Europe in Action 2011



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Europe in Action 2011 Family Action for the Inclusion of People with Intellectual Disabilities in Society 12-14 May 2011, Palm Beach Hotel, Larnaca - Cyprus Under the Auspices of the Minister of Labour and Social Insurance Organizers Pancyprian Parents Association for People With Mental Handicap Supported by European Commission

Index Welcoming address Organizers & Invited speakers Rules For Accessibility and EU support Program Local sponsors Presentation Posters/ Cultural event

Welcoming Address Dear Participants It is a great honour to welcome you to the 2011 annual conference of Inclusion Europe that is hosted in Cyprus and takes place in Larnaca between 12-14 May 2011. As you know, this beautiful island, Cyprus, is situated in the very Eastern corner of the mediterranean and according to the myth it is here that Aphrodite, the Goddess of Beauty and Love was born. Having a history of almost 11 000 years it has a rich cultural heritage. On behalf of the organizers we welcome you to the conference and to Cyprus Constantinos Efrem President of the Pancyprian Parents Association for People with Mental Handicap Maureen Piggot OBE Interim President of Inclusion Europe

Organizers and Speakers Inclusion Europe Geert Freyhoff Camille Latimier Petra Letavayova Olga Radzienczak Local Organizers / Supporters Pancyprian Parents Association for People with Mental Handicap Constantinos Efrem Maria Georgiou Ioanna Irakleous Michalis Louka Committee for the Protection of Rights of People with a Mental Handicap Rea Kakouli Stella Moustaka Playbell Maro Riala Sotiris Xiouros Conference Secretariat -TOP KINISIS Marinela Sofocleous Invited Speakers Ines Boban (Germany) Albert Brandstätter (Austria) Cornelia Broesskamp (United Kingdom) Violetta Christophidou Anastasiadou (Cyprus) Eleni Dimitriou (Cyprus) Andrew Doyle (Scotland) Constantinos Efrem (Cyprus) Ciara Evans (United Kingdom) Christina Flourentzou - Kakouri (Cyprus) Lygia Fysentzides (Cyprus) Chris Gardiner (Czech Republic) Johan Ten Geuzendam (European Commission) Poly Hadjisavva (Cyprus) Senada Halilcevic (Croatia) Ulrich Hellmann (Germany) Andreas Hinz (Germany) Maria Ioannou (Cyprus) Thomas Katsonis (Cyprus)

Invited Speakers Thérèse Kempeneers - Foulon (Belgium) Lefki Kourea (Cyprus) Ioanna Kouvaritaki (Greece) Klaus Lachwitz (Inclusion International) Camille Latimier (Inclusion Europe) Michalis Louka (Cyprus) Xenia Louka (Cyprus) Julie Lunt (United Kingdom) Slavenka Martinovic (Croatia) Andreas Mavroudis (Cyprus) Despina Mertaka (Cyprus) Osamu Nagase (Japan) Christakis Nikolaides (Cyprus) Alex Ouloupis (Cyprus) Krisse Paaskynen (Finland) Savvoula Papamiltiadou Assiotou (Cyprus) Aglaia Parth (Austria) Pavlos Paschalis (Cyprus) Marina Payiatsou (Cyprus) Kakia Peteinou (Cyprus) Eleni Phtiaka (Cyprus) Maureen Piggot OBE (United Kingdom) Rönnerstein Maryanne (Sweden) Stella Moustaka Playbell (Cyprus) Frans A. Scholte (The Netherlands) Antonis Skordilis (Cyprus) Marina Sofocleous (Cyprus) Yiannis Vardakastanis (Greece) Lisa Wimmler (Austria) Sotiris Xiouros (Cyprus) Shirley Young (United Kingdom) Fotini Zafiropoulou (Greece)

