PROGRAM. September 24 & 25, 2014 First Peoples Pavilion, UQAT st Avenue, Val-d Or, Quebec, Canada

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1 PROGRAM September 24 & 25, 2014 First Peoples Pavilion, UQAT st Avenue, Val-d Or, Quebec, Canada This Seminar is intended for: Aboriginal organisations and communities; Researchers, professors and students from UQAT and other institutions; Managers and research practitioners; Anyone interested in the ethics of research with Aboriginal Peoples. For more information, please follow this link:

2 Thanks to our partners Comité d éthique de la recherche Fonds institutionnel de la recherche et de la créa- 2

3 W e l c o m i n g W o r d s I am pleased to welcome you to the Université du Québec en Abitibi- Témiscamingue (UQAT) for this 3 rd Seminar on the Ethics of Research with Aboriginal Peoples. Our institution takes great pride in hosting this event. Among UQAT s main orientations for academic year , research is one of our priority issues and this seminar represents an opportunity to share our expertise in teaching and research with First Peoples. Johanne Jean President, UQAT Furthermore, for a university such as UQAT, partnerships are essential as they allow our institution to grow and raise its international profile. For many years now, our collaboration with First Peoples has been and still is an excellent example of effective partnerships. Reinforcing our partnership with First Peoples will also represent an important part of UQAT s development plan. Indeed, the close relationship between UQAT and Aboriginal peoples allows us to be truly responsive to their needs, while respecting their culture and specificities. I wish you a good seminar filled with fruitful discussions and discoveries. Johanne Jean, President, UQAT It is with great pleasure that the organizing committee of the 3 rd seminar on the Ethics of Research with Aboriginal Peoples is welcoming you today. Hugo Asselin Chair of the Organizing Committee In addition to examining existing tools in research management, the seminar will discuss approaches that should be adopted to respect the aspirations of Aboriginal communities and organizations with regard to research involving them. This seminar is also aimed at further studying the notion of data ownership and the implications of respecting this research principle that remains misunderstood and misconstrued and that may lead to unequal and strained relations between Aboriginal peoples and researchers. Another objective is to present inspiring examples and case studies and their challenges as well as the analysis, approval, involvement and management procedures preferred by Aboriginal peoples in research. We wish you a great seminar! The Organizing Committee 3

4 P r o g r a m September 24, :00 am to 6:00 pm 8:45 am to 9:00 am Registration (Main Entrance) 9:00 am to 9:10 am Opening Ceremony - Marguerite Mowatt-Gaudreau (MR) 9:10 am to 9:20 am Welcoming Word - Vincent Rousson, Director, UQAT Val-d Or Campus 9:20 am to 10:30 am Opening Presentation Ethics as Ceremony (EN) by Bonnie Healy Alberta First Nations Information Governance Centre (AFNIGC) 10:30 am to 10:45 am Break 10:45 am to 12:00 am Workshops Workshop A Multipurpose Room (MR) Workshop B 1208 Talking Like White People (EN) Marc Stevenson Principal All Nations Services Consulting The Role of Native Studies Programs in Decolonizing Knowledge and Research (FR) Nathalie Kermoal Associate Dean (Academic) Faculty of Native Studies University of Alberta 12:00 pm to 1:15 pm Lunch (on site) 1:15 pm to 2:30 pm Workshops Workshop A (MR) Workshop B 1205 Listening to Mishtamek u (FR) Louise Lachapelle Jeanne-d Arc Vollant Co-directors Mamu minu-tutamutau Don t be afraid to think small : Engaged Acclimatization as a Research Principle in Aboriginal Context (FR) Caroline Desbiens Professor Department of Geography Université Laval 2:30 pm to 3:00 pm Break 3:00 pm to 4:00 pm Visit of the Resources Gathering - (Agora) 4:00 pm to 6:00 pm 4 to 6, Social Event and Book Launch: Toolbox of Principles for Research in Indigenous Contexts: Ethics, Respect, Equity, Reciprocity, Cooperation and Culture - (Agora) 4

