regarding prolonged conservative or surgical treatment for patients with lumbosacral radicular syndrome (LRS). (ZonMw 80-82315-97-12006 2012-2013) - 140.000 Dirksen CD, et al. Integrating evidence on patient preferences in health care policy decisions: are we up for it? (ZonMw 80-82500-98-11233 2012-2013) - 125.000 Vleggeert-Lankamp CLAM, et al. Effectiveness of surgery versus prolonged conservative care in patients suffering from a herniated cervical disc: a prospective randomized controlled trial (ZonMw 80-82310-97-12071 2012-2016) - 500.000 De Vries M, Van den Akker-van Marle ME, et al. Measuring the effects of health interventions on subjective well-being comprehensively: The development and validation of the SWB-xD (ZonMw 80-82500-98-9261 2011-2012) - 125.000 Van den Akker-van Marle ME et al. Development and validation of a delivery outcome measure (ZonMw 80-82310-97-11205 2010-2011) - 125.000 Van den Akker-van Marle ME et al. Further exploration of the appropriateness of the well-being valuation method for monetary valuation of informal care: what is measured? (ZonMw 80-82500-98-8203 2010-2011) - 125.000 Grants (collaborator/consultant) completed Van den Akker-van Marle ME, et al. Societal preferences for basic health insurance in the Netherlands. (ZonMw 80-82500-98-9204 2010-2011) - 125.000 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 14

Van den Hout WB et al. The marginal utility of health: direct and indirect valuation of EQ5D differences. (ZonMw 80-82500-98-8204 2010-2011) - 125.000 Marang-van de Mheen PJ. Lange termijn gevolgen van levende nierdonatie voor donor en ontvanger: effecten op kwaliteit van leven, gezondheid, maatschappelijke participatie en de donor-ontvanger relatie (Nierstichting Nederland 2009-2011) - 165.000 Van de Velde, Kievit, Hille. Feasibility of tailored follow-up for patients with breast cancer: a pilot-implementation (KWF: UL 2008-4192; 2009-2010, co-applicant) - 180.000 Van der Weijden et al. Facilitating patient involvement in decision making based on clinical practice guidelines. How to integrate individual patient preferences in clinical practice guidelines? (ZonMw 80-82000-98-512 2009-2010) - 170.000 Col NF. Incorporating Temporary Health States into Decision Support: Women s Interactive System for Decisions on Menopause a Practical Approach to Temporary Health States (WISDOM + PATHS) (Agency for Health Care Research and Quality 2 R01 HS013329-04A1 2005-2008) consultant Kievit J. Assessing costs in cost-effectiveness studies: how should we measure volumes of care utilization and whom should we ask? A comparison of different measurement methods. (Netherlands Organization for Scientific Research NWO, Programme Efficiency in Health Care- Top down 945-10-036, 2001-2002) 60.000 8 Invited Lectures Local Shared Decision Making. Symposium Nephrogeriatric Care. LUMC, February 2014. Shared Decision Making. Lecture Regional meeting Care for the Elderly, Leiden, May 2013 Beroepshalve beslissen onder onzekerheid: Grote kans op slechte keuzes? ( Professional decision-making under uncertainty: large chances of poor choices? ). Panel discussion Studium Generale Leiden University, October 2010 Beslissen en beoordelen in de Geneeskunde ( Decision-making and judgment in medicine ). Lecture Studium Generale Leiden University, October 2010 Medische Besliskunde: het meten van kwaliteit van leven en patiënt preferenties ( Medical Decision Making: the measurement of quality of life and patient preferences ). Seminar Ophtalmology, Leiden University Medical Center, January 2010 Medische Besliskunde: het meten van kwaliteit van leven en patiënt preferenties ( Medical Decision Making: the measurement of quality of life and patient preferences ). Grand Rounds Pediatrics, Leiden University Medical Center, August 2009 De glazen plafond dames: hoognodig? Lecture at the farewell symposium of Prof. dr. G. Kenter, vice-chair of the LUMC Academic Women s Network Vitaal Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 15

Willens en wetens: laten we de patiënt beslissen? ( Knowingly and willfully: do we let the patient decide? ). Lecture at the farewell symposium of prof. dr. E. Noordijk, Chairman of the Department of Radiation Oncology, LUMC, June 2009 Ouderen en medische beslissingen: andere rollen en voorkeuren dan jongeren? ( The elderly and medical decisions: different roles and preferences than younger patients? ). Capitum Selectum in Boerhaave Continuing Medical Education, Leiden, September 2008 "Kwaliteit van leven meting in de urologie: meten is weten" ( Quality of life measurement in urology: to measure is to know ). Lecture at the Regional Urology Seminar series, LUMC October 2006 National Shared Decision Making. Lecture CME in Otolaryngology, Garderen, 2014. Preferrences? What preferences?. Lecture Netherlands Cobradagen 2014 (Bi-annual gynaecological surgery conference). Noordwijkerhout, April 2014 The patient as partner in Care. Plenary lecture 20 th Conference of the Netherlands Society for Psychosocial Oncology. Utrecht, March 2104. Shared Decision Making. Lecture and debate Regional CME meeting in Obstetrics. Utrecht University Medical Center, January 2013 Betere kwaliteit voor gezamenlijke besluitvorming? ( Better quality through Shared Decision Making? ). Lecture 3 rd Conference IQ Health Care Nijmegen, September 2012 Gezamenlijke Besluitvorming en Keuzehulpen. ( Shared Decision Making and Decision Aids ). ZonMw Prioritization Meeting Prostate Cancer Screening. The Hague, May 2012. The Salzburg Statement: Maastricht Manifest. Lecture at the Startup Symposium of the Netherlands Platform for Shared Decision Making, Maastricht, June 2011 Besluit tot operatie: wat wil de patient? ( Decision to operate: what does the patient want? ). Symposium Aneurysms of the Abdominal Aorta, Leiden, Boerhaave Commissie September 2009 Patient preferences and treatment decision-making: the role of anticipated and actual adaptation. Symposium Inspiring talks on adaptation to disease, on the occasion of the Inaugural Lecture of Prof. A. Ranchor, Groningen University, June 2008 De rol van de patient in de besluitvorming ( The role of the patient in decisionmaking ). Lecture at the Care Forum of the Netherlands Health Care Insurance Board (CVZ). Diemen, June 2008 International Shared Decision Making. Plenary Lecture European Association for Communication in Health. Amsterdam, September 2014 Introduction to shared decision making and patient decision aids. Professional Updates Saw Swee Hock School of Public Health, Singapore, January 2014 Shared Decision Making. Lecture 19e Nederlands/Vlaams Doelencongres Infertiliteit, Gynaecologie en Obstetrie. Rotterdam, April 2013 Shared decision making and risk communication: Concepts and Theories. Lecture Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 16