Rules of Accessibility and EU Support Each participant of this conference receives a leaflet about the rules for accessible meetings. Three logos (blue, yellow and red) have been used in this programme to represent three levels of accessibility. The speakers have been asked to respect the level of accessibility of their session. All speakers have up to 20 minutes for their presentation. They have all worked hard and we hope it will give all participants an opportunity to fully participate in our annual conference Europe in Action. Please find below the description of each logo. The easy-to-understand logo - Symbols, illustrations and examples in the speeches will help the participants to under stand the topic discussed. - The speakers will speak slowly and without jargon. - The speakers will interact with the audience. - The speakers will know about the cards and will be very careful to respect them (speakers will stop when red cards are raised and slow when they see yellow cards). - There will be more time for questions. The yellow logo - The speakers will speak slowly and will pay attention to the cards raised by participants. - There will be interaction with audience. The red logo There will be no accessibility measures taken in these sessions. This means: - The speaker will not need any support for his/her talk. - The words will probably be very specific and not easy to understand. - The speakers will not have to stop when they see the cards. This conference is supported by the European Commission. It reflects the views only of the authors, and the Commission cannot be held responsible for any use that may be made of the information contained therein. Part of its funding is provided under the European Community Programme for Employment and Social Solidarity (2007-2013). This programme was established to financially support the implementation of the objectives of the European Union in the employment and social affairs area, as set out in the Social Agenda, and thereby contribute to the achievement of the Lisbon Strategy goals in these fields. The seven-year programme targets all stakeholders who can help shape the development of appropriate and effective employment and social legislation and policies across the EU-27, EFTAEEA and EU candidate and pre-candidate countries. PROGRESS mission is to strengthen the EU contribution in support of Member States commitments and efforts to create more and better jobs and to build a more cohesive society. To that effect, PROGRESS will be instrumental in: providing analysis and policy advice on PROGRESS policy areas; monitoring and reporting on the implementation of EU legislationand policies in PROGRESS policy areas; promoting policy transfer, learning and support among Member States on EU objectives and priorities; and relaying the views of the stakeholders and the society at large. For more information see: http://ec.europa.eu/employment_social/progress/index_en.html European Commission

Thursday, 12 May 2011 08:30-09:30 Registration PROGRAM 09:30-11:00 Opening Plenary The role of the UN Convention on the Rights of Persons with Disabilities in building inclusive communities 11:00-11:30 Coffee break Moderator: Stella Moustaka Playbell Plenary Room (EN/GR) Welcome Constantinos Efrem - (Pancyprian Parents Association for People with Mental Handicap) Sotiris Xiouros (Committee for the Protection of the Rights of People with Mental Handicap) Maureen Piggot OBE (Inclusion Europe) Andrew Doyle (European Platform of Self-Advocates) Soteroulla Charalambous - (Minister of Labour and Social Insurance, Cyprus) The role of the UN Convention in building inclusive communities Yannis Vardakastanis - Keynote Speaker (European Disability Forum) A break-through for families: the UN Convention Maureen Piggot OBE (Interim President of Inclusion Europe) Cultural Event (songs of children from the Agios Spiridonas school) 11:30-13:00 Parallel session 1.1 The core concepts of the UN Convention for people with intellectual disabilities: legal capacity, inclusive education and living in the community Moderator: N.N Plenary Room (EN/GR) Legal capacity and supported decision making: their relevance for families Ulrich Hellmann (Lebenshilfe, Germany) Educational policy and practice in the promotion of social inclusion Pavlos Paschalis (Ministry of Education and Culture, Cyprus) 11:30-13:00 Parallel session 1.2 The impact of the UN Convention on persons with intellectual disabilities, their families and their organizations Moderator: Sotiris Xiouros Room: London (EN) General aspects: existing structures and changes needed in Cyprus Christakis Nikolaides (Cyprus Confederation of Organizations of the Disabled) and Constantinos Efrem (Committee for the Protection of the Rights of People with a Mental Handicap ) The experience from the implementation of the UN Convention for the Rights of Children Stella Moustaka Playbell (Committee for the Protection of the Rights of People with a Mental Handicap)

Thursday, 12 May 2011 11:30-13:30 Parallel session 1.3 Monitoring and implementation of the Convention on the Rights of People with Disabilities: challenges at local, national and European levels Moderator: N.N Room: Brussels (EN) The involvement of family organisations in the monitoring of UNCRPD Camille Latimier (Inclusion Europe) The Ombudsman as a competent body for the promotion of principle of equal treatment Despina Mertaka (The Ombudsman Office, Cyprus) 11:30-13:00 Parallel session 1.4 Family action in the implementation of the UN Convention Moderator: N.N Room: Paris (EN) How to make our voice heard: family action and family advocacy (tbc) Brothers and sisters as advocates for inclusion in the community Thérèse Kempeneers-Foulon (ANAHM, Belgium) 13:00-14:00 Lunch 14:00-15:30 Plenary 2 Cooperation to achieve communities for all 15:30-16:00 Coffee break Moderator: Constantinos Efrem Plenary Room (EN/GR) A new emphasis for the social inclusion of people with disabilities: The EU Disability Action Plan Johan Ten Geuzendam (European Commission) Participation of people with intellectual disabilities in political and public life Maureen Piggot (Mencap, UK) Disability policies in Cyprus Christina Flourentzou Kakouri (Department for Social Inclusion of Persons with Disabilities, Cyprus) 16:00-17:30 Parallel session 2.1 The role of Governments in setting frameworks for inclusion Moderator:N.N Plenary Room (EN/GR) The role of the family and social welfare services for the social inclusion of people with intellectual disabilities Savvoula Papamiltiadous Assiotou (Social Welfare services, Cyprus) Living in the community Fotini Zafiropoulou (Greek National Disability Council, Greece)