5 September 25, :00 am to 4:45 pm 9:00 am to 9:10 am Welcoming Word and Presentation of the Activities for the Day (MR) 9:10 am to 10:30 am Plenary Presentation From Principles to Practice : Indigenizing Research Ethics for Research Involving Aboriginal Peoples (EN) by Julie Bull, Independent Consultant 10:30 am to 10:45 am Break and Visit of the Resources Gathering (Agora) 10:45 am to 12:00 am Workshops Workshop A (MR) Sharing Knowledge/Sharing Experience. Seeking a Better Balance Between Actors in Research Partnerships. Case Study of a Collaborative Research Mashteuiatsh, Kitigan Zibi, Université de Montreal (FR) Élise Dubuc Associate professor Université de Montréal Bibiane Courtois Co-researcher Coordinator of the community, Mashteuiasth Name to be confirmed Kitigan Zibi Workshop B 3202A Decolonising Research While Respecting Rights of Researchers (FR) Murielle Nagy Consultant - Anthropology and archeology Editor, Journal Études/Inuit/Studies Université Laval 12:00 pm to 1:15 pm Lunch (on site) 1:15 pm to 2:30 pm Workshops Workshop A (MR) Defining a Research Stance, an Ethics of Commitment: Narrative of an Experience With the Uashat Mak Mani- Utenam Innus (FR) Christiane Guay Professor Department of Social Work Université du Québec en Outaouais Workshop B 3202A Participatory Research: To Respect the Community (FR) Paula Bush, PhD Postdoctoral Fellow, Participatory Researchl Department of Family Medicine McGill University 2:30 pm to 3:00 pm Break and Visit of the Resources Gathering (Agora) 3:00 pm to 4:30 pm Seminar recap by Carole Lévesque, DIALOG Network, Institut national de la recherche scientifique (INRS) 4:30 pm to 4:40 pm Closing Word - Hugo Asselin *A French-English interpretation service will be available in the MR (Multipurpose Room) only. 5

6 SEPTEMBER 24, 2014 (AM) 9:00 Opening Presentation - Multipurpose Room (MR) Bonnie Healy, Operations Manager Alberta First Nations Information Governance Centre (AFNIGC) bhealy@afnigc.ca Ethics as Ceremony First Nations have had a long history of being studied and have not been given the opportunity to be active participants in research. In 2010 the Alberta First Nations Information Governance Centre (AFNIGC) began a journey to do culturally-based participatory research. The Regional Health Survey (RHS) is a national initiative by the First Nations Information Governance Centre (FNIGC) but is a community-driven process managed by regional partners. It is a study by First Nations, for First Nations that examines the health and wellness of First Nations on reserve. A large part of the mandate for this research revolves around the concept of OCAP (Ownership, Control, Access and Possession). Further to this, we also propose that research must be respectful of the First Nations Worldview. We have our own ways of knowledge transfer that happen at the community level. While many believe that our worldview and the Western Worldview have a common intersection we propose that the two worldviews are different. There is no need for an intersection point in order for valid, respectful research to occur. Cultural interpretation and traditional oral practices breathe life into the OCAP of First Nations research and data management. This cultural view speaks from a place of negotiating ethical space as ceremony where oral implementation practices are paralleled from ceremony to the boardroom. Our presentation will explain how we have put this concept into practice. 6

