MOVING, ENGAGED and CONNECTED

Transcription

1 KEEPING PEOPLE MOVING, ENGAGED and CONNECTED 2013 ANNUAL REPORT

2 OUR MISSION We mobilize people and resources to drive research for a cure, and to address the challenges of everyone affected by MS. ~Kent, My family and I decided not to give in, but join the fight against this disease. To us, MS stands for More Strength. diagnosed Defy MS by connecting with people around the world striving to live their best lives on MSconnection.org

3 INSPIRED AND MOBILIZED THROUGH A NATIONWIDE NETWORK Our organization began with a simple act of love. It was 1946, and Sylvia Lawry wanted to find a way to help her brother recover from multiple sclerosis. She went to the experts, bringing together 20 of the nation s most prominent research scientists. That sisterly concern was the beginning of what would become a year later, the National Multiple Sclerosis Society. Today, through a 50-state network of chapters and a collective of passionate people, the Society continues to educate, inspire and empower. Our vision, like Sylvia s, is a world free of MS. That s why we ve made it our mission to mobilize people and resources to drive research for a cure, and to address the challenges of everyone affected by MS. What is Multiple Sclerosis? Simply put, MS is a chronic but unpredictable disease of the central nervous system. It interrupts the flow of information within the brain, and between the brain and the body, often making it difficult for people to move. The progress, severity and symptoms of MS are different for everyone. Symptoms vary, ranging from numbness and tingling to blindness and paralysis. While it is not yet known what causes MS, we have learned more about its impact: MS affects 2.3 million people worldwide. Two to three times more women than men are diagnosed with MS, but in men, the disease often takes a more aggressive course. The Utah-Southern Idaho Chapter (spanning from McCall, Idaho to St. George, Utah) has one of the highest MS incidence rates in the country. We re working to find out why. Get the Society s monthly enews to keep up with breaking news, research developments, and Society programs at nationalmssociety.org/signup 2

4 FACING THE CHALLENGES OF MS Before my diagnosis on October 8th, 2013, I knew nothing about MS. Immediately after learning I had MS, I visited my local National MS Society chapter office and they got me connected with support groups and presentations that were held locally. They gave me videos and materials so that I could help my loved ones have a better understanding of MS. I was also connected with an MS Navigator, a person (more like a partner!) who is there to answer my questions and concerns. What a great resource I have called them on several occasions to sign up for presentations and to receive Momentum magazine. They also connected me to a financial planner that will help us navigate our way through the financial aspects of this disease. I really can t begin to imagine how the last month would ve gone if there hadn t been the National MS Society for me to rely on. I feel fortunate that there is such a great support team at the National MS Society who s working hard to find better treatments and cures while at the same time giving emotional support to those of us with MS. ~Jamie, diagnosed Receive support to navigate the challenges of MS by calling

5 IMPROVING QUALITY OF LIFE The National Multiple Sclerosis Society and the Utah-Southern Idaho Chapter help people affected by MS to make strides by improving their quality of life. We help those living with MS navigate care management, community resources, research, education, referrals and volunteer support. These community efforts also benefit those family members, friends and caregivers who are helping people who live with MS. Research Living with MS has its own set of challenges. Some aspects of life are just always going to be different. With the approval of the 10th disease modifying therapy this fall, I have so many options for treatment. I can honestly say I feel better, my symptoms are more manageable and I have hope for the future. -Stacy, diagnosed 2005 Education August was one of the hardest months of my life, but with support from the Everyday Matters education program provided by the National Multiple Sclerosis Society, I have been able to stop taking two of my mood-enhancing medications! -Michelle, diagnosed 2002 Volunteering Being a Nursing Intern with the National Multiple Sclerosis Society means making a difference in others lives. Before starting my internship I did not know much about MS, the effects of MS, nor the amount of treatment it takes to only control some symptoms. Having seen the amount of work that is put into helping individuals with MS, I am appreciative to be a part of such a dedicated team. This is not just an internship, it is a lifelong involvement. -Hilary, nursing intern Follow us on: Facebook.com/MSutahIdaho 4