Salzburg Global Seminar, Salzburg, December 2010 Medical decision-making and preference assessment. Lecture at the Center for Outcomes Research and Evaluation, Maine Medical Center, Portland, ME, July 2008 Medical decision-making: a description of the field with an emphasis on utility assessment. Lecture at Maine Medical Center, Portland, ME, July 2008 Medical decision-making: a description of the field with an emphasis on utility assessment. Seminar Decision Sciences Group at Brown University, Rhode Island, October 2006 Session chair and workshop chair (invited): Introduction to Shared Decision Making Communications and Decision Support Technologies in Diverse Cultural Environments. Short Course Society for Medical Decision Making Asia-Pacific Meeting, Singapore, January 2014 Chair Plenary Session Developing and Implementing Effective Models of Patient Centered Care in the Culturaly Divese and/or Resource Challenged Environments of the Asia-Pacific Region. Society for Medical Decision Making Asia-Pacific Meeting, Singapore, January 2014 Patient als partner, voor betere kwaliteit. ( Patient as partner, for higher quality ). Panel-member Parallel session 3rd Conference IQ-Healthcare, Nijmegen, September 2012 Shared Decision Making: de professional van Bestuurder tot Bijrijder? ( Shared Decision Making: the professional from the driver s to the passenger s seat? ) Panellid Parallelsessie Zorgmarkt Jaarcongres, Papendal Juni 2012 Values, preference elicitation and utility assessment, Society for Medical Decision Making, Chicago 2011 Progress and Prospects in SDM, Opening Plenary Session, International Shared Decision Making Meeting, Maastricht 2011 Risk Communication, Society for Medical Decision Making, Toronto 2010 Shared Decision Making in Primary Care, International Shared Decision Making Meeting, Boston 2009 Informed decision making interventions: a focus on values clarification methods. Symposium at the International Conference on Communication in Health Care (EACH), Oslo, September 2008 How to shape patient informed decision making: theory, ethics, implementation, and evaluation. Roundtable Conference Psychology and Health, Lunteren, May 2008 Shared Decision-Making: SMDM-Europe, Birmingham 2006 9 List of Publications Peer-reviewed journal articles (by year) Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 17

Alden D, Friend J, Shapira M, Stiggelbout AM. Cultural Targeting and Tailoring of Shared Decision Making Technology: A Theoretical Framework for Improving the Effectiveness of Patient Decision Aids in Culturally Diverse Groups. Soc Sci Med. 2014;105C:1-8 Edelaar-Peeters Y, Stiggelbout AM, Van Den Hout WB. Qualitative and Quantitative Analysis of Interviewer Help Answering the Time Tradeoff. Med Decis Making. 2014 Mar 25. [Epub ahead of print] Engelhardt EG, Garvelink MM, de Haes JH, van der Hoeven JJ, Smets EM, Pieterse AH, Stiggelbout AM. Predicting and communicating the risk of recurrence and death in women with early-stage breast cancer: a systematic review of risk prediction models. J Clin Oncol. 2014;32:238-50 Gärtner FR, Freeman LM, Rijnders ME, Middeldorp JM, Bloemenkamp KWM, Stiggelbout AM, Van den Akker-van Marle ME. A comprehensive representation of the birth-experience: identification and prioritization of birth-specific domains based on a mixed-method design. BMC Pregnancy and Childbirth 2014, 14:147 doi:10.1186/1471-2393-14-147 Snijders HS, Kunneman M, Bonsing BA, de Vries AC, Tollenaar RA, Pieterse AH, Stiggelbout AM. Preoperative risk information and patient involvement in surgical treatment for rectal and sigmoid cancer. Colorectal Dis. 2014;16:O43-9 Wouters H, Van Dijk L, Van Geffen EC, Gardarsdottir H, Stiggelbout AM, Bouvy ML. Primarycare patients' trade-off preferences with regard to antidepressants. Psychol Med. 2014 Jan 7:1-8. [Epub ahead of print] Wouters H, Bouvy ML, Van Geffen EC, Gardarsdottir H, Stiggelbout AM, Van Dijk L. Antidepressants in primary care: patients' experiences, perceptions, self-efficacy beliefs, and nonadherence. Patient Prefer Adherence. 2014; 8:179-90 Blikkendaal MD, Twijnstra AR, Stiggelbout AM, Beerlage HP, Bemelman WA, Jansen FW. Achieving consensus on the definition of conversion to laparotomy: a Delphi study among general surgeons, gynecologists, and urologists. Surg Endosc. 2013;27:4631-9 Brand PL, Stiggelbout AM. Effective follow-up consultations: the importance of patient-centered communication and shared decision making. Paediatr Respir Rev. 2013; 14:224-8 De Groot IB, Veen JI, van der Boog PJ, van Dijk S, Stiggelbout AM, Marang-van de Mheen PJ; The PARTNER-study group. Difference in quality of life, fatigue and societal participation between living and deceased donor kidney transplant recipients. Clin Transplant 2013;27: E415-23 Dirksen CD, Utens CM, Joore MA, van Barneveld TA, Boer B, Dreesens DH, van Laarhoven H, Smit C, Stiggelbout AM, van der Weijden T. Integrating evidence on patient preferences in gealthcare policy decisions: protocol of the patient-vip study. Implement Sci. 2013 Jun 10;8:64 Edelaar-Peeters Y, Stiggelbout AM. Anticipated adaptation or scale recalibration? Health Qual Life Outcomes. 2013;11:171 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 18

Fagerlin A, Pignone M, Abhyankar P, Col NC, Feldman-Stewart D, Gavaruzzi T, Kryworuchko J, Levin C, Pieterse AH, Reyna V, Stiggelbout AM, Scherer L, Wills C. Clarifying and Expressing Values: An updated review. BMC Med Inf Decis Making 2013 (accepted) Garvelink MM, Ter Kuile MM, Bakker RM, Geense WJ, Jenninga E, Louwé LA, Hilders CG, Stiggelbout AM. Women's experiences with information provision and deciding about fertility preservation in the Netherlands: 'satisfaction in general, but unmet needs'. Health Expect. 2013 May 5. doi: 10.1111/hex.12068. [Epub ahead of print] Garvelink MM, Ter Kuile MM, Fischer MJ, Louwé LA, Hilders CG, Kroep JR, Stiggelbout AM. Development of a Decision Aid about fertility preservation for women with breast cancer in the Netherlands. J Psychosom Obstet Gynaecol. 2013;34:170-8 Garvelink MM, Ter Kuile MM, Hilders CG, Stiggelbout AM, Louwé LA. Fertiliteitspreservatie voor chemotherapie [Fertility preservation before chemotherapy]. Ned Tijdschr Oncol 2013; 10: 97-104 Hiemstra E, Schreuder HWR, Stiggelbout AM, Jansen FW. Grading surgical skills curricula and training facilities for minimally invasive surgery. Gynecol Surg 2013; 10:63-9 Hofstede SN, Marang-van de Mheen PJ, Wentink MM, Stiggelbout AM, Vleggeert-Lankamp CL, Vliet Vlieland TP, van Bodegom-Vos L; DISC study group. Barriers and facilitators to implement shared decision making in multidisciplinary sciatica care: a qualitative study. Implement Sci. 2013;8:95. doi: 10.1186/1748-5908-8-95. Louwé LA, Ter Kuile MM, Hilders CGJM, Jenninga E ( ),Tiemessen SM, Peters AAW, Nortier JWR, Stiggelbout AM. Oncologists practice and attitudes regarding fertility preservation in female cancer patients: a pilot study in the Netherlands (accepted) Pieterse AH, de Vries M, Kunneman M, Stiggelbout AM, Feldman-Stewart D. Theory-informed design of values clarification methods: a cognitive psychological perspective on patient healthrelated decision making. Soc Sci Med. 2013 Jan;77:156-63 Politi MC, Dizon DS, Frosch DL, Kuzemchak MD, Stiggelbout AM. Importance of clarifying patients' desired role in shared decision making to match their level of engagement with their preferences. BMJ. 2013;347:f7066. doi: 10.1136/bmj.f7066. Snijders HS, Kunneman M, Bonsing BA, de Vries AC, Tollenaar RA, Pieterse AH, Stiggelbout AM. Preoperative risk information and patient involvement in surgical treatment for rectal and sigmoid cancer. Colorectal Dis. 2013 Nov 5. doi: 10.1111/codi.12481 So-Osman C, Nelissen R, Brand R, Faber F, Te Slaa R, Stiggelbout AM, Brand A.. The impact of a restrictive transfusion trigger on post-operative complication rate and well-being following elective orthopedic surgery: a post-hoc analysis of a randomized study. Blood Transfus. 2013; 11: 289-95 Van der Weijden T, Pieterse AH, Koelewijn-van Loon MS, Knaapen L, Légaré F, Boivin A, Burgers JS, Stiggelbout AM, Faber M, Elwyn G. How can clinical practice guidelines be adapted to facilitate shared decision making? A qualitative key-informant study. BMJ Qual Saf. 2013; 22: 855-63 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 19