7 Workshop A - Multipurpose Room (MR) SEPTEMBER 24, 2014 (AM) Marc Stevenson, Principal All Nations Services Consulting marcgstevenson@gmail.com Talking Like White People In their engagement with First Nations and other Aboriginal communities, researchers from many academic disciplines continue to use and employ uncritically language and concepts originating within their own cultural frame of reference. Schooled in the western scientific tradition, and privileged by positions of power and authority of which they are largely unaware, academic researchers frequently mute the voice of Aboriginal peoples and marginalize their knowledge contributions, thereby effectively undermining the roles they might play in developing solutions to the issues and challenges they face. Nowhere is this more evident and prevalent than in environmental regulatory processes and institutional frameworks (e.g., environmental assessment, comanagement, sustainable resource development, etc.). Drawing on the presenter's experience in comanagement and traditional knowledge integration across Canada's North, this presentation will, with a few well aimed arrows, demonstrate how seemingly well-meaning and intentioned researchers (and their methodologies) adversely impact Aboriginal peoples, cultures and societies. Not only must researchers be far more self-critical of the language and concepts they use in their engagements with Aboriginal peoples, they have an ethical obligation to inform Aboriginal peoples with whom they engage of the pitfalls of relying on dominant and foreign ideologies to express their knowledge, values, understandings, and worldviews. To claim or champion the notion that Aboriginal peoples traditionally managed and conserved resources, to focus on managing and conserving resources and landscapes, etc., to the exclusion of relationships, does everyone a disservice. As a way to assist in creating the ethical space for Aboriginal peoples and their knowledge contributions to environmental assessment and protection, the concept of valued ecosystem relationship (VER) is introduced and discussed. Worshop B - Room 1208 SEPTEMBER 24, 2014 (AM) Nathalie Kermoal, Associate Dean Academic Faculty of Native Studies, University of Alberta nkermoal@ualberta.ca The Role of Native Studies Programs in Decolonizing Knowledge and Research Over the past few years, the relation between Aboriginal people and researchers has been changing. This is at least what the codes of ethics imposed by universities are suggesting. We gradually went from a relation where researchers were conducting research on Aboriginal people without really being concerned about sharing the results with the concerned communities to a research respectful of the people who participate in it. But, is that enough? For research ethics to be effective, doesn t it also need to go through the decolonisation of knowledge in the academic community? In our presentation, we will share a few thoughts on the importance of Native studies programs in universities to foster the decolonisation of knowledge and, ultimately, of research. 7

8 Workshop A - Multipurpose Room (MR) SEPTEMBER 24, 2014 (PM) Louise Lachapelle et Jeanne-d Arc Vollant, Co-directors Mamu minu-tutamutau lachapelle.louise@acces.com Listening to Mishtamek u As part of its collaborative ethics approach, Mamu minu-tutamutau develops a process that raises the question: How can we do well together? from the perspective of the various partners. We recently collaborated in conducting the empowerment and collaborative ethics evaluation process of UQAC s Design and Material Culture program (UQAC). In this experience, we gave preference to a collaborative and performative approach to evaluation. Several field activities were planned under the guidance of Aboriginal community actors and co-researchers involved in the projects carried out in Uashat mak Mani-Utenam and on the Atikamekw territory. Our presentation will highlight certain issues and challenges proper to evaluation in a context of collaborative research in Aboriginal communities. What conditions support the realisation of a critical and mutually beneficial multi-voice report, rather than a success story told by academics only and intended to funding agencies? Worshop B - Room 1205 SEPTEMBER 24, 2014 (PM) Caroline Desbiens, Professor Department of Geography, Université Laval Caroline.Desbiens@ggr.ulaval.ca Don t Be Afraid to Think Small : Engaged Acclimatization as a Research Principle in Aboriginal Context In an article published in 2012, Grimwood et al.* propose the concept of engaged acclimatization to describe a participatory research approach that is gradual, highly practical and based on the step-by-step development of a research relationship in which university and community partners find a mutual interest in pooling their efforts. We tested this approach in the research project called Tshishipiminu: occupation ilnu de la rivière Péribonka et développement hydroélectrique (Tshishipiminu: Ilnu occupation of the Péribonka River and hydro development). Upon first contact, the partners (Ilnu Heritage Committee of Pekuakamiulnuatsh Takuhikan and Université Laval) discussed the nature and scope of data collection and concluded that contrary to the academic trend whereby research projects are subject to inflation in terms of both team size and money they should not be afraid of questioning this line of thought and thinking small. It appeared that, in order to adopt an ethical approach, the usual order had to be reversed by starting with an applied research which, if the partnership relation proved to be satisfactory, could eventually open up to a fundamental research of a broader scope. Furthermore, the idea was to reduce the team of researchers while seeking to increase the number of people that would benefit from the project outcome. In order to implement these premises, the partners decided to organise an exhibition (in the form of information panels) within a short period of time, i.e. within two years. The objective was to produce and quickly disseminate a number of preliminary results and, on the basis of the comments and feedback provided by the community members, to identify the project s next steps. This process allowed us clarifying the roles of the different actors involved in the research (academic and community researchers, knowledge holders, heritage specialists, managers, linguists, archivist, museologist, cartographer, etc.) in order to define and consolidate the best possible structure possible to pursue the partnership. This paper will present our experience and identify and describe the practices that proved effective in terms of both the scientific quality of the results and the development of an ethical partnership. * GRIMWOOD, Brian, Nancy DOUBLEDAY, Gita LAIDLER, Shawn DONALDSON, Sylvie BLANGY, Engaged acclimatization: Towards responsible community-based research in Nunavut. The Canadian Geographer / Le géographe canadien 56.2 (2012): p

