May Introduction
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- Maude Francis
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1 News from office May 2016 Introduction Main topics in this newsletter Updates in existing modules + Information on urgent patients + Articles of Association - Updates in existing YASWA modules o New parameter in infection serology - Anti-MV IgG (Morbilli virus antibody) o Liver registry New QC o Temporarily of the waiting list for a specified period - NEW Articles of Association - First step - Information on urgent heart, lung and liver patients by SMS and All previous newsletters can be found on the web page Content 1 Introduction and purpose 2 Updates in existing YASWA modules 4 The articles of the Association 5 Urgent patient information on SMS and 5 Purpose By this information letter, we wish to communicate to you about status and progress related to the database, collaboration with groups related to and on-going working projects. We hope that you will read it and share the information with whom it might concern. Do not hesitate to contact us for further information, ideas, problems and help. Aarhus Universitetshospital, Skejby 8200 Aarhus N Denmark 1
2 Morbilli virus antibody Updates in existing YASWA modules New parameter in infection serology - Anti-MV IgG (Morbilli virus antibody) In all infection serology entries donor, recipients and follow up registries anti-mv igg Morbilli virus antibody has been added. Liver registry New QC A new quality control has been added in the database which discloses living liver donor were split usage have not been registered. We urge you to follow up on these missing registrations. Liver LD with no split registration 2
3 Temporarily of the waiting list for a specified period On patients with an active kidney, kidney-pancreas or pancreas waiting list you now have the following possibilities: - When the patient is transplantable -> To set a future temporarily withdrawn date - When the patient is transplantable -> To set a future temporarily withdrawn date in combination with a future re-entry date - When the patient is not transplantable -> To set a future activation data Temporarily withdrawn for a period When the patient is transplantable -> To set a future temporarily withdrawn date You enter a future date in Future Withdrawn from from which the patient will be not transplantable. If you insert 24-may-2016 the status will change at midnight between the 23 rd and 24 th of May. When the patient is transplantable -> To set a future temporarily withdrawn date in combination with a future re-entry date You enter a future date in Future Withdrawn from from which the patient will be not transplantable and you enter a date in Future Withdrawn to: at which date the patient will be active on the waiting list again. 3
4 When the patient is not transplanable -> To set a future activation data You enter a date in Future Withdrawn to: at which date the patient will be active on the waiting list again. (You also need to enter a future date in Future Withdrawn from, however the patient will stay inactice until Future Withdawn to date ) The urgency status WU: Temporarly Withdrawn until will stay unchanged meaning that the patient will be temporarly withdrawn when you save data until the until specified date. The Articles of the Association New articles At the Counsil of representatives meeting May 11, 2016 the revised articles were presented and approved. The major changes being rewriting of the purpose of, changing how the composition of the council is calculated, medical decisions are placed in groups, addition of an article on the office, groups and possibility of associate membership. The new articles are now available on the homepage for all to read: n.pdf 4
5 First step - Information on urgent heart, lung and liver patients by SMS and The office has started working on a solution for sending out information by SMS and mail on urgent heart, lung and liver recipients, instead of fax that is currently used. When a recipient changes status in YASWA to or from urgent an and a SMS is sent to all coordinators that currently receives organ offers. The contains the following recipient information; waiting list type, urgency status change, Scandianumber, age, blood group, gender, weight, height and diagnosis. Example The SMS only contains information on waiting list type and urgency change. Examples: Please know that this is the first step, more information will be included (donor requirements, more recipient information etc.) and you should keep your current solutions running parallel until further notice. 5
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