Vos J, Menko FH, Oosterwijk JC, van Asperen CJ, Stiggelbout AM, Tibben A. Genetic counseling does not fulfill the counselees' need for certainty in hereditary breast/ovarian cancer families: an explorative assessment. Psychooncology 2013;22:1167-76 Wouters H, van Geffen EC, Baas-Thijssen MC, Krol-Warmerdam EM, Stiggelbout AM, Belitser S, Bouvy ML, van Dijk L. Disentangling breast cancer patients' perceptions and experiences with regard to endocrine therapy: Nature and relevance for non-adherence. Breast. 2013;22:661-6 Wouters H, Maatman GA, Van Dijk L, Bouvy ML, Vree R, Van Geffen EC, Nortier JW, Stiggelbout AM. Trade-off preferences regarding adjuvant endocrine therapy among women with estrogen receptor-positive breast cancer. Ann Oncol. 2013;24:2324-9 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 20

De Groot IB, Stiggelbout AM, van der Boog PJ, Baranski AG, Marang-van de Mheen PJ; for the PARTNER-study group. Reduced quality of life in living kidney donors: association with fatigue, societal participation and pre-donation variables. Transpl Int. 2012;25:967-975 De Groot IB, Schipper K, van Dijk S, van der Boog PJ, Stiggelbout AM, Baranski AG, Marangvan de Mheen PJ. Decision making around living and deceased donor kidney transplantation: a qualitative study exploring the importance of expected relationship changes. BMC nephrology. 2012; 13 (1) Edelaar-Peeters Y, Putter H, Snoek GJ, Sluis TA, Smit CA, Post MW, Stiggelbout AM. The Influence of Time and Adaptation on Health State Valuations in Patients With Spinal Cord Injury. Med Decis Making. 2012;32:805 814 Garvelink MM, Ter Kuile MM, louwé LA, Hilders CGJM, Stiggelbout AM. Delphi consensus study among patients and clinicians in the Netherlands on the procedure of informing young breast cancer patients about Fertility Preservation. Acta Oncol 2012; 51: 1062 1069 Hofstede SN, Marang-van de Mheen PJ, Assendelft WJ, Vleggeert-Lankamp CL, Stiggelbout AM, Vroomen PC, van den Hout WB, Vliet Vlieland TP, van Bodegom-Vos L. Designing an implementation strategy to improve interprofessional shared decision making in sciatica: study protocol of the DISC study. Implement Sci. 2012 ;7(1):55 Peeters Y, Vliet Vlieland TP, Stiggelbout AM. Focusing illusion, adaptation and EQ-5D health state descriptions: the difference between patients and public. Health Expect. 2012; 15:367-78 Stiggelbout AM, Van der Weijden T, De Wit MPT, Frosch D, Légaré F, Montori VM, Trevena L, Elwyn G. Shared decision making: really putting patients at the centre of health care. BMJ 2012 Jan 27; 344: e256. doi: 10.1136/bmj Van der Wulp I, van den Hout WB, de Vries M, Stiggelbout AM, Van den Akker-van Marle ME. Societal preferences for standard health insurance coverage in the Netherlands: a cross-sectional study. BMJ Open 2012; 2012;2(2) Vos J, Gómez-García E, Oosterwijk JC, Menko FH, Stoel RD, van Asperen CJ, Jansen AM, Stiggelbout AM, Tibben A. Opening the psychological black box in genetic counseling. The psychological impact of DNA testing is predicted by the counselees' perception, the medical impact by the pathogenic or uninformative BRCA1/2-result. Psychooncology. 2012;21:29-42 Vos J, Oosterwijk JC, Gomez-Garcia E, Menko FH, Collee MJ, van Asperen CJ, Jansen AM, Stiggelbout AM, Tibben A. Exploring the short-term impact of DNA-testing in breast cancer patients: the counselees' perception matters, but the actual BRCA1/2 result does not. Patient Educ Couns. 2012; 86:239-51 Bossema ER, Seuntiëns MWM, Marijnen CAM, Baas-Thijssen MCM, Van de Velde CJH, Stiggelbout AM. The relation between illness cognitions and quality of life in people with and without a stoma following rectal cancer treatment. PsychoOncol 2011;20:428-34 Pieterse AH, Stalmeier PF, Kroep JR, Stiggelbout AM. Adjuvante behandeling voor kanker: weinig verband tussen verwachte baat en voorkeur van de patiënt. [Adjuvant cancer treatment: what benefit does the patient consider worthwhile?]. Ned Tijdschr Geneeskd 2011;155:A3905-15 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 21

Salzburg Global Seminar. Salzburg statement on shared decision making. BMJ 2011 Mar 22;342:d1745342:d1745 So-Osman C, Nelissen R, Brand R, Brand A, Stiggelbout AM. Postoperative anemia after joint replacement surgery is not related to quality of life during the first two weeks postoperatively. Transfusion 2011;51:71-81 Twijnstra AR, Stiggelbout AM, de Kroon CD, Jansen FW. Laparoscopic hysterectomy: eliciting preference of performers and colleagues via conjoint analysis. J Minim Invasive Gynecol. 2011;18:582-8 Van Hezewijk M, Hille ETM, Scholten AN, Marijnen CAM, Stiggelbout AM, Van de Velde CJH. Professionals opinion on follow-up in breast cancer patients; perceived purpose and influence of patients risk factors. Eur J Surg Oncol 2011;37:217-24 Van Hezewijk M, Ranke GMC, Van Nes JGH, Stiggelbout AM, De Bock GH, Van de Velde CJH. Patients needs and preferences in routine follow-up for early breast cancer; an evaluation of the changing role of the nurse practitioner. Eur J Surg Oncol 2011;37:765-73 Van der Weijden T, Van Veenendaal H, Drenthen T, Versluijs M, Stalmeier P, Koelewijn-van Loon M, Stiggelbout A, Timmermans D. Shared decision making in the Netherlands, is the time ripe for nationwide, structural implementation? Z Evid Fortbild Qual Gesundhwes. 2011:105: 283-88 Voorham-van der Zalm PJ, Berzuk K, Shelly B, Kamin B, Putter H, Lycklama à Nijeholt GAB, Pelger RCM, Stiggelbout AM. Validation of the Pelvic Floor Inventories Leiden (PelFIs) in English. Neurourol. Urodynamics 2011 Neurourol Urodyn. 2011;30:536-40 Vos J, Jansen AM, Menko F, van Asperen CJ, Stiggelbout AM, Tibben A. Family communication matters: The impact of telling relatives about unclassified variants and uninformative DNA-test results. Genet Med. 2011;13:333-41 Vos J, Menko F, Jansen AM, van Asperen CJ, Stiggelbout AM, Tibben A. A whisper-game perspective on the family communication of DNA-test results: a retrospective study on the communication process of BRCA1/2-test results between proband and relatives. Fam Cancer. 2011;10:87-96 Vos J, Oosterwijk J, Gómez-García E, Menko F, Jansen A, Stoel R, van Asperen C, Tibben A, Stiggelbout A. Perceiving cancer-risks and heredity-likelihood in genetic-counseling: how counselees recall and interpret BRCA 1/2-test results. Clin Genet. 2011 Mar;79(3):207-218. Vos J, Stiggelbout AM, Oosterwijk J, Gomez-Garcia E, Menko F, Collee JM, van Asperen CJ, Tibben A. A counselee-oriented perspective on risk communication in genetic counseling: explaining the inaccuracy of the counselees' risk perception shortly after BRCA1/2 test result disclosure. Genet Med. 2011;13:800-11. Peeters Y, Ranchor AV, Stiggelbout AM. Effect of adaptive abilities on utilities, direct or mediated by mental health? Health and Quality of Life Outcomes 2010, 8:130 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 22