Thursday, 12 May 2011 The role of Diagnosis and Genetic counselling in the Inclusion of patients with rare diseases. Violetta Christophidou Anastasiadou (Clinical Genetics Dept, Makarios Hospital/ Cyprus Institute of Neurology and Genetics) 16:00-17:30 Parallel session 2.2 The expectations of parents and family members Moderator: Christina Flourentzou Kakouri The expectations of families Xenia Louka (Parent, Cyprus) Parents: the daily routine Eleni Phtiaka (Cyprus University) Room: London (EN) 16:00-17:30 Parallel session 2.3 Practices, resources and requirements of local communities Moderator: N.N. Room: Brussels (EN) Agenda 50: a tool for the implementation of the Convention Maryanne Rönnersten (The Swedish Disability Federation, Sweden) How parents can influence legislation and practices at local level A good practice from Edinburgh Shirley Young, UK 16:00-17:30 General Meeting of the European Platform of Self-Advocates (EPSA) EPSA General Meeting Andrew Doyle (President of EPSA) Room: Paris (EN) 19:00 Reception at Larnaca Castle Welcome by the Mayor of Larnaca Songs by self advocates of Xristou Steliou Ioannou Foundation Friday, 13 May 2011 09:00-10:00 Plenary 3 How can self-advocates contribute to mobilizing inclusive communities Moderator: Sandra Marques Plenary Room (EN/GR) Step into Life Senada Halilcevic (ASA, Croatia) If I could have a chance to decide by myself... Andreas Mavroudis (Christos Stelios Ioannou Foundation, Cyprus) Your community and you Andrew Doyle (Enable ACE Committee, Scotland) 10:00-10:30 Coffee break

Friday, 13 May 2011 10:30-12:00 Parallel session 3.1 What support do we need to live independently and have our own families Moderator: N.N Plenary Room (EN/GR) Home sweet home Krisse Paaskynen (Me Itse ry, Finland) Living independently in the community house Marina Sofocleous (Agios Stefanos Foundation, Cyprus) What support do we need to live independently and have our own families Andrew Doyle (Enable ACE Committee, Scotland) 10:30-12:00 Parallel session 3.2 Organizing professional support for living in the community: challenges and solutions Moderator: Sotiris Xiouros Room: London (EN) The role and social contribution of behavior analysis in the support and training of families of individuals with intellectual disabilities Xanthi Polidorou and Lefki Kourea (European University of Cyprus) Medical care for people with intellectual disabilities in a European perspective F.A. Scholte (European Association of Intellectual Disability Medicine, The Netherlands) Living in the community: a case study Slavenka Martinovic (Association for Promotion Inclusion, Croatia) 10:30-12:00 Parallel session 3.3 Promoting volunteer involvement: examples of good practices Moderator: Kyriakos Stefanou Room: Brussels (GR) Children with Intellectual disabilities have the right to active participation in social life Lygia Fysentzides (Member of the Steering Committee of the Pancyprian Volunteerism Coordinating Council ) (EN Consecutive interpretation) The concept of voluntarism and the expected role in the protection of services towards the citizens with intellectual disability in Cyprus. The case of Theotokos Foundation Thomas Katsonis (Director of Theotokos Foundation, Cyprus) (EN Consecutive interpretation) 10:30-12:00 Parallel session 3.4 The role of media in producing positive images of people with intellectual disabilities Moderator: N.N Room: Paris (EN) Persons with intellectual disabilites and the media. Antonis Skordilis (Journalist, Cyprus) How self advocates can be involved in the media and campaigning Ciara Evans (Mencap, UK) 12:00-14:00 Lunch