9 9:00 Plenary Presentation - Multipurpose Room (MR) SEPTEMBER 25, 2014 (AM) à 10:30 Julie Bull, Independant Consultant julierbull@gmail.com From Principles to Practice: Indigenizing Research Ethics for Research Involving Aboriginal People As Indigenous people and communities assume greater control over research conducted in their communities, a number of highly effective principles and approaches have been developed to ensure that research is built on the foundations of respect, relevance, reciprocity, and responsibility. A set of principles called OCAP (Ownership, Control, Access, and Possession) and community-based participatory-action research are among the approaches most widely accepted and utilized by Indigenous communities. These, coupled with policy from the Tri-Council Policy Statement for Research Involving Humans (TCPS-2) provide an avenue by which researchers navigate the research ethics review system. This presentation will examine the use and uptake of the TCPS Chapter 9 and the OCAP principles while providing a framework by which to conduct meaningful research involving Indigenous people. By focusing on a holistic method with self-determination at the core, this presentation will illustrate how to implement the principles into practice. 9

10 Worshop A - Multipurpose Room (MR) SEPTEMBER 25, 2014 (AM) Élise Dubuc, Associate professor, Université de Montréal elise.dubuc@umontreal.ca Bibiane Courtois, Co-researcher, Coordinator of the community, Mashteuiatsh Name to be confirmed, Kitigan Zibi Sharing Knowledge/Sharing Experience. Seeking a Better Balance Between Actors in Research Partnerships. Case Study of a Collaborative Research Mashteuiatsh, Kitigan Zibi, Université de Montréal. Partnership-based research projects funded by the Social Sciences and Humanities Research Council (SSHRC) started in A first collaboration component had been integrated in the projects of the Community-University Research Alliances (CURA). CURA was proposing a new partnership arrangement, inviting universities to open up to the world and to get involved in their society, taking into consideration the needs and expertise of other social actors. Collaboration with Aboriginal communities was raising the issue of decolonisation of research and a repositioning of the actors involved. In light of our Tshiue natuapahtetau Kigibiwewidon project on the reappropriation of Aboriginal heritage by the communities, we will identify the new opportunities thus offered and we will examine certain obstacles to change. We will also ask ourselves if the change in the terms, from research alliance to partnership, is a sign that practices are evolving. Workshop B - Room 3202A SEPTEMBER 25, 2014 (AM) Murielle Nagy, Consultant Anthropology and Archeology Editor, Journal Études/Inuit/Studies, Université Laval muriellenagy@sympatico.ca Decolonising Research While Respecting the Rights of Researchers In 2007, the Assembly of First Nations of Canada endorsed Brian Schnarch s (2004) article on the OCAP principles (Ownership, Control, Access, and Possession). The OCAP principles are now included in many research protocols of Canada s Aboriginal peoples. Most researchers probably agree with the OCAP principles as long as they also respect their own rights. This is why research agreements should be negotiated before a project starts so that the rights of all parties are protected. Schnarch recognises that there could be problems with the stipulation that Aboriginal communities review final reports or manuscripts before publication. The possibility of censorship is by far the more important one as it means loss of intellectual freedom, fewer publications, and more obstacles to academic promotion and continued research funding. 10