Peeters Y, Stiggelbout AM. Health State Valuations of Patients and the General Public Analytically Compared: A Meta-Analytical Comparison of Patient and Population Health State Utilities. Value Health. 2010;13:306-9 Pieterse AH, Berkers F, Baas-Thijssen MC, Marijnen CA, Stiggelbout AM. Adaptive Conjoint Analysis as individual preference assessment tool: Feasibility through the internet and reliability of preferences. Patient Educ Couns. 2010 ;78:224-33 Pieterse AH, Stiggelbout AM, Marijnen CA. Methodologic evaluation of adaptive conjoint analysis to assess patient preferences: an application in oncology". Health Expectations 2010;13: 392-405 Stiggelbout AM. Adjuvant! and other prediction models in the clinical encounter with patients. Med Dec Making 2010; 30: 422-23 Stiggelbout AM, Timmermans DR. Revisiting decision AIDS: about definitions and classifications. Med Decis Making. 2010;30:696-8 Van der Weijden T, Légaré F, Boivin A, Burgers JS, Van Veenendaal H, Stiggelbout AM, Faber M, Elwyn G. How to integrate individual patient values and preferences in clinical practice guidelines? A research protocol. Implementation Science 2010, 5:10 doi:10.1186/1748-5908-5-10 Van Til JA, Drossaert CH, Renzenbrink GJ, Snoek GJ, Dijkstra E, Stiggelbout AM, IJzerman MJ. Feasibility of web-based decision aids in neurological patients. J Telemed Telecare. 2010;16(1):48-52 Lange MM, Marijnen CA, Maas CP, Putter H, Rutten HJ, Stiggelbout AM, Kranenbarg EM, Velde CJ; Cooperative clinical investigators of the Dutch. Total mesorectal excision trial. Risk factors for sexual dysfunction after rectal cancer treatment. Eur J Cancer. 2009 Eur J Cancer. 2009;45:1578-88 Peeters Y, Stiggelbout AM. Valuing Health: Does Enriching a Scenario Lead to Higher Utilities? Med Decis Making. 2009;29:334-42 Van Til JA, Stiggelbout AM, IJzerman MJ. The effect of information on preferences stated in a choice-based conjoint analysis. Patient Educ Couns. 2009: 74:264-71 Visser M, Verbaan D, Van Rooden SM, Marinus J, Van Hilten JJ*, Stiggelbout AM*. A longitudinal evaluation of Health-related Quality of Life of patients with Parkinson s disease. Value in Health 2009; 12: 392-96 Vos J, van Asperen CJ, Wijnen JT, Stiggelbout AM, Tibben A. Disentangling the Babylonian speech confusion in genetic counseling: an analysis of the reliability and validity of the nomenclature for BRCA1/2 DNA-test results other than pathogenic. Genet Med. 2009;11:742-9 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 23

Bossema ER, Marijnen CAM, Baas-Thijssen MCM, van de Velde CJH, Stiggelbout AM. Evaluation of the treatment trade-off method in rectal cancer patients: is surgery preference related to outcome utilities? Med Decis Making 2008;28:888-98 Bossema E, Stiggelbout A, Baas-Thijssen M, van de Velde C, Marijnen C. Patients' preferences for low rectal cancer surgery. Eur J Surg Oncol. 2008;34:42-8 Does-den Heijer A, van Nes JGH, Stiggelbout AM, Bonnema J, Caljouw MAA, Nortier JWR, Van de Velde CJH. Voorlichting aan borstkankerpatiënten over adjuvante hormonale therapie moet beter. Ned Tijdschr Oncol 2008;5:59-65 Jansen SJT, Otten W, Baas-Thijssen MCM, Van de Velde CJH, Nortier HWR, Stiggelbout AM. Stability of Preferences with regard to Adjuvant Chemotherapy: Impact of Treatment Decision, Experience, and the Passing of Time. Eur J Cancer Care 2008;17:74-83 Klop WMC, Boermans PPBM, Ferrier MB, Van den Hout WB, Stiggelbout AM, Frijns JHM. Clinical relevance of quality of life outcome in cochlear implantation in postlingually deafened adults. Otol Neurotol. 2008;29:615-21. Marinus J, Visser M, Jenkinson C, Stiggelbout AM. Evaluation of the Dutch version of the Parkinson's Disease Questionnaire 39. Parkinsonism & Related Disorders 2008;14:24-27 Molewijk B, Stiggelbout AM, Otten W, Dupuis HM, Kievit J. First the facts, then the values? Implicit normativity in evidence-based decision aids for shared decision-making. Z Evid Fortbild Qual Gesundh wesen (ZEFQ); 2008:102:415-20 Pieterse AH, Baas-Thijssen MC, Marijnen CA, Stiggelbout AM. Clinician and cancer patient views on patient participation in treatment decision-making: a quantitative and qualitative exploration. Br J Cancer. 2008;99:875-82 Stiggelbout AM, De Vogel-Voogt E. Health-State Utilities: a Framework for Studying the Gap between the Imagined and the Real. Value in Health 2008;11:76-87 Stiggelbout AM, De Vogel-Voogt E, Noordijk EM, Vliet Vlieland TMP. Individual quality of life: adaptive conjoint analysis as an alternative for direct weighting? Qual Life Res 2008; 2008;17:641-9 Stiggelbout AM, Molewijk AC, Otten W, Van Bockel JH, Bruijninckx CMA, Van der Salm I, Kievit J. The impact of individualized evidence-based decision support on aneurysm patients decision-making, ideals of autonomy, and quality of life. Med Decis Making 2008; 28:751-62 Van Munster CM., Geerinck-Vercammen CR, Stiggelbout AM, Vandenbussche FPHA. Psychosociale begeleiding bij het tweelingtransfusiesyndroom: de resultaten van semigestructureerde interviews met patiënten en hun partners. Ned Tijdschr. Obstet. Gyn, 2008; 121: 334-8 Van Osch SM, Stiggelbout AM. The construction of standard gamble utilities. Health Econ. 2008 Jan;17:31-40 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 24