Friday, 13 May 2011 14:00-15:30 Plenary 4 Person Centered Planning for living included in society 15:30-16:00 Coffee break Moderator: Albert Brandstätter Plenary Room (EN/GR) Introduction to the project Albert Brandstätter Person Centered Planning the perspective of self-advocates and their assistants Aglaia Parth & Lisa Wimmler Person Centered Planning method, experience, policy Julie Lunt (HSA) EU Project New Paths to Inclusion evaluation, outcomes, perspectives Andreas Hinz (Germany) 16:00-17:30 Parallel session 4.1 Person Centered Planning Moderator: Lisa Wimmler and Aglaia Parth Plenary Room (EN/GR) The perspective of self-advocates and their assistants Lisa Wimmler and Aglaia Parth, WIBS, Austria 16:00-17:30 Parallel session 4.2 Person Centered Planning Moderator: Ines Boban and Andreas Hinz Room: London (EN) New Paths to Inclusion Person Centred Planning as Support for Change of Peoples Situations and Organisations Ines Boban & Andreas Hinz 16:00-17:30 Parallel session 4.3 Person Centered Planning Moderator: Julie Lunt Room: Paris (EN) Person Centered Planning method, experience, policy - Julie Lunt 16:00-18:30 Inclusion Europe Annual General Assembly 2011 Room: Brussels (EN/FR) General Assembly 2011 Maureen Piggot (interim President of Inclusion Europe) 20.30 Gala Dinner at the Palm Beach Hotel (including traditional music and dance)

Saturday, 14 May 2011 09:00-10:30 Parallel session 5.1 Strengthening the family action in the UN Convention Moderator: N.N. Plenary Room (EN/GR) The educational psychology service s role in the empowerment of families according to the UN Convention on the rights of persons with disabilities Alex Ouloupis (Department for Educational Psychology, Ministry of Education and Culture, Cyprus) Expectations of parents and families Cornelia Broesskamp (Parents for Inclusion, UK) 09:00-10:30 Parallel session 5.2 Early intervention for the inclusion for people with intellectual disabilities Moderator: Michalis Louka Room: London (EN) The situation of provision of early intervention services in Cyprus Team of Early Intervention (Committee for the Protection of the Rights of People with a Mental Handicap ) Requirements for successful inclusion at school focus upon sufficient professional evaluations at preschool level Maria Xristopoulou & Kakkia Petinou (European University, Cyprus) 09:00-10:30 Parallel session 5.3 Supporting children rights in Europe Moderator: Kyriakos Stefanou Room: Brussels (EN) Implementation of the Convention on the Rights of the Child for children with intellectual disabilities in Europe the case of Greece Ioanna Kouvaritaki (Greece) Preliminary findings of the research into the implementation of the Convention on the Rights of the Child - Chris Gardiner (Eurochild, Belgium) 09:00-10:30 Parallel session 5.4 Developing coordinated approaches at national, European and International level to build inclusive communities 10:30-11:00 Coffee break Moderator: N.N Room: Paris (EN) Linking local voices to Global Changes Inclusion International s strategies to build inclusive communities Klaus Lachwitz (Inclusion International) Intellectual Disability, the UN Convention and natural disasters the example of Japan - Osamu Nagase (Inclusion Japan)

Saturday, 14 May 2011 11:00-12:30 Closing plenary Summary of the conference Plenary Room (EN/GR) Summary of the conference Moderators team Speech by Member of the European Parliament - Antigoni Papadopoulou Speech by Member of the European Parliament - Hadjigeorgiou Takis Reactions and conclusions for Cyprus Michalis Louka (Pancyprian Parents Association For People With Mental Handicap) Reactions and conclusions on the European level Maureen Piggot (interim President of Inclusion Europe)

Local Sponsors Larnaca Municipality The Association of the friends of Christos Steliou Ioannou foundation Coop Kaimakliou Millimaris Trading House LTD Department of Antiquities Telecommunications instructure is kindly provided by

Cultural events / Presentation Posters Children from Agios Spiridonas school will sing at the Cultural Event on the Welcome Reception Self Advocatates from Xristou Steliou Ioannou Foundation will sing at the Reception Cocktail Posters will be presented at the conference menu: Theotokos Foundation. Dimitri Lagiou Street, P.O Box : 56473, Limassol Iliaktida Daily Center, 28 Troia Street, Aglantzia, Nicosia Prosvasi Daily Center, 3 Lykourgou Street, 3012 Limassol Association for the Welfare of People with Mental Handicap, 22 Agiou Marona Street, Nicosia Vocational Rehabilitation Center, Department for Social Inclusion of Persons with Disabilities, Cyprus, P.O Box 23526, 1680, Nicosia