6 MAKING STRIDES THAT IMPACT LIVES While there were many outstanding accomplishments in 2013, these three areas earn special recognition: 1 Community Connection 1,412 people attended 80 different programs, including education, emotional health, family, social, physical wellness and professional education. More than 6,700 people with MS have sought services from the Utah-Southern Idaho Chapter. And we ignited 16 college dreams with scholarships totaling $24, Quality of Life 118 people received direct financial support usually in the form of care management to help them remain independent and in their homes or to assist them through a hardship and time of need. Nearly 30% of financial assistance dollars are spent on utilities and housing expenses for people with MS in need. Advances in Research Nationally, people with MS gained an exciting 10th option in disease-modifying medication to help treat relapsing-remitting MS and to slow the progression of disability. The Society is funding 380 of the most promising research projects around the world including several projects right here in our chapter, like the $1.2 million awarded to the University of Utah to head the Pediatric Data and Analysis Center. They will be coordinating data from 10 Pediatric MS Centers of Excellence located throughout the country. 5 For more information on research projects, visit:

7 FUNDRAISING ON THE RISE Community involvement and events reached remarkable levels. We were overwhelmed by the response and results. Walk MS presented by Questar (Utah) and CBH Homes (Idaho) raised more than $500,000 in 2013, the first time we ve reached that level since And that amount was a substantial 12% increase over Bike MS: Harmons Best Dam Bike Ride hit the road with 2,600 participants; 50 of those riders were part of the new I Ride With MS team. The ride raised $1.57 million. Women on the Move presented by the McCarthey Family broke a new record this year. We raised more than $135,000 thanks to the generosity of the 550 women in attendance. Dinner of Champions presented by the McCarthey Family not only brought in nearly $100,000, the event honored the Harmon family, who received the Society s Circle of Distinction award for surpassing $1 million in support. All in all, the community helped raise more than $2.7 million in With 82 cents of every dollar going directly to the cause, we were able to make a difference in the lives of thousands of people living with MS. ~Marianne, I decided the secret to endurance must simply be not indulging in the desire to stop. diagnosed 2001 Participate in a Walk MS, Bike MS, or Do It Yourself event, and ask everyone you to join you. 6

8 FINANCIALS Utah-Southern Idaho Chapter: By the Numbers 4.8% 13.2% 20.5% 15.5% 2.1% TOTAL EXPENSES Programs and Services Research $502,717 Society Activities $396,391 Client Programs $449,504 Community Programs $229,801 Professional Education & Training $51,901 Public Education $381,317 $2,011,631 Supporting Services Fundraising $324,035 Management and General $118,314 $442,349 Total Expense $2,453, % 18.3% 16.2% 7 I am so proud of our team and our community for the tremendous effort and work they put forth to ensure we can keep people with MS at the center of everything we do. Every time I turn around, a new connection is made that helps us extend our reach, spread our dollars further and serve people in a new way. I look forward to building on this momentum in 2014, bringing us just one more step closer to a world free of MS. ~Annette Royle-Mitchell, Chapter President Make a donation of any size in cash, by check or online at nationalmssociety.org/donate

9 The highlight of my year is always meeting and visiting with our supporters volunteers, event participants, team captains, sponsors and donors. Their passion to increase awareness, provide for others and to find a cure drives me to do more and reminds me that we are on the right track. After all, what could be more motivating than knowing we can help just one more person realize they are not alone and that help is available, or provide hope to just one more family by sharing research that is delivering exciting results? Lucky for us, we meet one more person every day. 15.2% 1.7% ~Becky Lyttle, Vice President Community Development STATEMENT OF FINANCIAL POSITION Net Assets, beginning of year $916,893 Change in Net Assets $20,981 Net Assets, end of year $937, % TOTAL REVENUE Special Events Bike MS $1,570,091 Walk MS $528,089 Dinner of Champions $89,500 Women on the Move $135,540 (Benefit to Donor Costs) -$267,353 $2,055,867 Memberships & Contributions Individual contributions $194,849 Corporate contributions $85,637 Foundation gifts & grants $78,500 Other campaign income $16,624 $375,610 Other Revenue Legacies $27,193 Investment income $11,344 Misc. income $4,947 $43,484 Total Revenue $2,474,961 Become part of the MS Activist Network at nationalmssociety.org/msactivist 8