Van Til JA, Dolan JG, Stiggelbout AM, Groothuis KCGM, IJzerman MJ. The Use of Multi- Criteria Decision Analysis Weight Elicitation Techniques in Patients with Mild Cognitive Impairment. A Pilot Study. The Patient 2008; 1 (2): 127-135 Van Tongeren RB, Hamming JF, Fibbe WE, Van Weel V, Frerichs SJGC, Stiggelbout AM, Van Bockel JH, Lindeman JH. Intramuscular or combined intramuscular/intra-arterial administration of bone marrow mononuclear cells: a clinical trial in patients with advanced limb ischemia. J Cardiovasc surg 2008 2008;49:51-8 Visser M, Van Rooden SM, Verbaan D, Marinus J, Stiggelbout AM*, Van Hilten JJ*. A comprehensive model of Health-related Quality of Life in Parkinson s disease. J Neurol 2008; 255:1580 1587 Voorham-van der Zalm PJ, Stiggelbout AM, Aardoom I, Deckers S, Greve IG, Nijeholt GA, Pelger RC. Development and validation of the pelvic floor inventories Leiden (PelFIs). Neurourol Urodyn. 2008;27(4):301-5 Klop WM, Briaire JJ, Stiggelbout AM, Frijns JH. Cochlear Implant Outcomes and Quality of Life in Adults with Prelingual Deafness. Laryngoscope. 2007;117:1982-7 Pieterse AH, Stiggelbout AM, Baas-Thijssen MC, van de Velde CJ, Marijnen CA. Benefit from preoperative radiotherapy in rectal cancer treatment: disease-free patients' and oncologists' preferences. Br J Cancer. 2007;97:717-24. Stiggelbout AM, Jansen SJT, Otten W, Baas-Thijssen MCM, Van Slooten H, Van de Velde CJH. How important is the opinion of significant others to cancer patients' adjuvant chemotherapy decision-making? Support Care Cancer 2007; 15:319-25 Verbaan D, Marinus J, Visser M, van Rooden SM, Stiggelbout AM, van Hilten JJ. Patientreported autonomic symptoms in Parkinson disease. Neurology. 2007 Jul 24;69(4):333-41 Verbaan D, Marinus J, Visser M, Van Rooden SM, Stiggelbout AM, Middelkoop HAM, Van Hilten JJ. Cognitive impairment in Parkinson's disease. J Neurol Neurosurg Psychiatry. 2007 ;78:1182-7 Visser M, Verbaan D, Van Rooden SM, Stiggelbout AM, Marinus J, Van Hilten JJ. "The Assessment of Psychiatric Complications in Parkinson s Disease: The SCOPA-PC" Movem Disorders 2007; 22:2221-8 Jansen SJT, Otten W, Stiggelbout AM. Factors affecting patients' perceptions of choice regarding adjuvant chemotherapy for breast cancer. Breast Cancer Res Treatm 2006;99:35-45 Stiggelbout AM. Health state classification systems: how comparable are our CE-ratios? Med Decis Making 2006; 26: 223-5 Stiggelbout AM, Elstein AS, Molewijk AC, Otten W, Kievit J. Clinical ethical dilemmas: convergent and divergent views of two scholarly communities. J Med Ethics 2006; 32:381-8 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 25

Van Osch SMC, Van den Hout W, Stiggelbout AM. Exploring the reference point in Prospect Theory. Gambles for length of life. Med Decis Making 2006; 26:338-46 Visser M, Leentjens AFG, Marinus J, Stiggelbout AM, Van Hilten JJ. Reliability and validity of the Beck depression inventory in patients with Parkinson's disease. Mov Disord 2006; 21:668-72 Visser M, Marinus J, Stiggelbout AM, Van Hilten JJ. Responsiveness of impairments an disabilities in Parkinson s disease. Parkinsonism Relat Disord. 2006;12:314-8 Voorham-van der Zalm PJ, Pelger RCM, Stiggelbout AM, Elzevier HW, Lycklama a Nijeholt GAB. Effects of magnetic stimulation in the treatment of pelvic floor dysfunction. BJU Internat 2006; 97: 1035-38 Col NF, Stiggelbout A, Corso P. Common adverse effects of short-term hormone therapy (reply). Arch Intern Med 2005; 165:588 Jansen SJT, Otten W, Baas-Thijssen MCM, Van de Velde CJH, Nortier JWR, Stiggelbout AM. Explaining Differences in Attitude towards Adjuvant Chemotherapy between Experienced and Inexperienced Breast Cancer Patients. J Clin Oncol 2005;23:6623-30 Marijnen CAM, Van de Velde CJH, Putter H, Van den Brink M, Maas CP, Martijn H, Rutten HJ, Wiggers T, Klein Kranenbarg E, Leer JWH, Stiggelbout AM, for the cooperative investigators. The impact of short-term preoperative radiotherapy on Health Related Quality of Life and sexual functioning in primary rectal cancer: report of a multicenter randomized trial J Clin Oncol 2005; 23:1847-58 Putter, Marijnen CAM, Klein-Kranenbarg E, Van de Velde CJH, Stiggelbout AM. Missing values and dropout in the TME quality of life substudy. Qual Life Res 2005;14:857-865 Snoek GJ, IJzerman MJ, Post MWM, Stiggelbout AM, Roach MJ, Zilvold G. Choicebased evaluation for the improvement of upper-extremity function compared with other impairments in tetraplegia. Arch Phys Med Rehabil 2005;86:1623-30 Van den Brink M, van den Hout WB, Stiggelbout AM, van de Velde CJH, Kievit J. What You May Learn From the Dutch experience (letter). J Clin Oncol 2005;23:3632-3633 Van den Brink M, van den Hout WB, Stiggelbout AM, Putter H, van de Velde CJH, Kievit J. Self-reports of health care utilization: diary or questionnaire? Int J Technol Assessm Health Care 2005; 21:298-304 Van den Brink M, Van den Hout WB, Kievit J, Marijnen CAM, Putter H, Van de Velde CJH,. Stiggelbout AM. The impact of diagnosis and treatment of rectal cancer on paid and unpaid labour. Dis Col Rectum 2005;48: 1875-82 Van Osch SMC, Stiggelbout AM. Understanding VAS valuations: qualitative data on the cognitive process. Qual Life Res 2005;14:2171-5 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 26