11 Worshop A - Multipurpose Room (MR) SEPTEMBER 25, 2014 (PM) Christiane Guay, Professor Department of Social Work, Université du Québec en Outaouais christiane.guay@uqo.ca Defining a Research Stance, an Ethics of Commitment: Narrative of an Experience with the Uashat mak Mani-Utenam Innus Social work is a profession and a discipline whose ultimate purpose is social justice and the elimination of all forms of oppression and exploitation within society. Now, Aboriginal people in Canada and Québec have been and are still subject to ethnocentric and discriminatory practices from social workers. Today, like many Aboriginal communities, the Innu people of Uashat mak Mani-Utenam are concerned with the overrepresentation of their children in the youth protection system and the significant number of children taken away from their community and adopted or placed in foster families. This is the context in which a research partnership on Innu governance in youth protection was developed, which is aimed at promoting the Innu cultural practices in matters of education, adoption and healing on the territory. In our account of this research experience, we will emphasise the importance of an epistemological and methodological reflection and the scope of the ethical commitment in research on social work in Aboriginal communities. Workshop B - Room 3202A SEPTEMBER 25, 2014 (PM) Paula Bush, Postdoctoral Fellow, Participatory Research Department of Family Medicine, Université McGill paula.bush@mcgill.ca Participatory Research: To Respect the Community This workshop will start with a discussion on participatory research: What is it? Who does it? How is it done? What are the advantages? Then, we will work in subgroups to explore how participatory research is conducted, starting with the definition of the research question, up to the results implementation and dissemination. We will discuss potential difficulties that may occur and explore various ways to address them. Case studies will be presented to feed the discussions. Several useful tools for participatory research will also be presented. 11

12 Resources Gathering GUEST Patricia Montambault Research Agent, First Nations of Quebec and Labrador Health and Social Services Commission (FNQLHSSC) Johanne Ottereyes Political and Legal Analyst Quebec Native Women Élisabeth Kaine Professor Université du Québec à Chicoutimi (UQAC) Director of La Boîte Rouge vif Director of «Design et Culture Matérielle» Research Team Karine Gentelet, Ph.D. Indigenous People and Governance Centre de recherche en droit public Faculté de droit, Université de Montréal Marie Léger Co-author Élisabeth Patterson Attorney, Partner Dionne Schulze s.e.n.c Marc Jetten Executive Secretary James Bay Advisory Committee on the Environment TOOL PRESENTED First Nations of Quebec and Labrador Research Protocol Guidelines for Research with Aboriginal Women The Small Guide of Great Dialogue: Cultural Development by and for Communities Toolbox of Principles for Research in Indigenous Contexts: Ethics, Respect, Equity, Reciprocity, Collaboration and Culture Indigenous Women of America: Methodological and Conceptual Guidelines to Confront Situations of Multiple Discrimination Examples of agreements between researchers and First Nation communities, in order to protect data, intellectual property and Aboriginal knowledge and promote collaborative research Workshop on Acquisition and Dissemination of Environmental and Social Knowledge on the Eeyou Istchee-James Bay Territory 12

13 Members of Organizing Committee, Follow-up Committee and Administrative Support Organizing Committee Hugo Asselin Professor, Canada Research Chair in Aboriginal Forestry, Department of Humanities and Social Development, UQAT Suzy Basile Aboriginal Project Manager, UQAT Manon Champagne Professor, Department of Health Sciences President, Chair of the UQAT Research Ethics Committee (REC) UQAT Follow-up Committee Saïd Bergheul Professor, Department of Humanities and Social Development REC -UQAT member Anaïs Lacasse Professor, Department of Health Sciences REC-UQAT member Marguerite Mowatt-Gaudreau REC-UQAT member representing Aboriginal Peoples Administrative Support Brenda Boileau-Thériault, Myriam Trudel, France Gouin Executives secretaries, Val-d Or Campus, UQAT Maryse Delisle Research Management Advisor, UQAT Nancy Labonté, Executive secretary, Office of the Vice-Rector for Teaching and Research, UQAT 13

14 Aéroport VAL-D OR - RESTAURANTS NEARBY CAMPUS Terminus UQAT Hôtel Forestel In closeness order Adress Phone number Web Pacini 653, 3 e Avenue (819) Restaurant Valentine 777, 3 e Avenue (819) L avantage Bar Terrasse 576, 3 e Avenue (819) Micro-brasserie Le Prospecteur 585, 3 e Avenue (819) Restaurant Windsor 802, 2 e Avenue (819) Brasserie Le Pub 816, 2 e Avenue (819) Tim Hortons 1126, 7 e Rue (819) Restaurant McDonald s 818, 3 e Avenue (819) Balthazar Café 851, 3 e Avenue (819) lecanape.ca/clients/balthazarcafe/ 14