10 OUR ADVOCATES IN THE COMMUNITY 2013 Board of Trustees Title Sponsor Safia Keller, Board Chair Cecil Hedger, Secretary Nicole Lengel, Treasurer Annette Royle-Mitchell, President Presenting Sponsors Richard Baringer, M.D. Tracy Crowell Richard Flint John Foley, M.D. Sarah Foltman Jay Gurmankin Bob Harmon Jeana Hutchings Philip G. McCarthey Gold Sponsors Jordan Needles Todd Oldroyd Irene Petrogeorge Colleen Roberts John Rose, M.D. Ann Sasich Sheila Steiner Danny Velasquez One of our most important missions at Clear Channel Media and Entertainment is to find ways to serve our community. By far the best partnership in that effort was with the National MS Society here in Utah. Taking part in the events and working with professional, dedicated people made our experience in 2013 not only successful, but also very gratifying. Here s a big shout out to the MS team, and we are eager to be involved in 2014! ~Stu Stanek, Regional Market Manager Clear Channel Media + Entertainment, Sponsor 9 Correspond with Chapter President [email protected]

11 WE KEEP PEOPLE MOVING, CONNECTED AND ENGAGED A diagnosis of MS can seem like the loneliest news you ll ever hear. But we want those with MS to know they are not alone. Every day more than 20,000 researchers go to work to create a world free of MS working to stop the disease in its tracks, restore what s been lost, and end MS disease forever. Our commitment to people with MS isn t to just get it done, but to do it NOW with a commitment to raise $250 million for MS research. The National MS Society is dedicated to helping those affected by MS by providing support and resources that make a difference in their quality of life. From social workers to financial assistance, to professional education for health care providers to wellness and education programs, we offer many types of services, assistance and referrals. Your contribution lifts up those with MS right here in Utah and southern Idaho. Generous support makes everyday things affordable, providing assistance with rent, mortgages, utility bills even mobility devices, such as electric scooters, when insurance doesn t provide coverage. Thanks to the generous donations of people in the community and across the nation, we are able to help people with MS and their families lead more independent and fulfilling lives. Thank you for connecting with us. JOIN THE MOVEMENT Participate. Volunteer. Advocate. Donate. MSidaho.org MSutah.org Facebook: MSutahIdaho Remember the Society in your will or estate plan; call Individual Giving at to learn how. 10

12 STOPPING THE DISEASE RESTORING WHAT S BEEN LOST ENDING MS FOREVER STOPPING THE DISEASE RESTORING WHAT S BEEN LOST ENDING MS FOREVER STOPPING THE DISEASE RESTORING WHAT S BEEN LOST ENDING MS FOREVER OUR RESEARCH GOAL: We are a driving force of MS research and treatment to: OUR VISION: A world free of multiple sclerosis OUR RESEARCH FUNDRAISING GOAL: We will raise $250 million for MS research. Locally, our chapter has a goal to contribute over $3.2 million towards that total. STOP: We must stop all disease activity and prevent further progression for people already living with MS RESTORE: We must restore all function that has already been lost to nervous system damage from MS END: We must work to completely eradicate MS and prevent it from ever occurring in the future Contact [email protected] to learn more JOIN THE MOVEMENT Participate. Volunteer. Advocate. Donate. 11 MSidaho.org MSutah.org Facebook: MSutahIdaho