Col N, Weber G, Stiggelbout AM, Chuo J, D Agostino R, Corso P. Short term menopausal hormone therapy for symptom relief: an updated decision model. Arch Intern Med 2004; 164: 1634-40 De Bock GH, Bonnema J, Van de Velde CJH, Kievit J, Stiggelbout AM. Patients needs and preferences in routine follow-up after treatment for breast cancer. Brit J Cancer 2004; 90: 1144-50 Jansen SJT, Otten W, Stiggelbout AM. A Review of Determinants of Patients' Preferences for Adjuvant Therapy in Cancer. J Clin Oncol 2004; 22: 3181-90 Jansen SJT, Otten W, Van de Velde CJH, Nortier JWR, Stiggelbout AM. The impact of the perception of treatment choice on satisfaction with treatment, experienced chemotherapy burden and current quality of life. Br J Cancer 2004; 91:56-61 Marinus J, Visser M, Stiggelbout AM, Rabey JM, Martìnez-Martìn P, Bonuccelli U, Kraus PH, Van Hilten JJ. A short scale for the assessment of motor impairments and disabilities in Parkinson's disease: the SPES/SCOPA. J Neurol Neurosurg Psychiatry 2004;75:388-395 Marinus J, Visser M, Stiggelbout AM. Kwaliteit van leven en de ziekte van Parkinson: een systematische vergelijking van ziektespecifieke instrumenten. Ned Tijdschr Fysiother 2004: 114:67-71 Molewijk AC, Stiggelbout AM, Otten W, Dupuis H, Kievit J. Empirical data and moral theory. A plea for integrated empirical ethics. Med. Health Care Phil. 2004; 7:55-69 Stiggelbout AM, Molewijk AC, Otten W, Timmermans DRM, Van Bockel JH, Kievit J. Ideals of patient autonomy in medical decision-making: development of the IPAS, a scale to assess patients and physicians notions. J Med Ethics 2004;30:268-74 Timmermans D, Molewijk AC, Stiggelbout AM, Kievit J. Different formats for communicating surgical risks to patients and the effect on choice of treatment. Patient Educ Couns 2004; 54:255-63 Van den Brink M, Stiggelbout AM, Van den Hout WB, Kievit J, Klein Kranenbarg E, Marijnen CAM, Nagtegaal ID, Rutten HJT, Wiggers T, Van de Velde CJH. The clinical nature and prognosis of locally recurrent rectal cancer after tme-surgery with or without preoperative radiotherapy. J Clin Oncol. 2004;22:3958-64 Van den Brink M, Van den Hout WB, Stiggelbout AM, Klein-Kranenbarg E, Marijnen CAM, Van de Velde CJH, Kievit J, for the Dutch Colorectal Cancer Group. Cost-utility analysis of preoperative radiotherapy in patients with rectal cancer undergoing total mesorectal excision. J Clin Oncol 2004;22:244-53 Van den Brink M, van den Hout WB, Stiggelbout AM, van de Velde CJH, Kievit J. Cost measurement in economic evaluations of health care: Whom to ask? Med Care 2004;42:740-6 Van Osch SMC, Wakker PP, Van den Hout W, Stiggelbout AM. Correcting biases in standard gamble and time trade-off utilities. Med Decis Making 2004;24:511-517 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 27

Visser M, Marinus J, Van Hilten JJ, Schipper RGB, Stiggelbout AM. Assessing Comorbidity in Patients with Parkinson's Disease. Mov Disord 2004; 19:824-8 Visser M, Marinus J, Stiggelbout AM, Van Hilten JJ, The assessment of autonomic dysfunction in Parkinson's disease: the SCOPA-AUT. Movem Disord 2004;19:1306-12 Wakker PP, Jansen SJT, Stiggelbout AM. Anchor Levels as a New Tool For the Theory and Measurement of Multiattribute Utility. Decis Analysis 2004;1:217-34 Koedoot CG, De Haan RJ, Stiggelbout AM, Stalmeier PF, De Graeff A, Bakker PJ, De Haes JC. Palliative chemotherapy or best supportive care? A prospective study explaining patients' treatment preference and choice. Br J Cancer. 2003;89:2219-26 Marinus J, Visser M, Martìnez-Martìn P, Van Hilten JJ, Lammers GJ, Stiggelbout AM. Assessment of sleep and sleepiness in Parkinson's disease. Sleep 2003;26: 1049-54 Marinus J, Visser M, Martìnez-Martìn P, Van Hilten JJ, Stiggelbout AM. A short psychosocial questionnaire for patients with Parkinson s disease: the SCOPA-PS. J Clin Epidemiol 2003;56:61-67 Marinus J, Visser M, Verwey NA, Verhey FR, Middelkoop HA, Stiggelbout AM, van Hilten JJ. Assessment of cognition in Parkinson's disease. Neurology. 2003;61:1222-8. Molewijk AC, Stiggelbout AM, Otten W, Dupuis H, Kievit J. Implicit normativity in evidencebased medicine. A plea for integrated empirical ethics research. Health Care Analysis 2003;11:69-92 Van Osch SCM, Stiggelbout AM. Risk behavior, goals, and reference point. Society for Medical Decision Making Newsletter Spring 2003: 4. Marinus J, Leentjens AF, Visser M, Stiggelbout AM, Van Hilten JJ. Evaluation of the hospital anxiety and depression scale in patients with Parkinson's disease. Clin Neuropharmacol. 2002;25:318-24 Marinus J, Ramaker C, van Hilten JJ, Stiggelbout AM. Health related quality of life in Parkinson s disease: a systematic review of disease specific instruments. J Neurol Neurosurg Psychiatry 2002; 72:241-248 Marinus J, Visser M, Stiggelbout AM, Rabey JM, Bonuccelli U, Kraus PH, van Hilten JJ. An activity-based diary for Parkinson's Disease - Clin Neuropharmacol. 2002; 25: 43-50 Ramaker C, Marinus J, Stiggelbout AM, van Hilten JJ. Systematic evaluation of rating scales for impairment and disability in Parkinson s disease. Movement Disoders 2002; 17: 867-876 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 28

Van den Hout WB, van den Brink M, Stiggelbout AM, van de Velde CJ, Kievit J. Costeffectiveness analysis of colorectal cancer treatments. Eur J Cancer 2002;38:953-63 Verburg RJ, Stiggelbout AM, Sont J, Laar J van. A study of treatment preference in RA patients and rheumatologists regarding high dose chemotherapy and hematopoietic stem cell transplantation. J Rheumatol 2002; 29:1653-8 Jansen, SJT, Kievit, J, Nooij, MA, de Haes, JCJM, Overpelt, IME, van Slooten, H, Maartense, E, Stiggelbout, AM. Patients' preferences for adjuvant chemotherapy in early-stage breast cancer: is treatment worthwhile? Br J Cancer 2001; 84: 1577-1585. Jansen, SJT, Nooij, MA, Kievit, J, Stiggelbout, AM. Stability of patients' preferences for chemotherapy: The impact of experience. Med Decis Making 2001;21:295-306 Post PN, Stiggelbout AM, Wakker PP. The utility of health states after stroke. A systematic review of the literature. Stroke 2001; 32:1425-29 Rothbarth J, Bemelman WA, Meijerink WJHJ, Stiggelbout AM, Zwinderman AH, Buyze- Westerweel ME, Delemarre JBVM. What is the impact of fecal incontinence on quality of life? Dis Colon Rectum 2001;44:67-71 Stalmeier PFM, Goldstein MK, Homes AM, Lenert L, Miyamoto J, Stiggelbout AM, Torrance GW, Tsevat J. What should go into a Methods section on utility assessment? Med Decis Making 2001; 21: 200-7 Stiggelbout AM, De Haes JCJM. Patient preference for cancer therapy: an overview of measurement approaches. J Clin Oncol. 2001; 19:220-230 Jansen SJT, Stiggelbout AM, Nooij MA, Kievit J. The effect of individually assessed preference weights on the relationship between holistic utilities and nonpreference-based assessment. Qual Life Res 2000; 9:541-557 Jansen SJT, Stiggelbout AM, Nooij MA, Noordijk EM, Kievit J. Response shift in quality of life measurement in early-stage breast cancer patients undergoing radiotherapy. Qual Life Res 2000;9:603-615 Jansen SJT, Stiggelbout AM, Wakker PP, Nooij MA, Noordijk EM, Kievit J. Unstable preferences: a shift in valuation or an effect of the elicitation procedure? Med Decis Making 2000;20:62-71 Stiggelbout AM, De Haes JCJM, Van de Velde CJH. Adjuvant chemotherapy in node negative breast cancer: patterns of use and oncologists preferences. Ann Oncol. 2000; 11: 631-33 Tijhuis GJ, Jansen SJT, Stiggelbout AM, Zwinderman AH, Hazes JMW, Vliet Vlieland TPM. The value of the Time Trade-Off method for measuring utilities in patients with rheumatoid arthritis. Ann. Rheum. Dis 2000; 59:892-897 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 29

Van Mil, AHM, Van Klink RCJ, Huntjens C, Westendorp RGJ, Stiggelbout AM, Meinders AE, Lagaay AM. Cardiopulmonary resuscitation preferences in Dutch community-dwelling and hospitalized elderly people. Med Decis Making 2000; 20: 423-29 Stiggelbout AM. Decision making in oncology: assessing patients preferences. South West Cancer News 1999; (4): 24-25 Vandenbussche FPHA, De Jong-Potjer LC, Stiggelbout AM, Le Cessie S, Keirse MJNC. Differences in the valuation of birth outcomes between pregnant women, mothers and obstetricians. Birth 1999;26:178-183 Dunker MS, Stiggelbout AM, Hogezand RA van, Ringers J, Griffioen G, Bemelman WA. Cosmesis and body image after laparoscopic-assisted and open ileocolic resection for Crohn s disease. Surg Endosc 1998; 12:1334-40 Jansen SJT, Stiggelbout AM, Wakker PP, Vliet Vlieland TPM, Leer JWH, Nooy MA, Kievit J. Patients utilities for cancer treatments: a study of the chained procedure for the standard gamble and time tradeoff. Med Decis Making 1998; 18:391-9 Stiggelbout AM, Kiebert GM. A role for the sick role (reply) Can Med Assoc J 1997; 157:1350 Stiggelbout AM, Kiebert GM. Patient preferences for information and participation in clinical decision making: a role for the sick role. Can Med Assoc J 1997;157:383-9 Stiggelbout AM, De Haes JCJM, Vree R, Van de Velde CJH, Bruijninckx CMA, Van Groningen K, Kievit J. Follow-up of colorectal cancer patients: quality of life and attitudes towards followup. Br J Cancer 1997; 75:914-20 Stiggelbout A. Cost and benefits of adjuvant therapy in breast cancer. South West Cancer News 1997; (2): 14 De Haes JCJM, Stiggelbout AM. Assessment of values, utilities and preferences in cancer patients. Assessment of values, utilities and preferences in cancer patients. Cancer Treatment Reviews 1996;22 (Suppl A): 13-26 Stiggelbout AM, De Haes JCJM, Kiebert GM, Leer JWH, Kievit J. Trade-offs of quality and quantity of life: the development of the QQ-questionnaire for cancer patient attitudes. Med Decis Making 1996;16:184-92 Stiggelbout AM, Eijkemans MJC, Kiebert GM, Kievit J, Leer JWH, De Haes JCJM. The "utility" of the Visual Analog Scale in medical decision making and technology assessment: is it an alternative to the Time Trade-Off? Int J Technol Assessm Health Care 1996;12: 291-8 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 30

Stiggelbout AM, Kiebert GM, De Haes JCJM, Keizer HJ, Stoter G, De Wit R, Vermorken JB, Leer JWH, Kievit J. Surveillance versus adjuvant chemotherapy in stage I non-seminomatous testicular cancer: a decision analysis. Eur J Cancer 1996; 32A: 2267-74 Timmermans DM, Stiggelbout AM. Ethische aspecten van kostenoverwegingen bij medische besluitvorming. Ned Tijdschr Geneeskd 1996;140:2051-53 Bruinvels DJ, Stiggelbout AM, Klaassen MP, Kievit J, Habbema JDF, Velde CJH van de. Follow-up after colorectal cancer: current practice in The Netherlands. Eur J Surg 1995;161:827-31 De Haes H, Stiggelbout A. Quality of life assessment and health state valuation in oncology. In: The challenges in studying the socioeconomic dimension in cancer therapy. Proceedings of a symposium held in Cologne, Germany, March 1995. Yardly (PA), The Medicine Group USA, Inc, 1995 Stiggelbout AM, Kiebert GM, Kievit J, Leer JWH, Habbema JDF, De Haes JCJM. The 'utility' of the Time Trade-Off method in cancer patients: feasibility and proportional trade-off. J Clin Epidemiol. 1995;48:1207-14 Stiggelbout AM, Timmermans DRM. Variatie in beleid en kwaliteit van medische besluitvorming; bespreking van een bijeenkomst van het Landelijk Forum Medische Besliskunde. Ned Tijdschr Geneeskd 1995;139:1144-8 Wakker P, Stiggelbout A. Explaining distortions in utility elicitation through the rank-dependent model for risky choices. Med Decis Making 1995;15:180-6 Bruinvels DJ, Stiggelbout AM, Kievit J, Houwelingen HC van, Habbema JDF, Velde CJH van de. Follow-up of patients with colorectal cancer: A meta-analysis. Ann Surg 1994; 219:174-182 Kiebert GM, Stiggelbout AM, Kievit J, Leer JWH, Velde CJH van de, Haes JCJM de. Choices in oncology: factors that influence patients' treatment preference. Quality of Life Res 1994; 3: 175-182 Stiggelbout AM, Kiebert GM, Kievit J, Leer JWH, Stoter G, De Haes JCJM. Utility assessment in cancer patients: adjustment of time tradeoff scores for the utility of life years and comparison with standard gamble scores. Med Decis Making 1994; 14: 82-90 Kiebert GM, Stiggelbout AM, Leer JWH, Kievit J, Haes JCJM de. Test-retest reliabilities of two treatment preference instruments in measuring utilities. Med Decis Making 1993; 13: 133-140 Leeuwen FE van, Stiggelbout AM, Belt-Dusebout AW van den, Noyon R, Eliel MR, Kerkhoff EHM van, Delemarre JFM, Somers R. Second cancer risk following testicular cancer: a follow-up study of 1909 patients. J Clin Oncol 1993;11: 415-424 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 31

Sasco AJ, Pobel D, Benhaim V, Bruin K de, Stiggelbout A, Tuyns A. Smoking habits in French adolescents. Rev Epidemiol Santé Public 1993; 41:461-472 Benito E, Stiggelbout A, Bosch FX, Obrador A, Kaldor J, Mulet M, Muñoz N. Nutri-tional factors in colorectal cancer risk: a case-control study in Majorca. Int J Cancer 1991; 49: 161-167 Timmermans D, Kiebert W, Stiggelbout A, Kievit J. Utiliteitsmeting bij de klinische besluitvorming. Ned Tijdschr Geneeskd 1991; 135: 389 Benito E, Obrador A, Stiggelbout A, Bosch FX, Mulet M, Muñoz N, Kaldor J. A populationbased case-control study of colorectal cancer in Majorca. I. Dietary factors. Int J Cancer 1990; 45: 69-76 Stiggelbout AM, Giezen AM van der, Blauw YH, Blok E, Staveren WA van, West CE. Development and relative validity of a food frequency questionnaire for the estimation of intake of retinol and B-carotene. Nutr Cancer 1989; 12: 289-99 Non-peer-reviewed journal articles or misscelaneous items in Dutch Theunissen, C. Lusten antidepressiva wegen niet altijd op tegen lasten. News item on Wouters et al. Psychol Med 2014. Ned Tijdschr Geneeskd. 2014;158:C2035 Engelhardt EG, Pieterse AH, Smets EM, De Haes HCJM, Stiggelbout AM. A fifth key area for stratified medicine research: How to inform patients effectively about prognostic estimates? BMJ 2013; rapid response, published 5 June (http://www.bmj.com/content/346/bmj.e5793/rr/644422) Pieterse AH, Engelhardt EG, Kunneman M, Stiggelbout AM. Will patient participation in decision making raise cost of care, or lower it? BMJ 2013, rapid response, published 12 July (http://www.bmj.com/content/346/bmj.f3597/rr/653594) Stiggelbout AM. Shared Decision Making. In: Reproductieve Geneeskunde, Gynaecologie en Obstetrie Anno 2013 (E. Slager, ec.) pp 937-41 Kunneman M, Pieterse AH, Stiggelbout AM, Kruitwagen RFPM, Creutzberg CL, Marijnen CAM. Wat wil de patiënt? Onderzoek naar patiëntpreferenties in de radiotherapie. Kanker Breed 2012;4:26-31. Stiggelbout AM, Pieterse AH, Nortier JWR. Gezamenlijke besluitvorming in de oncologie. Ned Tijdschr. Oncologie 2012;9: 11-4 Leijenhorst L. Medische Besliskunde: Patiënten denken dat de dokter het wel weet. Interview met prof. A.M. Stiggelbout. De Vooruitgang (uitgave van de Nederlandse Stomavereniging) 2011;4:28-29 Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 32

Stiggelbout AM. Kiezen of delen? Patiënten, percepties en preferenties. Modern Medicine 2011;9:268-71 Overbeeke J. Chronisch zieke past zich aan. Interview met drs. Y. Peeters en mw. N. van Duijn- Bakker (VIDI-grant).In Beweging (Uitgave van de ReumaPatientenbond) 2011: februari Korfage IJ, Pieterse AH, Stiggelbout AM. Decision aids are inappropriate to facilitate informed uptake. (Rapid Response) BMJ 2010;341: c5407 (nov 5): http://www.bmj.com/content/341/bmj.c5407.full/reply#bmj_el_244213 Baas-Thijssen M, Pieterse A, Stiggelbout A. Voorkeur voor wel of niet bestralen bij endeldarmkanker: de invloed van partners op de behandelkeuze. Tijdschr Psychosociale Oncologie 2009; 17: 17-18 Stiggelbout AM. Kiezen of Delen? De rol van patiëntpreferenties in de besluitvorming. Oratie Universiteit Leiden, 15 februari 2008 Stiggelbout AM. Kiezen of Delen? De rol van patiëntpreferenties in de besluitvorming. Tijdschr Kanker 2008;6: 11 Overbeeke J. Wat vinden partners van patiënten? LUMC-onderzoek kwaliteit van leven uitgebreid. Interview met Anne Stiggelbout. In Beweging (Uitgave van de ReumaPatientenbond); december 2007 Baas-Thijssen MCM, Jansen SJT, Otten W, Stiggelbout AM. "Kiezen" voor chemotherapie. Welke rol speelt de preferentie hierbij? Tijdschr Kanker 2004;28:30-33 Stiggelbout AM, De Haes JCJM. Kwaliteit van leven en onderzoek. Ned Tijdschr Researchverpleegkundigen 2004; 5:6-8 Van Hilten B, Visser M, Stiggelbout A. Rating scales link symptoms of the disease to disabilities. EPDA focus (Eur. Parkinson's Disease Association Newsletter) 2004;26:8-9 Jansen S, Stiggelbout A. De patiënt helpen beslissen. Een overzicht van onderzoek naar voorkeuren van oncologische patiënten ten aanzien van de besluitvorming rondom de behandeling. NBMF Nieuws 2002: december: 9-13 Jansen S, Stiggelbout A. Dokter, wat vindt u? De patiënt helpen beslissen. Modern Med 2003;27:2: 97-100 Stiggelbout AM Kwaliteit van leven en besluitvorming in de oncologie. Tijdschrift Kanker 1997; 21 (6): 9-11 Stiggelbout AM Respons shift in kwaliteit van leven onderzoek. Verslag van een symposium georganiseerd door de Werkgroep Onderzoek Gezondheidstoestandmeting. NBMF-Nieuws augustus 1997, pp 14-16 Book Chapters Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 33

Fagerlin A, Pignone M, Abhyankar P, Col C, Feldman-Stewart D, Gavaruzzi T, Kryworuchko J, Levin C, Pieterse A, Reyna V, Stiggelbout A, Scherer L, Wills C, Witteman H. Clarifying and Expressing Values. In: International Patient Decision Aids Standards. Background Document 2012: Updated Chapter D (in press, and http://ipdas.ohri.ca/resources.html) Stiggelbout AM, Aaronson NK, Sprangers MAG, de Haes JCJM. Onderzoek naar de kwaliteit van leven van kankerpatiënten [Research on the quality of life of cancer patients]. In: Van de Velde CJH, et al. (ed). Oncologie [Oncology]. Houten, Bohn, Stafleu, van Loghum, 2011, pp 617-23 Stiggelbout AM. The following chapters: Holistic Measurement (pp 599-601), Decomposed Measurement (pp 367-70), Disutility (pp 412-413), Quality Adjusted Time Without Symptoms or Toxicity (Q-Twist) (pp 936-37). In: Kattan M and Cowen ME (eds.). Encyclopedia of Medical Decision Making. Volume 1 and Volume 2. Thousand Oaks, Sage Publications, 2009 Stiggelbout AM, Kievit J. Aneurysms of the abdominal aorta. In: Edwards A, Elwyn G (eds). Shared decision making in health care: achieving evidence based patient choice, 2 nd edition. Oxford, Oxford University Press, 2009 Stiggelbout AM. Ouderen en medische beslissingen: andere rollen en voorkeuren dan jongeren? In: Cools HJM, et al. (red). Vorderingen in de verpleeghuisgeneeskunde. Leiden, Boerhaave Commissie, 2008, pp 19-28 Harries C, Stiggelbout AM. Approaches to measuring Patients' Decision-making. In: Bowling A, Ebrahim S (eds.). Handbook of Health Research Methods: Investigation, Measurement and Analysis.Maidenhead, Open University/McGraw Hill, 2005, pp. 362-393 Marinus J, Visser M, Stiggelbout AM. Kwaliteit van leven en de ziekte van Parkinson: klinimetrische eigenschappen van de Nederlandse versie van de PDQ-39. In: Marinus J. et al (eds). Jaarboek Fysiotherapie Kinesitherapie 2006. Houten, Bohn, Stafleu, van Lochem, 2005 Stiggelbout AM. Een open vat: Voordelig? Het meten van kwaliteit van leven. In: "Werk aan het Vat, Symposiumboek 14e Max Taks Vaatsymposium, Doetinchem, maart 2001, pp 62-66 Stiggelbout AM. Assessing patients' preferences. In: Chapman G, Sonnenberg F (eds). Decision Research in Health Care: Theory, Psychology, and Applications. New York: Cambridge University Press, 2000, pp. 289-312 Stiggelbout AM, Haes JCJM de, Kwaliteit van leven en waardering. In: Syllabus Nascholingsweek Kindergeneeskunde Leiden 1998. Leiden, Boerhaave Commissie 1998, pp 45-56 Stiggelbout AM. Kwaliteit van leven en utiliteit. In: EDURAD syllabus Sandwichcursus Medische besliskunde en technology assessment in de radiologie, no 29, juni 1997, pp 23-26 Stiggelbout AM, Dalesio O, Leeuwen FE van. Kanker. 2e Signaleringsrapport. Stuurgroep Toekomstscenarios Gezondheidszorg, Rijswijk, 1990 Stiggelbout AM, Dalesio O, Leeuwen FE van. Kanker. Signaleringsrapport. Stuurgroep Toekomstscenarios Gezondheidszorg, Rijswijk Prof. Stiggelbout Curriculum Vitae and List of Publications November 2013 34